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World J Hepatol. May 27, 2022; 14(5): 896-910
Published online May 27, 2022. doi: 10.4254/wjh.v14.i5.896
Saving time and effort: Best practice for adapting existing patient-reported outcome measures in hepatology
Laith Alrubaiy, Hayley A Hutchings, Sarah E Hughes, Thomas Dobbs
Laith Alrubaiy, Department of Gastroenterology, St Mark's Hospital, London HA1 3UJ, United Kingdom
Hayley A Hutchings, Institute of Life Sciences 2, Swansea University Medical School, Singleton Park, Swansea SA2 8PP, United Kingdom
Sarah E Hughes, Swansea University Medical School, Swansea University, Swansea SA2 8PP, United Kingdom
Sarah E Hughes, Centre for Patient Reported Outcome Research, Institute of Applied Health Research, University of Birmingham, Birmingham B15 2TT, United Kingdom
Thomas Dobbs, Swansea University, Swansea SA2 8PP, United Kingdom
Author contributions: Alrubaiy L and Hutchings HA contributed to the literature search, review of the articles and the writing of the manuscript; Dobbs T and Hughes S contributed to the writing of the article and evaluating the included articles; all authors have made a significant contribution to the manuscript and have approved the final submitted version.
Conflict-of-interest statement: There is no conflict of interest.
Open-Access: This article is an open-access article that was selected by an in-house editor and fully peer-reviewed by external reviewers. It is distributed in accordance with the Creative Commons Attribution NonCommercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: https://creativecommons.org/Licenses/by-nc/4.0/
Corresponding author: Laith Alrubaiy, FRCP, PhD, Consultant Physician-Scientist, Department of Gastroenterology, St Mark's Hospital, Watford Road, London HA1 3UJ, United Kingdom. laithalrubaiy@gmail.com
Received: February 24, 2021
Peer-review started: February 24, 2021
First decision: June 15, 2021
Revised: June 29, 2021
Accepted: April 8, 2022
Article in press: April 8, 2022
Published online: May 27, 2022
Processing time: 453 Days and 15.3 Hours
Core Tip

Core Tip: In the last few years, there has been a rapid increase in the number of patient-reported outcome measures (PROMs) in hepatology and, therefore, the choice between which of these PROMs to use can be difficult. This paper aims to illustrate ways of identifying existing PROMs and outlines key considerations and good practice with respect to their adaptation in clinical practice or research in hepatology.