Assessment of disease specific knowledge and health-related quality of life among United States military veterans with inflammatory bowel disease

Table 1 Demographic features and their association with patient knowledge (Crohn’s and Colitis knowledge score)

		CCKNOW score, mean ± SD	P value
Total	101%	11.5 ± 5.2
Gender			0.06
Female	9%	14.8 ± 3.2
Male	91%	11.2 ± 5.2
Race			0.02
Caucasian	33.70%	12.5 ± 5.2
Non-caucasian	66.30%	9.6 ± 4.7
Age at diagnosis (yr)			< 0.01
< 17	1%	14 ± 0.0
17-40	56.4%	13.1 ± 4.8
> 40	42.6%	9.2 ± 7.8
Level of education			0.07
No college	65%	10.7 ± 4.1
College/ post-graduate	35%	13.5 ± 5.4

CCKNOW: Crohn’s and Colitis knowledge score.

Table 2 Inflammatory bowel disease characteristics and their association with patient knowledge (Crohn’s and Colitis knowledge score)

Characteristics		CCKNOW Score, mean ± SD	P value
Disease duration (yr)			0.02
< 5	37.6%	9.9 ± 5.2
≥ 5	62.4%	12.5 ± 4.9
Type of IBD			< 0.01
UC	48.5%	10.2 ± 4.7
CD	42.6%	13.6 ± 5.0
IBDU	8.9%	8.8 ± 5.9
UC location			0.53
Proctitis	18.4%	9.5 ± 2.9
Left colon	22.4%	9.8 ± 5.5
Pancolitis	53.1%	11.1 ± 4.9
NA	6.1%	7 ± 2.7
CD location			0.92
Proximal	0	-
Ileal	21%	13.1 ± 2.6
Ileocolonic	58%	13.9 ± 5.2
Colonic	21%	13.4 ± 6.6
Family history of IBD			0.69
Yes	14.9%	12.6 ± 5.9
No	80.1%	11.3 ± 5.1
Unknown/adopted	5%	10.7 ± 5.8
Tobacco			0.14
Never	39.6%	12.6 ± 4.9
Current	18.8%	12.1 ± 5.8
Quit	41.6%	10.2 ± 4.9
IBD-related Hospitalizations			0.23
0	62.4%	11 ± 5.2
≥ 1	37.6%	12.4 ± 5.1
Previous IBD-related surgeries			0.02
0	65.3%	10.5 ± 5.0
≥ 1	34.7%	13.3 ± 5.1

CCKNOW: Crohn’s and Colitis knowledge score; SD: Standard deviation; IBD: Inflammatory bowel disease; UC: Ulcerative colitis; CD: Crohn’s disease; IBDU: Inflammatory bowel disease unclassified.

Table 3 Inflammatory bowel disease characteristics and Crohn’s and Colitis knowledge score sub-domains

Characteristics	General knowledge	SD	P value	Diet	SD	P value	Treatment	SD	P value	Complications	SD	P value
Gender			0.09			0.06			0.56			0.04
Male	43%	20.39		45.15%	23.51		25.47%	20.43		29.56%	19.25
Female	55.47%	10.47		61.11%	33.33		29.63%	20.03		43.75%	12.40
Race			0.03			0.26			0.28			0.08
Caucasian	47.34%	20.00		48.51%	24.57		27.44%	21.13		33.33%	20.81
Non-caucasian	37.5%	18.64		42.65%	25.02		22.73%	18.55		26.04%	14.63
Education			0.10			< 0.01			0.48			0.15
No college	39.54%	15.52		41.18%	19.35		26.26%	20.85		31.25%	15.70
College/post-graduate	48.75%	21.16		58.33%	19.17		30.56%	20.00		40%	25.04
IBD type			< 0.01			0.52			0.15			0.17
UC	39.49%	17.67		45.92%	22.45		20.92%	19.64		28.03%	18.89
CD	51.92%	19.88		45.35%	28.48		30.49%	20.38		35%	19.17
IBDU	31.25%	20.59		55.56%	16.67		20.37%	21.70		25%	23.57

CCKNOW: Crohn’s and Colitis Knowledge score; SD: Standard deviation; IBD: Inflammatory bowel disease; UC: Ulcerative colitis; CD: Crohn’s disease; IBDU: Inflammatory bowel disease type unclassified.