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Urbina-Garcia A. Parents' wellbeing: perceptions of happiness and challenges in parenthood in Latin America. Int J Qual Stud Health Well-being 2025; 20:2454518. [PMID: 39833989 PMCID: PMC11753012 DOI: 10.1080/17482631.2025.2454518] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 08/02/2024] [Accepted: 01/08/2025] [Indexed: 01/22/2025] Open
Abstract
INTRODUCTION Traditional research on parenthood and wellbeing often employs a positivist perspective and focuses on non-LA samples -limiting our knowledge and understanding of the influence of cultural components such as Machismo and Marianismo, have in parents' wellbeing. This study explored how Latin American (LA) parents' wellbeing is influenced by parenthood in a culture strongly influenced by such gender-based perspectives. METHODS An interpretative perspective was employed to qualitatively explore fifteen LA parents' lived experiences and data were analysed via Thematic Analysis. The American Psychological Association's Journal Article Reporting Standards for Qualitative Research (JARS-Qual), was followed to compile this paper. RESULTS Results showed that socio-economic factors such as crime, violence, and economic inequality, negatively influence parents' wellbeing -emotions experienced and life satisfaction. DISCUSSION Parents find joy in sharing own personal experiences with their children and passing on gender-based models. However, parents perceive family pressure as a "burden" when expected to follow principles of Machismo/Marianismo. Similar to Asian, but unlike European parents, LA parents experience a mixture of positive and negative emotions whilst parenting -shaped by Machismo and Marianismo. This study makes a unique contribution by uncovering the unique influence of LA socio-economic challenges and cultural impositions and expectations and its influence on parental wellbeing.
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Tsybuliak N, Popova A, Lopatina H, Suchikova Y. Mental health of Ukrainian researchers during wartime. Glob Public Health 2025; 20:2495328. [PMID: 40257856 DOI: 10.1080/17441692.2025.2495328] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 02/09/2025] [Accepted: 04/13/2025] [Indexed: 04/23/2025]
Abstract
The full-scale war in Ukraine has introduced unique challenges for researchers, including physical displacement, destruction of research infrastructure, and deteriorating working conditions. This qualitative study investigates the impact of the ongoing war on the mental health and academic functioning of Ukrainian researchers. Based on 30 semi-structured interviews conducted between February and April 2024, the study reveals pronounced psychological consequences, including stress, anxiety, burnout, and feelings of isolation. Academically, researchers reported significant disruptions in research productivity, loss of professional networks, and diminished institutional support. Three critical areas of impact were identified: (1) the deterioration of working conditions and researcher well-being, (2) the fragmentation of academic communities and networks, and (3) restricted access to research resources and support. Despite these challenges, many researchers demonstrated resilience by adapting to remote work, forming new international collaborations, and finding renewed purpose in contributing to Ukraine's recovery through science. The findings underscore the urgent need for comprehensive, multilevel support systems that include mental health services, financial and infrastructural assistance, and initiatives to restore academic belonging. These insights are essential for developing responsive strategies to support academic communities in crisis settings globally.
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Affiliation(s)
- Natalia Tsybuliak
- Department of Applied Psychology and Speech Therapy, Berdyansk State Pedagogical University, Zaporizhzhia, Ukraine
| | - Anastasia Popova
- Department of Applied Psychology and Speech Therapy, Berdyansk State Pedagogical University, Zaporizhzhia, Ukraine
| | - Hanna Lopatina
- Department of Applied Psychology and Speech Therapy, Berdyansk State Pedagogical University, Zaporizhzhia, Ukraine
| | - Yana Suchikova
- Department of Applied Psychology and Speech Therapy, Berdyansk State Pedagogical University, Zaporizhzhia, Ukraine
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Veth VB, Keukens A, Schreurs AMF, Bongers MY, Mijatovic V, Maas JWM. Patient preference for treatment of an endometrioma, a qualitative study. Eur J Obstet Gynecol Reprod Biol 2025; 310:113999. [PMID: 40288047 DOI: 10.1016/j.ejogrb.2025.113999] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 12/11/2024] [Revised: 02/20/2025] [Accepted: 04/21/2025] [Indexed: 04/29/2025]
Abstract
OBJECTIVE The aim of this qualitative study was to identify considerations, objections, and preferences of women with symptomatic ovarian endometrioma in the shared decision-making process. DESIGN This study was conducted as a qualitative study, including twenty patients facing or faced therapeutic treatment options for an ovarian endometrioma. SETTING Four focus groups were held between February 2020 and June 2021 in the Netherlands. Two of them were held online due to COVID-19 pandemic. POPULATION A qualitative study was performed using semi-structured in-depth focus group methodology. All women, aged 27-44 years, suffered from pain. METHODS The focus groups were audio recorded and fully transcribed using ATLAS-ti. Grounded theory methodology was applied for data analysis. MAIN OUTCOME MEASURES Outcome measure includes the most important aspects during decision-making process for patients facing or faced therapeutic treatment options for an ovarian endometrioma. RESULTS A total of twenty Dutch women with an ovarian endometrioma were included. Participants named "relief of pain", "fertility", "adverse effects or surgical complications", "recurrence of pain and lesions", and "time untill treatment effect occurs" as most important aspects during their decision-making process. In addition, women often felt "unheard", so more attention should be paid to symptoms of endometriosis. CONCLUSION Participants named "relief of pain", "fertility", "adverse effects or complications", "recurrence of pain and lesions", and "time untill treatment effect occurs" as most important aspects during their decision-making process.
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Affiliation(s)
- V B Veth
- Department of Obstetrics & Gynaecology, Máxima Medical Center, Veldhoven, The Netherlands; Grow - Research Institute for Oncology and Reproduction, Maastricht University, Maastricht, The Netherlands.
| | - A Keukens
- Grow - Research Institute for Oncology and Reproduction, Maastricht University, Maastricht, The Netherlands
| | - A M F Schreurs
- Amsterdam UMC, Vrije Universiteit Amsterdam, Department of Gynaecology and Reproductive Medicine, Endometriosis Center, Amsterdam, The Netherlands
| | - M Y Bongers
- Department of Obstetrics & Gynaecology, Máxima Medical Center, Veldhoven, The Netherlands; Grow - Research Institute for Oncology and Reproduction, Maastricht University, Maastricht, The Netherlands; Department of Obstetrics & Gynaecology, Maastricht University Medical Center (MUMC+), Maastricht, The Netherlands
| | - V Mijatovic
- Amsterdam UMC, Vrije Universiteit Amsterdam, Department of Gynaecology and Reproductive Medicine, Endometriosis Center, Amsterdam, The Netherlands
| | - J W M Maas
- Grow - Research Institute for Oncology and Reproduction, Maastricht University, Maastricht, The Netherlands; Department of Obstetrics & Gynaecology, Maastricht University Medical Center (MUMC+), Maastricht, The Netherlands
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Zink M, Wendsche J, Riedel-Heller SG, Jung F, Melzer M. Organizational interventions and strategies for COVID-19 pandemic management in acute care setting: A qualitative interview study with nurse leaders in German hospitals. INTERNATIONAL JOURNAL OF NURSING STUDIES ADVANCES 2025; 8:100336. [PMID: 40420996 PMCID: PMC12104714 DOI: 10.1016/j.ijnsa.2025.100336] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Download PDF] [Figures] [Journal Information] [Subscribe] [Scholar Register] [Received: 11/19/2024] [Revised: 03/27/2025] [Accepted: 04/25/2025] [Indexed: 05/28/2025] Open
Abstract
Background The rapid spread of SARS-CoV-2 in 2020 exposed unprepared healthcare systems worldwide. In Germany, acute care hospitals faced significant challenges, particularly in organizing adequate personal protective equipment, managing high mortality rates, and accommodating extended hospitalization of patients with COVID-19. Objective This study aimed to explore the perspectives of nurse leaders on organizational interventions and strategies implemented in hospitals to address pandemic-associated challenges and derive knowledge for future crises. Design A qualitative descriptive study was conducted between July 2022 and June 2023, utilizing semi-structured interviews with nurse leaders across different management levels (strategic, middle, and operative management) in hospitals in Saxony, Germany. Setting This study was conducted in hospitals across Saxony, Germany. Participants The study included 30 nurse leaders from nine different hospitals, representing a diverse sample in terms of hospital characteristics (ownership, hospital size, regional distribution, and level of care) and participant demographics. Methods Data were collected through semi-structured interviews, transcribed, and analyzed using qualitative content analysis in MAXQDA. Results Eight strategies were identified (four core and four secondary) with various corresponding interventions that hospitals used to manage the pandemic, including infection control, adaptation of hospital capacities, human resource management, direct patient care delivery, management of the provision of non-COVID-19 care, transparent organization of the flow of information and decision-making, cooperation and teamwork, and evaluation and flexible adaptation. This study highlights the importance of flexibility, creativity, internal and external support, leadership, crisis communication, participatory decision-making, evaluation, and error management in crisis management. Conclusion This study provides a comprehensive documentation of hospital pandemic management from the perspective of nurse leaders, offering a basis for future research and practice. Effective hospital pandemic management requires a flexible, context-specific approach supported by strong leadership, internal and external support, and participatory processes. These findings emphasize the need for ongoing evaluation during crises and for a culture that encourages reflection and learning from crises to improve future responses.
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Affiliation(s)
- Maria Zink
- Federal Institute for Occupational Safety and Health (BAuA), Fabricestrasse 8, Dresden, 01099, Germany
| | - Johannes Wendsche
- Federal Institute for Occupational Safety and Health (BAuA), Fabricestrasse 8, Dresden, 01099, Germany
| | - Steffi G. Riedel-Heller
- University of Leipzig, Institute for Social Medicine, Occupational Health and Public Health, Leipzig, Germany
| | - Franziska Jung
- University of Leipzig, Institute for Social Medicine, Occupational Health and Public Health, Leipzig, Germany
| | - Marlen Melzer
- Federal Institute for Occupational Safety and Health (BAuA), Fabricestrasse 8, Dresden, 01099, Germany
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Davison N, Hammarberg K, Tran T, Collyer TA, Lowthian J, Kirkman M, Fisher J, Dwyer R, Layton N. Understanding the psychosocial well-being of people older than 65 years during emergency department admissions: A qualitative analysis of patients' accounts of their experiences. Australas J Ageing 2025; 44:e70033. [PMID: 40369859 PMCID: PMC12079010 DOI: 10.1111/ajag.70033] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Grants] [Track Full Text] [Download PDF] [Journal Information] [Subscribe] [Scholar Register] [Received: 06/25/2024] [Revised: 03/23/2025] [Accepted: 03/27/2025] [Indexed: 05/16/2025]
Abstract
OBJECTIVE Little is known about the psychosocial care of older people presenting to the emergency department (ED), or whether their psychosocial well-being during and after an ED admission can be enhanced. People over the age of 65 years experiencing psychosocial distress and mental health concerns have higher rates of ED admission than those without. As part of a larger mixed-methods study investigating the relationships between older people's psychosocial well-being and emergency care, this study aimed to explore the experiences of older people in ED and their influence on patient psychosocial well-being. METHODS Participants aged 65 years or older receiving care in a large Australian public hospital ED were invited to participate in a telephone interview soon after discharge. Interviews were audio recorded and transcribed. Transcripts were analysed thematically. RESULTS Eleven people (five women) aged 68-87 years participated in semi-structured interviews. Analyses revealed three overarching themes: 'interpersonal interactions', 'quality of care' and 'physical environment'. The theme 'interpersonal interactions' had two subthemes: 'communication' and 'human contact'. The three subthemes of 'quality of care' were 'appropriate care', 'psychological care' and 'unmet needs'. Physical environment referred to participant impressions of the ED setting. CONCLUSIONS We found that staff sensitivity in their interactions with patients and their efforts to promote patients' physical comfort and protect their privacy influenced the psychosocial well-being of older adults in the ED. Based on the findings, we present a set of recommendations for enhancing the psychosocial care of older adults during ED admission.
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Affiliation(s)
- Neve Davison
- Global and Women's Health, School of Public Health and Preventive MedicineMonash UniversityMelbourneVictoriaAustralia
| | - Karin Hammarberg
- Global and Women's Health, School of Public Health and Preventive MedicineMonash UniversityMelbourneVictoriaAustralia
| | - Thach Tran
- Global and Women's Health, School of Public Health and Preventive MedicineMonash UniversityMelbourneVictoriaAustralia
| | - Taya A. Collyer
- National Centre for Healthy AgeingMelbourneVictoriaAustralia
- Peninsula Clinical School, Central Clinical SchoolMonash UniversityFrankstonVictoriaAustralia
| | - Judy Lowthian
- Bolton Clarke Research InstituteBolton ClarkeMelbourneVictoriaAustralia
- School of Public Health and Preventive MedicineMonash UniversityMelbourneVictoriaAustralia
| | - Maggie Kirkman
- Global and Women's Health, School of Public Health and Preventive MedicineMonash UniversityMelbourneVictoriaAustralia
| | - Jane Fisher
- Global and Women's Health, School of Public Health and Preventive MedicineMonash UniversityMelbourneVictoriaAustralia
| | - Rosamond Dwyer
- National Centre for Healthy AgeingMelbourneVictoriaAustralia
- School of Public Health and Preventive MedicineMonash UniversityMelbourneVictoriaAustralia
- Peninsula Health Emergency DepartmentFrankstonVictoriaAustralia
| | - Natasha Layton
- Rehabilitation, Ageing and Independent Living (RAIL) Research Centre, Faculty of Medicine, Nursing and Health SciencesMonash UniversityFrankstonVictoriaAustralia
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Brown MEL, Stalmeijer RE, O'Brien BC. Transferability in three dimensions (3D): applicability, theoretical engagement, and resonance. ADVANCES IN HEALTH SCIENCES EDUCATION : THEORY AND PRACTICE 2025:10.1007/s10459-025-10439-2. [PMID: 40366523 DOI: 10.1007/s10459-025-10439-2] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Subscribe] [Scholar Register] [Received: 06/20/2024] [Accepted: 05/04/2025] [Indexed: 05/15/2025]
Abstract
Though transferability is a multidimensional concept, our representations of transferability within Health Professions Education have largely focused on whether innovations or outcomes can be applied in different contexts. However, transferability has been variously described and used as a quality criterion through the history of qualitative research. To capture the complexity of this concept we propose a tri-dimensional conceptualisation of transferability, drawing on foundational qualitative research literature and our own experiences as qualitative researchers. We consider the origins of transferability within qualitative and Health Professions Education research, including its association with the concept of generalisability. We draw attention to shifts in debate, and the need for a clear conceptualisation of transferability as a concept. The three dimensions we propose, as part of our 3D transferability model, are: applicability; theoretical engagement; and resonance. By exploring these three dimensions, we highlight the importance of a critical, multifaceted approach to understanding and operationalising transferability. To promote practical application, we make suggestions regarding the use and discussion of each dimension of transferability. In doing so, we hope this exploration will be useful for scholars seeking to achieve broader impact of their evaluative work and empirical research.
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Affiliation(s)
| | - Renée E Stalmeijer
- School of Health Professions Education, Department of Educational Development and Research, Faculty of Health, Medicine and Life Sciences, Maastricht University, Maastricht, The Netherlands
| | - Bridget C O'Brien
- Department of Medicine, University of California, San Francisco, CA, USA
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Stanzel K, Pham M, Hammarberg K, Fisher J. 'Midlife care to migrant women: primary healthcare providers' beliefs about barriers and facilitators'. Prim Health Care Res Dev 2025; 26:e40. [PMID: 40336218 PMCID: PMC12099265 DOI: 10.1017/s1463423625000349] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Download PDF] [Figures] [Journal Information] [Subscribe] [Scholar Register] [Received: 09/19/2023] [Revised: 10/14/2024] [Accepted: 03/25/2025] [Indexed: 05/09/2025] Open
Abstract
AIM This study aimed to understand primary healthcare providers' beliefs about barriers and facilitators providing culturally competent midlife care to migrant women. BACKGROUND Primary healthcare is the entry level to the health system. It is usually the first point of contact in accessing the healthcare system and provides a range of services including health promotion and prevention. Migrant women are less likely to access and engage in health screening and health promotion activities and consequently may miss out on optimal health in older age. METHODS A cross-sectional study including two free-text questions, part of an online survey, was thematically analysed. 76 primary healthcare providers answered the free-text questions. FINDINGS Competing priorities as a result of migration and settlement experiences, the healthcare systems' limited resources to respond to the needs of migrant population and culturally informed beliefs and behaviour about menopause were viewed as barriers to midlife care for migrant women. Flexible models of primary healthcare and coordinated engagement with community groups were proposed to address these barriers. Primary healthcare providers perceived the current primary healthcare model to be inadequate to address the additional needs of migrant women. A review of the model of care may include 'task shifting' where nurses provide advanced care to migrant women in midlife. Perceptions of midlife and menopause are informed by culture. Hence, a culturally informed health promotion programme led by migrant women may be one strategy to address the limited participation in preventative healthcare including health screening at the time around menopause.
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Affiliation(s)
- Karin Stanzel
- Global and Women’s Health, School of Public Health and Preventive Medicine, Monash University, Melbourne, Australia
| | - Mary Pham
- Faculty of Medicine, Nursing and Health Sciences, Monash University, Clayton, Australia
| | - Karin Hammarberg
- Global and Women’s Health, School of Public Health and Preventive Medicine, Monash University, Melbourne, Australia
| | - Jane Fisher
- Global and Women’s Health, School of Public Health and Preventive Medicine, Monash University, Melbourne, Australia
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Hvala T, Hammarberg K. The impact of reproductive health needs on women's employment: a qualitative insight into managing endometriosis and work. BMC Womens Health 2025; 25:216. [PMID: 40336029 PMCID: PMC12060336 DOI: 10.1186/s12905-025-03726-y] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Download PDF] [Journal Information] [Subscribe] [Scholar Register] [Received: 12/17/2024] [Accepted: 04/08/2025] [Indexed: 05/09/2025] Open
Abstract
BACKGROUND Reproductive health conditions present various challenges for women in all aspects of their lives, including in the workplace. This study explores the workplace experiences of employed women with reproductive healthcare needs arising predominantly from endometriosis, as well as adenomyosis and infertility. METHODS Semi-structured interviews were conducted with 12 women with one or more of these conditions who were employed while experiencing symptoms of their condition or seeking treatment (such as in-vitro fertilization or laparoscopic surgery). RESULTS Interviewees reported significant physical and psychological hardship because of their reproductive health conditions, namely pain associated with endometriosis. The impact of reproductive health needs and treatment on women's ability to work included: difficulty managing symptoms, additional pressure to perform, exhaustion of 'sick leave', and working less and negative impact on career progression. In terms of how workplaces can improve the wellbeing of women with endometriosis and other reproductive health needs, women would benefit from: flexibility and working from home, access to paid reproductive health leave, and improved workplace education, trust and understanding. CONCLUSIONS Women's own accounts of how endometriosis and their reproductive health impacts their working lives, and what employers can do to support them, provides a platform to better understand women's needs. These findings can inform public-policy solutions and workplace policies to better meet the needs of women with endometriosis and improve their workforce participation.
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Affiliation(s)
- Tom Hvala
- Research Affiliate, Global and Women's Health Unit, School of Public Health and Preventive Medicine, Monash University, Melbourne, Australia.
| | - Karin Hammarberg
- Global and Women's Health Unit, School of Public Health and Preventive Medicine, Monash University, Melbourne, Australia
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Toprak Z, Toran M. Precariatization of the preschool teachers' workforce and its consequences on the well-being and in-school relations. Work 2025:10519815251332853. [PMID: 40302501 DOI: 10.1177/10519815251332853] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 05/02/2025] Open
Abstract
BACKGROUND With the augmentation of flexible capitalism, episodic, short-term work has been a common workforce regime in distinct fields and sectors, including education. Increasingly teachers are forced to work short-term, leading to lower-wages and insecurity. Türkiye, which had employed teachers permanently, changed its teacher workforce regime in 2005; introducing contract-based and short-term employing to the regime. OBJECTIVE The aim of this study was to investigate the consequences of the new workforce regime on teachers' overall well-being and relationships with their peers. METHOD The present study utilized in-depth interviews with 16 preschool teachers, who had different employing status; paid, fixed-term contracted and permanent teachers, which allowed to compare these groups. A theoretical thematic analysis for data analysis was conducted, utilizing MAXQD. RESULTS Findings revealed that the paid and fixed-term groups experienced financial insecurity, future hopelessness, bullying and discrimination in school, all of which resulted in lowered overall well-being while paid teachers reporting higher levels and permanent teachers not reporting such issues but enjoying their jobs. CONCLUSION The current Turkish teacher employment regime has resulted in a school environment that was detrimental to school relations and well-being of teachers. The results implied that permanent teachers were enjoying a relatively comfortable and safe zone, fixed-term teachers were confined to ambiguity and temporality, and precarious teachers postponed their life to an unknown and unimaginable future. Therefore, policy makers should consider immediate and far-reaching consequences of precariat while making workforce policies. The study suggested the termination of precarious work in schools effective immediately.
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Affiliation(s)
- Ziya Toprak
- Department of Educational Sciences, Adıyaman University, Adıyaman, Türkiye
| | - Mehmet Toran
- Early Childhood Education Department, Istanbul Kültür University, Istanbul, Türkiye
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Chetty R, Bhagwan R, Govender N. The biopsychosocial effects of transtibial amputation: A South African perspective. Afr J Disabil 2025; 14:1404. [PMID: 40357351 PMCID: PMC12067012 DOI: 10.4102/ajod.v14i0.1404] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Download PDF] [Figures] [Journal Information] [Subscribe] [Scholar Register] [Received: 01/31/2024] [Accepted: 12/15/2024] [Indexed: 05/15/2025] Open
Abstract
Background A myriad of physical, psychosocial and environmental sequelae are associated with limb loss. However, there is a paucity of empirical South African data, which focusses on these sequelae, how they interface with the amputee's quality of life as well as the challenges they experience following amputation. Objectives This study sought to explore the biopsychosocial effects of amputation and how it affected the quality of life of transtibial amputees. Method A qualitative approach guided this study. Data were collected using one-on-one interviews with 14 unilateral transtibial amputees. Data were analysed thematically. Results Five broad themes emerged from the inquiry, which captured amputees' experiences of phantom limb pain, body image disturbances and their challenges related to adapting to daily activities. Participants also expressed the salience of familial support as well as the importance of psychological interventions to cope. Conclusion The findings suggested that support networks and professional psychological intervention are imperative in facilitating successful adjustment to the amputation experience. Raising awareness of limb loss, in both rural and urban settings, may help reduce the stigma attached to it. Contribution Quality of life comprises several domains, namely physical, psychological, environmental and social. However, limited local and international data exists regarding the environmental and social effects. This study brought to the fore the positive and negative effects of amputation in each domain, as well as various strategies, which facilitate successful adjustment to amputation.
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Affiliation(s)
- Riyona Chetty
- Department of Medical Orthotics and Prosthetics, Faculty of Health Sciences, Durban University of Technology, Durban, South Africa
| | - Raisuyah Bhagwan
- Department of Community Health Studies, Faculty of Health Sciences, Durban University of Technology, Durban, South Africa
| | - Nalini Govender
- Department of Basic Medical Sciences, Faculty of Health Sciences, Durban University of Technology, Durban, South Africa
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Jayaratne S, Wijewardena K. Gender-based violence against men, a southeast Asian qualitative study. SAGE Open Med 2025; 13:20503121251335145. [PMID: 40297787 PMCID: PMC12035209 DOI: 10.1177/20503121251335145] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Download PDF] [Figures] [Journal Information] [Subscribe] [Scholar Register] [Received: 11/01/2024] [Accepted: 03/17/2025] [Indexed: 04/30/2025] Open
Abstract
Background and objectives Gender-based violence is a major public health concern. Although, in many instances, violence against women and girls encompasses the entire spectrum of gender-based violence in the public eye, violence against men is a very real threat that is obscure and obliterated within cultural norms. Identification of the legal and cultural barriers men face is a very important step forward toward promoting gender equity. There is a severe paucity of research on gender-based violence against men in Sri Lanka. Methods A qualitative study was conducted to explore the causes, effects, and help-seeking behaviors of men subjected to gender-based violence in the Colombo district, Sri Lanka. Two focus group discussions and two in-depth interviews were carried out among seventeen purposefully selected victims of gender-based violence and ten key informant interviews were carried out among service providers recruited purposefully in the Colombo district. Transcript analysis was done by using the thematic analysis method. Results The study participants of the focus group discussions described themes of preconceived notions about the male sex, gender bias, power play, and masculinity norms as causes leading to gender-based violence. Many participants described their own or a peer's life experience to explain the experiences and consequences of gender-based violence. The key informant interview revealed certain aspects of the support systems which need revision in order to make the services more accessible to men. Conclusion This study provides evidence regarding the hitherto undiscussed topic of gender-based violence against men in Sri Lanka. The findings highlight the importance of taking into consideration and inclusion of men in the development of policies for gender-based violence in Sri Lanka.
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Affiliation(s)
| | - Kumudu Wijewardena
- Faculty of Medical Sciences, University of Sri Jayewardenepura, Nugegoda, Sri Lanka
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Roche H, Morton L, Cogan N. Barriers and Facilitators to Psychological Safety During Medical Procedures Among Individuals Diagnosed with Chronic Illness in Childhood. Healthcare (Basel) 2025; 13:914. [PMID: 40281863 PMCID: PMC12026924 DOI: 10.3390/healthcare13080914] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 03/06/2025] [Revised: 04/10/2025] [Accepted: 04/14/2025] [Indexed: 04/29/2025] Open
Abstract
Background: This study explores barriers and facilitators to psychological safety during medical procedures among individuals diagnosed with chronic illnesses in childhood. Psychological safety in healthcare, detected via neuroception and the autonomic nervous system's responses to perceived safety or threat, is essential for the well-being and mental health of chronically ill patients, especially those with early diagnoses. Methods: Using Polyvagal Theory as a framework, semi-structured interviews were conducted with six participants (aged 20-64) who experienced chronic disease from a young age. The Neuroception of Psychological Safety Scale (NPSS) guided thematic exploration to understand participants' experiences. Thematic analysis identified key themes that reflect contributors and detractors to psychological safety during medical care. Results: Four primary themes were developed: (1) knowledge empowerment through information and facilitated inquiry, (2) holistic acknowledgment of psychological and social impacts, (3) the role of parental involvement in healthcare interactions, and (4) the need for an individualised, patient-centred approach. Participants expressed a need for psychological support integrated with their medical treatment and the importance of autonomy and clear communication. Conclusions: Psychological safety is central to medical experiences for chronically ill individuals and requires a patient-centred, psychologically informed approach. Emphasising tailored support, family involvement, and comprehensive mental health consideration can foster more effective care and enhance patients' long-term well-being.
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Affiliation(s)
- Hannah Roche
- Psychology Department, Glasgow Caledonian University, Cowcaddens Road, Glasgow G4 0BA, UK;
| | - Liza Morton
- Psychology Department, Glasgow Caledonian University, Cowcaddens Road, Glasgow G4 0BA, UK;
| | - Nicola Cogan
- School of Psychological Sciences and Health, University of Strathclyde, Glasgow G1 1XQ, UK;
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Jensen‐Marini E, Ayton D, Zalcberg J, Stirling RG. Exploring patient reported quality of life in lung cancer patients: A qualitative study of patient-reported outcome measures. Asia Pac J Clin Oncol 2025; 21:163-173. [PMID: 38520667 PMCID: PMC11880980 DOI: 10.1111/ajco.14056] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 05/30/2022] [Revised: 02/28/2024] [Accepted: 03/07/2024] [Indexed: 03/25/2024]
Abstract
OBJECTIVE Lung cancer is the leading cause of cancer-related death globally and provides a major disease burden likely to substantially impact quality of life (QoL). Patient-reported outcome measures (PROMs) have been identified as effective methods of evaluating patient QoL. Existing lung cancer-specific PROMs however have uncertain utility and minimal patient involvement in their design and development. This qualitative study aimed to evaluate the patient perspective of existing PROMs and to explore their appropriateness for population-based descriptions of lung cancer-related QoL. METHODS A descriptive qualitative study was conducted consisting of semi-structured interviews with 14 patients recruited from the Victorian Lung Cancer Registry and Alfred Hospital using purposive sampling. Interviews first explored the factors most important to lung cancer patients QoL, and second, patient's perspectives on the appropriateness of existing PROMs. Thematic analysis was used to develop themes, and content analysis was conducted to determine PROM acceptability. RESULTS Five novel themes were identified by patients as being important impacts on QoL: Personal attitude toward the disease is important for coping; independence is valued; relationships with family and friends are important; relationships with treating team are meaningful; personal and public awareness of lung cancer is limited. These patient-identified impacts are poorly covered in existing lung cancer-specific PROMs. Patients welcomed and appreciated the opportunity to complete PROMs; however, they identified problems with existing PROMs relevance, tone, and formatting. CONCLUSION Existing lung cancer PROMs poorly reflect the five themes identified in this study as most important to lung cancer patients QoL. This study reaffirms the need to review existing PROMs to ensure utility and construct validity. Future PROM development must engage key patient-generated themes and evolve to reflect the changing management and therapeutic landscape.
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Affiliation(s)
- Elena Jensen‐Marini
- Department of Epidemiology and Preventive MedicineMonash UniversityMelbourneVictoriaAustralia
| | - Darshini Ayton
- Department of Epidemiology and Preventive MedicineMonash UniversityMelbourneVictoriaAustralia
| | - John Zalcberg
- Department of Epidemiology and Preventive MedicineMonash UniversityMelbourneVictoriaAustralia
| | - Robert G. Stirling
- Central Clinical SchoolFaculty of Medicine Nursing and Health SciencesMonash UniversityMelbourneAustralia
- Department of Respiratory MedicineAlfred HealthMelbourneVictoriaAustralia
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14
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Elyoussfi S, Harries P, Norris M, DeSouza L, Drake W. Factors Affecting Engagement in Screening Clinics; Exploring the Experiences of Patients with Rare Endocrine Gene Disorders. J Patient Exp 2025; 12:23743735251316120. [PMID: 40099221 PMCID: PMC11912168 DOI: 10.1177/23743735251316120] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Figures] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 03/19/2025] Open
Abstract
The aim was to explore the patient experience of those attending screening appointments for rare endocrine syndromes. Obtaining insights into the factors that potentially enhanced or detracted from attendance and engagement with the clinics could assist in developing strategies to promote patient engagement. A qualitative approach using semi-structured interviews was employed to understand individuals' perceptions and experience of the screening clinics. Twelve interviews were conducted with patients (age 10-66 years, purposive sampling). Four main themes were identified: (1) Perception at a distance, (2) Seeing my future self (3) The body and person in clinic and (4) The patient or doctor, who knows best? These highlighted several areas which could be used to inform approaches to promote enhanced patient engagement: the importance of careful management of projections of self, balancing information overload and honesty, interpersonal relationships and humanisation of care and assisting with the early navigation for the non-expert individual.
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Affiliation(s)
- Samia Elyoussfi
- Department of Health Sciences, Brunel University alumni, London, UK
| | - Priscilla Harries
- Research, Business and Innovation, Kingston University London, Head of Graduate Research School and Researcher Development, London, UK
| | | | | | - William Drake
- Department of Endocrinology, St Bartholomew's Hospital
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15
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Al-hawaiti MR, Sharif L, Elsayes H. Assertiveness in Nursing: A Systematic Review of Its Role and Impact in Healthcare Settings. NURSING REPORTS 2025; 15:102. [PMID: 40137675 PMCID: PMC11944438 DOI: 10.3390/nursrep15030102] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 01/28/2025] [Revised: 03/08/2025] [Accepted: 03/12/2025] [Indexed: 03/29/2025] Open
Abstract
Background: Assertiveness in nursing is crucial to improving communication, reducing interpersonal tensions, and improving healthcare outcomes. Objective: The objective of this systematic review was to identify and synthesize the literature on assertiveness in nursing, focusing on nurses' perspectives regarding its role, influencing factors, challenges, and impact within complex healthcare settings. Methods: This review followed the Preferred Reporting Items for Systematic Reviews and Meta-Analysis (PRISMA) guidelines. An integrated mixed methods approach was used to capture the multifaceted nature of assertiveness in nursing. The evaluation covered both qualitative and quantitative investigations, concentrating on quantitative publications between 2018 and 2024 and qualitative publications without a time limit. Diverse methodologies were incorporated using the SPIDER framework. A comprehensive electronic search was conducted across six databases: PubMed, Medline, CINAHL, PsychInfo, Wiley Online Library, and Web of Science. Ultimately, 15 research papers were included in the review out of 9490 publications that were initially identified. Included studies were critically appraised using the Critical Appraisal Skills Program (CASP) and the Joanna Briggs Institute Critical Appraisal checklists. Results: A total of 9490 studies were identified, of which 15 (eight quantitative and seven qualitative) were included in this review. The review and subsequent analysis revealed five major themes: (1) facilitators of assertiveness; (2) barriers to assertiveness; (3) assertiveness training; (4) interaction with other staff; and (5) patient relationships. Conclusions: Assertiveness is essential for proficient nursing practice, especially in complex healthcare environments. It facilitates improved communication, alleviates stress, and augments patient care. Future research should explore the long-term benefits of assertiveness training and its influence across various cultural settings.
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Affiliation(s)
- Maha R. Al-hawaiti
- Psychiatric and Mental Health Nursing Department, Faculty of Nursing, King Abdulaziz University, Jeddah 21551, Saudi Arabia; (L.S.); (H.E.)
- Nursing Administration Services, Duba General Hospital, Ministry of Health (MOH), Tabuk Health Cluster, Tabuk 47717, Saudi Arabia
| | - Loujain Sharif
- Psychiatric and Mental Health Nursing Department, Faculty of Nursing, King Abdulaziz University, Jeddah 21551, Saudi Arabia; (L.S.); (H.E.)
| | - Hala Elsayes
- Psychiatric and Mental Health Nursing Department, Faculty of Nursing, King Abdulaziz University, Jeddah 21551, Saudi Arabia; (L.S.); (H.E.)
- Psychiatric and Mental Health Nursing Department, Faculty of Nursing, Tanta University, Tanta 31511, Egypt
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16
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Zhang R, Wang T, Xing Y, Sun X, Feng Q, Wu F, Wang W, Cai W. Difficulties and needs of new nurse managers during role transition: A perspective from role theory. Int Nurs Rev 2025; 72:e70011. [PMID: 40052572 DOI: 10.1111/inr.70011] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Grants] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 09/02/2024] [Accepted: 02/16/2025] [Indexed: 05/13/2025]
Abstract
AIM To investigate the challenges and needs of new nurse managers transitioning from staff nurses to manager roles. BACKGROUND Nursing managers are often selected based on clinical expertise, not proven leadership skills. Their complex roles and evolving healthcare policies result in heightened expectations from society, institutions, patients, and staff. The often-overlooked transition phase from staff nurse to manager presents distinct challenges and needs. Clarifying these aspects is crucial for developing effective nursing policies and improvement initiatives. METHODS A phenomenological qualitative study was conducted at a tertiary hospital in Beijing, following the COREQ guidelines from April to June 2023. Fourteen new nurse managers were interviewed using a semi-structured interview guide based on the role theory. Data were analyzed using Nvivo 12.0 and Colaizzi's thematic analysis. RESULTS Four themes emerged, including role ambiguity (adjustment difficulties, unclear expectations, poor handling), role conflict (inconsistencies between work and family, management, competencies), role learning (self-improvement, external support, resilience), and role behaviors (summarizing experiences, time management, promoting coworkers, research capability). DISCUSSION Identifying the difficulties and needs of new nurse managers during their role transition can help healthcare organizations develop tailored training, external support, positive psychology, and academic advancement strategies. CONCLUSIONS New nurse managers face significant transition obstacles, necessitating comprehensive support. This prompts healthcare organizations to adopt best practices for facilitating role adaptation and talent development. IMPLICATIONS FOR NURSING AND HEALTH POLICY To ensure the successful adaptation of new nurse managers, comprehensive and tailored strategies should be developed based on identified transition challenges and needs. This support will enhance their competencies and stress management. Nursing policymakers should encourage new nurse managers to participate in the formulation of policies and training programs.
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Affiliation(s)
- Ran Zhang
- Department of Nursing, Beijing Tiantan Hospital, Capital Medical University, Beijing, China
| | - Tong Wang
- Department of Nursing, Beijing Tiantan Hospital, Capital Medical University, Beijing, China
| | - Yana Xing
- Department of Nursing, Beijing Tiantan Hospital, Capital Medical University, Beijing, China
| | - Xue Sun
- Department of Nursing, Beijing Tiantan Hospital, Capital Medical University, Beijing, China
| | - Qianqian Feng
- Department of Nursing, Beijing Tiantan Hospital, Capital Medical University, Beijing, China
| | - Fei Wu
- Department of Nursing, Beijing Tiantan Hospital, Capital Medical University, Beijing, China
| | - Wenshuang Wang
- Department of Nursing, Beijing Tiantan Hospital, Capital Medical University, Beijing, China
| | - Weixin Cai
- Department of Nursing, Beijing Tiantan Hospital, Capital Medical University, Beijing, China
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17
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Overman ML, Hermans RCJ, Loukili I, Chinapaw MJM, Mehraz A, Ekkelboom L, Kremers SPJ, Renders C. A qualitative study into the perceptions and needs of fathers with a migration background on parenting regarding energy balance-related behaviors. BMC Public Health 2025; 25:565. [PMID: 39934761 PMCID: PMC11818134 DOI: 10.1186/s12889-025-21802-8] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Grants] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 01/23/2024] [Accepted: 02/05/2025] [Indexed: 02/13/2025] Open
Abstract
BACKGROUND Overweight among adolescents is worldwide still considered a serious public health problem. Although both parents influence children's energy balance-related behavior, most studies have predominantly focused on mothers and white populations. Therefore, in this study, we contribute to the research by exploring the perceptions and needs of Dutch fathers with a migration background on parenting, specifically regarding promoting healthy energy balance-related behaviors among their children, and what motivates fathers to participate in parenting programs focused on these behaviors. METHODS We used a qualitative research design. Informal conversations (n = 2), semi-structured interviews (n = 11) and one focus group (n = 13) were conducted with professionals specialized in intercultural pedagogy and fathers participating in a parenting program organized by these professionals. Interviews and focus group were audio-recorded and transcribed. Atlas.ti 8 was used for theme detection, categorization, and classification using inductive and deductive approaches. The data was analyzed using grounded theory analysis. RESULTS Fathers joined parenting programs to improve their parenting skills and knowledge and address health and socio-cultural challenges. Furthermore, intergenerational differences were evident: second-generation fathers were more proactive in tackling parenting challenges related to healthy lifestyles. Fathers highlighted challenges related to parenting in two cultures. Although participating in the parenting program facilitated fathers in adopting a healthier lifestyle for both themselves and their families, improving communication with family members, and experiencing changes regarding gender dynamics within their household, influencing their teenage children, to adopt healthier habits remained a challenge, especially in comparison to younger children. CONCLUSIONS A deeper understanding of the needs, perceptions, and experiences of migrant populations concerning parenting regarding the promotion of healthy energy balance-related behaviors among their children can lead to better-tailored health promotion programs that prioritize cultural and linguistic inclusivity.
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Affiliation(s)
- Meredith L Overman
- Department of Health Promotion, NUTRIM Institute of Nutrition and Translational Research in Metabolism, Maastricht University, Maastricht, 6229 HA, the Netherlands.
- Amsterdam UMC location Vrije Universiteit Amsterdam, Public and Occupational Health, De Boelelaan 1117, Amsterdam, The Netherlands.
- Amsterdam Public Health, Health Behaviors and Chronic Diseases, Methodology, Amsterdam, The Netherlands.
| | - Roel C J Hermans
- Department of Health Promotion, NUTRIM Institute of Nutrition and Translational Research in Metabolism, Maastricht University, Maastricht, 6229 HA, the Netherlands
- LeefstijlLab, Arnhem, 6814 BK, Netherlands
| | - Ibrahim Loukili
- Amsterdam UMC location Vrije Universiteit Amsterdam, Public and Occupational Health, De Boelelaan 1117, Amsterdam, The Netherlands
- Amsterdam Public Health, Health Behaviors and Chronic Diseases, Methodology, Amsterdam, The Netherlands
| | - Mai J M Chinapaw
- Amsterdam UMC location Vrije Universiteit Amsterdam, Public and Occupational Health, De Boelelaan 1117, Amsterdam, The Netherlands
- Amsterdam Public Health, Health Behaviors and Chronic Diseases, Methodology, Amsterdam, The Netherlands
| | - Abdellah Mehraz
- Trias Pedagogica, Wilhelminaplantsoen 1B, Diemen, 1111 CJ, the Netherlands
| | - Lauren Ekkelboom
- Trias Pedagogica, Wilhelminaplantsoen 1B, Diemen, 1111 CJ, the Netherlands
| | - Stef P J Kremers
- Department of Health Promotion, NUTRIM Institute of Nutrition and Translational Research in Metabolism, Maastricht University, Maastricht, 6229 HA, the Netherlands
| | - Carry Renders
- Department of Health Sciences, Faculty of Science, Vrije Universiteit Amsterdam, Amsterdam Public Health, Amsterdam, 1081 HV, the Netherlands
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18
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Husnoo N, Morgan JL, Wyld L, Lobo AJ, Brown SR. The challenges of implementing earlier surgery for terminal ileal Crohn's disease-A qualitative study of the clinician's perspective. Colorectal Dis 2025; 27:e70027. [PMID: 39934956 PMCID: PMC11814344 DOI: 10.1111/codi.70027] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Grants] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 05/22/2024] [Revised: 10/31/2024] [Accepted: 01/07/2025] [Indexed: 02/13/2025]
Abstract
AIM Evidence suggests that earlier bowel resection may offer more stable remission in localized luminal terminal ileal (TI) Crohn's disease compared with ongoing medical therapy. Surgery is still considered late in the treatment pathway. The aim of this study was to understand the clinician's perspective on 'early' surgery by qualitatively exploring how clinicians make treatment-related decisions. METHOD Semistructured interviews with clinicians across the UK with an interest in inflammatory bowel disease (IBD) were undertaken using videoconferencing (February-November 2022). Inductive thematic analysis of interview transcripts was performed; 10% of the data were double-coded. Data saturation was confirmed before stopping recruitment. RESULTS Participants included nine consultant surgeons, seven consultant gastroenterologists and seven specialist nurses (n = 23) from secondary care and tertiary referral centres. Five key themes were identified: timing of surgery in practice, barriers to timely surgery, factors influencing decision-making, offering choice and the patient's perspective. A practice of exhausting medical options before considering surgery was commonly described. A lack of IBD specialists (especially surgeons), inadequate opportunities for multidisciplinary teamwork and long waiting lists for surgical clinics and theatre were cited as barriers to timely surgery. According to interviewees, patients prefer medical therapy over surgery; the most dreaded risk is thought to be that of a stoma. CONCLUSION This study provides new insights into the barriers to earlier surgery for TI disease. Organizational barriers should be considered when designing local services. Collaborative multidisciplinary teamwork may allow clinicians to consider surgery sooner. A study investigating the patient perspective is warranted.
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Affiliation(s)
- Nilofer Husnoo
- School of Medicine and Population HealthUniversity of SheffieldSheffieldUK
- Sheffield Teaching Hospitals NHS Foundation TrustNorthern General HospitalSheffieldUK
| | - Jenna L. Morgan
- School of Medicine and Population HealthUniversity of SheffieldSheffieldUK
- Doncaster and Bassetlaw Teaching Hospitals NHS TrustDoncaster Royal InfirmaryDoncasterUK
| | - Lynda Wyld
- School of Medicine and Population HealthUniversity of SheffieldSheffieldUK
- Doncaster and Bassetlaw Teaching Hospitals NHS TrustDoncaster Royal InfirmaryDoncasterUK
| | - Alan J. Lobo
- Sheffield Teaching Hospitals NHS Foundation TrustNorthern General HospitalSheffieldUK
| | - Steven R. Brown
- Sheffield Teaching Hospitals NHS Foundation TrustNorthern General HospitalSheffieldUK
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19
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Trivedi D, Thompson C, Patel R, Panjwani N, Jayaraman J. Barriers to breast cancer care and recommendations for improving services: findings from a UK qualitative study with an Asian Women's Cancer Support Group. ETHNICITY & HEALTH 2025; 30:306-315. [PMID: 39772924 DOI: 10.1080/13557858.2024.2429417] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Subscribe] [Scholar Register] [Received: 12/22/2023] [Accepted: 11/10/2024] [Indexed: 01/11/2025]
Abstract
OBJECTIVES Breast cancer is the most common cancer in the UK, accounting for 15% of all new cases in women. Evidence still points to disparities in outcomes linked to ethnicity and screening uptake is overall lower in South Asians than the White population. We investigated the experiences and perceptions of Gujarati Hindu community members on their 'cancer journeys'. DESIGN This study took a participatory approach, involving participants in generating and refining recommendations to improve treatment based on their cohort's experiences and perceptions. Data were collected through two focus groups in 2022, followed by a feedback workshop session, where participants helped refine the research team's initial analysis and agree recommendation. Data were analysed thematically. RESULTS 14 women participated in this study from the same support group. They had experienced breast cancer or were undergoing breast cancer treatment at the time of data collection and lived in Greater London. Barriers to engaging in the three key stages of their 'cancer journey' (screening, diagnosis, and treatment) were identified. These centred around language difficulties, not knowing what to expect, and not knowing who to ask for information. Suggestions for improvements included recruiting community champions, having diverse representation on educational materials, and referrals to support groups. CONCLUSION This study adds to the growing literature on the need for culturally tailored and sensitive approaches to cancer treatment. It reinforces the need for health professionals' training around effectively communicating with diverse groups and normalising referral to support groups.
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Affiliation(s)
- Daksha Trivedi
- Centre for Research in Public Health and Community Care, School of Health and Social Work, University of Hertfordshire, Hatfield, UK
| | - Claire Thompson
- Centre for Research in Public Health and Community Care, School of Health and Social Work, University of Hertfordshire, Hatfield, UK
| | - Rohini Patel
- Asian Women Cancer Group, Harrow Gateway (Gateway House), North Harrow, UK
| | - Nasim Panjwani
- Public Involvement in Research Group (PIRg) Member, Centre for Research in Public Health and Community Care, University of Hertfordshire, Hatfield, UK
| | - Jai Jayaraman
- Berkshire Healthcare NHS Foundation Trust, Equality, Diversity and Inclusion, Reading, UK
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20
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Nunes AR. Public health approaches to 'Leave No One Behind' in heatwave resilience: insights from the UK. Eur J Public Health 2025; 35:171-177. [PMID: 39570114 PMCID: PMC11832139 DOI: 10.1093/eurpub/ckae187] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 11/22/2024] Open
Abstract
Heatwaves pose significant threats to vulnerable populations, making resilience efforts crucial. This study aims to explore stakeholders' perspectives on heatwave resilience from a public health perspective, with a specific focus on operationalising the commitment to 'Leave No One Behind' (LNOB) as outlined in the United Nations 2030 Agenda for Sustainable Development. In-depth qualitative interviews were conducted with key stakeholders from national and local government, industry and business, academia, and civil society organizations. Interviews examined stakeholders' understanding of the progress and challenges associated with fulfilling the commitment of LNOB in the context of heat resilience from a public health perspective, in England, UK. Content analysis of interview transcripts was undertaken. Stakeholders emphasize the importance of equity, inclusivity, and public health priorities in heatwave resilience efforts while specifically addressing the commitment to LNOB. Disparities in vulnerability due to socioeconomic factors, challenges in identifying and supporting vulnerable populations, progress made in addressing heatwave resilience, and the role of government and society in improving resilience efforts were emphasized. Stakeholders highlighted the need for targeted interventions, strengthened community support networks, and policy changes to address systemic inequalities and promote inclusivity in resilience strategies. Stakeholders' perspectives underscore the importance of aligning heatwave resilience efforts with global goals, particularly in promoting public health equity and inclusivity. By addressing the challenges identified and implementing the recommendations for improvement, policymakers and practitioners should work towards more equitable and inclusive resilience strategies to safeguard public health during heatwaves.
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Affiliation(s)
- Ana Raquel Nunes
- Warwick Medical School, University of Warwick, Coventry, United Kingdom
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21
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Chen Y, Zhang L, Zhang J, Yu H, Jiang W, Li Q, Zhou Y. 'Did I Make the Right Choice': A Qualitative Exploration of Decision Regret Among Family Caregivers After Hospitalising a Patient With Schizophrenia. Int J Ment Health Nurs 2025; 34:e70012. [PMID: 39952795 DOI: 10.1111/inm.70012] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Grants] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 06/24/2024] [Revised: 01/14/2025] [Accepted: 01/29/2025] [Indexed: 02/17/2025]
Abstract
Committing a family member with schizophrenia to a psychiatric ward is a coping mechanism often employed under challenging circumstances. This decision entails significant emotional repercussions and ethical dilemmas, potentially undermining the psychological well-being of the family and eroding public trust in mental health services and professionals. This study investigates the experiences of regret among family members after deciding to commit a relative to a locked ward, adhering to the COREQ guidelines. Employing a descriptive qualitative methodology, we conducted in-depth interviews with 14 family members in Heilongjiang Province, China, who faced this difficult choice. Data were analysed using reflexive thematic analysis, which identified seven themes within three stages: Decision antecedent (limited comprehension of schizophrenia and treatment, deficiencies in supportive environment), decision process (suboptimal communication, hospitalisation and weighing of alternative options) and decision outcome (emotional burden of a loved one's hospital life, the indelible mark of schizophrenia, impact on family dynamics). The study highlights the need for targeted interventions, including addressing biased social media portrayals, enhancing the accuracy of medical information, ensuring transparency in psychiatric practices and improving support for families during hospitalisation.
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Affiliation(s)
- Yubin Chen
- Department of Nursing, Harbin Medical University, Harbin, Heilongjiang, China
| | - Linghui Zhang
- Department of Nursing, Harbin Medical University, Harbin, Heilongjiang, China
| | - Jiayuan Zhang
- Department of Nursing, Harbin Medical University, Harbin, Heilongjiang, China
| | - Hong Yu
- Department of Nursing, Harbin Medical University, Harbin, Heilongjiang, China
| | - Wenlong Jiang
- The Third People's Hospital of Daqing, Daqing, Heilongjiang, China
| | - Qi Li
- Department of Nursing, Harbin Medical University, Harbin, Heilongjiang, China
| | - Yuqiu Zhou
- Department of Nursing, Huzhou University, Huzhou, Zhejiang, China
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22
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Tsedze IS, Edwin F, Owusu B, Dumahasi VK, Botha NN, Ebu Enyan NI. Family support and prayer are invaluable coping strategies for our recovery: Experiences of persons living with cardiovascular diseases. PLoS One 2025; 20:e0317314. [PMID: 39841748 PMCID: PMC11753639 DOI: 10.1371/journal.pone.0317314] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 08/26/2024] [Accepted: 12/24/2024] [Indexed: 01/24/2025] Open
Abstract
BACKGROUND It is estimated that 61% of deaths caused by Cardiovascular Diseases (CVDs) globally are attributed to lifestyle-related risk factors including tobacco use, alcohol abuse, poor diet, and inadequate physical activity. Meanwhile, inadequate knowledge and misperceptions about CVDs are disproportionately increasing the prevalence of CVDs in Africa. Moreover, pre-diagnosis awareness/knowledge about CVDs among patients is essential in shaping the extent and scope of education to be provided by healthcare workers. OBJECTIVE Explore the experiences of patients living with CVDs (PLwCVDs) and accessing care at the Cardiothoracic Centre, Ho Teaching Hospital, regarding their knowledge of CVD-risk factors and coping strategies that work for them. METHOD We leveraged descriptive phenomenological design to explore the experiences of patients accessing care at the Cardiothoracic Centre at the Ho Teaching Hospital, Ghana. Using the purposive sampling technique, 17 PLwCVDs for 3yrs and above were recruited and included in the study. Thematic analysis was conducted using the qualitative computerised data software, NVivo version 14. Recruitment of participants and general conduct of the study commenced on November 1, 2023 and ended on April 30, 2024. FINDINGS We found that PLwCVDs and accessing care at the Cardiothoracic Centre at Ho Teaching Hospital have adequate pre-diagnosis awareness about CVD-risk factors and their knowledge of same was optimal. Moreover, past unhealthy lifestyles (such as poor dieting, abuse of alcohol, smoking, and inadequate physical activity) may have contributed to participants developing the CVDs. Furthermore, prayers and participation in church activities were the main coping strategies employed by the participants in dealing with CVDs. CONCLUSION The PLwCVDs and receiving treatment at the Cardiothoracic Centre at the Ho Teaching Hospital are knowledgeable in the CVD-risk factors and adopting positive coping strategies. The Cardiothoracic Centre and government must explore social media facilities to intensify public education and also correct misconceptions about CVDs.
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Affiliation(s)
- Ivy Selorm Tsedze
- Department of Adult Health, School of Nursing and Midwifery, University of Cape Coast, Cape Coast, Ghana
- Cardiothoracic Centre, Ho Teaching Hospital, Ho, Ghana
| | - Frank Edwin
- Cardiothoracic Centre, Ho Teaching Hospital, Ho, Ghana
- University of Health and Allied Sciences, Office of the Pro-Vice Chancellor, Ho, Ghana
| | - Bennett Owusu
- Cardiothoracic Centre, Ho Teaching Hospital, Ho, Ghana
| | - Victor Kwasi Dumahasi
- Institute of Environmental and Sanitation Studies, Environmental Science, College of Basic and Applied Sciences, University of Ghana, Legon, Ghana
| | - Nkosi Nkosi Botha
- Department of Health, Physical Education and Recreation, University of Cape Coast, Cape Coast, Ghana
| | - Nancy Innocentia Ebu Enyan
- Department of Public Health Nursing, School of Nursing and Midwifery, University of Cape Coast, Cape Coast, Ghana
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23
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Warner A, Palmier-Claus J, Holland C, Tyler E, Rhodes V, Settle G, Lobban F. The Changing Care of Older Adults With Bipolar Disorder: A Narrative Analysis. QUALITATIVE HEALTH RESEARCH 2025; 35:17-30. [PMID: 39076026 PMCID: PMC11626846 DOI: 10.1177/10497323241263043] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Grants] [Track Full Text] [Subscribe] [Scholar Register] [Indexed: 07/31/2024]
Abstract
Older adults with bipolar disorder experience distinct challenges compared to younger age groups with bipolar disorder. They potentially require adaptations to the care they receive. This study aimed to explore experiences of care and changing care needs in older adults with bipolar disorder. People with bipolar disorder (aged ≥60) were recruited through three NHS Trusts in the North West of England, charity organisations, a confidential university participant database, and social media. Participants completed single time-point biographical narrative interviews, which were analysed using narrative analysis. Sixteen participants' accounts led to the creation of four themes: (1) 'Navigating the disruption caused by diagnosis'; (2) 'The removal of services that provided hope'; (3) 'Later life: We are on our own now'; and (4) 'Changing care needs in later life: We still need support'. The care needs of older adults with bipolar disorder appear to change over time, and services often fail to offer adequate, tailored care for this group at present. Current support requires adaptation to be effective and appropriate and to enable this group to age well in later life.
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Affiliation(s)
- Aaron Warner
- Institute of Population Health, University of Liverpool, Liverpool, UK
| | - Jasper Palmier-Claus
- Division of Health Research, Spectrum Centre for Mental Health Research, Lancaster, UK
- Lancashire & South Cumbria NHS Foundation Trust, Lancashire, UK
| | - Carol Holland
- Division of Health Research, Centre for Aging Research, Lancaster, UK
| | - Elizabeth Tyler
- Division of Psychology & Mental Health, University of Manchester, Manchester, UK
| | - Verity Rhodes
- NIHR Applied Research Collaboration North West Coast, UK
| | - Geoff Settle
- NIHR Applied Research Collaboration North West Coast, UK
| | - Fiona Lobban
- Division of Health Research, Spectrum Centre for Mental Health Research, Lancaster, UK
- Lancashire & South Cumbria NHS Foundation Trust, Lancashire, UK
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Lin FF, Peet J, Murray L, Ramanan M, Jacobs K, Brailsford J, Osmond A, Kajevu M, Garrett P, Tabah A, Mock C, Chen Y. Who gets the bed: Factors influencing the intensive care exit block: A qualitative study. Int J Nurs Stud 2025; 161:104949. [PMID: 39536612 DOI: 10.1016/j.ijnurstu.2024.104949] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 07/05/2024] [Revised: 10/17/2024] [Accepted: 10/28/2024] [Indexed: 11/16/2024]
Abstract
BACKGROUND Patient flow problems, including discharge delay and after-hours discharge, have been a consistently major issue, especially for intensive care units (ICUs). Evidence suggests that discharge delay and after-hours discharge are associated with increased ICU and hospital length of stay, leading to worsened patient outcomes and increased healthcare costs. They can also increase ICU readmission and post-ICU mortality. The factors influencing discharge processes are not well elucidated. OBJECTIVE This study aimed to explore the barriers and facilitators to the ICU patient discharge processes in adult ICUs. METHODS This qualitative exploratory multisite observational study was conducted in three regional adult ICUs in Queensland, Australia. We used staff interviews, fieldnotes, and document analysis as data collection techniques. Data analysis commenced with a deductive content analysis using the Structure, Process, and Outcomes framework. Following this, an inductive process was taken using the Theoretical Domains Framework. FINDINGS We conducted 59 staff interviews and analysed the discharge documents across three sites. Four domains, including context and resources, beliefs about consequences, social/professional role and identity, and behaviour regulation, were strongly related to the factors that influenced the discharge processes. The findings revealed barriers to discharge, including finding the right bed, disconnected and ineffective information systems, ineffective communication and coordination within and across teams and departments, and uncertainty and inconsistency in discharge decision making. Facilitators included clarity on professional roles in ICU discharge, effective communication within the ICU team, and context specific strategies to support the discharge processes. CONCLUSIONS The findings provide an in-depth understanding of the barriers and facilitators to the ICU discharge processes. Multifaceted strategies should be considered to facilitate and manage ICU discharge safely and efficiently, including the use of clearer discharge criteria and guidelines, digital systems that aid communication and coordination, and early planning of ICU patient discharge.
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Affiliation(s)
- Frances Fengzhi Lin
- Caring Futures Institute, Flinders University, Sturt Rd, Bedford Park, South Australia 5042, Australia; College of Nursing and Health Sciences, Flinders University, Sturt Rd, Bedford Park, South Australia 5042, Australia; School of Health, University of the Sunshine Coast, 90 Sippy Downs Dr, Queensland 4556, Australia.
| | - Jacqueline Peet
- School of Health, University of the Sunshine Coast, 90 Sippy Downs Dr, Queensland 4556, Australia
| | - Lauren Murray
- Sunshine Coast University Hospital, 6 Doherty St, Birtinya, Queensland 4575, Australia
| | - Mahesh Ramanan
- Caboolture Hospital, 87/129 McKean St, Caboolture, Queensland 4510, Australia
| | - Kylie Jacobs
- Intensive Care Unit, Redcliffe Hospital, Anzac Ave, Redcliffe, Queensland 4020, Australia
| | - Jane Brailsford
- Sunshine Coast University Hospital, 6 Doherty St, Birtinya, Queensland 4575, Australia
| | - Amelia Osmond
- Caboolture Hospital, 87/129 McKean St, Caboolture, Queensland 4510, Australia
| | - Moreblessing Kajevu
- Sunshine Coast University Hospital, 6 Doherty St, Birtinya, Queensland 4575, Australia
| | - Peter Garrett
- Sunshine Coast University Hospital, 6 Doherty St, Birtinya, Queensland 4575, Australia
| | - Alexis Tabah
- Intensive Care Unit, Redcliffe Hospital, Anzac Ave, Redcliffe, Queensland 4020, Australia; Faculty of Medicine, University of Queensland, Brisbane, Australia; Queensland University of Technology, Brisbane, Australia
| | - Carol Mock
- Sunshine Coast University Hospital, 6 Doherty St, Birtinya, Queensland 4575, Australia
| | - Yingyan Chen
- School of Health, University of the Sunshine Coast, 90 Sippy Downs Dr, Queensland 4556, Australia
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25
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Dorney E, Cheney K, Musgrave L, Hammarberg K, Rodgers R, Black KI. Understanding preconception health in Australia through the lens of people of reproductive age: Implications for care providers. Women Birth 2025; 38:101857. [PMID: 39752778 DOI: 10.1016/j.wombi.2024.101857] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 03/14/2024] [Revised: 12/01/2024] [Accepted: 12/02/2024] [Indexed: 02/01/2025]
Abstract
PROBLEM Limited awareness about the importance of preconception health is a recognised barrier to preparing for pregnancy. BACKGROUND Opportunities exist to improve the health of future parents through preconception care. One of the recognised barriers to pregnancy preparation is a lack of knowledge and a lack of presentation for information and care. AIM To explore the understanding of "preconception health" amongst people of reproductive age in Australia to inform the delivery of preconception care. METHODS A qualitative descriptive study using online interviews with people of reproductive age in Australia. Recruitment was via social media (Facebook). Interview transcripts were analysed thematically. FINDINGS Of the 20 women and five men we interviewed, all acknowledged the importance of preparing for pregnancy. Despite broadly understanding the concept, most participants had limited understanding of the details of preconception health. To increase their knowledge, participants' preferred sources of information included education in schools, reputable online sources, primary and maternity healthcare providers, and community members with lived experience. DISCUSSION People in Australia are keen to learn about preparing for pregnancy and appreciate this as important. Suggested avenues to improve awareness and understanding about optimal preconception health included through school education, primary and reproductive healthcare providers, and online resources. This can improve understanding and behaviours before first and subsequent pregnancies. CONCLUSION Preconception care requires a life-course approach, beginning with universal education through schools, enhanced by readily accessible reputable online resources, and access to trusted primary and maternity care providers. Maternity care providers can be key drivers in this process.
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Affiliation(s)
- Edwina Dorney
- Faculty of Medicine and Health, Central Clinical School Susan Wakil Health Building, The University of Sydney, Sydney, NSW 2006, Australia.
| | - Kate Cheney
- The Sydney Nursing School, Faculty of Medicine and Health, Susan Wakil Health Building, The University of Sydney, Sydney, NSW 2006, Australia.
| | - Loretta Musgrave
- Collective for Midwifery, Child and Family Health (Research), School of Nursing and Midwifery, Faculty of Health, University of Technology Sydney, PO Box 123, Broadway, NSW 2007, Australia.
| | - Karin Hammarberg
- Global and Women's Health, School of Public Health, and Preventative Medicine Monash University, Level 4, 553 St Kilda Rd, Melbourne, Victoria 3004, Australia.
| | - Ray Rodgers
- Robinson Research Institute, School of Biomedicine, University of Adelaide, Adelaide, SA 5005, Australia.
| | - Kirsten I Black
- Faculty of Medicine and Health, Central Clinical School, The Tavern, Medical Foundation Building K25,The University of Sydney, Sydney, NSW 2006, Australia.
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Al-Qallaf AJ, Akhtar MU, Fouda MN, Alyas OA, Akram J, Mashal R, Atif N. Understanding pathways for effective interprofessional education: a thematic analysis of medical and nursing students' insights. BMC MEDICAL EDUCATION 2024; 24:1564. [PMID: 39741234 DOI: 10.1186/s12909-024-06489-6] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Subscribe] [Scholar Register] [Received: 09/29/2024] [Accepted: 12/09/2024] [Indexed: 01/02/2025]
Abstract
BACKGROUND As the healthcare field is undergoing a paradigm shift, the role of interprofessional education (IPE) is being widely accepted and recognized. Despite this, IPE interventions are not employed globally and the use of such interventions is variable. Additionally, there is an ongoing debate over how and when to employ IPE interventions. This qualitative study was conducted at Royal College of Surgeons in Ireland - Bahrain (RCSI Bahrain) to understand medical and nursing students' attitudes, expectations, perspectives and experiences in relation to IPE. METHODS Medical and nursing students from all cycles and levels of the medical and nursing programs at RCSI Bahrain participated in Focus Group Discussions (FGDs) and interviews where they discussed issues and opinions related to IPE. These discussions were then transcribed for analysis. Thematic analysis of the data using a grounded theory approach was carried out using a four-staged process of reading transcripts, identifying possible themes and structures and building theory. RESULTS 16 elected class representatives participated in the study. The comprehensive process of thematic analysis led to the emergence of five themes and associated subthemes: integrated curriculum (realistic interventions, idealistic interventions, varied perspectives), role recognition (communication, task division), understanding of team dynamics (harmonious collaboration, amplification of strengths, team management), cultural practices (organizational culture, interpersonal culture), and social conditioning (identity navigation, stereotype persistence, varied mindsets). The sequential relationship between these themes provides an approach for integrated IPE in healthcare curricula. CONCLUSION This qualitative study investigated medical and nursing students' perspectives on IPE at RCSI Bahrain. The identified themes provide a valuable framework for policymakers and medical educators to design and implement effective IPE interventions, thereby enhancing interprofessional collaboration and improving patient outcomes in healthcare settings.
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Affiliation(s)
- Amal Jasim Al-Qallaf
- Language and Culture Unit, Royal College of Surgeons in Ireland - Bahrain, Manama, Kingdom of Bahrain
| | - Muhammad Umair Akhtar
- School of Medicine, Royal College of Surgeons in Ireland - Bahrain, Manama, Kingdom of Bahrain.
| | - Mohamed Nagi Fouda
- School of Medicine, Royal College of Surgeons in Ireland - Bahrain, Manama, Kingdom of Bahrain
| | - Omar Anwar Alyas
- School of Medicine, Royal College of Surgeons in Ireland - Bahrain, Manama, Kingdom of Bahrain
| | - Jannat Akram
- School of Medicine, Royal College of Surgeons in Ireland - Bahrain, Manama, Kingdom of Bahrain
| | - Rahaf Mashal
- School of Medicine, Royal College of Surgeons in Ireland - Bahrain, Manama, Kingdom of Bahrain
| | - Nashmiyya Atif
- School of Medicine, University of Debrecen, Debrecen, Hungary
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Romme S, Hermans M, Bosveld MH, Plak A, Sehlbach C, van Bokhoven MA. How patients and informal caregivers can be trained to effectively contribute to improved quality of healthcare services: action research on the development of the Dutch Patient As a Person Academy. BMJ Open 2024; 14:e079712. [PMID: 39806711 PMCID: PMC11667340 DOI: 10.1136/bmjopen-2023-079712] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Grants] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 09/13/2023] [Accepted: 10/14/2024] [Indexed: 01/16/2025] Open
Abstract
OBJECTIVES Patient and public involvement is regarded as vital in fostering high-quality care. While involvement has clear societal advantages, it is still widely viewed as tokenistic and surrounded by issues of representation. This study aims to understand how patients and informal caregivers can be trained to effectively contribute to improved quality of healthcare services. DESIGN Using an action research approach, a 15-week training programme for patients and informal caregivers called the Patient As a Person Academy was developed, tested and evaluated in three development cycles. Evaluation methods varied per development cycle and included open-ended questionnaires (N=27) and semistructured interviews (N=35) as well as agile evaluation sessions of all 15 training sessions. SETTING AND PARTICIPANTS We purposively sampled patients and informal caregivers who had prior experience in patient and public involvement. Patients and informal caregivers who participated as patient and partner educators in health professions education in the Netherlands could participate. INTERVENTION Participants followed the Patient As a Person Academy, a 15-week training programme that aims to prepare patients and informal caregivers to become patient partners. RESULTS Participants reported that the Patient As a Person Academy's focus on self-management skills, understanding healthcare professionals' perspectives and communication skills helped them to engage in meaningful dialogue with healthcare professionals as patient partners and made them more confident in their roles. However, tailoring towards individual participants' levels of acceptance of illness and reflexivity was needed. Participants reported that, next to the training programme, peer-to-peer coaching and guidance towards roles in quality improvement initiatives would be necessary to optimise their contributions. CONCLUSIONS Initiatives like the Patient As a Person Academy may alleviate the problems of tokenism in patient and public involvement. However, extensively preparing patients and informal caregivers raises issues around representation.
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Affiliation(s)
- Sjim Romme
- Department of Family Medicine at Maastricht University, Universiteit Maastricht Care and Public Health Research Institute, Maastricht, Limburg, The Netherlands
- Department of Educational Development and Research, Faculty of Health, Medicine and Life Sciences, Maastricht University School of Health Professions Education, Maastricht, Limburg, The Netherlands
| | - Max Hermans
- Maastricht University, Maastricht, Limburg, The Netherlands
| | - Matthijs Hugo Bosveld
- Department of Family Medicine at Maastricht University, Universiteit Maastricht Care and Public Health Research Institute, Maastricht, Limburg, The Netherlands
- Department of Educational Development and Research, Faculty of Health, Medicine and Life Sciences, Maastricht University School of Health Professions Education, Maastricht, Limburg, The Netherlands
| | - Angela Plak
- Patient Partner, Patient As a Person Foundation, Maastricht, Limburg, The Netherlands
| | - Carolin Sehlbach
- Department of Educational Development and Research, Faculty of Health, Medicine and Life Sciences, Maastricht University School of Health Professions Education, Maastricht, Limburg, The Netherlands
| | - Marloes Amantia van Bokhoven
- Department of Family Medicine at Maastricht University, Universiteit Maastricht Care and Public Health Research Institute, Maastricht, Limburg, The Netherlands
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Başaran M, Duman C. Dialogues with artificial intelligence: Exploring medical students' perspectives on ChatGPT. MEDICAL TEACHER 2024:1-10. [PMID: 39692300 DOI: 10.1080/0142159x.2024.2438766] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Subscribe] [Scholar Register] [Received: 03/25/2024] [Accepted: 12/03/2024] [Indexed: 12/19/2024]
Abstract
ChatGPT has initiated a new era of inquiry into sources of information within the scientific community. Studies leveraging ChatGPT in the medical field have demonstrated notable performance in academic processes and healthcare applications. This research presents how medical students have benefited from ChatGPT during their educational journey and the challenges they encountered, as reported through their personal experiences. The methodological framework of this study adheres to the stages of qualitative research. An explanatory case study, a qualitative research method, was adopted to determine user experiences with ChatGPT. Content analysis based on student experiences with ChatGPT indicates that it may offer advantages in health education as a resource for scientific research activities. However, adverse reports were also identified, including ethical issues, lack of personal data protection, and potential misuse in scientific research. This study emphasizes the need for comprehensive steps in effectively integrating AI tools like ChatGPT into medical education as a new technology.
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Affiliation(s)
- Mehmet Başaran
- Curriculum and Instruction, Gaziantep University, Gaziantep, Turkey
| | - Cevahir Duman
- Curriculum and Instruction, Gaziantep University, Gaziantep, Turkey
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29
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McCaughey T, Younes MM, Raoofi M, Hicks L, Amir M, Reddington C, Cheng C, Healey M, Peate M. Beyond pathology: Patient experiences of laparoscopy for persistent pelvic pain with no identifiable cause found. Aust N Z J Obstet Gynaecol 2024. [PMID: 39651542 DOI: 10.1111/ajo.13905] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Grants] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 07/05/2024] [Accepted: 11/04/2024] [Indexed: 12/11/2024]
Abstract
BACKGROUND Laparoscopy has often been considered a core part of the workup for pelvic pain. However, many of these laparoscopies find no pathology. AIMS To evaluate the experiences of patients following laparoscopy for pelvic pain when there is no diagnosis found. MATERIALS AND METHODS This descriptive qualitative study reviewed patients who underwent a diagnostic laparoscopy for persistent pelvic pain with no pathology found. Participants completed a written questionnaire and an in-depth semi-structured interview. Interview data were thematically analysed. RESULTS Fifteen patients were interviewed with a median age of 30 years. Six themes were identified: desire for a diagnosis, hope as a coping strategy, inadequate communication, having 'next steps' of management offered, mental health impacts, and system issues. Participants wanted a diagnosis to help understand their condition, to enable connection with others, and believed that clinicians viewed pain with a diagnosis more seriously. Participants who were confident preoperatively that laparoscopy would lead to a diagnosis reported this contributing to poorer postoperative mental health. Participants discussed diagnoses not listed in the medical records, which provided hope for future management options. Participants reported worse mental health following the laparoscopy. CONCLUSION This study provides insight into the experiences of patients following a laparoscopy without an identifiable diagnosis. It highlights the importance of pre- and postoperative counselling, including discussing the potential for no findings at laparoscopy; the language used around other potential diagnoses; and the value in considering a patient's pre-existing mental health. The findings of this study are relevant for all clinicians counselling people with persistent pelvic pain where endometriosis is suspected.
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Affiliation(s)
- Tristan McCaughey
- Gynaecology 2 Unit (Endometriosis and Pelvic Pain), Royal Women's Hospital, Melbourne, Victoria, Australia
| | - Melissa M Younes
- Gynaecology 2 Unit (Endometriosis and Pelvic Pain), Royal Women's Hospital, Melbourne, Victoria, Australia
- Department of Obstetrics, Gynaecology and Newborn Health, Royal Women's Hospital, University of Melbourne, Melbourne, Victoria, Australia
| | - Mooska Raoofi
- Pelvic Floor Unit, Royal Women's Hospital, Melbourne, Victoria, Australia
| | - Lauren Hicks
- Gynaecology 2 Unit (Endometriosis and Pelvic Pain), Royal Women's Hospital, Melbourne, Victoria, Australia
- Endosurgery Unit, Mercy Hospital for Women, Melbourne, Victoria, Australia
| | - Michal Amir
- Gynaecology 2 Unit (Endometriosis and Pelvic Pain), Royal Women's Hospital, Melbourne, Victoria, Australia
| | - Charlotte Reddington
- Gynaecology 2 Unit (Endometriosis and Pelvic Pain), Royal Women's Hospital, Melbourne, Victoria, Australia
- Department of Obstetrics, Gynaecology and Newborn Health, Royal Women's Hospital, University of Melbourne, Melbourne, Victoria, Australia
- Endosurgery Unit, Mercy Hospital for Women, Melbourne, Victoria, Australia
| | - Claudia Cheng
- Gynaecology 2 Unit (Endometriosis and Pelvic Pain), Royal Women's Hospital, Melbourne, Victoria, Australia
- Department of Obstetrics, Gynaecology and Newborn Health, Royal Women's Hospital, University of Melbourne, Melbourne, Victoria, Australia
| | - Martin Healey
- Gynaecology 2 Unit (Endometriosis and Pelvic Pain), Royal Women's Hospital, Melbourne, Victoria, Australia
- Department of Obstetrics, Gynaecology and Newborn Health, Royal Women's Hospital, University of Melbourne, Melbourne, Victoria, Australia
| | - Michelle Peate
- Department of Obstetrics, Gynaecology and Newborn Health, Royal Women's Hospital, University of Melbourne, Melbourne, Victoria, Australia
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Wijaya PE, Fisher J, Kirkman M. Female genital cosmetic surgery in Indonesia: a qualitative analysis of medical advertising on Instagram. CULTURE, HEALTH & SEXUALITY 2024; 26:1529-1542. [PMID: 38648397 DOI: 10.1080/13691058.2024.2341843] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Subscribe] [Scholar Register] [Received: 11/02/2023] [Accepted: 04/08/2024] [Indexed: 04/25/2024]
Abstract
Research on female genital cosmetic surgery usually comes from Anglophone countries. We investigated female genital cosmetic surgery in the predominantly Muslim South-East Asian country of Indonesia, aiming to identify the procedures offered by medical clinics on Instagram, how they are justified, and what they claim to achieve; and to understand what this means for women and their bodies. The 184 eligible posts from 19 clinics between 1 January to 31 March 2021 offered vaginoplasty, labiaplasty, hymenoplasty, and other procedures. Reflexive thematic analysis yielded three themes: Why you should have female genital cosmetic surgery, Indications for female genital cosmetic surgery, and What you will gain from female genital cosmetic surgery. Posts were similar to those identified in other countries, revealing implicit vulvar aesthetics, expectations that women choose to 'improve' their genitals, the need to please men, and that female genital cosmetic surgery is straightforward. Two differences from Anglophone advertising were the use of euphemisms to describe the vulva and an emphasis on physical 'virginity'. Across countries, female genital cosmetic surgery advertising appears to arise from patriarchal constructs of women's bodies and determination to control them. We contend that Indonesia shares with other countries the need for education-of medical practitioners and the general public-about sexuality and the vulva, and that the advertising of female genital cosmetic surgery should be regulated and rigorously monitored.
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Affiliation(s)
- Pramasari Edie Wijaya
- Global and Women's Health, Public Health and Preventive Medicine, Monash University, Melbourne, Australia
| | - Jane Fisher
- Global and Women's Health, Public Health and Preventive Medicine, Monash University, Melbourne, Australia
| | - Maggie Kirkman
- Global and Women's Health, Public Health and Preventive Medicine, Monash University, Melbourne, Australia
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Edward A, Holton S, Rasmussen B, Bouchoucha SL. Nurses' Experiences and Perceptions of P2/N95 Mask Use During the COVID-19 Pandemic in Australia: A Qualitative Study. Nurs Health Sci 2024; 26:e70021. [PMID: 39721723 DOI: 10.1111/nhs.70021] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Grants] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 05/15/2024] [Revised: 11/05/2024] [Accepted: 12/08/2024] [Indexed: 12/28/2024]
Abstract
Experiencing side effects when wearing N95/P2 masks has negative impacts on health workers and increases exposure to pathogens. While side effects of wearing P2/N95 masks have been reported previously, these masks have never been used as widely as during the COVID-19 pandemic. This study examines Australian hospital nurses' experiences and perceptions of P2/N95 mask usage and its impacts on patient care at a time when P2/N95 masks were widely used. A qualitative exploratory-descriptive design involving semistructured interviews and focus groups was conducted with 12 nurses employed at a public health service in Melbourne, Australia. The data were thematically analyzed. Participants shared experiences resulted in four themes derived from the data: "adverse health impacts," "occupational challenges caused by scarcity of P2/N95 masks," "impact of wearing P2/N95 masks on patient care and work practices," and "adaptive strategies to improve patient care." Nurses experienced notable adverse effects from P2/N95 masks, affecting patient care quality. This study's findings underscore the importance of enhancing training, education, and policies regarding mask usage to uphold high standards of patient care and reduce exposure to pathogens.
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Affiliation(s)
- Anie Edward
- Western Health, St Albans, Australia
- School of Nursing and Midwifery, Deakin University, Geelong, Australia
| | - Sara Holton
- School of Nursing and Midwifery, Deakin University, Geelong, Australia
- Centre for Quality and Patient Safety Research - Western Health Partnership in the Institute for Health Transformation, Deakin University, Geelong, Australia
- Health and Social Care Unit, School of Public Health and Preventive Medicine, Faculty of Medicine, Nursing and Health Sciences, Monash University, København, Denmark
| | - Bodil Rasmussen
- School of Nursing and Midwifery, Deakin University, Geelong, Australia
- Centre for Quality and Patient Safety Research - Western Health Partnership in the Institute for Health Transformation, Deakin University, Geelong, Australia
- Department of Public Health, Faculty of Health and Medical Sciences, University of Copenhagen, Melbourne, Australia
- Faculty of Health Sciences, University of Southern Denmark, København, Denmark
| | - Stéphane L Bouchoucha
- School of Nursing and Midwifery, Deakin University, Geelong, Australia
- Centre for Quality and Patient Safety Research - Western Health Partnership in the Institute for Health Transformation, Deakin University, Geelong, Australia
- Centre for Innovation in Infectious Disease and Immunology Research (CIIDIR), Deakin University, Geelong, Australia
- Manipal College of Nursing (MCON), Manipal Academy of Higher Education (MAHE), Manipal, India
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Velgan M, Uibu A, Õunap E, Kangasniemi MK, Michels NR, Kalda R. Early-career general practitioners' career intentions in Estonia: A qualitative study. Eur J Gen Pract 2024; 30:2368557. [PMID: 38958064 PMCID: PMC11225626 DOI: 10.1080/13814788.2024.2368557] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 06/07/2023] [Accepted: 06/11/2024] [Indexed: 07/04/2024] Open
Abstract
BACKGROUND The shortage of general practitioners (GPs) is a worsening problem in many countries and poses a threat to the services provided by primary care and by extension for the entire healthcare system. Issues with GP workforce recruitment and retention can be reasons for this shortage. OBJECTIVES To describe GP trainees and newly qualified GPs experiences and perceptions on how their training and early experiences of work influence their career intentions in primary care in Estonia. METHODS A qualitative study with GP trainees (n = 12) and newly qualified GPs (n = 13) using semi-structured group interviews (n = 6) was conducted. Interviews were conducted from October until November 2020. Data were analysed using thematic analysis with NVivo Software. RESULTS Although early-career GPs in Estonia envision their future roles as GP practice owners with patient list, this is often postponed due to various reasons. Early-career GPs expressed a sense of unpreparedness to fill all the roles of GPs' and found the process of establishing a GP practice and taking on a patient lists very complicated. They value work-life balance and prefer workplaces, which offer flexible working conditions. CONCLUSION Potential strategies were identified to enhance the willingness of early-career GPs to continue their career as GP practice owners with patient list: improving the GP training program by placing more emphasis on managing skills and making the process of establishing GP practice and taking on a patient list less bureaucratic and more accessible.
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Affiliation(s)
- Marta Velgan
- Institute of Family Medicine and Public Health, University of Tartu, Tartu, Estonia
| | - Anett Uibu
- Institute of Family Medicine and Public Health, University of Tartu, Tartu, Estonia
| | - Elinor Õunap
- Institute of Family Medicine and Public Health, University of Tartu, Tartu, Estonia
| | | | | | - Ruth Kalda
- Institute of Family Medicine and Public Health, University of Tartu, Tartu, Estonia
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Chakraverty D, Neumann A, Renner I. ["You sit in a bubble while the others go about their lives"-perspectives of Ukrainian refugee mothers with children aged 0-3 years]. Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz 2024; 67:1334-1342. [PMID: 39545948 PMCID: PMC11614973 DOI: 10.1007/s00103-024-03974-7] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 06/19/2024] [Accepted: 10/14/2024] [Indexed: 11/17/2024]
Abstract
BACKGROUND Little is known about the situation of Ukrainian parents with children up to the age of three who have fled to Germany since Russia's attack on Ukraine. The aim of the National Center for Early Intervention research project is to explore the perspective of this group on their lives in Germany. This analysis focuses on the burdens and resources of the parents and their knowledge and use of support services. METHODS In 17 interviews (duration approx. one hour each), parents (16 mothers, one father) who had fled from Ukraine to Germany with children up to the age of three were interviewed between October and December 2022, and their answers were qualitatively analyzed using structured content analysis. RESULTS The interviewees primarily described the psychological stress caused by war and flight, negative emotions such as feelings of loneliness, sadness and lack of motivation, and obstacles to integration as burdens. Resources were primarily networks of Ukrainian- and Russian-speaking people in Germany as well as personal resources such as self-care skills. Supporting services were generally communicated via electronic media. Services for childcare, language courses, and support with health issues were considered particularly useful. A lack of childcare was the most important reason for not taking up other services. DISCUSSION The psychological stress of the interviewees indicates a need for therapy capacities in their native language. Childcare may enable Ukrainians to attend language courses that promote integration. The self-organized networks of the Ukrainian- and Russian-speaking community should be involved in the development of interventions for this target group in a participatory manner from the outset.
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Affiliation(s)
- Digo Chakraverty
- Nationales Zentrum Frühe Hilfen, Bundeszentrale für gesundheitliche Aufklärung, Köln, Deutschland.
- Bundeszentrale für gesundheitliche Aufklärung, Maarweg 149-161, 50825, Köln, Deutschland.
| | - Anna Neumann
- Nationales Zentrum Frühe Hilfen, Bundeszentrale für gesundheitliche Aufklärung, Köln, Deutschland
| | - Ilona Renner
- Nationales Zentrum Frühe Hilfen, Bundeszentrale für gesundheitliche Aufklärung, Köln, Deutschland
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Phillips G, McCullough F, Hemingway P. Attitudes of health and social care professionals towards the use of blended diets for enteral tube feeding for children and young people. J Child Health Care 2024:13674935241299277. [PMID: 39559987 DOI: 10.1177/13674935241299277] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Indexed: 11/20/2024]
Abstract
Using a blended diet as an alternative to commercial formula is becoming more popular amongst parents and carers of children and young people (CYP) requiring long-term enteral tube feeding (ETF). Emerging evidence has demonstrated physiological and social benefits; however, families report feeling unsupported to use a blended diet in settings outside the home. This study aimed to explore the attitudes of health and social care staff towards the use of blended diets for CYP. Health and social care professionals with experience of blended diets were invited to partake in an online semi-structured qualitative interview. Thematic analysis was used to identify themes. Five participants from health, education and social care settings were interviewed. Online interviews worked effectively for data collection to allow flexibility to accommodate participants' care roles and avoid face-to-face contact necessary with Coronavirus disease 2019 restrictions. Three themes were identified in the data:• Change from medicalised enteral tube feeding practice.• Individual, person-centred approach.• Open support networks and responsibility.Findings showed that blended diets can be accommodated; however, barriers to implementation remain. Medicalisation of ETF continues to impair acceptance of blended diets whilst effective multi-disciplinary team communication and support facilitates its use in settings outside the home.
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Affiliation(s)
- Gemma Phillips
- School of Health Sciences, University of Nottingham, Nottingham, UK
- Nutrition and Dietetics, Leicestershire Partnership NHS Trust, Leicester, UK
| | - Fiona McCullough
- School of Biosciences, University of Nottingham, Sutton Bonington, UK
| | - Pippa Hemingway
- School of Health Sciences, University of Nottingham, Nottingham, UK
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Khodor R, Bou Karroum L, El-Jardali F. Flexible ngo-donor coordination in aid interventions to strengthen resilience: the case of Lebanon's primary healthcare system. BMJ Glob Health 2024; 9:e016614. [PMID: 39537210 PMCID: PMC11575341 DOI: 10.1136/bmjgh-2024-016614] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 06/20/2024] [Accepted: 10/18/2024] [Indexed: 11/16/2024] Open
Abstract
INTRODUCTION With shifts in international aid, international donors have increasingly regarded non-governmental organisations (NGOs) as capable of providing alternative public service arrangements. As funding flows to NGOs, particularly in contexts where both actors work towards strengthening health system resilience, NGO-donor relationships evolve. However, despite calls to investigate the contribution of relationships between actors within health systems, including NGOs and their donors, to health system resilience, empirical research is limited. Understanding these relationships is crucial for comprehending their role in fostering resilient health systems. This research fills this gap, by examining how NGO-donor coordination contributes to health system resilience in Lebanon. METHODS This research focuses on Lebanon's primary health system, primarily managed by NGOs through contracts and heavily funded by donors. It examines NGOs operating under the national primary healthcare network (PHCN). The participants, including staff from these NGOs and donor agencies funding them, were purposively selected. 31 semi-structured interviews were conducted. The analysis framework relied on a thematic analysis. RESULTS The findings revealed that the flexibility in NGO-donor coordination in Lebanon depends on donors' trust, regular coordination and donors' willingness to listen to NGOs' needs. In this light, they uncovered that flexible NGO-donor coordination enhances NGOs' resilience capacities in shocks, allowing them to operate flexibly. By strengthening NGOs' resilience, which contributes to the resilience of the broader health system, this relationship contributes to health system resilience. CONCLUSION The findings contradict the mainstream development literature on NGO-donor relationships. The latter focuses on donor funding requirements that often result in rigid NGO-donor coordination, making it difficult for NGOs to be resilient. Rather, they emphasise the donors' role in implementing flexible development approaches, through flexible NGO-donor coordination, strengthening health system resilience. Overall, this paper contributes to the health system resilience literature by exploring how specific configurations of NGO-donor coordination strengthen health system resilience.
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Affiliation(s)
- Rawya Khodor
- The Bartlett Development Planning Unit (DPU), University College London (UCL), London, UK
- Knowledge to Policy (K2P) Center, Faculty of Health Sciences, American University of Beirut (AUB), Beirut, Lebanon
| | - Lama Bou Karroum
- Knowledge to Policy (K2P) Center, Faculty of Health Sciences, American University of Beirut (AUB), Beirut, Lebanon
| | - Fadi El-Jardali
- Knowledge to Policy (K2P) Center, Faculty of Health Sciences, American University of Beirut (AUB), Beirut, Lebanon
- Department of Health Research Methods, Evidence, and Impact (HEI), McMaster University, Hamilton, Ontario, Canada
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Chan WSL, Naganathan V, Fyfe A, Mahmood A, Nanda A, Warby A, Pham D, Southi N, Sutherland S, Moth E. Support roles, carer burden, and decision-making preferences of carers of older adults with cancer. J Geriatr Oncol 2024; 15:102079. [PMID: 39406676 DOI: 10.1016/j.jgo.2024.102079] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 02/23/2024] [Revised: 05/18/2024] [Accepted: 10/01/2024] [Indexed: 11/10/2024]
Abstract
INTRODUCTION Older adults with cancer value the perspectives of significant others and their carers regarding decision-making about treatment. Understanding the support provided by carers, and their perspectives on involvement in treatment decision-making, can help us improve our communication with patients and their supports. We aimed to describe the roles, burden, and decision-making preferences of carers of older adults with cancer. MATERIALS AND METHODS We performed a cross-sectional survey of carers of older adults (≥65y) with cancer at three centres in Sydney, Australia. Type, frequency, and perspectives on providing care were evaluated using Likert scales. Preferred and perceived role in treatment decision-making by modified Control Preferences Scale, and carer burden by Zarit Burden Index (ZBI-12), were evaluated. Preferred role in decision-making and carer burden were compared between groups (culturally and linguistically diverse backgrounds [CALD], sex, and carer age ≥ 65) by chi-squared or t-tests. RESULTS One-hundred and fourteen returned surveys were included (23 partially completed). Carer characteristics: median age 55y (range 24-90), female (74 %), child (49 %) and spouse (35 %) of the care-recipient. Care-recipient characteristics: median age 75y (range 65-96), receiving anti-cancer treatment (85 %), and CALD background (44 %). Carers were frequently involved in communication and information gathering (45 % -80 %) and supported instrumental activities of daily living (IADLs) (43 % - 81 %) more frequently than basic activities of daily living (ADLs) (2-13 %). Most (91 %) preferred to be present when treatment options were discussed. Their preferred role in treatment decision-making was passive in 66 %, collaborative in 30 %, and active in 4 %, with most (72 %) playing their preferred role. The preferred role was associated with carer age (p = 0.01) and CALD background (p = 0.04), with younger (<65y) carers and those caring for CALD older adults preferring a more passive role. Carer burden was 'low' in 29 %, 'moderate' in 31 %, and 'high' in 39 %, and providing psychological support was rated most challenging. DISCUSSION Carers of older adults with cancer play varied support roles, particularly in communication and information gathering. Carers prefer to be present for discussions about treatment options, though favour a passive role in treatment decision-making, upholding patient autonomy. Understanding the communication preferences of carers is an important consideration when supporting the patient in deciding treatment options and direction of care.
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Affiliation(s)
- Wing Sze Lindsay Chan
- Department of Aged Care and Rehabilitation, Concord Repatriation General Hospital, Sydney, Australia.
| | - Vasi Naganathan
- Department of Aged Care and Rehabilitation, Concord Repatriation General Hospital, Sydney, Australia; University of Sydney, Sydney, Australia; Centre for Education and Research on Ageing (CERA), Concord Repatriation General Hospital, Sydney, Australia
| | - Abby Fyfe
- Macquarie University Hospital, Sydney, Australia
| | - Alina Mahmood
- University of Sydney, Sydney, Australia; Concord Cancer Centre, Concord Repatriation General Hospital, Sydney, Australia; Chris O'Brien Lifehouse, Sydney, Australia
| | | | - Anne Warby
- Centre for Education and Research on Ageing (CERA), Concord Repatriation General Hospital, Sydney, Australia
| | - Duong Pham
- Concord Cancer Centre, Concord Repatriation General Hospital, Sydney, Australia
| | - Natalie Southi
- Concord Cancer Centre, Concord Repatriation General Hospital, Sydney, Australia
| | - Sarah Sutherland
- University of Sydney, Sydney, Australia; Chris O'Brien Lifehouse, Sydney, Australia
| | - Erin Moth
- University of Sydney, Sydney, Australia; Macquarie University Hospital, Sydney, Australia; Faculty of Medicine, Health and Human Sciences, Macquarie University, Australia
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Plumbley S, Taneja S, Griggs J, Al Rais A, Curtis L, Lyon R. Patient and family aftercare enhance interactions between Helicopter Emergency Medicine Services and former patients and families. BMC Health Serv Res 2024; 24:1238. [PMID: 39407209 PMCID: PMC11481800 DOI: 10.1186/s12913-024-11720-7] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Download PDF] [Figures] [Journal Information] [Subscribe] [Scholar Register] [Received: 06/15/2024] [Accepted: 10/08/2024] [Indexed: 10/19/2024] Open
Abstract
BACKGROUND Helicopter Emergency Medical Services (HEMS) in the United Kingdom (UK) deliver enhanced care to high-acuity, critically ill and injured patients. To enable patients to meet the HEMS team who treated them, many services within the UK have developed or are in the process of developing a Patient and Family Aftercare Service (PFAS). This study aims to evaluate whether the introduction of PFAS mitigates anxiety associated with patient aftercare visits. METHODS A service evaluation of anxiety in HEMS team members before and after patient aftercare visits were conducted. The study was carried out between 1 September 2023, and 31 October 2023, and patient visits were undertaken between March 2022 and July 2023. An electronic survey was distributed to the respondents who provided informed consent for participation. The survey comprised the validated generalised anxiety disorder anxiety scale (GAD-7) and five additional contextualised statements developed through the wider PFAS. Anonymised data were collected using REDCap, a secure electronic database and was analysed in R programming. Free-text comments were reported by content analysis, placed into themes, and discussed with a narrative to complement the quantitative analysis. RESULTS Of the 33 recipients, 25 completed the questionnaire. Between the pre- and post-aftercare visits, a statistically significant difference was found between scores for GAD-7 (0.004, p < 0.05) and contextualised statements (0.001, p < 0.05). In addition, six broad themes were identified through content analysis. These include the emotional impact of patient interaction, coping strategies and structural changes in the aftercare system, challenges in patient and family expectations, anxieties relating to operational commitments, memory and recall of the incident, and a positive impact on personal growth. CONCLUSION Anxiety related to patient aftercare visits was reduced when measured before and after the patient visits. Following this service evaluation, we can hypothesise that within pre-hospital care, PFAS plays an important structural role. Future research should focus on affirming the correct tool to measure anxiety in multi-disciplinary teams and prospectively evaluating these methods collaboratively across multiple pre-hospital services.
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Affiliation(s)
- Stuart Plumbley
- Air Ambulance Charity Kent Surrey Sussex, Hanger 10, Redhill Aerodrome, Redhill, RH1 5YP, Surrey, UK
| | - Sarita Taneja
- Air Ambulance Charity Kent Surrey Sussex, Hanger 10, Redhill Aerodrome, Redhill, RH1 5YP, Surrey, UK
| | - Joanne Griggs
- Air Ambulance Charity Kent Surrey Sussex, Hanger 10, Redhill Aerodrome, Redhill, RH1 5YP, Surrey, UK.
- Department of Health Sciences, University of Surrey, Guildford, GU2 7XH, Surrey, UK.
| | - Andrew Al Rais
- Air Ambulance Charity Kent Surrey Sussex, Hanger 10, Redhill Aerodrome, Redhill, RH1 5YP, Surrey, UK
| | - Leigh Curtis
- Air Ambulance Charity Kent Surrey Sussex, Hanger 10, Redhill Aerodrome, Redhill, RH1 5YP, Surrey, UK
| | - Richard Lyon
- Air Ambulance Charity Kent Surrey Sussex, Hanger 10, Redhill Aerodrome, Redhill, RH1 5YP, Surrey, UK
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Goodrich S, Canfield KN, Mulvaney K. Expert insights on managing harmful algal blooms. FRONTIERS IN FRESHWATER SCIENCE 2024; 2:1-11. [PMID: 40206660 PMCID: PMC11976657 DOI: 10.3389/ffwsc.2024.1452344] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Grants] [Track Full Text] [Subscribe] [Scholar Register] [Indexed: 04/11/2025]
Abstract
Freshwater harmful algal blooms (HABs) are a global environmental, economic, social, and public health hazard. While there is an increasing understanding of the ecological considerations of HABs, there is limited understanding of human dimensions and management needs. We conducted semi-structured key informant interviews with 28 water managers and researchers to better understand how they perceive current management and to identify future management priorities in regard to HABs. For this study, we interviewed 31 key informants from three regions of the United States (New England, Ohio, and the Mountain West). We solicited insights across aspects of HABs management, including prevention, forecasting, monitoring, response, and communication. Nutrient management was the main consideration for the prevention of HAB events. Key informants noted that forecasting has the potential to be a valuable tool in the future but is not yet accurate enough at a local scale for widespread use. Monitoring was found to be implemented in varying ways across and even within the states and regions, with a need for more funding and standardization. HAB event responses vary greatly from chemical and physical treatments that suppress toxins to no-swim advisories, all with a mix of strengths and weaknesses. Finally, an increase in and improvement of communication efforts was identified as critical for reducing public health risks. These findings provide perceptions of current management practices and future plans while including opportunities to improve current freshwater HAB management efforts.
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Affiliation(s)
- Sarah Goodrich
- Department of Geography and GIS, University of Cincinnati, Cincinnati, OH, United States
| | - Katherine Nicole Canfield
- U.S. Environmental Protection Agency, Office of Research and Development, Office of Science Advisor, Policy, and Engagement, Washington, DC, United States
| | - Kate Mulvaney
- U.S. Environmental Protection Agency, Atlantic Coastal Environmental Sciences Division, Narragansett, RI, United States
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Gang D, Kirkman M, Loff B. "Obviously It's for the Victim to Decide": Restorative Justice for Sexual and Family Violence From the Perspective of Second-Wave Anti-Rape Activists. Violence Against Women 2024; 30:3187-3210. [PMID: 37170594 PMCID: PMC11380357 DOI: 10.1177/10778012231174353] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 05/13/2023]
Abstract
While the appropriateness of restorative justice for sexual and family violence continues to experience worldwide feminist debate, these programs already exist. We thematically analyzed the transcripts of former members of a second-wave feminist antirape organization in Australia to ascertain their perspectives on a victim-centered conferencing model. They provided informed and valuable insights drawn from their decades of advocacy. Participants supported restorative justice in principle, stressing respect for victims' agency and independence in all policies and program designs. Their reservations, consistent with concerns in the literature, related to meeting victims' needs within a constrained system rather than principled opposition to the concept.
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Affiliation(s)
- Daye Gang
- School of Public Health and Preventive Medicine, Monash University, Melbourne, Australia
| | - Maggie Kirkman
- School of Public Health and Preventive Medicine, Monash University, Melbourne, Australia
| | - Bebe Loff
- School of Public Health and Preventive Medicine, Monash University, Melbourne, Australia
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Chandrasekar A, Clark SE, Martin S, Vanderslott S, Flores EC, Aceituno D, Barnett P, Vindrola-Padros C, Vera San Juan N. Making the most of big qualitative datasets: a living systematic review of analysis methods. Front Big Data 2024; 7:1455399. [PMID: 39385754 PMCID: PMC11461344 DOI: 10.3389/fdata.2024.1455399] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Grants] [Track Full Text] [Figures] [Journal Information] [Subscribe] [Scholar Register] [Received: 06/26/2024] [Accepted: 08/29/2024] [Indexed: 10/12/2024] Open
Abstract
Introduction Qualitative data provides deep insights into an individual's behaviors and beliefs, and the contextual factors that may shape these. Big qualitative data analysis is an emerging field that aims to identify trends and patterns in large qualitative datasets. The purpose of this review was to identify the methods used to analyse large bodies of qualitative data, their cited strengths and limitations and comparisons between manual and digital analysis approaches. Methods A multifaceted approach has been taken to develop the review relying on academic, gray and media-based literature, using approaches such as iterative analysis, frequency analysis, text network analysis and team discussion. Results The review identified 520 articles that detailed analysis approaches of big qualitative data. From these publications a diverse range of methods and software used for analysis were identified, with thematic analysis and basic software being most common. Studies were most commonly conducted in high-income countries, and the most common data sources were open-ended survey responses, interview transcripts, and first-person narratives. Discussion We identified an emerging trend to expand the sources of qualitative data (e.g., using social media data, images, or videos), and develop new methods and software for analysis. As the qualitative analysis field may continue to change, it will be necessary to conduct further research to compare the utility of different big qualitative analysis methods and to develop standardized guidelines to raise awareness and support researchers in the use of more novel approaches for big qualitative analysis. Systematic review registration https://osf.io/hbvsy/?view_only=.
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Affiliation(s)
- Abinaya Chandrasekar
- Rapid Research, Evaluation, and Appraisal Lab (RREAL), Department of Targeted Intervention, University College London, London, United Kingdom
| | - Sigrún Eyrúnardóttir Clark
- Rapid Research, Evaluation, and Appraisal Lab (RREAL), Department of Targeted Intervention, University College London, London, United Kingdom
| | - Sam Martin
- Rapid Research, Evaluation, and Appraisal Lab (RREAL), Department of Targeted Intervention, University College London, London, United Kingdom
- Oxford Vaccine Group, University of Oxford and NIHR Oxford Biomedical Research Centre, Oxford, United Kingdom
| | - Samantha Vanderslott
- Oxford Vaccine Group, University of Oxford and NIHR Oxford Biomedical Research Centre, Oxford, United Kingdom
| | - Elaine C. Flores
- Centre on Climate Change and Planetary Health, The London School of Hygiene & Tropical Medicine, London, United Kingdom
- Centro Latinoamericano de Excelencia en Cambio Climático y Salud, Universidad Peruana Cayetano Heredia, Lima, Peru
| | - David Aceituno
- School of Medicine, Pontificia Universidad Católica de Chile, Santiago, Chile
| | - Phoebe Barnett
- Department of Clinical, Educational, and Health Psychology, University College London, London, United Kingdom
| | - Cecilia Vindrola-Padros
- Rapid Research, Evaluation, and Appraisal Lab (RREAL), Department of Targeted Intervention, University College London, London, United Kingdom
| | - Norha Vera San Juan
- Rapid Research, Evaluation, and Appraisal Lab (RREAL), Department of Targeted Intervention, University College London, London, United Kingdom
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Scholl M, Amerkamp J, Chermette C, Frank F, Funke C, Giesen L, Haas V, Heßbrügge M, Küppers L, Pilic L, Vitinius F, Biallas B. Patients' and stakeholders' experiences of a personalized self-management SUPport program (P-SUP) for patients with type 2 diabetes mellitus and/or coronary heart disease: a qualitative process evaluation : Maximilian Scholl. BMC Public Health 2024; 24:2566. [PMID: 39300369 PMCID: PMC11414288 DOI: 10.1186/s12889-024-20034-6] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Grants] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 11/24/2023] [Accepted: 09/10/2024] [Indexed: 09/22/2024] Open
Abstract
BACKGROUND Chronic diseases such as type 2 diabetes mellitus and coronary heart disease cause medical, social, and economic burdens worldwide. Disease management programs in Germany mostly lack components to improve patients' self-management and health-promoting lifestyles despite clear guideline recommendations. Therefore, a Personalized Self-Management Support Program (P-SUP) was developed, which includes: (1) peer support groups; (2) telephone coaching; (3) feedback reports and, (4) a web portal. This study aims to explore patients' and implementing stakeholders' experiences in the implementation of P-SUP to identify barriers and facilitators to the implementation of the intervention. METHODS A qualitative study was conducted using face-to-face focus group interviews with participating patients and telephone-based one-to-one expert interviews with implementing stakeholders, involved in the delivery of the intervention. The transcribed interview reports were analyzed using qualitative content analysis, and the contents were categorized according to Donabedian's Structure-Process-Outcome framework. RESULTS A total of six themes among patients (N = 35) and five themes among implementing stakeholders (N = 32) represent the experiences. The patient themes were: (1) technical conditions, (2) indoor facilities, (3) group composition, (4) acceptance of digital components, (5) supervision and feedback and (6) impact on lifestyle behavior. The themes among the implementing stakeholders were: (1) multiprofessional approach, (2) human resources, (3) patient acceptance, (4) supervision and feedback and (5) impact on lifestyle behavior. CONCLUSIONS Multiprofessional interventions such as P-SUP appear to be valuable for patients and implementing stakeholders. Although infrastructural barriers made the implementation of peer support and digital patient education difficult, patients rated the exchange with peers and experts on health-related topics positively. The lack of supervision and feedback during the course of the intervention might be compensated by regular telephone coaching. The findings from this study can be used in future studies to guide researchers and implementing stakeholders and to improve the feasibility and effectiveness of complex interventions in different contexts. TRIAL REGISTRATION The P-SUP study was registered in the German Clinical Trials Register (DRKS) on 16/07/2020 under the registration number DRKS00020592.
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Affiliation(s)
- Maximilian Scholl
- Institute of Movement Therapy and Movement-oriented Prevention and Rehabilitation, German Sports University Cologne, Cologne, Germany.
| | - Jessica Amerkamp
- Institute of Movement Therapy and Movement-oriented Prevention and Rehabilitation, German Sports University Cologne, Cologne, Germany
| | - Chloé Chermette
- Institute of Psychology, German Sports University Cologne, Cologne, Germany
| | - Friederike Frank
- Institute for Digitalization and General Medicine, Medical Faculty, RWTH Aachen University, Aachen, Germany
- Center for Rare Diseases Aachen (ZSEA), Medical Faculty, RWTH , Aachen University, Aachen, Germany
| | - Christian Funke
- IInstitute of General Practice, Heinrich Heine University Düsseldorf, Düsseldorf, Germany
| | - Lisa Giesen
- Institute of Health Economics and Clinical Epidemiology, University Hospital Cologne, Cologne, Germany
| | - Viviana Haas
- IInstitute of General Practice, Heinrich Heine University Düsseldorf, Düsseldorf, Germany
| | - Martina Heßbrügge
- Institute of General Practice, University Duisburg-Essen, Essen, Germany
| | - Lucas Küppers
- Institute of Family Medicine and General Practice, University of Bonn, Bonn, Germany
| | - Larisa Pilic
- Institute of General Practice, University of Cologne, Faculty of Medicine, Cologne, Germany
| | - Frank Vitinius
- Department of Psychosomatics and Psychotherapy, Faculty of Medicine, University Hospital and University of Cologne, Cologne, Germany
- Department of Psychosomatic Medicine, Robert-Bosch Hospital, Stuttgart, Germany
| | - Bianca Biallas
- Institute of Movement Therapy and Movement-oriented Prevention and Rehabilitation, German Sports University Cologne, Cologne, Germany
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Kaip D, Blackwood N, Kew-Simpson S, Wickersham A, Harvey J, Dickson H. Educator perceptions of the complex needs of young people in Pupil Referral Units: An exploratory qualitative analysis. PLoS One 2024; 19:e0310633. [PMID: 39298463 DOI: 10.1371/journal.pone.0310633] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 05/09/2024] [Accepted: 09/04/2024] [Indexed: 09/21/2024] Open
Abstract
BACKGROUND Alternative education provision such as Pupil Referral Units support young people who have been excluded from mainstream school settings and often from disadvantaged backgrounds. However, there is limited research to date exploring educators' perceptions of the complex needs of young people in PRUs, and the extent to which PRUs as currently configured can meet such needs. METHODS Between March 2019 and October 2020 twenty-two participants holding various educational roles from five different Pupil Referral Units across London and Southeast England were interviewed. The interviews aimed to explore the participants' experiences of working with students in PRU's and examine some of the challenges that they might encounter. Semi-structured interviews were analysed using Reflexive thematic analysis. RESULTS The three identified themes and their sub-themes highlighted the complex needs of these young people and identified significant barriers to effective service provision. The first theme 'Complexities of PRU population' highlighted the challenges that young people in PRUs face and perceived systemic short falls in addressing such complexity. The second theme 'Challenges of the PRU environment' highlights the frustrations that educators experience when it comes to providing adequate support to young people in PRU's, the absence of agency support, and the uncertainty that these educational settings can bring. The third theme 'Peer Group Influences' highlights the impact of peer groups from beyond the classroom on engagement within the classroom. CONCLUSIONS Despite the clear complex needs of young people in PRUs, staff reported feeling ill-equipped to support these individuals and lacked access to effective inter-agency support. Participants reported that pupils' mental health difficulties were exacerbated by exclusion and reintegration practices, an over-zealous focus on educational outcomes and the impact of gang influences on their school lives. Implications include more specific mental health training for staff working in PRU's, improved inter-agency working and the incorporation of trauma-informed approaches in educational practice.
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Affiliation(s)
- Dennis Kaip
- Department of Forensic and Neurodevelopmental Sciences, Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, United Kingdom
| | - Nigel Blackwood
- Department of Forensic and Neurodevelopmental Sciences, Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, United Kingdom
| | - Sarah Kew-Simpson
- Department of Forensic and Neurodevelopmental Sciences, Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, United Kingdom
| | - Alice Wickersham
- Department of Child and Adolescent Psychiatry, Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, United Kingdom
| | - Joel Harvey
- Department of Law and Criminology, Royal Holloway, University of London, London, United Kingdom
| | - Hannah Dickson
- Department of Forensic and Neurodevelopmental Sciences, Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, United Kingdom
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Tragantzopoulou P, Giannouli V, Filippou A, Demirtzidou M. Burnout and Coping Strategies in Integrative Psychotherapists: Findings from Qualitative Interviews. Healthcare (Basel) 2024; 12:1820. [PMID: 39337161 PMCID: PMC11431683 DOI: 10.3390/healthcare12181820] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 07/16/2024] [Revised: 08/31/2024] [Accepted: 09/10/2024] [Indexed: 09/30/2024] Open
Abstract
Burnout among psychotherapists is a pervasive challenge affecting both professional well-being and client care. This study aims to explore the experience of burnout among integrative psychotherapists and examine the strategies they employ to cope with this phenomenon. Interviews were conducted with 17 integrative psychotherapists, and the data were analyzed using Braun and Clarke's six-step thematic analysis. Through this analysis, two themes were identified: (1) work-related pressures and burnout manifestations and (2) strategies for maintaining optimal functioning. Fatigue, headaches, challenges in decision-making or session planning, numbness in the form of paralysis, and disconnection from clients emerged as primary symptoms, impacting therapeutic efficacy. Participants' intense sense of responsibility toward clients and their self-worth validation through client progress intensified burnout risks, particularly among novices. Personal therapy and clinical supervision emerged as pivotal in mitigating burnout, offering support, and enhancing therapist resilience. Additionally, peer support and organizational interventions were deemed crucial during crises, emphasizing the need for structured support systems within professional bodies. These findings contribute to a deeper understanding of burnout in psychotherapy and highlight the need for targeted interventions to enhance professionals' resilience and sustain effective client outcomes.
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Affiliation(s)
| | - Vaitsa Giannouli
- School of Psychology, Aristotle University of Thessaloniki, 54124 Thessaloniki, Greece
| | - Anna Filippou
- Mediterranean College, University of Derby, 54625 Thessaloniki, Greece
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Mahlaule AP, McCrindle CME, Napoles L. Inclusive education and related policies in special needs schools in South Africa. Afr J Disabil 2024; 13:1358. [PMID: 39364203 PMCID: PMC11447558 DOI: 10.4102/ajod.v13i0.1358] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Figures] [Journal Information] [Subscribe] [Scholar Register] [Received: 10/29/2023] [Accepted: 06/06/2024] [Indexed: 10/05/2024] Open
Abstract
Background Post-apartheid, the education system shifted its focus from a segregated education system to an inclusive education system, which resulted in greater consideration of the role and function of special needs schools. In 2014 the National Department of Basic Education developed and implemented an inclusive approach and policies to provide guidelines on the running of special needs schools (SNS). The study was conducted in six SNS in Ekurhuleni South District, South Africa. Objectives The study explored the experiences of teachers and healthcare workers when implementing policies in SNS in the study area. Method This exploratory qualitative study used purposive sampling to select 13 teachers and healthcare workers for in-depth interviews. Collected data were analysed using inductive thematic analysis and ATLAS-ti version 23. Results Teachers and healthcare workers had different working experiences and understandings about inclusive education and policies, as well as their role in implementing these policies. Experienced challenges included lack of training, limited resources, lack of parental support, issues with differentiated curriculum, an unacceptable teaching environment; and poor referral systems. These challenges evoked strategies such as improvising, collaborating, and referring. Participants indicated that they required further training, resources, and support to successfully implement inclusive policies. Conclusion Both teachers and healthcare workers agreed that resources were lacking at all SNS represented. Staff training was urgently needed as the current curricula at SNS were differentiated for learners with physical and intellectual disabilities. Contribution Findings may inform policy implementation and change in SNS.
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Affiliation(s)
- Amukelani P Mahlaule
- School of Health Systems and Public Health, Faculty of Health Sciences, University of Pretoria, Pretoria, South Africa
| | - Cheryl M E McCrindle
- School of Health Systems and Public Health, Faculty of Health Sciences, University of Pretoria, Pretoria, South Africa
| | - Lizeka Napoles
- School of Health Systems and Public Health, Faculty of Health Sciences, University of Pretoria, Pretoria, South Africa
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Radez J, Causier C, Maughan D, Waite F, Johns L. The experience of seeking and accessing help from mental health services among young people of Eastern European backgrounds: A qualitative interview study. Psychol Psychother 2024; 97:425-438. [PMID: 38456496 PMCID: PMC11571270 DOI: 10.1111/papt.12524] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Grants] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 05/02/2023] [Revised: 12/02/2023] [Accepted: 02/27/2024] [Indexed: 03/09/2024]
Abstract
OBJECTIVES Most lifetime mental health problems (MHP) start before the age of 25. Yet young people-particularly those of minority backgrounds-often do not seek or access professional help. In the UK, young people of Eastern European (EE) backgrounds represent a large minority group; however, little is known about their experiences of MHP and help-seeking. In this study, we aim to understand the help-seeking process from the perspectives of EE young people. DESIGN We used a qualitative study design with semi-structured individual interviews. The results were analysed using reflexive thematic analysis. METHOD Twelve young people (18-25 years) of EE backgrounds, living in Oxfordshire, UK, took part. All participants had experienced a severe MHP and were identified in the community. RESULTS EE young people's experiences of MHP and help-seeking were driven by a sense of being caught between different cultures and simultaneously needing to navigate the potentially contrasting expectations of both cultures. This process was reinforced or tempered by the perceived continuing influence of young people's families, that is, families with more open views about MHP made it easier for young people to navigate through the process of help-seeking. Young people's internalised cultural and familial beliefs about MHP affected their decision-making when experiencing difficulties, their levels of trust in services, and perceived sense of resourcefulness and ability to cope. CONCLUSIONS Recognising and responding to the cultural tension that young people of EE backgrounds may experience can help us to develop more accessible and inclusive mental health services.
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Affiliation(s)
- Jerica Radez
- Department of Experimental PsychologyUniversity of OxfordOxfordUK
- Oxford Health NHS Foundation TrustOxfordUK
| | | | - Daniel Maughan
- Oxford Health NHS Foundation TrustOxfordUK
- Department of PsychiatryUniversity of OxfordOxfordUK
| | - Felicity Waite
- Department of Experimental PsychologyUniversity of OxfordOxfordUK
- Oxford Health NHS Foundation TrustOxfordUK
| | - Louise Johns
- Oxford Health NHS Foundation TrustOxfordUK
- Department of PsychiatryUniversity of OxfordOxfordUK
- Oxford Institute of Clinical Psychology Training and Research, Medical Sciences DivisionUniversity of OxfordOxfordUK
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Shattnawi KK, Balbaa EA. Resilience and challenges: A qualitative exploration of Jordanian Mothers' experiences with children who have cerebral palsy. J Pediatr Nurs 2024; 78:e314-e322. [PMID: 39054110 DOI: 10.1016/j.pedn.2024.07.020] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 02/27/2024] [Revised: 07/21/2024] [Accepted: 07/21/2024] [Indexed: 07/27/2024]
Abstract
PURPOSE This study aimed to explore the experiences of Jordanian mothers of children with cerebral palsy (CP) in order to better understand the challenges they face while caring for their children. DESIGN AND METHODS A qualitative descriptive study was applied, using semi-structured face to face interviews with a purposive sample of 10 mothers of children with CP. FINDINGS Mothers caring for children with CP embark on a challenging journey. Navigating the diagnosis begins with shock and disbelief, followed by emotional struggles as they deal with the new reality. This initial phase also involves caregiving challenges and hardships. Mothers may experience societal stigma and feelings of rejection, which can contribute to social isolation. Additionally, the physical demands of care can lead to financial hardships. These financial constraints can further limit access to specialized care, creating a frustrating cycle for mothers. Throughout this process, mothers demonstrate resilience by adapting to the illness. This encompasses making changes in their lives, actively seeking support, and developing expertise in managing their child's specific needs. CONCLUSIONS The results shed light on the emotional, physical, and social challenges faced by mothers of children with CP. The findings show a narrative of adaptation, resilience, and strength, encompassing adjustments to the diagnosis, substantial life changes, seeking support, and addressing challenges such as social stigma, isolation, and various hardships. PRACTICE IMPLICATIONS Our findings lay the foundation for tailored interventions and empathic support for mothers caring for a child with CP.
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Affiliation(s)
- Khulood Kayed Shattnawi
- Maternal & Child Health Nursing Department/ Faculty of Nursing, Jordan University of Science and Technology, P.O.Box (3030), Irbid 22110, Jordan.
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Schamong AS, Seven ÜS, Folkerts AK, Brockmeier K, Kalbe E. Experiences of siblings and parents of children with congenital heart disease and exploration of siblings' support needs. J Child Health Care 2024:13674935241273982. [PMID: 39140827 DOI: 10.1177/13674935241273982] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Indexed: 08/15/2024]
Abstract
Research with siblings of children with congenital heart disease (CHD) is scarce, although more than one-third of them experience limitations on their quality of life. This interview study aims to explore the diagnosis-associated experience of German siblings of children with CHD, their interest in a potential intervention, and potential key topics and contextual conditions of such an intervention. Interviews with 10 siblings aged 10 to 21 and a respective parent were conducted from August to October 2021, resulting in 20 interviews. Negative experiences associated with CHD included concerns regarding hospitalization, health deterioration, and the death of the child with CHD, as well as burdens including reduced family activities, less parental attention and support, and extended family meals. Positive experiences included perceived positive consequences of CHD, such as strong family cohesion and empathy toward people with chronic illnesses. Furthermore, siblings experienced enhanced coping mechanisms, such as having conversations with friends and family about the high prevalence of CHD and successful treatment or using distractions such as entertainment or study. Siblings' reported interest in a future intervention included empathy, peer support, and studying medical information on CHD. These findings should be used for counseling and developing tailored interventions to support these siblings.
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Affiliation(s)
- Alice Sarah Schamong
- Faculty of Medicine and University Hospital Cologne, Paediatric Cardiology, University of Cologne, Koln, Germany
| | - Ümran Sema Seven
- Department of Medical Psychology | Neuropsychology & Gender Studies and Center for Neuropsychological Diagnostics and Intervention (CeNDI), Faculty of Medicine and University Hospital Cologne, University of Cologne, Koln, Germany
| | - Ann-Kristin Folkerts
- Department of Medical Psychology | Neuropsychology & Gender Studies and Center for Neuropsychological Diagnostics and Intervention (CeNDI), Faculty of Medicine and University Hospital Cologne, University of Cologne, Koln, Germany
| | - Konrad Brockmeier
- Faculty of Medicine and University Hospital Cologne, University of Cologne, Koln, Germany
| | - Elke Kalbe
- Department of Medical Psychology | Neuropsychology & Gender Studies and Center for Neuropsychological Diagnostics and Intervention (CeNDI), Faculty of Medicine and University Hospital Cologne, University of Cologne, Koln, Germany
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Schobinger E, Vanetti M, Ramelet AS, Horsch A. First-time parents' perception of midwives' and other healthcare professionals' support behaviours: A qualitative study. Midwifery 2024; 135:104028. [PMID: 38795667 DOI: 10.1016/j.midw.2024.104028] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 06/05/2023] [Revised: 05/13/2024] [Accepted: 05/15/2024] [Indexed: 05/28/2024]
Abstract
PROBLEM Parents often report not being satisfied with the support received from midwives and nurses during their postpartum hospital stay. BACKGROUND Social support is an important protective factor during the transition to parenthood. However, little is known on how first-time parents perceived the behaviours demonstrated by healthcare professionals to support them. OBJECTIVE To describe social support behaviours of midwives and nurses as perceived by first-time parents during the early postpartum period. METHODS This qualitative study used individual semi-structured interviews to collect data. A purposeful sample of first-time parents staying on the postpartum ward of a Swiss university hospital were included. Thematic analysis was performed to identify themes and sub-themes. FINDINGS A total of 26 parents (15 mothers and 11 fathers) were interviewed. Parents reported behaviours perceived either as positive or negative. These behaviours were summarized into five themes: "Welcoming parents on the postpartum ward", "Establishing a partnership with parents", "Guiding parents in acquiring their new parenting role", "Caring for parent's emotions", and "Creating a peaceful environment". DISCUSSION AND CONCLUSION This study reported a wide variety of professional support behaviours. Behaviours promoting individualised care and related to empowering parents in their infant care were perceived as helpful by parents. Midwives and nurses should be aware of the way they provide support, as this shapes the early postpartum experience of first-time parents. Being sufficiently staffed and being well-trained, especially in providing interpersonal support, could help midwives and nurses provide better sensitive individualised care.
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Affiliation(s)
- Elisabeth Schobinger
- Institute of Higher Education and Research in Healthcare (IUFRS), University of Lausanne, Lausanne, Switzerland
| | - Mélanie Vanetti
- Institute of Higher Education and Research in Healthcare (IUFRS), University of Lausanne, Lausanne, Switzerland
| | - Anne-Sylvie Ramelet
- Institute of Higher Education and Research in Healthcare (IUFRS), University of Lausanne, Lausanne, Switzerland
| | - Antje Horsch
- Institute of Higher Education and Research in Healthcare (IUFRS), University of Lausanne, Lausanne, Switzerland; Department Woman-Mother-Child, University Hospital, Lausanne, Switzerland.
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Mägi L, Uibu E, Moi AL, Mortensen M, Naustdal K, Põlluste K, Lember M, Kangasniemi M. Collaborative learning linking nursing practice and education - Interview study with master's students and teachers. NURSE EDUCATION TODAY 2024; 139:106261. [PMID: 38796897 DOI: 10.1016/j.nedt.2024.106261] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Subscribe] [Scholar Register] [Received: 01/08/2024] [Revised: 05/03/2024] [Accepted: 05/20/2024] [Indexed: 05/29/2024]
Abstract
BACKGROUND Collaborative and innovative educational approaches are essential to building nurses' competencies in responding to healthcare challenges and to enhance high-quality nursing practice. Nurses are increasingly learning in various contexts, and thus, the understanding and organising of collaborative learning needs further exploration. AIM To describe collaborative learning in nursing practice and education from the point of view of nurses, involved as students and teachers in master's education in nursing. DESIGN AND METHODS Qualitative study using semi-structured focus groups involving 33 nurses as master's students and teachers from Estonia and Norway. The data were analysed using inductive content analysis. FINDINGS The essence of collaborative learning in the context of nursing practice and education was identified as the aggregation of diverse learners' skills and reflections while working towards shared aims. This fostered the development of workplace competencies, professional attitudes, and personal growth. Organising collaborative learning requires careful planning and synchronisation between clinical and educational organisations. CONCLUSIONS Collaborative learning is an inclusive method, aiding nurses at different phases of their career to gain knowledge and enhance their soft skills, and potentially reducing professional hierarchies. Further research is needed to develop methods for evaluating the outcomes of collaborative learning.
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Affiliation(s)
- Liisi Mägi
- Department of Nursing Science, Institute of Family Medicine and Public Health, Faculty of Medicine, University of Tartu, Estonia.
| | - Ere Uibu
- Department of Nursing Science, Institute of Family Medicine and Public Health, Faculty of Medicine, University of Tartu, Estonia.
| | - Asgjerd Litleré Moi
- Department of Health and Caring Sciences, Faculty of Health and Social Sciences, Western Norway University of Applied Sciences, Bergen, Norway; Institute for Nursing, Faculty of Health Sciences, VID Specialized University, Bergen, Norway.
| | - Michael Mortensen
- Department of Health and Caring Sciences, Faculty of Health and Social Sciences, Western Norway University of Applied Sciences, Bergen, Norway.
| | - Kristin Naustdal
- Department of Anaesthesia and Intensive Care, Haukeland University Hospital, Bergen, Norway
| | - Kaja Põlluste
- Department of Internal Medicine, Institute of Clinical Medicine, Faculty of Medicine, University of Tartu, Estonia.
| | - Margus Lember
- Department of Internal Medicine, Institute of Clinical Medicine, Faculty of Medicine, University of Tartu, Estonia; Department of Internal Medicine, Tartu University Hospital, Estonia.
| | - Mari Kangasniemi
- Department of Nursing Science, Institute of Family Medicine and Public Health, Faculty of Medicine, University of Tartu, Estonia; Department of Nursing Science, Faculty of Medicine, University of Turku, Finland; Turku University Hospital, The Wellbeing Services County of Southwest Finland.
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Bailey JG, Mossenson AI, Whynot S, Nyirigira G, Gower S, Livingston P. A Mixed-Methods Cohort Study Evaluating the Impact of a One-Day Well-Being Course for Anesthesia Providers Working in Low-Resource Settings. Anesth Analg 2024; 139:375-384. [PMID: 39008977 DOI: 10.1213/ane.0000000000006870] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [MESH Headings] [Grants] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 02/04/2024]
Abstract
BACKGROUND Burnout, depression, and anxiety are increasingly recognized as common among health care providers. Risks for these conditions are exacerbated in low-resource settings by excessive workload, high disease burden, resource shortage, and stigma against mental health issues. Based on discussions and requests to learn more about burnout during the Vital Anaesthesia Simulation Training (VAST), our team developed VAST Wellbeing, a 1-day course for health care providers in low-resource settings to recognize and mitigate burnout and to promote personal and professional well-being. METHODS This mixed-methods study used quantitative pre- and postcourse surveys using validated mental health measures and qualitative semistructured interviews to explore participants' experience of VAST Wellbeing during and after the course. Quantitative outcomes included burnout and professional fulfillment as measured by the Professional Fulfillment Index and general well-being as measured by the Warwick-Edinburgh Mental Wellbeing Scale. RESULTS Twenty-six participants from 9 countries completed the study. In the immediate postcourse survey, study participants rated the course overall as "very good" (60.7%) and "excellent" (28.6%). Quantitative analysis showed no statistical differences in levels of work exhaustion, interpersonal disengagement, burnout, professional fulfillment, or general mental well-being 2 months after the course. Five themes on the impact of VAST Wellbeing were identified during qualitative analysis: (1) raising awareness, breaking taboos; (2) not feeling alone; (3) permission and capacity for personal well-being; (4) workplace empowerment; and (5) VAST Wellbeing was relevant, authentic, and needed. CONCLUSIONS Causes of burnout are complex and multidimensional. VAST Wellbeing did not change measures of burnout and fulfillment 2 months postcourse but did have a meaningful impact by raising awareness, reducing stigma, fostering connection, providing skills to prioritize personal well-being, and empowering people to seek workplace change.
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Affiliation(s)
- Jonathan G Bailey
- From the Department of Anesthesia, Pain Management and Perioperative Medicine, Dalhousie University, Halifax, Canada
| | - Adam I Mossenson
- From the Department of Anesthesia, Pain Management and Perioperative Medicine, Dalhousie University, Halifax, Canada
- St John of God Midland Public and Private Hospitals, Perth, Australia
- Curtin Medical School, Curtin University, Perth, Australia
| | - Sara Whynot
- Department of Surgery, Dalhousie University, Halifax, Canada
| | - Gaston Nyirigira
- Department of Anesthesia and Critical Care, University of Rwanda, Kigali, Rwanda
| | - Shelley Gower
- Curtin School of Nursing, Curtin University, Perth, Australia
| | - Patricia Livingston
- From the Department of Anesthesia, Pain Management and Perioperative Medicine, Dalhousie University, Halifax, Canada
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