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Faccio E, Rocelli M, Bitetti L, Salamina G, Brunelli S, Mangione F, Aquili L. One or Many Recoveries? Recoveries in the Plural for a Better Understanding of One's Healing Journey. Health Expect 2025; 28:e70209. [PMID: 40088004 PMCID: PMC11909471 DOI: 10.1111/hex.70209] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Grants] [Track Full Text] [Download PDF] [Journal Information] [Subscribe] [Scholar Register] [Received: 01/13/2025] [Revised: 02/19/2025] [Accepted: 02/21/2025] [Indexed: 03/17/2025] Open
Abstract
BACKGROUND Since the 60s, the recovery-oriented approach has greatly influenced mental health policy and practice, and much research has been devoted to exploring it. In the face of a generic definition of the 'recovery' construct, to which many articles refer, a closer examination of the literature reveals a plurality of theories and ways about how changes related to the recovery occur and how to evaluate them. AIMS This narrative review explores the different definitions of recovery available in the literature, by investigating the adjectives that qualify it and the theoretical construct the adjective refers to. METHOD From the online databases PubMed, Scopus, Google Scholar and PsycINFO, 43 articles were selected for the review. RESULTS Seven definitions of recovery emerged, each supported by specific theoretical perspectives: clinical, personal, narrative, social, family, cultural and relational recovery. The adjectives refer to theoretical frameworks often very distant from each other and in epistemological competition; nevertheless, many papers assume a reconcilability and possible integration. The authors critically discuss the advantages and risks of considering such different constructs as complementary. CONCLUSIONS Keeping theoretical descriptions and models of healing open and plural means enabling mental health practitioners not to monologise discourses of change by imposing their point of view on users. It means supporting users to authentically seek their healing pathways without conforming to clinicians' expectations. It also means abandoning misleading and naive simplifications and strictly using the appropriate terms relevant to the specific healing construct that researchers refer to from time to time. This is particularly important when it comes to the relational component, which seems to be receiving more and more attention in the literature, and about which there is more confusion. PATIENT OR PUBLIC INVOLVEMENT The study involved two experts by experience, or peer support specialists, in a more than active role as components of the research team. They participated equally with the other team members in all phases of the work: the design and conduct of the study, the discussion of findings and advice about implications and dissemination.
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Affiliation(s)
- Elena Faccio
- Department of Philosophy, Sociology, Education and Applied Psychology (FISPPA)University of PaduaPaduaItaly
| | - Michele Rocelli
- Department of Philosophy, Sociology, Education and Applied Psychology (FISPPA)University of PaduaPaduaItaly
| | - Lia Bitetti
- Psychologist at the community for substance abusers called Ca' delle OreBreganzeItaly
| | - Giuseppe Salamina
- Ministry Delegate for Health, Department of Mental HealthLocal Health Unit of TurinTurinItaly
| | - Susanna Brunelli
- Peer Support Worker, or Expert by Experience, independent activist in Peer SupportVeronaItaly
| | - Federica Mangione
- Peer Support Worker, or Expert by Experience, Diapsi Vercelli, Volunteer AssociationVercelliItaly
| | - Ludovica Aquili
- Department of Philosophy, Sociology, Education and Applied Psychology (FISPPA)University of PaduaPaduaItaly
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Chang YC, Huang MW, Chuang TH, Hsu ST. Exploring the attitudes of mental health professionals toward recovery and peer support in Taiwan. BMC Psychiatry 2025; 25:271. [PMID: 40121440 PMCID: PMC11929316 DOI: 10.1186/s12888-025-06705-7] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Grants] [Track Full Text] [Download PDF] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 10/19/2024] [Accepted: 03/12/2025] [Indexed: 03/25/2025] Open
Abstract
BACKGROUND While many Western countries have implemented mental health recovery-oriented and peer support services, they are still in the early stages of development in Taiwan, and the existing literature on professionals' perspectives regarding recovery-related issues in non-Western contexts remains limited. This study investigates the perspectives of professionals from well-established psychiatric rehabilitation organizations in Taiwan on the concept of recovery and peer support. METHODS Data were collected through semi-structured interviews involving 19 professionals from nine organizations, which were then recorded and transcribed verbatim. Subsequently, the data were coded using Atlas.ti 8.0, followed by thematic analysis. RESULTS The analyses identified three main themes. First, attitudes toward recovery encompassed six subthemes: (1) coexisting with illness while finding personal fulfillment, (2) exercising one's rights and taking personal responsibility, (3) maintaining hope throughout the recovery journey, (4) recognizing the non-linear nature of recovery, (5) acknowledging the individuality of each recovery path, and (6) affirming that recovery is achievable for all. Additionally, four types of peer support were identified: supportive peer, staff assistant, life assistant, and mental health workforce. Furthermore, perspectives on peer support workers included four subthemes: (1) attitudes toward people with mental illness, (2) the need for a robust career support system, (3) organizational and professional support, and (4) self-awareness of people with mental illness. CONCLUSIONS This study is one of the few that explore the perspectives of professionals on recovery and peer support in non-Western contexts. Professionals from well-established psychiatric rehabilitation organizations in Taiwan embraced most mental health recovery principles, but inconsistencies were found regarding the applicability of recovery to different individuals. Peer support in Taiwan remains largely informal, with concerns primarily focused on environmental factors. However, one personal factor is also critical. People with mental illness in non-Western contexts may require more extensive preparation to serve as peer support workers.
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Affiliation(s)
- Yen-Ching Chang
- Department of Occupational Therapy, College of Medicine, National Cheng Kung University, Tainan, Taiwan.
| | - Meng-Wen Huang
- Department of Rehabilitation Science, Jenteh Junior College of Medicine, Nursing and Management, Miaoli, Taiwan
| | | | - Su-Ting Hsu
- Kaohsiung Municipal Kai-Syuan Psychiatric Hospital, Kaohsiung, Taiwan
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Rodwin AH, Banya M, Shimizu R, Jaccard J, Lindsey MA, Munson MR. Childhood adversities and suicidal ideation among young adults with serious mental illnesses: The mediating roles of perceived stress, dispositional hope, and mental health hope. J Affect Disord 2025; 368:820-828. [PMID: 39299587 PMCID: PMC11561892 DOI: 10.1016/j.jad.2024.09.095] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Grants] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 01/23/2024] [Revised: 09/13/2024] [Accepted: 09/14/2024] [Indexed: 09/22/2024]
Abstract
BACKGROUND Rates of suicidality are high among young adults and minoritized groups are disproportionately affected. Despite evidence that adverse childhood experiences (ACEs) may increase suicide-related risk, the underlying mechanisms through which ACEs may impact suicidal ideation (SI) remain poorly understood, especially among marginalized young adults with serious mental illnesses (SMI) such as schizophrenia-spectrum, major depressive, and bipolar disorders. This study examines associations between ACEs and SI, and whether perceived stress, dispositional hope, and mental health hope may mediate the relationship. METHODS The sample consisted of 114 young adults of color with SMI who participated in a larger randomized trial. Data were analyzed using a structural equation modeling (SEM) approach. RESULTS Young adults with more ACEs reported higher perceived stress, which in turn, was associated with more SI. Higher perceived stress was associated with lower dispositional and mental health hope. Although dispositional hope was negatively associated with SI on a bivariate level, neither dispositional nor mental health hope was significantly associated with SI in the multivariate SEM. This suggests that over and above perceived stress, hope does not appear to be associated with SI. LIMITATIONS Key limitations include a cross-sectional design, a modest sample size, and an assessment of select ACEs. CONCLUSION Addressing stress-related processes may be one promising target for suicide prevention efforts in the context of ACEs. Policy interventions focused on the allocation of resources and changing environments that are stress and trauma-inducing are needed to reduce the occurrence of ACEs and their negative sequelae.
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Affiliation(s)
- Aaron H Rodwin
- Silver School of Social Work, New York University, New York, NY, USA.
| | - Moiyattu Banya
- Silver School of Social Work, New York University, New York, NY, USA
| | - Rei Shimizu
- School of Social Work, University of Alaska, Anchorage, AK, USA
| | - James Jaccard
- Silver School of Social Work, New York University, New York, NY, USA
| | - Michael A Lindsey
- Silver School of Social Work, New York University, New York, NY, USA
| | - Michelle R Munson
- Silver School of Social Work, New York University, New York, NY, USA
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Nord-Baade S, Ness O, Jensen CB, Rowe M, Opheim E, Landheim A. Barriers and facilitators for social inclusion among people with concurrent mental health and substance use problems. A qualitative scoping review. PLoS One 2024; 19:e0315758. [PMID: 39680564 PMCID: PMC11649107 DOI: 10.1371/journal.pone.0315758] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [MESH Headings] [Grants] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 06/03/2024] [Accepted: 11/30/2024] [Indexed: 12/18/2024] Open
Abstract
BACKGROUND People with concurrent mental health and substance use problems are among the most socially excluded groups in our society, yet little attention has been paid to what socially excluded people see as central to promoting their social inclusion. The aim of this qualitative scoping review is to provide an overview of barriers and facilitators for social inclusion among people with concurrent mental health and substance use problems, based on first-person perspectives, to help guide future research, policies, and practice. METHODS We explored first-person perspectives on social inclusion among people with concurrent mental health and substance use problems, employing Arksey and O'Malleys framework. We searched Medline, PsycINFO, Embase, Scopus, Cinahl, and other sources for studies published between January 2000 and September 2023. We employed content analysis and followed the PRISMA checklist. RESULTS We included 55 articles included in our review and identified sub themes of: Intrapersonal baseline (identity, belonging), Components of social inclusion (relationships, meaningful activities, employment, economy), and Systemic failure or success (housing, public health and welfare services, the criminal justice system). CONCLUSION Social inclusion is rarely studied outside the context of direct services. Our results point to knowledge gaps in addressing social inclusion in a broad, societal context; implementing gaps in services; and developing policies to assure the fundamental needs and human rights of socially excluded persons.
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Affiliation(s)
- Silje Nord-Baade
- Norwegian National Advisory Unit on Concurrent Substance Abuse and Mental Health Disorders, Innlandet Hospital Trust, Hamar, Norway
- Inland Norway University of Applied Sciences, Elverum, Norway
| | - Ottar Ness
- Norwegian University of Science and Technology, Trondheim, Norway
| | - Camilla Bergsve Jensen
- Norwegian National Advisory Unit on Concurrent Substance Abuse and Mental Health Disorders, Innlandet Hospital Trust, Hamar, Norway
| | - Michael Rowe
- Inland Norway University of Applied Sciences, Elverum, Norway
- School of Medicine, Yale University, New Haven, Connecticut, United States of America
| | - Elin Opheim
- Inland Norway University of Applied Sciences, Elverum, Norway
| | - Anne Landheim
- Norwegian National Advisory Unit on Concurrent Substance Abuse and Mental Health Disorders, Innlandet Hospital Trust, Hamar, Norway
- Inland Norway University of Applied Sciences, Elverum, Norway
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Salzer MS. Building on Recovery: Embracing Community Inclusion in Mental Health Policies and Services. Community Ment Health J 2024; 60:1571-1578. [PMID: 38967842 DOI: 10.1007/s10597-024-01309-z] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Grants] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 12/16/2023] [Accepted: 06/08/2024] [Indexed: 07/06/2024]
Abstract
Recovery is real and has had a transformative impact on mental health policies and services, including shifting the focus from chronicity and symptom management to the realization that individuals with mental health issues can lead meaningful lives. However, recovery has been defined, described, understood, and measured in a wide variety of ways that may account for misuses and abuses in its application and possible stagnation in its impact. It is argued that the mental health field must now build upon the strong foundations of recovery by integrating a well-established rights-oriented framework. While recovery emphasizes personal growth and hope, a rights-based perspective underscores inherent dignity, autonomy, and opportunities for acceptance and embrace in engaging in valued social roles. The addition of a rights-based framework - community inclusion, to conversations involving recovery, is aligned with the origins of recovery and how it is commonly understood, and also connects the mental health field to the dramatic positive impacts that have emerged from the longstanding centrality of this concept in the broader disability community.
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Citrome L, Suett M, Franzenburg KR, Eshet R, Elgart A, Davis 3rd GL, Harary E, Tohami O, Mychaskiw MA, Kane JM. TV-46000, A Long-Acting Subcutaneous Antipsychotic Agent, Demonstrated Improved Patient-Centered Outcomes in Patients with Schizophrenia. Neuropsychiatr Dis Treat 2024; 20:1901-1917. [PMID: 39399879 PMCID: PMC11471067 DOI: 10.2147/ndt.s459104] [Citation(s) in RCA: 1] [Impact Index Per Article: 1.0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Download PDF] [Figures] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 05/08/2024] [Accepted: 08/26/2024] [Indexed: 10/15/2024] Open
Abstract
Background TV46000 is a long-acting subcutaneous antipsychotic (LASCA) formulation of risperidone approved for the treatment of schizophrenia in adults. Methods The RISE study (NCT03503318) compared TV-46000 once monthly (q1m) and once every 2 months (q2m) with placebo (1:1:1) in patients with schizophrenia who underwent stabilization on oral risperidone. The SHINE study (NCT03893825) evaluated the long-term safety, tolerability, and effectiveness of TV-46000 in patients who completed RISE without relapse (rollover; placebo rollover randomized [1:1] to q1m or q2m; TV-46000 rollover continued assigned treatment) or who were newly recruited (de novo; randomized [1:1] to q1m or q2m after oral stabilization). Patient-centered outcomes included the Schizophrenia Quality of Life Scale (SQLS), the 5-Level EuroQoL 5-Dimensions Questionnaire (EQ-5D-5L), the Personal and Social Performance Scale (PSP), and the Drug Attitudes Inventory 10-item version (DAI-10). Results In RISE, SQLS least-squares mean changes (SE) improved to last assessment (LA) for TV-46000 q1m (-4.15 [1.03]) and q2m (-3.28 [1.06]) but worsened for placebo (1.75 [1.07]; P<0.001 for both). PSP, EQ5D-5L, and DAI-10 showed similar trends. In SHINE, SQLS decreased (improved) at LA for both TV-46000 q1m (-0.43 [0.98]) and q2m (-2.16 [0.98]); reductions were observed in the de novo (q2m only) and placebo rollover (q1m and q2m) cohorts, but not for the TV46000 rollover cohort. Results for PSP, EQ5D-5L, and DAI-10 were consistent with those reported in the RISE study. Conclusion Improvements in patient-centered outcomes were observed across cohorts, with the largest improvements observed for patients who began TV-46000 during SHINE (ie, de novo and placebo rollover cohorts), while gains made during RISE were minimally improved or maintained in the TV-46000 rollover cohort, indicating the benefit of uninterrupted TV-46000 treatment. These data support the effectiveness of TV-46000 to improve patient-centered outcomes in patients with schizophrenia.
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Affiliation(s)
- Leslie Citrome
- Department of Psychiatry and Behavioral Sciences, New York Medical College, Valhalla, NY, USA
| | - Mark Suett
- Global Medical Affairs, Teva UK Limited, Harlow, UK
| | - Kelli R Franzenburg
- Global Medical Affairs, Teva Branded Pharmaceutical Products R&D, Inc., West Chester, PA, USA
| | - Roy Eshet
- Innovative Medicines, Global Clinical Development, Teva Pharmaceutical Industries Ltd, Netanya, Israel
| | - Anna Elgart
- Innovative Medicines, Global Clinical Development, Teva Pharmaceutical Industries Ltd, Netanya, Israel
| | - Glen L Davis 3rd
- Global Clinical Operations, Teva Branded Pharmaceutical Products R&D, Inc., West Chester, PA, USA
| | - Eran Harary
- Innovative Medicines, Global Clinical Development, Teva Pharmaceutical Industries Ltd, Netanya, Israel
| | - Orna Tohami
- Innovative Medicines, Global Clinical Development, Teva Pharmaceutical Industries Ltd, Netanya, Israel
| | - Marko A Mychaskiw
- Global Health Economics and Outcomes Research, Teva Branded Pharmaceutical Products R&D, Inc, West Chester, PA, USA
| | - John M Kane
- Department of Psychiatry, The Zucker Hillside Hospital, Northwell Health, Glen Oaks, NY, USA
- Department of Psychiatry and Molecular Medicine, Donald and Barbara Zucker School of Medicine at Hofstra/Northwell, Hempstead, NY, USA
- Institute of Behavioral Science, Feinstein Institutes for Medical Research, Manhasset, NY, USA
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Lecomte T, Heyden I, Raffard S, Khazaal Y, Livet A, Power P, Roy MA, Abdel-Baki A, Corbière M. Validation francophone de la CASIG-rev – un outil clinique visant à soutenir le rétablissement des personnes avec un trouble psychiatrique: French validation of the CASIG-rev – a clinical personal recovery assessment for people with psychiatric disorders. CANADIAN JOURNAL OF PSYCHIATRY. REVUE CANADIENNE DE PSYCHIATRIE 2024; 69:759-767. [PMID: 39033429 PMCID: PMC11485832 DOI: 10.1177/07067437241261481] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Subscribe] [Scholar Register] [Indexed: 07/23/2024]
Abstract
OBJECTIVE There are few tools capable of measuring the personal recovery of individuals presenting with mental disorders that take into account the various dimensions of recovery. Personal recovery encompasses several objectives at the level of autonomy, positive interpersonal relationships, mental and physical health, self-acceptance, the school/professional domain, as well as developing a life project. A team of practitioners and researchers from four countries (Canada, Belgium, France, and Switzerland) adapted the Client Assessment of Strengths, Interests, and Goals (CASIG) tool to more accurately measure these different aspects of personal recovery. This study aims to validate the revised version of CASIG (CASIG-rev) in French, in terms of construct validity, test-retest reliability, convergent validity, and clinical sensitivity to change. METHOD A total of 272 individuals were recruited across different French-speaking countries to respond to the CASIG-rev online, as well as Ryff's well-being measure, the Recovery Assessment Scale, and the WHODAS. A subgroup of 29 individuals responded again to the CASIG-rev after 1 month (for temporal stability), and 24 again at six months (for sensitivity to change). RESULTS The confirmatory factor analysis suggests a 5-factor model, very similar to the initially proposed model of 6 factors. Convergent validity was demonstrated between the subscales of tools measuring similar concepts, and test-retest reliability was proven for the majority of scales. The CASIG-rev also appears to be sensitive to clinical or rehabilitation changes, notably at the level of the life project. CONCLUSION This study supports the use of the CASIG-rev in French to measure the recovery of individuals presenting with mental disorders, as well as to support practitioners in the evaluation of their programs and interventions. Limitations, as well as the tool's relevance, are presented. An English validation is underway to make the CASIG-rev available in Anglo-Saxon countries.
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Affiliation(s)
- Tania Lecomte
- Département de Psychologie, Université de Montréal, Centre de recherche de l’Institut Universitaire en Santé Mentale de Montréal, Montréal, Canada
| | - Isabelle Heyden
- Centre de Rééducation Socioprofessionnelle de L’Est (CRSE), Verviers, Belgique
| | - Stéphane Raffard
- Département de Psychologie Clinique et Neuropsychologie, Université Paul Valéry Montpellier 2, Montpellier, France
| | - Yasser Khazaal
- Centre Hospitalier Universitaire Vaudois (CHUV), Université de Lausanne, Suisse
| | - Audrey Livet
- Center hospitalier de l'Universite de Montréal (CHUM), Montréal, Canada
| | - Paméla Power
- Département de Psychologie, Université de Montréal, Montréal, Canada
| | - Marc-André Roy
- Clinique Notre-Dame-des-Victoires, Département de psychiatrie et neurosciences, Université Laval, Québec, Canada
| | - Amal Abdel-Baki
- Center hospitalier de l'Universite de Montréal (CHUM), Montréal, Canada
| | - Marc Corbière
- Département d'éducation et pédagogie, counseling de carrière, Université du Québec à Montréal (UQAM), Centre de recherche de l'Institut Universitaire en Santé Mentale de Montréal (CR-IUSMM), Montréal, Canada
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Felix S, Valery KM, Caiada M, Guionnet S, Bonilla-Guerrero J, Destaillats JM, Prouteau A. Personal recovery self-report outcome measures in serious mental illness: A systematic review of measurement properties. Clin Psychol Rev 2024; 112:102459. [PMID: 38943916 DOI: 10.1016/j.cpr.2024.102459] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 07/25/2023] [Revised: 04/26/2024] [Accepted: 06/10/2024] [Indexed: 07/01/2024]
Abstract
BACKGROUND Personal recovery represents a paradigm shift in mental healthcare. Validated self-report outcome measures (PROMs) are needed to facilitate the transformation towards recovery-oriented practices and services. Objectives were to identify published measures and analyze their measurement properties using a standardized methodology. METHODS Following the COSMIN guidelines, we conducted a systematic review of personal recovery PROMs in serious mental illness. The MEDLINE, PMC, PsycINFO, PsycARTICLES, PBSC and Scopus electronic databases were searched for articles published between May 2012 and February 2024. Full-text articles from a previous systematic review were also examined. RESULTS 91 studies were included in the review, describing 25 PROMs. Ten of them had not been identified in previous reviews. Quality of evidence was globally poor for most PROM measurement properties. Very little evidence was found for cross-cultural validity, measurement invariance, measurement error and criterion validity. The Recovery Assessment Scale and Questionnaire about the Process of Recovery showed the strongest evidence for sufficient psychometric data on a wide range of measurement properties. CONCLUSIONS Several personal recovery measures are now available. While research is still needed to enhance their validity on some psychometric properties, the current tools appear sufficient to cover most research and clinical needs.
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Affiliation(s)
- Simon Felix
- Psychology Laboratory (LabPsy) UR4139, Bordeaux University, 3 ter place de la Victoire, 33000 Bordeaux, France; ESPPAIR Unit, Department of Adult Psychiatry, Jonzac Hospital, 17500 Saint-Martial de Vitaterne, France.
| | - Kevin-Marc Valery
- Psychology Laboratory (LabPsy) UR4139, Bordeaux University, 3 ter place de la Victoire, 33000 Bordeaux, France
| | - Meryl Caiada
- Psychology Laboratory (LabPsy) UR4139, Bordeaux University, 3 ter place de la Victoire, 33000 Bordeaux, France
| | - Sarah Guionnet
- Psychology Laboratory (LabPsy) UR4139, Bordeaux University, 3 ter place de la Victoire, 33000 Bordeaux, France
| | - Julien Bonilla-Guerrero
- ESPPAIR Unit, Department of Adult Psychiatry, Jonzac Hospital, 17500 Saint-Martial de Vitaterne, France
| | - Jean-Marc Destaillats
- ESPPAIR Unit, Department of Adult Psychiatry, Jonzac Hospital, 17500 Saint-Martial de Vitaterne, France
| | - Antoinette Prouteau
- Psychology Laboratory (LabPsy) UR4139, Bordeaux University, 3 ter place de la Victoire, 33000 Bordeaux, France; ESPPAIR Unit, Department of Adult Psychiatry, Jonzac Hospital, 17500 Saint-Martial de Vitaterne, France
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Barak Y, Sajjadi SF, Hobbs L, Patterson T. Functional recovery in older adults with schizophrenia: A national interRAI study. Int J Soc Psychiatry 2024; 70:792-800. [PMID: 38366918 DOI: 10.1177/00207640241230837] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Indexed: 02/19/2024]
Abstract
BACKGROUND The concept of recovery for people with schizophrenia (PwS) is still a matter of debate. Growing numbers of PwS living to older age calls for examination of their disease trajectories with a focus on recovery. AIM To compare two groups of PwS (good wellbeing; poor wellbeing) on several psychosocial variables associated with social wellbeing to identify interventions that support functional recovery. METHOD Data was drawn from participants from across New Zealand (NZ), who had received a formal diagnosis of Schizophrenia; were living independently in the community, and who had undergone their first International Resident Assessment Instrument (interRAI) assessment from 2012 to 2022. We compared two groups of PwS (good social wellbeing; poor social wellbeing) examining associations with demographic and psychosocial variables. RESULTS We compared interRAI assessments for: 'poor psychosocial wellbeing' (n = 1,378; 67%; 56% female; 70.5% 65 years and over; 36.1% never married); and 'good psychosocial wellbeing' (n = 693; 33%; 61.1% female; 78.1% 65 years and over; 29.8% never married; n = 549 did not have sufficient social wellbeing data to be included). We found significant associations between social wellbeing and depression, disruptive behaviour, decision making, self-expression, understanding verbal information, activity level, self-reported health and medication adherence. Logistical regression showed depression (β = .84, p < .001, Wald = 51.01, Exp(B) = 2.31) and mild disruptive behaviour (β = .63, p = .002, Wald = 9.26, Exp(B) = 0.53) were the only predictors of poor social wellbeing. Those who reported some degree of depressive symptoms were 2.31 (CI [1.84, 2.91]) more likely to be in the poor social wellbeing group. CONCLUSIONS A significant minority (33.5%) of older PwS enjoy positive social wellbeing. Several psychosocial variables are associated with wellbeing. By addressing the comorbidity of depressive symptoms, we may be able to improve wellbeing for older PwS.
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Affiliation(s)
- Yoram Barak
- Department of Psychological Medicine, Dunedin School of Medicine, University of Otago, New Zealand
| | - S Fatemeh Sajjadi
- Department of Psychological Medicine, Dunedin School of Medicine, University of Otago, New Zealand
| | - Linda Hobbs
- Department of Psychological Medicine, Dunedin School of Medicine, University of Otago, New Zealand
| | - Tess Patterson
- Department of Psychological Medicine, Dunedin School of Medicine, University of Otago, New Zealand
- Optentia Research Focus Area, North-West University, Potchefstroom, South Africa
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Engelsbel F, Keet R, Nugter A. A pre-post study design: evaluating the effectiveness of a new community-based integrated service model on patient outcomes. Int J Ment Health Syst 2024; 18:20. [PMID: 38725081 PMCID: PMC11084129 DOI: 10.1186/s13033-024-00636-8] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 09/05/2023] [Accepted: 04/25/2024] [Indexed: 05/12/2024] Open
Abstract
This study aimed to evaluate a new service model, Specialists Together In the Community (STIC), in terms of patient outcomes. This model integrates Flexible Assertive Community Treatment (FACT)-principles with expertise of specialized teams that offer diagnosis-related outpatient treatment. In a pre-post design, symptoms and quality of life of 930 former FACT-patients were measured repeatedly pre- and post-STIC. Regarding patients in former specialized teams, pre- and post-treatment social functioning and symptoms were measured for the pre- (n = 944) and post-STIC (n = 544) groups. Against expectation, symptoms of former FACT-patients remained stable post-STIC compared to a slight decrease pre-STIC. According to expectation, pre- and post-STIC groups had an equal symptom reduction. Unexpectedly, the post-STIC group did not improve more on social functioning than the pre-STIC group. Explorative analysis showed less treatment contacts in the post-STIC group. The highly similar patient outcomes post-STIC could be improved by monitoring process outcomes and prolonging study duration.
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Affiliation(s)
- Fabiana Engelsbel
- GGZ Noord-Holland-Noord Research Department, Heerhugowaard, The Netherlands.
| | - René Keet
- GGZ Noord-Holland-Noord FIT-Academy, Heerhugowaard, The Netherlands
| | - Annet Nugter
- GGZ Noord-Holland-Noord Research Department, Heerhugowaard, The Netherlands
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Ramesh S, Scanlan JN, Honey A, Hancock N. Feasibility of Recovery Assessment Scale - Domains and Stages (RAS-DS) for everyday mental health practice. Front Psychiatry 2024; 15:1256092. [PMID: 38404467 PMCID: PMC10884109 DOI: 10.3389/fpsyt.2024.1256092] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 07/10/2023] [Accepted: 01/29/2024] [Indexed: 02/27/2024] Open
Abstract
Introduction Routine use of self-rated measures of mental health recovery can support recovery-oriented practice. However, to be widely adopted, outcome measures must be feasible. This study examined the feasibility of Recovery Assessment Scale - Domains and Stages (RAS-DS) from the perspectives of mental health workers. Method Mental health workers who had previously sought permission to use RAS-DS (n=58) completed an online survey that explored three aspects of feasibility: practicality, acceptability and applicability. Results The highest-rated feasibility items related to applicability, or usefulness in practice, with over 90% of participants reporting that RAS-DS helps "promote discussion" and covers areas that are "meaningful to consumers". Acceptability items indicated that the purpose of RAS-DS is clear but length was an issue for some participants. At a practical level, RAS-DS was seen as easy to access but training was seen by many as necessary to ensure optimal use. Conclusion Results suggest potential usefulness of RAS-DS as a routine outcome measure and identify aspects that can be addressed to further enhance feasibility including provision of training materials and opportunities, wide-reaching promotion of its use as a collaborative tool, and further investigation of issues around instrument length.
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Affiliation(s)
| | - Justin Newton Scanlan
- Centre for Disability Research and Policy, Faculty of Medicine and Health, University of Sydney, Sydney, New South Wales, Australia
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12
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Lundqvist LO, Rytterström P, Rask M, Brunt D, Sellin T, Grim K, Rystedt I, Schröder A. Influence of mental health service provision on the perceived quality of life among psychiatric outpatients: associations and mediating factors. Front Psychiatry 2024; 14:1282466. [PMID: 38293591 PMCID: PMC10824987 DOI: 10.3389/fpsyt.2023.1282466] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Figures] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 08/24/2023] [Accepted: 12/26/2023] [Indexed: 02/01/2024] Open
Abstract
ObjectiveTo investigate the relationship between perceived mental health service provision and quality of life (QoL) as perceived by patients in psychiatric outpatient care.MethodsA total of 373 adult patients registered at 15 psychiatric outpatient clinics in three regions in central and southern Sweden were included in the study. Survey data were collected using a questionnaire on mental health service provision, symptom severity, recovery, clinical diagnosis, sociodemographics (serving as independent variables) and QoL (serving as the dependent variable). Three aspects of mental health service provision were used: patients’ perceived quality of care, perceived staff-patient interaction, and patient reported psychiatric treatments. Structural equation modelling was used to model the relationship among the variables.ResultsVariables in mental health service provision showed few direct associations with patients’ perceived QoL. Instead, the associations of mental health service provision on QoL were mainly mediated through symptom severity and recovery. These relationships were retained after adjusting for sociodemographic variables and clinical diagnoses. The final model achieved excellent goodness of fit (χ2 = 49.502, p = 0.230, RMSEA = 0.020, CFI = 0.997 and a SRMR = 0.024).ConclusionThis study shows that mental health service provision is associated with patients’ perceived QoL; however, this association is mostly indirect and mediated by reduced symptom severity and increased recovery. This finding can help inform the design of future interventions to enhance service provision to improve patients’ QoL.
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Affiliation(s)
- Lars-Olov Lundqvist
- University Health Care Research Center, Faculty of Medicine and Health, Örebro University, Örebro, Sweden
| | - Patrik Rytterström
- Division of Nursing Sciences and Reproductive Health, Department of Health, Medicine and Caring Sciences, Linköping University, Norrköping, Sweden
| | - Mikael Rask
- School of Health and Caring Sciences, Linnaeus University, Växjö, Sweden
| | - David Brunt
- School of Health and Caring Sciences, Linnaeus University, Växjö, Sweden
| | - Tabita Sellin
- University Health Care Research Center, Faculty of Medicine and Health, Örebro University, Örebro, Sweden
| | - Katarina Grim
- Department of Social and Psychological Studies, Karlstad University, Karlstad, Sweden
| | - Ingrid Rystedt
- Division of Society and Health, Department of Health, Medicine and Caring Sciences, Linköping University, Linköping, Sweden
| | - Agneta Schröder
- University Health Care Research Center, Faculty of Medicine and Health, Örebro University, Örebro, Sweden
- Department of Nursing, Faculty of Health, Care and Nursing, Norwegian University of Science and Technology (NTNU), Gjövik, Norway
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13
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Rasmussen IL, Schei J, Ørjasæter KB. "A bit lost"-Living with attention deficit hyperactivity disorder in the transition between adolescence and adulthood: an exploratory qualitative study. BMC Psychol 2024; 12:20. [PMID: 38212821 PMCID: PMC10785427 DOI: 10.1186/s40359-024-01522-1] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Grants] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 10/09/2023] [Accepted: 01/05/2024] [Indexed: 01/13/2024] Open
Abstract
BACKGROUND Attention deficit hyperactivity disorder (ADHD) begins in childhood and in many cases persists into adulthood. The transition from adolescence to adulthood for young people with ADHD is a vulnerable time and can be associated with comorbid conditions and unfavorable outcomes. Thus, further studies are needed to explore the characteristics of the transition period in emerging adulthood. The overall aim of this study was to gain increased knowledge of emerging adults' experience of living with ADHD in the transition from adolescence to adulthood. This is a follow-up from a previous qualitative study that examined how young people experience receiving and living with a diagnosis of ADHD. METHOD The study has a qualitative retrospective design. Seven participants were included in this study using a purposive sampling method. We re-invited the same participants who were interviewed in 2015-2016 and conducted in-depth interviews. The data were subjected to Malterud's systematic text condensation (STC). RESULTS Four crosscutting themes were identified from our analysis: (1) low level of knowledge about ADHD and treatment options; (2) barriers to seeking and accessing help; (3) developing self-help strategies; and (4) a preference to discontinued medication use. CONCLUSION The participants emphasized a need for more information about ADHD in transition phases and support, both from professionals and peers, about finding ways to live meaningful lives. The treatment they had been offered was particularly linked to symptom reduction and medication use. A more appropriate focus would have been linked to how they, as citizens, could gain knowledge and skills to live meaningful lives with ADHD.
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Affiliation(s)
| | - Jorun Schei
- NTNU, St. Olavs University Hospital, Trondheim, Norway
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14
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Müller M, Brackmann N, Homan P, Vetter S, Seifritz E, Ajdacic-Gross V, Hotzy F. Predictors for early and long-term readmission in involuntarily admitted patients. Compr Psychiatry 2024; 128:152439. [PMID: 38039919 DOI: 10.1016/j.comppsych.2023.152439] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 04/14/2023] [Revised: 11/01/2023] [Accepted: 11/16/2023] [Indexed: 12/03/2023] Open
Abstract
BACKGROUND It is a common aim to reduce psychiatric readmissions. Although risk factors for readmissions were described, specific data in the group of patients with potentially aversively experienced involuntary admissions are lacking. To better understand underlying mechanisms, it is important to identify factors that are linked to readmissions in this specific patient group, which is the purpose of the current paper. METHODS A four-year cohort of N = 3575 involuntary admissions (IA) was followed-up for subsequent re-hospitalization. Demographic, administrative and clinical factors associated with short- (within 30 days) or long-term (> 30 days) readmissions were examined using logistic regression modelling. RESULTS Almost half of all IA cases were readmitted within the observation period, whereof every fifth readmission was within the first month after discharge from the involuntary index hospitalization. Adjusted regression modelling revealed problematic substance use at admission and assisted living or homelessness as risk factors for readmission, while high functioning at discharge, anxiety disorders, no subsequent treatment after discharge or IA due to danger to others were negatively associated with readmission. Factors specifically linked to short-term readmission were substance use and personality disorders, abscondence or discharge by initiation of the clinic, as well as being discharged to any place except the patient's home. There were no specific risk-factors for long-term readmission. CONCLUSIONS To prevent readmissions after IA, especially for patients at risk, the aim of treatment strategies should be to focus on intensive discharge planning, enable continuous treatment in the outpatient setting, and provide social support.
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Affiliation(s)
- Mario Müller
- Department of Psychiatry, Psychotherapy and Psychosomatics, Psychiatric University Hospital Zurich, University of Zurich, Lenggstrasse 31, 8032 Zürich, Switzerland.
| | - Nathalie Brackmann
- Department of Forensic Psychiatry, Psychiatric University Hospital Zurich, University of Zurich, Lenggstrasse 31, 8032 Zürich, Switzerland.
| | - Philipp Homan
- Department of Psychiatry, Psychotherapy and Psychosomatics, Psychiatric University Hospital Zurich, University of Zurich, Lenggstrasse 31, 8032 Zürich, Switzerland.
| | - Stefan Vetter
- Department of Psychiatry, Psychotherapy and Psychosomatics, Psychiatric University Hospital Zurich, University of Zurich, Lenggstrasse 31, 8032 Zürich, Switzerland.
| | - Erich Seifritz
- Department of Psychiatry, Psychotherapy and Psychosomatics, Psychiatric University Hospital Zurich, University of Zurich, Lenggstrasse 31, 8032 Zürich, Switzerland.
| | - Vladeta Ajdacic-Gross
- Department of Psychiatry, Psychotherapy and Psychosomatics, Psychiatric University Hospital Zurich, University of Zurich, Lenggstrasse 31, 8032 Zürich, Switzerland.
| | - Florian Hotzy
- Department of Psychiatry, Psychotherapy and Psychosomatics, Psychiatric University Hospital Zurich, University of Zurich, Lenggstrasse 31, 8032 Zürich, Switzerland.
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15
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Wedema D, Wardenaar KJ, Alma MA, van Asselt ADI, Korevaar EL, Schoevers RA. A blended module (STAIRS) to promote functional and personal recovery in patients with a major depressive disorder in remission: study protocol of a concurrent mixed methods randomized controlled trial. BMC Psychiatry 2023; 23:727. [PMID: 37805486 PMCID: PMC10560411 DOI: 10.1186/s12888-023-05213-w] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Grants] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 09/18/2023] [Accepted: 09/22/2023] [Indexed: 10/09/2023] Open
Abstract
BACKGROUND Despite the availability of a wide variety of evidence-based treatments for major depressive disorder (MDD), many patients still experience impairments in their lives after remission. Programs are needed that effectively support patients in coping with these impairments. The program Storytelling and Training to Advance Individual Recovery Skills (STAIRS) was developed to address this need and combines the use of peer contact, expert-by-experience guidance, family support and professional blended care. The aim of the planned study is (1) to assess the efficacy of the STAIRS program in patients with remitted MDD, (2) to investigate patients' subjective experiences with STAIRS, and (3) to evaluate the program's cost-effectiveness. METHODS A concurrent mixed-methods randomized controlled trial design will be used. Patients aged between 18 and 65 years with remitted MDD (N = 140) will be randomized to either a group receiving care as usual (CAU) + the STAIRS-program or a control group receiving CAU + some basic psychoeducation. Quantitative efficacy data on functional and personal recovery and associated aspects will be collected using self-report questionnaires at the start of the intervention, immediately following the intervention, and at the six-month follow-up. Insights into patients' experiences on perceived effects and the way in which different program elements contribute to this effect, as well as the usability and acceptability of the program, will be gained by conducting qualitative interviews with patients from the experimental group, who are selected using maximum variation sampling. Finally, data on healthcare resource use, productivity loss and quality of life will be collected and analysed to assess the cost-effectiveness and cost-utility of the STAIRS-program. DISCUSSION Well-designed recovery-oriented programs for patients suffering from MDD are scarce. If efficacy and cost-effectiveness are demonstrated with this study and patients experience the STAIRS program as usable and acceptable, this program can be a valuable addition to CAU. The qualitative interviews may give insights into what works for whom, which can be used to promote implementation. TRIAL REGISTRATION This trial was registered at ClinicalTrials.gov on 1 July 2021, registration number NCT05440812.
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Affiliation(s)
- David Wedema
- Research and Innovation Centre for Rehabilitation, Hanze University of Applied Sciences, Groningen, The Netherlands.
| | - Klaas J Wardenaar
- Department of Behavioural and Social Sciences, University of Groningen, Groningen, The Netherlands
| | - Manna A Alma
- Department of Health Sciences, Applied Health Research, University of Groningen, University Medical Centre Groningen, Groningen, The Netherlands
| | - Antoinette D I van Asselt
- Department of Epidemiology, University of Groningen, University Medical Centre Groningen, Groningen, The Netherlands
| | - Eliza L Korevaar
- Research and Innovation Centre for Rehabilitation, Hanze University of Applied Sciences, Groningen, The Netherlands
| | - Robert A Schoevers
- Department of Psychiatry, Research School of Behavioural and Cognitive Neurosciences (BCN), University of Groningen, University Medical Centre Groningen, Groningen, The Netherlands
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Wijnen J, Gordon NL, van 't Hullenaar G, Pont ML, Geijselaers MWH, Van Oosterwijck J, de Jong J. An interdisciplinary multimodal integrative healthcare program for depressive and anxiety disorders. Front Psychiatry 2023; 14:1113356. [PMID: 37426091 PMCID: PMC10326275 DOI: 10.3389/fpsyt.2023.1113356] [Citation(s) in RCA: 1] [Impact Index Per Article: 0.5] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Figures] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 12/01/2022] [Accepted: 06/05/2023] [Indexed: 07/11/2023] Open
Abstract
Objective Although multimodal interventions are recommended in patients with severe depressive and/or anxiety disorders, available evidence is scarce. Therefore, the current study evaluates the effectiveness of an outpatient secondary care interdisciplinary multimodal integrative healthcare program, delivered within a transdiagnostic framework, for patients with (comorbid) depressive and/or anxiety disorders. Methods Participants were 3,900 patients diagnosed with a depressive and/or anxiety disorder. The primary outcome was Health-Related Quality of Life (HRQoL) measured with the Research and Development-36 (RAND-36). Secondary outcomes included: (1) current psychological and physical symptoms measured with the Brief Symptom Inventory (BSI) and (2) symptoms of depression, anxiety, and stress measured with the Depression Anxiety Stress Scale (DASS). The healthcare program consisted of two active treatment phases: main 20-week program and a subsequent continuation-phase intervention (i.e., 12-month relapse prevention program). Mixed linear models were used to examine the effects of the healthcare program on primary/secondary outcomes over four time points: before start 20-week program (T0), halfway 20-week program (T1), end of 20-week program (T2) and end of 12-month relapse prevention program (T3). Results Results showed significant improvements from T0 to T2 for the primary variable (i.e., RAND-36) and secondary variables (i.e., BSI/DASS). During the 12-month relapse prevention program, further significant improvements were mainly observed for secondary variables (i.e., BSI/DASS) and to a lesser extent for the primary variable (i.e., RAND-36). At the end of the relapse prevention program (i.e., T3), 63% of patients achieved remission of depressive symptoms (i.e., DASS depression score ≤ 9) and 67% of patients achieved remission of anxiety symptoms (i.e., DASS anxiety score ≤ 7). Conclusion An interdisciplinary multimodal integrative healthcare program, delivered within a transdiagnostic framework, seems effective for patients suffering from depressive and/or anxiety disorders with regard to HRQoL and symptoms of psychopathology. As reimbursement and funding for interdisciplinary multimodal interventions in this patient group has been under pressure in recent years, this study could add important evidence by reporting on routinely collected outcome data from a large patient group. Future studies should further investigate the long-term stability of treatment outcomes after interdisciplinary multimodal interventions for patients suffering from depressive and/or anxiety disorders.
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Affiliation(s)
- Jaap Wijnen
- Intergrin Academy, Geleen, Netherlands
- Spine, Head and Pain Research Unit Ghent, Department of Rehabilitation Sciences, Faculty of Medicine and Health Sciences, Ghent University, Ghent, Belgium
- Pain in Motion International Research Group, Brussels, Belgium
| | | | | | | | | | - Jessica Van Oosterwijck
- Spine, Head and Pain Research Unit Ghent, Department of Rehabilitation Sciences, Faculty of Medicine and Health Sciences, Ghent University, Ghent, Belgium
- Pain in Motion International Research Group, Brussels, Belgium
- Center for InterProfessional Collaboration in Education Research and Practice (IPC-ERP UGent), Faculty of Medicine and Health Sciences, Ghent University, Ghent, Belgium
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Lakshman SJ, Mohd Daud TI, Midin M, Ahmad F, Tommy K. Validation of the Malay-Version of Recovery Knowledge Inventory among mental health providers in Malaysia. Front Psychiatry 2023; 14:1078423. [PMID: 37383615 PMCID: PMC10293667 DOI: 10.3389/fpsyt.2023.1078423] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Figures] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 10/24/2022] [Accepted: 03/30/2023] [Indexed: 06/30/2023] Open
Abstract
Background The Recovery Knowledge Inventory (RKI) is a widely used self-report instrument that assesses recovery-oriented knowledge among mental health professionals. The purpose of this study is to translate the RKI into the Malay language (RKI-M) and to examine its psychometric properties among Malaysian health care workers. Methods A cross-sectional study involving 143 participants was conducted at an urban teaching hospital, an urban government hospital, and a rural government hospital. Following the translation of the RKI, its internal reliability was determined using Cronbach's alpha. Construct validity was also determined using confirmatory factor analysis. Results The Malay-Version RKI (RKI-M) has good internal reliability with a Cronbach's alpha of 0.83. However, the Malay-version RKI failed to replicate the original four-factor structure. The final model only achieved the best model fit after the removal of 9 items with two-factor loadings: (GFI = 0.92; AGFI = 0 0.87; CFI = 0.91; RMSEA = 0.074). Conclusion The 20-item RKI-M is reliable but has poor construct validity. However, the modified 11-item Malay-version RKI is a more reliable measure as it has good construct validity, with room for future studies to examine the psychometric properties of the modified 11-item RKI among mental health care workers. More training on recovery knowledge should be done, and a simple worded questionnaire should be developed in keeping with local practitioners.
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Affiliation(s)
- Stella Jane Lakshman
- Department of Psychiatry, Faculty of Medicine, Universiti Kebangsaan Malaysia, Kuala Lumpur, Malaysia
- Hospital Canselor Tuanku Muhriz, Jalan Yaacob Latif, Bandar Tun Razak, Kuala Lumpur, Malaysia
- Department of Psychiatry, Hospital Selayang, Batu Caves, Selangor, Malaysia
| | - Tuti Iryani Mohd Daud
- Department of Psychiatry, Faculty of Medicine, Universiti Kebangsaan Malaysia, Kuala Lumpur, Malaysia
- Hospital Canselor Tuanku Muhriz, Jalan Yaacob Latif, Bandar Tun Razak, Kuala Lumpur, Malaysia
| | - Marhani Midin
- Department of Psychiatry, Faculty of Medicine, Universiti Kebangsaan Malaysia, Kuala Lumpur, Malaysia
- Hospital Canselor Tuanku Muhriz, Jalan Yaacob Latif, Bandar Tun Razak, Kuala Lumpur, Malaysia
| | | | - Kezia Tommy
- Faculty of Business and Economics, University Malaya, Kuala Lumpur, Malaysia
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Jørgensen K, Søren Hansen M, Groth T, Hansen M, Karlsson B. Perspectives on Recovery-Oriented Care in Mental Health Practices: Health Professionals Experiences. Issues Ment Health Nurs 2023; 44:200-208. [PMID: 36940445 DOI: 10.1080/01612840.2023.2186716] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Indexed: 03/22/2023]
Abstract
In several Western countries, mental health professionals work in accordance with the principles of recovery-oriented practices, but there is little research into what opportunities there are for fostering recovery-oriented practices in mental health settings. To investigate how central elements of recovery-oriented practices are reflected in health professionals experiences of care and treatment in mental health. Four focus group interviews with nurses and other health professionals are conducted and analysed using manifest content analysis to carry out a low-level analysis of the participants' experiences in mental healthcare. The study was designed in accordance with the ethical principles of the Helsinki Declaration (1) and Danish law (2). The participants gave informed consent after verbal and written information. The main theme, 'recovery-oriented practices framed within institutional structural conditions', was based on three subthemes: 1) users need help to find meaning during hospitalisation and find hope, 2) health professionals experience it as an obligation that users achieve personal recovery, and 3) user perspectives versus the mental health practices' structural logic. This study sheds light on health professionals experiences with a recovery-oriented practice. The health professionals believe in this as a positive approach and see it as an important obligation to help the user find their own aims and hopes. On the other hand, it can be difficult to work in recovery-oriented practices. It requires an active commitment from users; for many, this can be difficult to live up to.
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Affiliation(s)
- Kim Jørgensen
- Department Public Health, Section of Nursing Science, Aarhus University, Aarhus, Denmark
| | | | - Trine Groth
- Diakonissestiftelsen Nursing School, Frederiksberg, Copenhagen, Denmark
| | | | - Bengt Karlsson
- Psykisk helsearbeid/Professor in Mental Health Care, Leder av Senter for psykisk helse og rus/Leader of Center for Mental Health and Substance Abuse, Institutt for helse-, sosial- og velferdsfag/Department of Health, Social, and Welfare Studies, Fakultet for helse- og sosialvitenskap/Faculty of Health and Social Sciences, Universitetet I Sørøst-Norge/University of Southeastern Norway, Drammen, Norway
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Wijnen J, Van 't Hullenaar G, Gordon NL, Pont ML, Geijselaers MWH, Van Oosterwijck J, De Jong J. An interdisciplinary multimodal integrative healthcare program for somatic symptom disorder, with predominant (spinal) pain. Psychother Res 2022; 33:581-594. [PMID: 36525631 DOI: 10.1080/10503307.2022.2144528] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Indexed: 12/23/2022] Open
Abstract
OBJECTIVE Although multimodal interventions are generally recommended in patients with long-term somatic symptom disorders (SSD), available evidence is limited. The current study evaluates the effectiveness of an outpatient secondary care interdisciplinary multimodal integrative healthcare program for patients with SSD and predominant (spinal) pain. METHOD The healthcare program consisted of two active treatment phases: main 20-week program and a 12-month relapse prevention program. Participants were 4453 patients diagnosed with SSD. The primary outcome was health-related quality of life (HRQoL) assessed using the RAND-36 (i.e., mental/physical component summary) and secondary outcomes included physical and psychological symptoms assessed using the Brief Symptom Inventory (BSI) and RAND-36 subscales. Mixed linear models were used to examine the effects of the multimodal healthcare program on primary/secondary outcomes over four time points: before start 20-week program (T0), halfway 20-week program (T1), end of 20-week program (T2) and end of relapse prevention program (T3). RESULTS Significant improvements were found from T0 to T2 for all primary variables (i.e., mental/physical component summary) and secondary variables (i.e., BSI/RAND-36 subscales), which were maintained until the end of the relapse prevention program (T3). CONCLUSION An interdisciplinary multimodal integrative treatment for SSD is effective for improving HRQoL and reducing physical and psychological symptoms.
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Affiliation(s)
- Jaap Wijnen
- Intergrin Academy, Geleen, Netherlands.,Spine, Head and Pain Research Unit Ghent, Department of Rehabilitation Sciences, Faculty of Medicine and Health Sciences, Ghent University, Ghent, Belgium.,Pain in Motion International Research Group, Belgium
| | | | | | | | | | - Jessica Van Oosterwijck
- Spine, Head and Pain Research Unit Ghent, Department of Rehabilitation Sciences, Faculty of Medicine and Health Sciences, Ghent University, Ghent, Belgium.,Pain in Motion International Research Group, Belgium.,Center for InterProfessional Collaboration in Education Research and Practice (IPC-ERP UGent), Faculty of Medicine and Health Sciences, Ghent University, Ghent, Belgium
| | - Jeroen De Jong
- Intergrin Academy, Geleen, Netherlands.,Department of Rehabilitation Medicine, Faculty of Health, Medicine and Life Sciences, Maastricht University, Maastricht, Netherlands
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Munson MR, Jaccard J, Moore KL, Rodwin AH, Shimizu R, Cole AR, Scott LD, Narendorf SC, Davis M, Gilmer T, Stanhope V. Impact of a brief intervention to improve engagement in a recovery program for young adults with serious mental illness. Schizophr Res 2022; 250:104-111. [PMID: 36399899 PMCID: PMC9742319 DOI: 10.1016/j.schres.2022.11.008] [Citation(s) in RCA: 2] [Impact Index Per Article: 0.7] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Grants] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 03/20/2022] [Revised: 10/03/2022] [Accepted: 11/06/2022] [Indexed: 11/17/2022]
Abstract
OBJECTIVE Serious mental illnesses (SMI) commonly emerge during young adulthood. Effective treatments for this population exist; however, engagement in treatment is a persistent challenge. This study examines the impact of Just Do You (JDY), an innovative intake-focused intervention designed to improve engagement in treatment and enhance personal recovery. METHODS The study used a parallel group randomized trial to examine if and how JDY improved recovery among 121 young adults with SMI from low-resourced communities referred to personalized recovery-oriented services (PROS). Measures of engagement (buy-in and attendance) and personal recovery in this pilot study were assessed at baseline and 3-month follow-up. RESULTS Participants in JDY reported more positive engagement outcomes; that is, relative to the control group they reported higher past two week attendance (b = 0.72, p < 0.05, Cohen's d = 0.56) and higher levels of buy-in to treatment (b = 2.42, p < 0.05, Cohen's d = 0.50). JDY also impacted young adults' personal recovery (b = 0.99, p < 0.05, Cohen's d = 1.15) and did so largely by increasing their level of buy-in to the treatment program. CONCLUSION This study suggests that an engagement intervention for young adults that orients, prepares, and empowers them to be active and involved in the larger treatment program makes a difference by improving engagement and enhancing recovery. Data also support conceptualizing and examining engagement beyond treatment attendance; in this study what mattered most for recovery was the level of buy-in to treatment among young adults.
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Affiliation(s)
- Michelle R Munson
- New York University, Silver School of Social Work, 1 Washington Sq. N, 10003 New York, NY, USA.
| | - James Jaccard
- New York University, Silver School of Social Work, 1 Washington Sq. N, 10003 New York, NY, USA
| | - Kiara L Moore
- New York University, Silver School of Social Work, 1 Washington Sq. N, 10003 New York, NY, USA
| | - Aaron H Rodwin
- New York University, Silver School of Social Work, 1 Washington Sq. N, 10003 New York, NY, USA
| | - Rei Shimizu
- University of Alaska, School of Social Work, 3211 Providence Drive, Anchorage, AK 99508, USA
| | - Andrea R Cole
- Fairleigh Dickinson University, 1000 River Rd, Teaneck, NJ 07666, USA
| | - Lionel D Scott
- Georgia State University, School of Social Work, 55 Park Pl, Atlanta, GA 3030, USA
| | - Sarah C Narendorf
- University of Houston, Graduate College of Social Work, 3511 Cullen Blvd, Houston, TX 77204, USA
| | - Maryann Davis
- University of Massachusetts, Chan Medical School, 55 Lake Avenue North, Worcester, MA, USA
| | - Todd Gilmer
- University of California San Diego, Department of Family Medicine and Public Health, 9500 Gilman Drive, San Diego, CA, USA
| | - Victoria Stanhope
- New York University, Silver School of Social Work, 1 Washington Sq. N, 10003 New York, NY, USA
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Rodwin AH, Shimizu R, Travis R, James KJ, Banya M, Munson MR. A Systematic Review of Music-Based Interventions to Improve Treatment Engagement and Mental Health Outcomes for Adolescents and Young Adults. CHILD & ADOLESCENT SOCIAL WORK JOURNAL : C & A 2022; 40:1-30. [PMID: 36407676 PMCID: PMC9666939 DOI: 10.1007/s10560-022-00893-x] [Citation(s) in RCA: 9] [Impact Index Per Article: 3.0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Figures] [Subscribe] [Scholar Register] [Accepted: 09/28/2022] [Indexed: 06/16/2023]
Abstract
Mental health disorders and suicidality are rising among adolescents and young adults (A-YA) while rates of treatment engagement remain notoriously low. Emerging research supports the potential of music-based interventions to improve mental health, but their efficacy remains unclear for A-YA. This systematic review evaluates the evidence on music-based psychosocial interventions to improve engagement in treatment and/or mental health outcomes among A-YA. This review was prospectively registered with PROSPERO and followed the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines. Twenty-six studies were extracted. There was heterogeneity of designs, populations, measures, and outcomes. A typology of music-based interventions emerged, which is characterized by combinations of three broad categories: 1) Somatosensory, 2) Social-Emotional, and 3) Cognitive-Reflective. Most interventions are Socio-Cognitive and Holistically Integrated (combines all three) followed by Socio-Somatic. All interventions involved Social-Emotional processes. Results indicate that most studies report significant effects for mental health outcomes related to social and emotional improvements and reductions of internalizing symptoms for adolescents. Few studies targeted young adults and effects on engagement were rarely measured. There is a need for more studies that use rigorous methods. This review illuminated a need for interventions that are developmentally and culturally tailored to subgroups. Finally, the field is ripe from more studies that apply experimental therapeutics to conceptualize, operationalize, and test mechanisms of change to improve the understanding of how and for whom music-based interventions work. Recommendations for embedding these innovative strategies into research and practice for A-YA are discussed. Supplementary Information The online version contains supplementary material available at 10.1007/s10560-022-00893-x.
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Affiliation(s)
- Aaron H. Rodwin
- Silver School of Social Work, New York University, New York, NY USA
| | - Rei Shimizu
- School of Social Work, University of Alaska, Anchorage, AK USA
| | - Raphael Travis
- School of Social Work, Texas State University, San Marcos, TX USA
| | - Kirk Jae James
- Silver School of Social Work, New York University, New York, NY USA
| | - Moiyattu Banya
- Silver School of Social Work, New York University, New York, NY USA
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Jørgensen K, Rasmussen T, Hansen M, Andreasson K, Karlsson B. Recovery-Oriented Network Meetings in Mental Healthcare: A Qualitative Study. Issues Ment Health Nurs 2022; 43:164-171. [PMID: 34469284 DOI: 10.1080/01612840.2021.1961178] [Citation(s) in RCA: 4] [Impact Index Per Article: 1.3] [Reference Citation Analysis] [Abstract] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Indexed: 01/06/2023]
Abstract
Recovery-oriented cross-sectoral collaboration is a cornerstone of the debate concerning health professionals and users of mental health services and constitutes an objective in government health policy in Scandinavia and other Western countries. Users do not find that professionals communicate with each other across specific sectors regarding plans that have been prepared. They often experience that they have to start over again every time they switch between treatment locations. The aim of this study is to develop a recovery-oriented model for network meetings. Health professionals and users with experience from mental health services participated in three workshops to discuss and achieve a plan for recovery-oriented network meetings. Knowledge was generated in dynamic research cycles that were experiential, presentational, propositional, and practical. Themes were developed and framed by a content analysis.Recommendations are presented as a narrative from all the participants involved. The overall theme was 'more focus on personal recovery' with subthemes such as 'CHIME as a recovery-oriented approach'. In addition, other themes were generated such as 'open dialogical meetings', with subthemes such as 'meeting structures' and 'open dialogues'. This study concludes recommendations to promote a recovery-oriented approach in cross-sectoral network meetings inspired by theoretical perspectives along with the experiences and knowledge of co-researchers.
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Affiliation(s)
- Kim Jørgensen
- The Research Collaboration, Psychiatric Centre North Zealand, Hillerød, Denmark
| | - Tonie Rasmussen
- Department of Social and Health, Center for Quality and Development, Birkerød, Denmark
| | - Morten Hansen
- FACT Team 1, Psychiatric Outpatient Clinic, Copenhagen, Denmark
| | - Kate Andreasson
- The Research Collaboration, Psychiatric Centre North Zealand, Hillerød, Denmark
| | - Bengt Karlsson
- Mental Health Care, Center for Mental Health and Substance Abuse, Department of Health, Social and Welfare Studies, Faculty of Health and Social Sciences, Universitetet I Sørøst-Norge, Notodden, Norway
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Abstract
Recovery is now widely acknowledged as the dominant approach to the management of mental distress and illness in government, third-sector and some peer-support contexts across the United Kingdom and elsewhere in the Anglophone Global North. Although narrative has long been recognised in practice and in policy as a key "technology of recovery," there has been little critical investigation of how recovery narratives are constituted and mobilised, and with what consequences. This paper offers an interdisciplinary, critical medical humanities analysis of the politics and possibilities of Recovery Narrative, drawing literary theoretical concepts of genre and philosophical approaches to the narrative self into conversation with the critiques of recovery advanced by survivor-researchers, sociologists and mad studies scholars. Our focus is not on the specific stories of individuals, but on the form, function and effects of Recovery Narrative as a highly circumscribed kind of storytelling. We identify the assumptions, lacunae and areas of tension which compel a more critical approach to the way this genre is operationalised in and beyond mental health services, and conclude by reflecting on the possibilities offered by other communicative formats, spaces and practices.
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MacMillan G, St Clair-Thompson H. The relationship between mental toughness and subjective mental illness recovery. NEW IDEAS IN PSYCHOLOGY 2021. [DOI: 10.1016/j.newideapsych.2021.100881] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 10/21/2022]
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25
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Tjaden C, Mulder CL, den Hollander W, Castelein S, Delespaul P, Keet R, van Weeghel J, Kroon H. Effectiveness of Resource Groups for Improving Empowerment, Quality of Life, and Functioning of People With Severe Mental Illness: A Randomized Clinical Trial. JAMA Psychiatry 2021; 78:1309-1318. [PMID: 34643679 PMCID: PMC8515257 DOI: 10.1001/jamapsychiatry.2021.2880] [Citation(s) in RCA: 9] [Impact Index Per Article: 2.3] [Reference Citation Analysis] [Abstract] [MESH Headings] [Track Full Text] [Figures] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 04/18/2021] [Accepted: 08/17/2021] [Indexed: 12/16/2022]
Abstract
Importance Although the importance of recovery-oriented care for people with severe mental illness (SMI) is widely acknowledged, essential elements such as personalization and involvement of significant others are not adequately implemented in practice. Objective To determine whether using resource groups (RGs) within flexible assertive community treatment (FACT) has favorable effects on empowerment and recovery-related outcomes in people with SMI. Design, Setting, and Participants This assessor-blind, multisite randomized clinical trial was conducted from September 1, 2017, to September 30, 2020, with follow-up at 9 and 18 months. A total of 158 participants aged 18 to 65 years meeting the criteria for SMI were randomly allocated to FACT plus RG vs FACT as usual (1:1) in 20 FACT teams throughout the Netherlands. Data were analyzed from September 1, 2020, to January 31, 2021. The study was prespecified in the trial protocol and data from the intent-to-treat population were analyzed. Interventions In the FACT plus RG condition, patients chose members from their informal and formal networks to form an RG that meets quarterly to discuss self-formulated recovery goals. The RG was integrated into the multidisciplinary support provided by the FACT team. In the FACT as-usual condition, empowerment (defined as overcoming powerlessness and gaining control of one's life) and involvement of significant others was also part of the provided care, but without the structure of the RG. Main Outcomes and Measures The primary outcome was self-reported empowerment, measured with the Netherlands Empowerment List. Results A total of 158 participants with SMI (median age, 38 [median absolute deviation, 13] years; 93 men [58.9%]) were randomized to FACT plus RG (n = 80) or FACT as usual (n = 78) care. Intention-to-treat analyses showed that randomization to the RG condition was associated with a clinically significant increase in empowerment (Cohen d, 0.54; 95% CI, 0.21-0.86) and improved outcomes with small to medium effect sizes in terms of quality of life (Cohen d, 0.25; 95% CI, -0.07 to 0.56), personal recovery (Cohen d, 0.38; 95% CI, 0.06-0.69), quality of social contact (Cohen d, 0.24; 95% CI, -0.07 to 0.56), disability (Cohen d, 0.29; 95% CI, -0.03 to 0.60), general functioning (Cohen d, 0.30; 95% CI, -0.01 to 0.62), and social functioning (Cohen d, 0.28; 95% CI, -0.04 to 0.59). No differences between conditions were found regarding psychopathological symptoms, attachment, frequency of social contact, and employment. Compared with FACT as usual, participants who stayed with the assigned treatment in the RG condition were more satisfied with treatment at 9 (Cohen d = 0.45; t135 = -2.62; P = .009) and 18 (Cohen d = 0.41; t116 = -2.22; P = .02) months. Conclusions and Relevance These findings show that working with RGs improves empowerment and other mental health outcomes in people with SMI who receive community-based mental health services. This method of network-oriented care empowers people with SMI within their own environment. Trial Registration Netherlands Trial Register Identifier: NL6548.
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Affiliation(s)
- Cathelijn Tjaden
- Department of Reintegration and Community Care, Trimbos Institute, Utrecht, the Netherlands
- Tranzo Scientific Center for Care and Welfare, Department of Social and Behavioral Sciences, Tilburg University, Tilburg, the Netherlands
| | - Cornelis L. Mulder
- Department of Psychiatry, Erasmus University Medical Center, Rotterdam, the Netherlands
- Parnassia Psychiatric Institute, Rotterdam, the Netherlands
| | - Wouter den Hollander
- Department of Reintegration and Community Care, Trimbos Institute, Utrecht, the Netherlands
| | - Stynke Castelein
- Lentis Research, Lentis Psychiatric Institute, Groningen, the Netherlands
- Faculty of Behavioural and Social Sciences, Department of Clinical Psychology and Experimental Psychopathology, University of Groningen, Groningen, the Netherlands
- Rob Giel Research Center, University of Groningen, University Medical Center Groningen, Groningen, the Netherlands
| | - Philippe Delespaul
- School of Mental Health and NeuroSciences, Maastricht University, Maastricht, the Netherlands
- Mondriaan Mental Health Trust, Maastricht/Heerlen, the Netherlands
| | - Rene Keet
- Department of Community Mental Health, GGZ Noord-Holland-Noord, Heiloo, the Netherlands
| | - Jaap van Weeghel
- Tranzo Scientific Center for Care and Welfare, Department of Social and Behavioral Sciences, Tilburg University, Tilburg, the Netherlands
- Phrenos Centre of Expertise, Utrecht, the Netherlands
| | - Hans Kroon
- Department of Reintegration and Community Care, Trimbos Institute, Utrecht, the Netherlands
- Tranzo Scientific Center for Care and Welfare, Department of Social and Behavioral Sciences, Tilburg University, Tilburg, the Netherlands
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Fixsen A. "Communitas in Crisis": An Autoethnography of Psychosis Under Lockdown. QUALITATIVE HEALTH RESEARCH 2021; 31:2340-2350. [PMID: 34176353 PMCID: PMC8564284 DOI: 10.1177/10497323211025247] [Citation(s) in RCA: 3] [Impact Index Per Article: 0.8] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Figures] [Subscribe] [Scholar Register] [Indexed: 06/13/2023]
Abstract
In this article, I use autoethnography to examine time spent on an acute psychiatric ward during the COVID-19 lockdown. I employ the device of "communitas in crisis" to emphasize the precarious nature of this experience and the extent to which, for myself at least, informal social interactions with fellow patients and "communitas" were significant features of my hospital experience and subsequent discharge. I suggest that a lack of emphasis on inpatient to inpatient relationships in the recovery literature is an omission and a reflection of psychiatry's authority struggles with both service users and professionals, along with a general perception of psychosis as individual rather than as a socially constructed phenomenon. I also suggest that, especially in the wake of greater social distancing, mental health and social services should safeguard against psychological and social isolation by creating more spaces for struggling people to interact without fear or prejudice.
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Dawson S, Muir-Cochrane E, Simpson A, Lawn S. Risk versus recovery: Care planning with individuals on community treatment orders. Int J Ment Health Nurs 2021; 30:1248-1262. [PMID: 33960100 DOI: 10.1111/inm.12877] [Citation(s) in RCA: 2] [Impact Index Per Article: 0.5] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 02/16/2021] [Revised: 03/28/2021] [Accepted: 04/06/2021] [Indexed: 11/29/2022]
Abstract
Community treatment orders (CTOs) require individuals with a mental illness to accept treatment from mental health services. CTO legislation in South Australia states that treatment and care should be recovery-focused, although justification for use is predominantly risk-based, and care often coercive. Although CTOs are contested, individuals, families, and clinicians frequently engage in care planning within this context. This paper examines how the concepts of risk and risk management impact care planning from the perspectives of individuals on CTOs, their families, and clinicians. Ethnographic methods of observation and interview provided a detailed account of the perspectives of each group over an 18-month period from two community mental health teams in South Australia. Findings show that care planning occurred within a culture of practice dominated by risk. Risk, however, was understood differently by each participant group, with the dominant narrative informed by biogenetic understandings of mental illness. This dominance impacted on the positioning of participant groups in care planning, focus of care contacts, and care options available. To improve care experiences and outcomes for individuals on CTOs, narrow conceptualizations of risk and recovery need to broaden to include an understanding of personal and social adversities individuals face. A broader understanding should reposition participants in the care planning context and rebalance care discussions, from a focus on clinical recovery to recovering citizenship.
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Affiliation(s)
- Suzanne Dawson
- School of Allied Health Science and Practice, University of Adelaide, Adelaide, SA, Australia.,College of Nursing and Health Sciences, Flinders University, Bedford Park, SA, Australia.,Mental Health Directorate, Central Adelaide Local Health Network, Adelaide, SA, Australia
| | - Eimear Muir-Cochrane
- College of Nursing and Health Sciences, Flinders University, Bedford Park, SA, Australia
| | - Alan Simpson
- Health Service and Population Research, Institute of Psychiatry, Psychology & Neuroscience and Florence Nightingale Faculty of Nursing, Midwifery and Palliative Care, King's College London, London, UK
| | - Sharon Lawn
- College of Medicine and Public Health, Flinders University, Bedford Park, SA, Australia
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Vera San Juan N, Gronholm PC, Heslin M, Lawrence V, Bain M, Okuma A, Evans-Lacko S. Recovery From Severe Mental Health Problems: A Systematic Review of Service User and Informal Caregiver Perspectives. Front Psychiatry 2021; 12:712026. [PMID: 34539464 PMCID: PMC8440827 DOI: 10.3389/fpsyt.2021.712026] [Citation(s) in RCA: 5] [Impact Index Per Article: 1.3] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Download PDF] [Figures] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 05/19/2021] [Accepted: 07/14/2021] [Indexed: 11/23/2022] Open
Abstract
Introduction: The recovery approach aims to have users' perspectives at the heart of service development and research; it is a holistic perspective that considers social needs, personal growth and inclusion. In the last decade recovery-oriented research and practice has increased greatly, however, a comprehensive model of recovery considering exclusively the perspectives of people with lived experience has not been devised. Aims: This review aimed to develop a framework and contextualize service users' and informal caregivers' understanding of recovery from severe mental health problems. Methods: We systematically searched 6 databases including key terms related to knowledge, experience and narratives AND mental health AND personal recovery. The search was supplemented with reference sourcing through gray literature, reference tracking and expert consultation. Data analysis consisted of a qualitative meta-synthesis using constant comparative methods. Results: Sixty-two studies were analyzed. A pattern emerged regarding the recovery paradigms that the studies used to frame their findings. The resulting recovery framework included the domains Social recovery; Prosperity (Legal, political, and economic recovery); Individual Recovery; and Clinical Recovery Experience (SPICE). Service users' definitions of recovery tended to prioritize social aspects, particularly being accepted and connecting with others, while caregivers focused instead on clinical definitions of recovery such as symptom remission. Both groups emphasized individual aspects such as becoming self-sufficient and achieving personal goals, which was strongly linked with having economic means for independence. Conclusions: The recovery model provided by this review offers a template for further research in the field and a guide for policy and practice. Predominant definitions of recovery currently reflect understandings of mental health which focus on an individual perspective, while this review found an important emphasis on socio-political aspects. At the same time, only a small number of studies took place in low-income countries, focused on minoritized populations, or included caregivers' perspectives. These are important gaps in the literature that require further attention. Systematic Review Registration: The review protocol was registered on PROSPERO (CRD42017076450); https://www.crd.york.ac.uk/prospero/display_record.php?RecordID=76450.
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Affiliation(s)
- Norha Vera San Juan
- Health Service & Population Research Department, Institute of Psychiatry, Psychology and Neuroscience, King's College London, London, United Kingdom
| | - Petra C. Gronholm
- Health Service & Population Research Department, Institute of Psychiatry, Psychology and Neuroscience, King's College London, London, United Kingdom
| | - Margaret Heslin
- Health Service & Population Research Department, Institute of Psychiatry, Psychology and Neuroscience, King's College London, London, United Kingdom
| | - Vanessa Lawrence
- Health Service & Population Research Department, Institute of Psychiatry, Psychology and Neuroscience, King's College London, London, United Kingdom
| | - Matthew Bain
- Department of Psychology, University of Warwick, Coventry, United Kingdom
| | - Ayako Okuma
- Health Service & Population Research Department, Institute of Psychiatry, Psychology and Neuroscience, King's College London, London, United Kingdom
| | - Sara Evans-Lacko
- Care Policy and Evaluation Centre, London School of Economics and Political Science, London, United Kingdom
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29
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Tjaden CD, Mulder CL, Delespaul PA, Arntz AR, Kroon H. Attachment as a framework to facilitate empowerment for people with severe mental illness. Psychol Psychother 2021; 94:407-425. [PMID: 33124185 PMCID: PMC8451854 DOI: 10.1111/papt.12316] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Download PDF] [Figures] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 12/24/2019] [Revised: 08/26/2020] [Indexed: 11/29/2022]
Abstract
OBJECTIVES Recovery and empowerment have evolved into key objectives in the treatment and care of people with severe mental illness (SMI), and interest has grown in the role of social relationships in recovery. This study is the first to explore whether attachment styles are related to levels of empowerment, and secondly, whether attachment anxiety and attachment avoidance are associated with lower empowerment levels, independently of quality and frequency of social contact. DESIGN We used a cross-sectional design. METHODS In a sample of 157 participants with SMI in outpatient care, associations between attachment (Revised Adult Attachment Scale), self-reported social functioning, and empowerment (Netherlands Empowerment List) were assessed. RESULTS Attachment anxiety and attachment avoidance were both associated with lower levels of empowerment. A stepwise multiple regression analysis showed that the prediction of empowerment was significantly improved by adding attachment anxiety and attachment avoidance to quality and frequency of social contact. Attachment anxiety, attachment avoidance, and quality of social contact were significant predictors; frequency of social contact was not. CONCLUSIONS Although our design does not allow causal conclusions, our results highlight the importance of interpersonal processes and behaviours as routes to improving empowerment for people with SMI. A promising approach might thus consist of securing attachment bonds with significant others so that the self and the other are perceived as reliable resources. Our findings also feature the importance of reciprocity and equality in social relationships. Taken together, our study emphasizes the value of social, contextualized interventions in recovery work for people with SMI. PRACTITIONER POINTS Working towards attachment safety in interpersonal relations may be important in recovery-oriented treatment and care for people with severe mental illness (SMI). Helping people with SMI to recognize and change how they tend to relate themselves to others may promote engagement and effectiveness of recovery-oriented treatment and care. Reciprocity and equality in social relationships as vital complements to the more one-sided nature of 'standing alongside' and offering support may be important requisites for empowerment.
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Affiliation(s)
- Cathelijn D. Tjaden
- Department of Reintegration and Community CareTrimbos InstituteUtrechtThe Netherlands,Department of Social and Behavioral SciencesTranzo Scientific Center for Care and WelfareTilburg UniversityThe Netherlands
| | - Cornelis L. Mulder
- Department of PsychiatryErasmus Medical CenterRotterdamThe Netherlands,AntesParnassia Psychiatric InstituteRotterdamThe Netherlands
| | - Philippe A.E.G. Delespaul
- School of Mental Health and NeuroSciencesMaastricht UniversityThe Netherlands,Mondriaan Mental Health TrustMaastricht/HeerlenThe Netherlands
| | - Arnoud R. Arntz
- Department of Clinical PsychologyUniversity of AmsterdamThe Netherlands
| | - Hans Kroon
- Department of Reintegration and Community CareTrimbos InstituteUtrechtThe Netherlands,Department of Social and Behavioral SciencesTranzo Scientific Center for Care and WelfareTilburg UniversityThe Netherlands
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Recovery e saúde mental: uma revisão da literatura latinoamericana. REVISTA IBEROAMERICANA DE PSICOLOGÍA 2021. [DOI: 10.33881/2027-1786.rip.14207] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 11/08/2022] Open
Abstract
A abordagem Recovery emergiu nos anos 1970 nos Estados Unidos a partir dos movimentos em defesa dos direitos dos usuários dos serviços de saúde mental, ex-pacientes ou sobreviventes da psiquiatria. A partir da década de 2000 recovery vem orientando serviços de saúde mental em diversos países e muitos acreditam que possa contribuir com os processos de reforma do modelo de atenção em saúde mental em todo o mundo. No campo acadêmico, um número de publicações vem analisando as formas diversas de aplicação da abordagem em níveis nacionais e internacional. O objetivo desta revisão integrativa, realizada em 2019, foi analisar como a abordagem recovery vem sendo tratada na literatura científica na América Latina. A análise gerou categorias temáticas desvelando os principais assuntos abordados nestas publicações, entre eles discussões sobre terminologia, conceito de recovery, práticas, políticas e serviços orientados por recovery e possibilidades da incorporação da abordagem no contexto da Reforma Psiquiátrica Brasileira que, apesar dos obstáculos, ainda pode ser considerada como orientadora da Política Nacional de Saúde Mental no Brasil. A revisão aponta que o número de publicações sobre recovery na América Latina é escasso, comparado com o número de publicações nos Estados Unidos, Canadá, Hong Kong, Europa e Oceania, e são oriundas principalmente do Brasil. Percebe-se, ainda, que os autores brasileiros, em geral, entendem que recovery pode representar uma importante contribuição ao avanço da Reforma Psiquiátrica Brasileira e alguns defendem a necessidade de cautela sobre a incorporação da abordagem sem uma devida adaptação ao contexto social, cultural e econômico local. Também foi apontado que recovery tem sido aplicado em outros contextos sociais.
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Recovery e saúde mental: uma revisão da literatura latinoamericana. REVISTA IBEROAMERICANA DE PSICOLOGÍA 2021. [DOI: 10.33881/2027-1786.hrip.14207] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 11/08/2022] Open
Abstract
A abordagem Recovery emergiu nos anos 1970 nos Estados Unidos a partir dos movimentos em defesa dos direitos dos usuários dos serviços de saúde mental, ex-pacientes ou sobreviventes da psiquiatria. A partir da década de 2000 recovery vem orientando serviços de saúde mental em diversos países e muitos acreditam que possa contribuir com os processos de reforma do modelo de atenção em saúde mental em todo o mundo. No campo acadêmico, um número de publicações vem analisando as formas diversas de aplicação da abordagem em níveis nacionais e internacional. O objetivo desta revisão integrativa, realizada em 2019, foi analisar como a abordagem recovery vem sendo tratada na literatura científica na América Latina. A análise gerou categorias temáticas desvelando os principais assuntos abordados nestas publicações, entre eles discussões sobre terminologia, conceito de recovery, práticas, políticas e serviços orientados por recovery e possibilidades da incorporação da abordagem no contexto da Reforma Psiquiátrica Brasileira que, apesar dos obstáculos, ainda pode ser considerada como orientadora da Política Nacional de Saúde Mental no Brasil. A revisão aponta que o número de publicações sobre recovery na América Latina é escasso, comparado com o número de publicações nos Estados Unidos, Canadá, Hong Kong, Europa e Oceania, e são oriundas principalmente do Brasil. Percebe-se, ainda, que os autores brasileiros, em geral, entendem que recovery pode representar uma importante contribuição ao avanço da Reforma Psiquiátrica Brasileira e alguns defendem a necessidade de cautela sobre a incorporação da abordagem sem uma devida adaptação ao contexto social, cultural e econômico local. Também foi apontado que recovery tem sido aplicado em outros contextos sociais.
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Sommer M, Biong S, Borg M, Karlsson B, Klevan T, Ness O, Nesse L, Oute J, Sundet R, Kim HS. Part II: Living Life: A Meta-Synthesis Exploring Recovery as Processual Experiences. INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH 2021; 18:6115. [PMID: 34204024 PMCID: PMC8201104 DOI: 10.3390/ijerph18116115] [Citation(s) in RCA: 10] [Impact Index Per Article: 2.5] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Download PDF] [Figures] [Subscribe] [Scholar Register] [Received: 05/06/2021] [Revised: 05/31/2021] [Accepted: 06/01/2021] [Indexed: 11/16/2022]
Abstract
Recovery, a prominent concern in mental health care worldwide, has been variously defined, requiring further clarification of the term as processual. Few studies have comprehensively addressed the nature of recovery processes. This study aims to explore the nature and characteristics of experiences of recovery as processual. The method used is a form of qualitative meta-synthesis that integrates the findings from 28 qualitative studies published during the past 15 years by one research group. Three meta-themes were developed: (a) recovery processes as step-wise, cyclical, and continuous, (b) recovery as everyday experiences, and (c) recovery as relational. These themes describe how recovery is intertwined with the way life in general unfolds in terms of human relationships, learning, coping, and ordinary everyday living. This meta-synthesis consolidates an understanding of recovery as fundamental processes of living in terms of being, doing, and accessing. These processes are contextualized in relation to mental health and/or substance abuse problems and highlight the need for support to facilitate the person's access to necessary personal, social, and material resources to live an ordinary life in recovery.
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Affiliation(s)
- Mona Sommer
- Department of Health, Social and Welfare Studies, Faculty of Health and Social Sciences, University of South-Eastern Norway (USN), 3040 Drammen, Norway; (S.B.); (M.B.); (B.K.); (T.K.); (J.O.); (R.S.); (H.S.K.)
| | - Stian Biong
- Department of Health, Social and Welfare Studies, Faculty of Health and Social Sciences, University of South-Eastern Norway (USN), 3040 Drammen, Norway; (S.B.); (M.B.); (B.K.); (T.K.); (J.O.); (R.S.); (H.S.K.)
| | - Marit Borg
- Department of Health, Social and Welfare Studies, Faculty of Health and Social Sciences, University of South-Eastern Norway (USN), 3040 Drammen, Norway; (S.B.); (M.B.); (B.K.); (T.K.); (J.O.); (R.S.); (H.S.K.)
| | - Bengt Karlsson
- Department of Health, Social and Welfare Studies, Faculty of Health and Social Sciences, University of South-Eastern Norway (USN), 3040 Drammen, Norway; (S.B.); (M.B.); (B.K.); (T.K.); (J.O.); (R.S.); (H.S.K.)
| | - Trude Klevan
- Department of Health, Social and Welfare Studies, Faculty of Health and Social Sciences, University of South-Eastern Norway (USN), 3040 Drammen, Norway; (S.B.); (M.B.); (B.K.); (T.K.); (J.O.); (R.S.); (H.S.K.)
| | - Ottar Ness
- Department of Education and Lifelong Learning, Norwegian University of Science and Technology, 7042 Trondheim, Norway;
| | - Linda Nesse
- Department of Public Health Science, Faculty of Landscape and Society, Norwegian University of Life Sciences (NMBU), 1430 Ås, Norway;
| | - Jeppe Oute
- Department of Health, Social and Welfare Studies, Faculty of Health and Social Sciences, University of South-Eastern Norway (USN), 3040 Drammen, Norway; (S.B.); (M.B.); (B.K.); (T.K.); (J.O.); (R.S.); (H.S.K.)
| | - Rolf Sundet
- Department of Health, Social and Welfare Studies, Faculty of Health and Social Sciences, University of South-Eastern Norway (USN), 3040 Drammen, Norway; (S.B.); (M.B.); (B.K.); (T.K.); (J.O.); (R.S.); (H.S.K.)
| | - Hesook Suzie Kim
- Department of Health, Social and Welfare Studies, Faculty of Health and Social Sciences, University of South-Eastern Norway (USN), 3040 Drammen, Norway; (S.B.); (M.B.); (B.K.); (T.K.); (J.O.); (R.S.); (H.S.K.)
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Penas P, Uriarte JJ, Gorbeña S, Slade M, Moreno-Calvete MC, Iraurgi I. Discrepancy between experience and importance of recovery components in the symptomatic and recovery perceptions of people with severe mental disorders. BMC Psychiatry 2021; 21:277. [PMID: 34059038 PMCID: PMC8168040 DOI: 10.1186/s12888-021-03287-y] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Download PDF] [Figures] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 01/29/2021] [Accepted: 05/13/2021] [Indexed: 12/04/2022] Open
Abstract
BACKGROUND Personal recovery has become an increasingly important approach in the care of people with severe mental disorders and consequently in the orientation of mental health services. The objective of this study was to assess the personal recovery process in people using mental health services, and to clarify the role of variables such as symptomatology, self-stigma, sociodemographic and treatment. METHODS Standardised measures of personal recovery process, clinical recovery, and internalized stigma were completed by a sample of 312 participants in a Severe Mental Disorder program. RESULTS Users valued most the recovery elements of: improving general health and wellness; having professionals who care; hope; and sense of meaning in life. Significant discrepancies between perceived experience and relative importance assigned to each of the components of the REE were observed. Regression modeling (χ2 = 6.72, p = .394; GFI = .99, SRMR = .03) identified how positive discrepancies were associated with a higher presence of recovery markers (β = .12, p = .05), which in turn were negatively related to the derived symptomatology index (β = -.33, p < .001). Furthermore, the relationship between clinical and personal recovery was mediated by internalized stigma. CONCLUSIONS An improvement in psychiatric services should be focused on recovery aspects that have the greatest discrepancy between importance and experience, in particular social roles, basic needs and hope. Personal and clinical recovery are correlated, but the relationship between them is mediated by internalized stigma, indicating the need for clinical interventions to target self-stigma.
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Affiliation(s)
- Patricia Penas
- University of Deusto, Avda. de las Universidades 24, 48007, Bilbao, Spain.
| | - Jose-Juan Uriarte
- Biocruces Bizkaia Health Research Institute. Basque Health Service, Bizkaia Mental Health Network, Plaza de Cruces 12, 48903 Barakaldo, Bizkaia Spain
| | - Susana Gorbeña
- grid.14724.340000 0001 0941 7046University of Deusto, Avda. de las Universidades 24, 48007 Bilbao, Spain
| | - Mike Slade
- grid.4563.40000 0004 1936 8868School of Health Sciences, Institute of Mental Health, University of Nottingham, Nottingham, UK
| | - María-Concepción Moreno-Calvete
- Biocruces Bizkaia Health Research Institute. Basque Health Service, Bizkaia Mental Health Network, Plaza de Cruces 12, 48903 Barakaldo, Bizkaia Spain
| | - Ioseba Iraurgi
- grid.14724.340000 0001 0941 7046University of Deusto, Avda. de las Universidades 24, 48007 Bilbao, Spain
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Bornheimer LA, Tarrier N, Brinen AP, Li J, Dwyer M, Himle JA. Longitudinal predictors of stigma in first-episode psychosis: Mediating effects of depression. Early Interv Psychiatry 2021; 15:263-270. [PMID: 32052566 PMCID: PMC10731984 DOI: 10.1111/eip.12935] [Citation(s) in RCA: 4] [Impact Index Per Article: 1.0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Grants] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 08/20/2019] [Revised: 12/16/2019] [Accepted: 01/27/2020] [Indexed: 12/27/2022]
Abstract
AIM Stigma is commonly experienced among individuals with schizophrenia spectrum disorders and has been shown to be a barrier to help-seeking and behavioural service utilization. Given the established relationships between stigma, barriers to treatment, and poorer psychiatric outcomes including depression and psychotic symptoms, we examined the relationships between symptoms of depression, positive and negative symptoms, and the emergence of stigma longitudinally among a sample of first-episode of psychosis (FEP) participants in the United States. METHODS Data were obtained from the Recovery After an Initial Schizophrenia Episode project of National Institute of Mental Health's Early Treatment Program. Participants (n = 404) included adults between ages 15 and 40 with schizophrenia or other psychotic disorders based on the DSM-IV. Data were analysed using structural equation modelling (SEM). RESULTS Findings indicated that increased positive and negative symptoms independently related to greater symptoms of depression at baseline. Furthermore, increased positive symptoms and symptoms of depression at baseline independently related to the emergence of greater stigma being experienced over time. CONCLUSIONS Considering the role that symptoms of depression played as a factor explaining the relationships between positive and negative symptoms and emergence of stigma over time among individuals in FEP, and symptoms of depression is important predictor of stigma and may furthermore present as a viable and less stigmatizing initial treatment target in the early course of a psychotic disorder.
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Affiliation(s)
- Lindsay A Bornheimer
- School of Social Work, University of Michigan, 1080 S. University Ave., School of Social Work, Ann Arbor, Michigan
| | - Nicholas Tarrier
- School of Psychological Sciences, University of Manchester, United Kingdom
| | - Aaron P Brinen
- College of Medicine, Drexel University, Philadelphia, Pennsylvania
| | - Juliann Li
- School of Social Work, University of Michigan, 1080 S. University Ave., School of Social Work, Ann Arbor, Michigan
| | - Meredith Dwyer
- Silver School of Social Work, New York University, New York, New York
| | - Joseph A Himle
- School of Social Work and Department of Psychiatry, University of Michigan, 1080 S. University Ave., School of Social Work, Ann Arbor, Michigan
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Sum MY, Chan SKW, Tse S, Bola JR, Ng RMK, Hui CLM, Lee EHM, Chang WC, Chen EYH. Relationship between subjective quality of life and perceptions of recovery orientation of treatment service in patients with schizophrenia and major depressive disorder. Asian J Psychiatr 2021; 57:102578. [PMID: 33592390 DOI: 10.1016/j.ajp.2021.102578] [Citation(s) in RCA: 5] [Impact Index Per Article: 1.3] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 09/17/2020] [Revised: 01/15/2021] [Accepted: 01/24/2021] [Indexed: 11/18/2022]
Abstract
OBJECTIVE This study aimed to investigate the relationship between subjective quality of life (QOL) and the specific domains of perceptions of recovery orientation of treatment services in patients with schizophrenia and major depressive disorder (MDD). METHODS One hundred and seventy-nine patients with schizophrenia spectrum disorders and fifty-seven patients with MDD were recruited. Patients were assessed on subjective QOL, self-reported depressive symptoms, illness severity, functioning, and perception of recovery orientation of the service environment (RSA). A multiple linear regression model was used to assess the relationship between QOL and RSA score, controlling for all other factors. Spearman correlation analysis was used to examine the relationship between RSA domains and total QOL in each diagnostic group separately. RESULTS The regression model explained 47.4 % of the variance observed in total QOL. Depressive symptoms, functioning and RSA were significantly associated with total QOL in the model. Domains one (life goals) and five (individually tailored services) of the RSA were associated with QOL in both groups. Domains two (patient involvement) and three (diversity of treatment options) were associated with total QOL only in patients with schizophrenia. CONCLUSION Our findings highlight that perceptions of recovery orientation of service, depressive symptoms and functioning significantly affected the subjective QOL of patients with serious mental illness. The differential relationship observed between QOL and domains of RSA in patients with MDD and schizophrenia suggests that targeted interventions meeting the needs of different patient groups may be crucial to improve QOL of patients.
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Affiliation(s)
- Min Yi Sum
- Department of Psychiatry, Li Ka Shing Faculty of Medicine, The University of Hong Kong, Queen Mary Hospital, Hong Kong Special Administrative Region
| | - Sherry Kit Wa Chan
- Department of Psychiatry, Li Ka Shing Faculty of Medicine, The University of Hong Kong, Queen Mary Hospital, Hong Kong Special Administrative Region; The State Key Laboratory of Brain and Cognitive Sciences, The University of Hong Kong, Hong Kong Special Administrative Region.
| | - Samson Tse
- Department of Social Work and Social Administration, Faculty of Social Sciences, The University of Hong Kong, Hong Kong Special Administrative Region
| | - John R Bola
- Department of Applied Social Studies, City University of Hong Kong, Hong Kong Special Administrative Region
| | - Roger Man Kin Ng
- Department of Psychiatry, Kowloon Hospital, Hong Kong Special Administrative Region
| | - Christy Lai Ming Hui
- Department of Psychiatry, Li Ka Shing Faculty of Medicine, The University of Hong Kong, Queen Mary Hospital, Hong Kong Special Administrative Region
| | - Edwin Ho Ming Lee
- Department of Psychiatry, Li Ka Shing Faculty of Medicine, The University of Hong Kong, Queen Mary Hospital, Hong Kong Special Administrative Region
| | - Wing Chung Chang
- Department of Psychiatry, Li Ka Shing Faculty of Medicine, The University of Hong Kong, Queen Mary Hospital, Hong Kong Special Administrative Region; The State Key Laboratory of Brain and Cognitive Sciences, The University of Hong Kong, Hong Kong Special Administrative Region
| | - Eric Yu Hai Chen
- Department of Psychiatry, Li Ka Shing Faculty of Medicine, The University of Hong Kong, Queen Mary Hospital, Hong Kong Special Administrative Region; The State Key Laboratory of Brain and Cognitive Sciences, The University of Hong Kong, Hong Kong Special Administrative Region
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Siskind D, Dark F, Carney K, Gore-Jones V, Kar Ray M, Steginga A, Suetani S, Kisely S. Placing rehabilitation at the core of assertive community treatment. Australas Psychiatry 2021; 29:47-51. [PMID: 32469640 DOI: 10.1177/1039856220928876] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Indexed: 11/15/2022]
Abstract
OBJECTIVES Assertive community treatment (ACT) teams are increasingly being adapted to suit the needs of consumers who have never experienced long-term institutional care yet struggle to retain community tenure and quality of life due to residual functional disabilities associated with severe mental illness. Support needs can be provided by the growing disability support sector but recovery-orientated rehabilitation services delivered by specialist rehabilitation clinicians are also required. The Mobile Intensive Rehabilitation Team (MIRT) within the Metro South Addiction and Mental Health Service has adapted the ACT model to deliver assertive outreach that aims to work collaboratively with the person and their chosen supports to improve their function and their sense of self-efficacy in illness self-management. We described the characteristics of the consumers referred to MIRT over a 20-month time period, and reported on on their discharge location. CONCLUSION After two years with MIRT, half the participants were discharged out of case-management. Being on clozapine was a barrier to discharge from case-management despite functional improvement. Psychiatric hospitalisations predicted longer duration working with MIRT.
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Affiliation(s)
- Dan Siskind
- Metro South Addiction and Mental Health Service, Australia; and University of Queensland, School of Clinical Medicine, Australia
| | - Frances Dark
- Metro South Addiction and Mental Health Service, Australia; and University of Queensland, School of Clinical Medicine, Australia
| | - Kylie Carney
- Metro South Addiction and Mental Health Service, Australia
| | | | - Manaan Kar Ray
- Metro South Addiction and Mental Health Service, Australia
| | - Anne Steginga
- Metro South Addiction and Mental Health Service, Australia
| | - Shuichi Suetani
- Metro South Addiction and Mental Health Service, Australia; and Griffith University, Australia
| | - Stephen Kisely
- Metro South Addiction and Mental Health Service, Australia; and University of Queensland, School of Clinical Medicine, Australia
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Pelletier JF, Houle J, Goulet MH, Juster RP, Giguère CÉ, Bordet J, Hénault I, Lesage A, De Benedictis L, Denis F, Ng R. Online and Recovery-Oriented Support Groups Facilitated by Peer Support Workers in Times of COVID-19: Protocol for a Feasibility Pre-Post Study. JMIR Res Protoc 2020; 9:e22500. [PMID: 33259326 PMCID: PMC7752185 DOI: 10.2196/22500] [Citation(s) in RCA: 5] [Impact Index Per Article: 1.0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Figures] [Journal Information] [Subscribe] [Scholar Register] [Received: 07/14/2020] [Revised: 09/20/2020] [Accepted: 11/24/2020] [Indexed: 01/11/2023] Open
Abstract
BACKGROUND In times of pandemics, social distancing, isolation, and quarantine have precipitated depression, anxiety, and substance misuse. Scientific literature suggests that patients living with mental health problems or illnesses (MHPIs) who interact with peer support workers (PSWs) experience not only the empathy and connectedness that comes from similar life experiences but also feel hope in the possibility of recovery. So far, it is the effect of mental health teams or programs with PSWs that has been evaluated. OBJECTIVE This paper presents the protocol for a web-based intervention facilitated by PSWs. The five principal research questions are whether this intervention will have an impact in terms of (Q1) personal-civic recovery and (Q2) clinical recovery, (Q3) how these recovery potentials can be impacted by the COVID-19 pandemic, (Q4) how the lived experience of persons in recovery can be mobilized to cope with such a situation, and (Q5) how sex and gender considerations can be taken into account for the pairing of PSWs with service users beyond considerations based solely on psychiatric diagnoses or specific MHPIs. This will help us assess the impact of PSWs in this setting. METHODS PSWs will lead a typical informal peer support group within the larger context of online peer support groups, focusing on personal-civic recovery. They will be scripted with a fixed, predetermined duration (a series of 10 weekly 90-minute online workshops). There will be 2 experimental subgroups-patients diagnosed with (1) psychotic disorders (n=10) and (2) anxiety or mood disorders (n=10)-compared to a control group (n=10). Random assignment to the intervention and control arms will be conducted using a 2:1 ratio. Several instruments will be used to assess clinical recovery (eg, the Recovery Assessment Scale, the Citizenship Measure questionnaire). The COVID-19 Stress Scales will be used to assess effects in terms of clinical recovery and stress- or anxiety-related responses to COVID-19. Changes will be compared between groups from baseline to endpoint in the intervention and control groups using the Student paired sample t test. RESULTS This pilot study was funded in March 2020. The protocol was approved on June 16, 2020, by the Research Ethics Committees of the Montreal Mental Health University Institute. Recruitment took place during the months of July and August, and results are expected in December 2020. CONCLUSIONS Study results will provide reliable evidence on the effectiveness of a web-based intervention provided by PSWs. The investigators, alongside key decision makers and patient partners, will ensure knowledge translation throughout, and our massive open online course (MOOC), The Fundamentals of Recovery, will be updated with the evidence and new knowledge generated by this feasibility study. TRIAL REGISTRATION ClinicalTrials.gov NCT04445324; https://clinicaltrials.gov/ct2/show/NCT04445324. INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID) PRR1-10.2196/22500.
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Affiliation(s)
- Jean-Francois Pelletier
- Department of Psychiatry and Addictology, Montreal Mental Health University Institute - Research Centre, University of Montreal, Montreal, QC, Canada
- Department of Psychiatry, Yale University, New Haven, CT, United States
| | - Janie Houle
- Department of Psychology, Université du Québec à Montréal, Montreal, QC, Canada
| | | | - Robert-Paul Juster
- Department of Psychiatry and Addictology, Montreal Mental Health University Institute - Research Centre, University of Montreal, Montreal, QC, Canada
| | | | - Jonathan Bordet
- Montreal Mental Health University Institute - Research Centre, Montreal, QC, Canada
| | - Isabelle Hénault
- Quebec Association of Peer Support Workers, Montreal, QC, Canada
| | - Alain Lesage
- Department of Psychiatry and Addictology, Montreal Mental Health University Institute - Research Centre, University of Montreal, Montreal, QC, Canada
| | - Luigi De Benedictis
- Montreal Mental Health University Institute - Research Centre, Montreal, QC, Canada
| | | | - Roger Ng
- Kowloon Hospital, Hong Kong, China
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Carroll A, McSherry B. Risk management in the era of recovery and rights. BJPSYCH ADVANCES 2020. [DOI: 10.1192/bja.2020.88] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 11/23/2022]
Abstract
SUMMARYClinical decision-making in psychiatry is affected by many factors, including how best to reduce risks of harm while promoting autonomy and personal recovery. This article proposes guidance for clinical decision-making that is consistent with civil liability law. It emphasises collaboration, clarification of the available information and communication of decisions as a basis for recovery-oriented risk management.
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Best MW, Law H, Pyle M, Morrison AP. Relationships between psychiatric symptoms, functioning and personal recovery in psychosis. Schizophr Res 2020; 223:112-118. [PMID: 32620428 DOI: 10.1016/j.schres.2020.06.026] [Citation(s) in RCA: 50] [Impact Index Per Article: 10.0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Grants] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 04/20/2020] [Revised: 06/20/2020] [Accepted: 06/20/2020] [Indexed: 11/19/2022]
Abstract
BACKGROUND Recovery from psychosis is increasingly being viewed as a combination of symptomatic, functional, and personal recovery. Negative and depressive symptoms have been linked to community functioning, and negative affect has been linked to personal recovery. The current study examines differential associations of symptoms with functional and personal recovery, and the interaction of cognitive and emotional components of psychotic experiences in predicting recovery. METHODS Baseline data from four studies of individuals with schizophrenia-spectrum disorders were amalgamated for the current analyses. All studies utilized the Positive and Negative Syndrome Scale, Psychotic Symptom Rating Scale, Personal and Social Performance Scale, and the Questionnaire about the Process of Recovery. RESULTS 971 individuals participated across the four studies. Affective symptoms were most strongly associated with personal recovery, accounting for 30% of the variance in personal recovery and only 2% of the variance in objective functioning. Negative and disorganized symptoms were related to both functional and personal recovery, excitement symptoms were only related to personal recovery, and broad measures of positive symptoms were not associated with either functional or personal recovery. Cognitive interpretations of psychotic experiences were more strongly related to objective functioning, and emotional components of psychotic experiences were more strongly related to personal recovery; cognitive interpretations moderated the relationship between emotional characteristics and recovery measures. CONCLUSIONS Functional and personal recovery are distinct domains of recovery with differential relationships to symptomatology. Interventions that target cognitive interpretations of psychotic experiences and negative affect may be more likely to affect multiple domains of recovery.
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Affiliation(s)
- Michael W Best
- Department of Psychology, University of Toronto Scarborough, Toronto, Ontario, Canada.
| | - Heather Law
- Greater Manchester Mental Health NHS Foundation Trust, Manchester, UK; School of Psychological Sciences, University of Manchester, Manchester, UK
| | - Melissa Pyle
- Greater Manchester Mental Health NHS Foundation Trust, Manchester, UK; School of Psychological Sciences, University of Manchester, Manchester, UK
| | - Anthony P Morrison
- Greater Manchester Mental Health NHS Foundation Trust, Manchester, UK; School of Psychological Sciences, University of Manchester, Manchester, UK
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Cruwys T, Stewart B, Buckley L, Gumley J, Scholz B. The recovery model in chronic mental health: A community-based investigation of social identity processes. Psychiatry Res 2020; 291:113241. [PMID: 32590231 DOI: 10.1016/j.psychres.2020.113241] [Citation(s) in RCA: 18] [Impact Index Per Article: 3.6] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 04/29/2020] [Revised: 06/15/2020] [Accepted: 06/15/2020] [Indexed: 11/25/2022]
Abstract
The recovery model has been enormously influential in shaping mental health services globally over the last two decades. However, empirical research on its outcomes and psychological mechanisms is sparse. This community-based case study utilised both semi-structured qualitative interviews and quantitative survey methods to investigate perceptions of recovery, identity, and wellbeing among people with chronic and severe mental illness attending recovery-oriented support groups. Consistent with a social identity approach and the recovery model, to the extent that people identified as "in recovery", they reported better recovery outcomes (e.g., sense of purpose) and reduced psychological distress. Furthermore, recovery identity more strongly predicted recovery outcomes than it did psychological distress. Both the quantitative and qualitative data pointed to collective efficacy (i.e., group-based empowerment) as a key mediator of these outcomes. These findings are consistent with the recovery model and speak to the utility of a social identity approach for conceptualizing its efficacy. However, these findings also speak to the need for further evaluation of how and when recovery-oriented mental health services achieve their intended goal of improving quality of life for people with chronic and severe mental illness.
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Affiliation(s)
- Tegan Cruwys
- Research School of Psychology, The Australian National University, Canberra, Australia.
| | - Bridie Stewart
- School of Psychology, The University of Queensland, Brisbane, Australia
| | - Lisa Buckley
- School of Public Health, The University of Queensland, Brisbane, Australia
| | - James Gumley
- School of Psychology, The University of Queensland, Brisbane, Australia
| | - Brett Scholz
- ANU Medical School, The Australian National University, Canberra, Australia
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Ogundipe E, Sælør KT, Dybdahl K, Davidson L, Biong S. “Come together”: a thematic analysis of experiences with belonging. ADVANCES IN DUAL DIAGNOSIS 2020. [DOI: 10.1108/add-03-2020-0002] [Citation(s) in RCA: 6] [Impact Index Per Article: 1.2] [Reference Citation Analysis] [Abstract] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 11/17/2022]
Abstract
Purpose
The purpose of this paper is to explore, describe and interpret two research questions: How do persons with co-occurring mental health and substance abuse problems, living in supportive housing, experience belonging? How do residential support staff experience promoting a sense of belonging for persons with co-occurring mental health and substance abuse problems, living in a supportive housing?
Design/methodology/approach
Individual semi-structured interviews were conducted with five persons with co-occurring mental health and substance abuse problems living in supportive housing in a Norwegian district. In addition, one semi-structured focus group was conducted with nine residential support staff. All interviews were transcribed verbatim and analyzed using thematic analysis.
Findings
Analysis resulted in three main themes: “I do not go to sleep in my pajamas”, “Do I have a choice?” and “Be kind to each other”.
Research limitations/implications
More research on how inclusive practices that are commonly described in guidelines actually affect the experience of residents and residential support staff is needed.
Practical implications
Practices that incorporate a communal and contextual understanding when assigning supportive housing are warranted.
Originality/value
By paying attention to the components of social recovery, this paper provides a nuanced understanding of how persons with co-occurring mental health and substance abuse problems, living in supportive housing, experience belonging. In addition, residential support staffs’ experiences with promoting a sense of belonging for this group are explored.
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Waddell E, Lawn S, Roberts L, Henderson J, Venning A, Redpath P, Godwin TS. “Their pain is our pain”: The lived experience of intimate partners in Veteran recovery from PTSD. JOURNAL OF MILITARY, VETERAN AND FAMILY HEALTH 2020. [DOI: 10.3138/jmvfh-2019-0037] [Citation(s) in RCA: 2] [Impact Index Per Article: 0.4] [Reference Citation Analysis] [Abstract] [Track Full Text] [Subscribe] [Scholar Register] [Indexed: 11/20/2022]
Abstract
Introduction: Social support, particularly support from an intimate partner, is both a significant protective factor for trauma-exposed Veterans and critical for recovery in mental health, yet we know little about the experiences and support needs of their partners, particularly in the Australian context. This study examined the multidimensional nature of experiences of being an intimate partner of a contemporary Veteran with posttraumatic stress disorder (PTSD). Methods: The authors used a qualitative phenomenological approach to conduct an inductive thematic analysis of data collected through individual interviews with a purposive sample of 10 partners of contemporary Veterans living in Australia. Interviewees were recruited through a range of community support organizations. Results: Analysis revealed intimate partners are crucial participants in supporting the recovery journey for traumatized Veterans, effectively managing day-to-day care, encouraging autonomy and instilling hope. However, descriptions highlighted that lack of understanding of partners’ daily lives, and particularly their commitment to maintaining their intimate relationship, by health care providers and government results in a sense of invisibility and is the key barrier to receiving the support they need in order to support recovery in their Veteran partners. Discussion: The findings underscore the importance of recognizing the role of intimate relationships in trauma recovery and of responding to the support needs of intimate partners. In particular, the findings have clear implications for improving the engagement by health care providers of partners of Veterans with PTSD in Veteran clinical treatment. More formal recognition of the indirect impact of PTSD on partners of Veterans is also needed within organizational policies and procedures. Finally, there is clearly a need for continuing education of health care providers, government staff and the general community about the nature of PTSD and its impacts on relationships, particularly the intimate type.
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Affiliation(s)
- Elaine Waddell
- College of Medicine and Public Health, Flinders University, Adelaide, Australia
| | - Sharon Lawn
- College of Medicine and Public Health, Flinders University, Adelaide, Australia
| | - Louise Roberts
- College of Medicine and Public Health, Flinders University, Adelaide, Australia
| | - Julie Henderson
- Nursing and Health Sciences, Flinders University, Adelaide, Australia
| | - Anthony Venning
- College of Medicine and Public Health, Flinders University, Adelaide, Australia
| | - Paula Redpath
- College of Medicine and Public Health, Flinders University, Adelaide, Australia
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Davies EL, Hooper KJ, Pelentsov LJ, Gordon AL, Esterman AJ. Development and validation of the Needs in Recovery Assessment (NiRA): A clinical tool for assessing the needs of individuals recovering from a first episode of mental illness. Int J Ment Health Nurs 2020; 29:639-651. [PMID: 32048399 DOI: 10.1111/inm.12697] [Citation(s) in RCA: 3] [Impact Index Per Article: 0.6] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 11/22/2019] [Revised: 01/08/2020] [Accepted: 01/13/2020] [Indexed: 11/29/2022]
Abstract
Recovering from a first episode of mental illness entails unique challenges and often includes experiencing unmet needs. The availability of a formal, structured and valid means of assessing the needs of individuals recovering from a first episode of mental illness may improve mental health service delivery. This article describes the development of a new needs assessment tool, the Needs in Recovery Assessment (NiRA), and presents the results of processes used to validate the tool. The NiRA was developed using data collected in a previous literature review and focus groups with mental health service users. It contains three sections for the identification, prioritization, planning and re-evaluation of a broad array of needs. It was presented in two workshops, where mental health service users and clinicians evaluated its validity, acceptability and usability. Items of need and the format of the NiRA were evaluated using Likert-scale questions, open-ended short answer and closed questions. Each item of need was evaluated for its validity by a panel of experts via an online survey. Descriptive statistics were used to analyse data, including means, percentages and the Content Validity Index (CVI).Streiner and Kottner's scale development and testing guidelines were used in the reporting of this study. 48 items of need were evaluated as valid by mental health service users, clinicians and academics. Most items received an I-CVI of greater than .93. The scale CVI/Avg was .96. The NiRA is perceived as a valid and acceptable tool for assessing the needs of people recovering from a first episode of mental illness.
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Affiliation(s)
- Ellen L Davies
- School of Nursing and Midwifery, University of South Australia, Adelaide, South Australia, Australia
| | - Kenneth J Hooper
- Youth Mental Health Service, Southern Adelaide Local Health Network, Oaklands Park, South Australia, Australia
| | - Lemuel J Pelentsov
- School of Nursing and Midwifery, University of South Australia, Adelaide, South Australia, Australia
| | - Andrea L Gordon
- Australian Center for Child Protection, University of South Australia, Adelaide, South Australia, Australia
| | - Adrian J Esterman
- School of Nursing and Midwifery, University of South Australia, Adelaide, South Australia, Australia
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Ricci ÉC, Leal E, La-Rotta EIG, Onocko-Campos R, O'Connell M. Cross-cultural adaptation of the recovery self-assessment instrument (RSA–R) person in recovery version to Brazilian Portuguese (Pt/Br). JOURNAL OF PUBLIC MENTAL HEALTH 2020. [DOI: 10.1108/jpmh-02-2020-0008] [Citation(s) in RCA: 2] [Impact Index Per Article: 0.4] [Reference Citation Analysis] [Abstract] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 11/17/2022]
Abstract
Purpose
The Recovery Self-Assessment (RSA–R) in Revised Version is an instrument designed to assess the degree to which mental health programs and services implement recovery-oriented practices. The purpose of this paper is to conduct a cross-cultural adaptation of the RSA–R instrument for use in local mental health services in the city of Campinas, State of São Paulo, Brazil.
Design/methodology/approach
This method for cross-cultural adaptation of the instrument included a series of iterative steps including preparation, translation, back translation, harmonization, expert evaluation, focus groups, in-depth interviews, expert opinion and pilot study.
Findings
A multi-rater assessment of the equivalence of content between the original RSA–R and the translated version revealed that each of the 32 items achieved at least 88% agreement in terms of equivalency. A multi-step harmonization process revealed additional suggestions for improvements in readability, comprehension and applicability to Brazilian context. An expert in youth and adult education provided additional stylistic recommendations. Combined, this iterative approach to cross-cultural translation resulted in an adapted version of the instrument that was well understood, culturally appropriate and adequate for further verification of psychometric properties.
Originality/value
The recovery process in Brazil and in the USA has culturally determined differences in terms of the way mental disorders are understood, diagnosed and treated. Moreover, there are different notions of what constitutes desirable results of recovery, health care and welfare. At the present time, there are few, if any, available cross-cultural instruments to assess the recovery-orientation of services between Brazil and the USA.
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Barlott T, Shevellar L, Turpin M, Setchell J. Destabilising social inclusion and recovery, and pursuing 'lines of flight' in the mental health sector. SOCIOLOGY OF HEALTH & ILLNESS 2020; 42:1328-1343. [PMID: 32525585 DOI: 10.1111/1467-9566.13106] [Citation(s) in RCA: 8] [Impact Index Per Article: 1.6] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Subscribe] [Scholar Register] [Indexed: 06/11/2023]
Abstract
People who have been diagnosed with serious mental illness have a long history of confinement, social stigma and marginalisation that has constrained their participation in society. Drawing upon the work of Gilles Deleuze and Felix Guattari, we have used the concepts of: assemblages, major and minor and deterritorialisation to critically analyse two pervasive and 'taken-for-granted' assemblages in mental health: recovery (including clinical recovery, social recovery and recovery-oriented practice) and social inclusion. Our analysis explores how dominant and oppressive forces have been entangled with liberating and transformative forces throughout both of these assemblages - with dominant forces engaging in ongoing processes of capture and control, and transformative forces resisting and avoiding capture. In pursuit of social transformation for people categorised with serious mental illness, deterritorialisation is posited as a potential way forward. To have transformation in the lives of mental health service users, we present the possibility that ongoing, disruptive movements of deterritorialisation can unsettle majoritarian practices of capture and control - producing liberating lines of flight.
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Affiliation(s)
- Tim Barlott
- School of Health and Rehabilitation Sciences, The University of Queensland, Brisbane, Australia
- School of Social Sciences, The University of Queensland, Brisbane, Australia
| | - Lynda Shevellar
- School of Social Sciences, The University of Queensland, Brisbane, Australia
| | - Merrill Turpin
- School of Health and Rehabilitation Sciences, The University of Queensland, Brisbane, Australia
| | - Jenny Setchell
- School of Health and Rehabilitation Sciences, The University of Queensland, Brisbane, Australia
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Chang YC, Chen MD, Pickett SA, Chen PS, Su WC. Recovery Programs for People With Mental Illness in Taiwan: A Feasibility Study. Am J Occup Ther 2020; 74:7404205110p1-7404205110p10. [PMID: 32602450 DOI: 10.5014/ajot.2020.038513] [Citation(s) in RCA: 1] [Impact Index Per Article: 0.2] [Reference Citation Analysis] [Abstract] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 11/17/2022] Open
Abstract
IMPORTANCE Most recovery programs have been developed in Western countries. This study explores the cultural adaptation of a recovery program to a non-Western country. OBJECTIVE To test the feasibility of a recovery group developed for people with mental illness in Taiwan. DESIGN Mixed-methods feasibility study. SETTING Community psychiatric rehabilitation center in southern Taiwan. PARTICIPANTS Twenty-four people with mental illness living in the community. INTERVENTION The authors designed a recovery group based on the Pathways to Recovery program and the mental health recovery literature. The curriculum included two phases: recovery profile and recovery plan. The group gathered for a 1-hr session once a week for 18 wk. OUTCOMES AND MEASURES Outcomes were assessed preintervention, mid-intervention, and postintervention. Data collected included Stages of Recovery Scale (SRS) scores, course assessments, and course discussions. RESULTS Most participants were satisfied with the recovery program and its implementation. Scores on the Social Functioning/Role Performance subscale of the SRS showed a medium to large effect size (r = .36) for the Recovery Stage 1-3 subsample (n = 16). CONCLUSION AND RELEVANCE This study affirmed the feasibility of a recovery group for people with mental illness in Taiwan. Prospective randomized controlled trials should be used to verify recovery groups' effectiveness. WHAT THIS ARTICLE ADDS Recovery programs tailored to people with mental illness in non-Western countries may need more examples and longer sessions to enable participants to fully understand and implement the concepts of recovery.
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Affiliation(s)
- Yen-Ching Chang
- Yen-Ching Chang, PhD, OT, is Assistant Professor, Department of Occupational Therapy, College of Medicine, National Cheng Kung University, Tainan, Taiwan
| | - Ming-De Chen
- Ming-De Chen, PhD, OT, is Associate Professor, Department of Occupational Therapy, College of Health Sciences, Kaohsiung Medical University, and Adjunct Research Fellow, Department of Medical Research, Kaohsiung Medical University Hospital, Kaohsiung, Taiwan
| | - Susan A Pickett
- Susan A. Pickett, PhD, is Deputy Director, Center for Research and Evaluation, Advocates for Human Potential, Inc., Chicago
| | - Po See Chen
- Po See Chen, MD, PhD, is Director, Department of Psychiatry, National Cheng Kung University Hospital, College of Medicine, National Cheng Kung University, Tainan, Taiwan, and Professor, Institute of Behavioral Medicine, College of Medicine, National Cheng Kung University, Tainan, Taiwan
| | - Wen-Chen Su
- Wen-Chen Su, OT, is Occupational Therapist, Department of Psychiatry, National Cheng Kung University Hospital, College of Medicine, National Cheng Kung University, Tainan, Taiwan;
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Corrigan PW, Qin S, Davidson L, Schomerus G, Shuman V, Smelson D. Recovery from mental illness versus substance use disorder. ADVANCES IN DUAL DIAGNOSIS 2020. [DOI: 10.1108/add-10-2019-0012] [Citation(s) in RCA: 1] [Impact Index Per Article: 0.2] [Reference Citation Analysis] [Abstract] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 11/17/2022]
Abstract
Purpose
While serious mental illness (SMI) and substance use disorders (SUD) are common, less research has focused on causal beliefs across conditions. This is an important question when trying to understand the experience of dual diagnosis. The purpose of this paper is to examine how three factors representing causal beliefs (biogenetic, psychosocial or childhood adversity) differ by SMI and SUD. This study also examined how causal beliefs were associated with overall, process and outcome beliefs about recovery.
Design/methodology/approach
Using Mechanical Turks online panel, 195 research participants from the general public completed measures of recovery – overall, outcome and process – for SMI and SUD. Participants also completed the Causal Beliefs Scale yielding three causal factors for SMI and separately for SUD: biogenetic, psychosocial and childhood adversity.
Findings
Results indicated participants endorsed biogenetic cause more for SMI and SUD. Moreover, research participants endorsed biogenetic causes more than the other two for SMI. Results also showed the psychosocial cause was positively associated with recovery for SMI. Biogenetic causes were not. Almost none of the causal indicators was significantly associated with recovery for SUD.
Originality/value
Implications of these findings for future research and public efforts to enhance attitudes about recovery are discussed.
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Vaingankar JA, Cetty L, Subramaniam M, Lee YY, Chong SA, Lee H, Verma S. Recovery in Psychosis: Perspectives of Clients with First Episode Psychosis. ANNALS OF THE ACADEMY OF MEDICINE, SINGAPORE 2020. [DOI: 10.47102/annals-acadmed.sg.2019224] [Citation(s) in RCA: 5] [Impact Index Per Article: 1.0] [Reference Citation Analysis] [Abstract] [Track Full Text] [Subscribe] [Scholar Register] [Indexed: 11/18/2022]
Abstract
Introduction:
Recovery from psychosis relates to connectedness, hope for the future, identity, meaning in life and empowerment. The process of recovery is often described as gradual and non-linear, with many stages and turning points, and without a definitive end point. This qualitative study aims to understand what recovery means to clients, to better understand their unique recovery process and what helps in recovery among clients with lived experience of first episode psychosis (FEP) in a developed Asian setting.
Materials and Methods:
The study design and interview guide development included inputs from persons with psychosis, following which 7 focus group discussions were conducted with 40 FEP clients of a tertiary care psychiatric institute.
Results:
Thematic qualitative analysis identified three themes: 1) meaning of recovery (where participants expressed their views on what recovery meant to them); 2) recovery as a journey (due to the constant ups and downs in the long process of recovery, it was often articulated as a “journey”); and 3) facilitators of recovery (related to resources, practices and experiences that supported their recovery).
Conclusion:
The emergent themes provide an understanding of the meaning of recovery to persons with FEP, their experiences as they proceed with their recovery journey and factors they found helpful. The importance of acceptance of the condition and the personal role the individual plays in his or her own recovery was evident in the narratives of the participants. The study suggests a need to incorporate recovery-relevant approaches right from the first episode of psychosis.
Ann Acad Med Singapore 2020;49:186–98
Key words: Meaning of recovery, Qualitative, Thematic analysis
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Affiliation(s)
| | | | | | | | | | - Helen Lee
- Institute of Mental Health, Singapore
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Kerr DJR, Deane FP, Crowe TP. A Complexity Perspective on Narrative Identity Reconstruction in Mental Health Recovery. QUALITATIVE HEALTH RESEARCH 2020; 30:634-649. [PMID: 31729934 DOI: 10.1177/1049732319886285] [Citation(s) in RCA: 10] [Impact Index Per Article: 2.0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Subscribe] [Scholar Register] [Indexed: 06/10/2023]
Abstract
The issue of complex nonlinear change processes is one of the least understood aspects of recovery and one of the most difficult to apply in recovery-oriented health care. The purpose of this article is to explore the recovery stories of 17 mental health peer support workers to understand their narrative identity reconstruction in recovery using a complexity perspective. Using the Life Story Model of Identity (LSMI), a narrative thematic analysis of interviews suggests that self-mastery as part of personal agency is an important component of participants' narrative identity reconstruction. Self-mastery is particularly evident in redemptive story turning points (positive outcome follows negative experience). A complexity perspective suggests that participants realized their adaptive capacity in relation to self-mastery as part of recovery and that its use at story turning points critically influenced their recovery journey. Further exploring self-mastery as adaptive growth in narrative identity reconstruction appears to be a fruitful research direction.
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Kerr DJ, Deane FP, Crowe TP. Pilot study of a serious board game intervention to facilitate narrative identity reconstruction in mental health recovery. Health Psychol Open 2020; 7:2055102920905628. [PMID: 32095256 PMCID: PMC7008560 DOI: 10.1177/2055102920905628] [Citation(s) in RCA: 2] [Impact Index Per Article: 0.4] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Download PDF] [Figures] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 12/05/2022] Open
Abstract
This quasi-experimental study explores the effects of a narrative coaching board game intervention aimed at enhancing participants’ sense of self-mastery as part of facilitating narrative identity reconstruction. Three mixed analyses of variance compared differences between clinical (n = 31) and non-clinical (n = 31) groups over time on a measure of mastery. There were no significant group-by-time interaction effects, but both groups demonstrated a statistically significant improvement in mastery over time. From a complex adaptive system perspective, changes may indicate adaptive growth in recovery. A serious board game may be a useful way of facilitating narrative identity reconstruction in recovery.
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