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Joyce E, Guerin S, Synman L, Ryberg M. Exploring perspectives of supporting the process of dying, death and bereavement among critical care staff: A multidisciplinary, qualitative approach. J Intensive Care Soc 2025; 26:21-28. [PMID: 39758280 PMCID: PMC11699554 DOI: 10.1177/17511437241308672] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 01/07/2025] Open
Abstract
Background Dying and death in critical care settings can have particularly negative implications for the bereavement experience of family members, family interaction and the wellbeing of critical care staff. This study explored critical care staff perspectives of dying, death and bereavement in this context, and their role related to patients and their families, adopting a multidisciplinary perspective. Method This study employed a descriptive exploratory qualitative design, using reflexive thematic analysis to interpret the data. Semi-structured interviews were conducted with 15 critical care staff from hospitals in the Republic of Ireland. Most participants were female (n = 11), with four male participants. Professional disciplines included nursing, dietetics, physiotherapy, anaesthesiology and medicine. Results Key findings included supporting a 'nice death' for patients and their families, the challenges critical care staff experience, the need for better supports in critical care, and the need for change in current bereavement support provision given the diversity evident in the modern Irish population. Conclusion This study suggests that the unique challenges faced by staff and families throughout the dying process may benefit from the development of additional psychological, educational, and infrastructural supports. Inconsistencies in supports across critical care units in Ireland were also identified. Future research should complement the current study and examine family members' experience of the dying process in critical care and their perspectives on supports provided.
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Affiliation(s)
- Elsa Joyce
- UCD School of Psychology, University College Dublin, Dublin, Ireland
| | - Suzanne Guerin
- UCD School of Psychology, University College Dublin, Dublin, Ireland
| | | | - Melanie Ryberg
- UCD School of Psychology, University College Dublin, Dublin, Ireland
- Tallaght University Hospital, Dublin, Ireland
- School of Medicine, Trinity College Dublin, Dublin, Ireland
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Gupta N, Gupta R, Gupta A. Rationale for integration of palliative care in the medical intensive care: A narrative literature review. World J Crit Care Med 2022; 11:342-348. [PMID: 36439323 PMCID: PMC9693909 DOI: 10.5492/wjccm.v11.i6.342] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Download PDF] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 03/10/2022] [Revised: 05/01/2022] [Accepted: 09/07/2022] [Indexed: 02/05/2023] Open
Abstract
Despite the remarkable technological advancement in the arena of critical care expertise, the mortality of critically ill patients remains high. When the organ functions deteriorate, goals of care are not fulfilled and life-sustaining treatment becomes a burden on the patient and caregivers, then it is the responsibility of the physician to provide a dignified end to life, control the symptoms of the patient and provide psychological support to the family members. Palliative care is the best way forward for these patients. It is a multidimensional specialty which emphasizes patient and family-based care and aims to improve the quality of life of patients and their caregivers. Although intensive care and palliative care may seem to be at two opposite ends of the spectrum, it is necessary to amalgamate the postulates of palliative care in intensive care units to provide holistic care and best benefit patients admitted to intensive care units. This review aims to highlight the need for an alliance of palliative care with intensive care in the present era, the barriers to it, and models proposed for their integration and various ethical issues.
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Affiliation(s)
- Nishkarsh Gupta
- Department of Anesthesiology, All India Institute of Medical Sciences, Delhi 110029, India
| | - Raghav Gupta
- Department of Onco-Anesthesiology and Palliative Medicine, All India Institute of Medical Sciences, Delhi 110029, India
| | - Anju Gupta
- Department of Anesthesiology, Pain Medicine and Critical Care, All India Institute of Medical Sciences, Delhi 110029, India
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Kurnia TA, Trisyani Y, Prawesti A. The relationship between nurses' knowledge and self-confidence in implementing palliative care in an intensive care unit. Int J Palliat Nurs 2021; 26:183-190. [PMID: 32378490 DOI: 10.12968/ijpn.2020.26.4.183] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 11/11/2022]
Abstract
BACKGROUND This quantitative study aimed to analyse the relationship between knowledge and nurses' self-confidence (or self-efficacy) in applying palliative care (PC) in the intensive care unit (ICU). This study was a correlational study with a cross-sectional approach. The sampling technique used was total sampling, and the sample included all nurses who were actively working at the general hospital in Bandung, West Java, Indonesia, during the study. There were 127 people in total. Data were collected using questionnaires. The Pearson correlation test was used for bivariate analysis. The results of univariate analysis showed that the majority of respondents had high self-confidence but had less knowledge related to PC in the ICU. Based on the results of the bivariate analysis, there was a significant relationship between knowledge and self-confidence variables. The results showed that a high number of respondents had less knowledge in implementing PC in the ICU. Therefore, familiarisation sessions and training related to this are needed, focusing on nurses' beliefs in their abilities.
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Affiliation(s)
| | - Yanny Trisyani
- Faculty of Nursing, Padjadjaran University, Bandung, West Java, Indonesia
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Kurnia TA, Trisyani Y, Prawesti A. Factors Associated with Nurses’ Self-Efficacy in Applying Palliative Care in Intensive Care Unit. JURNAL NERS 2019. [DOI: 10.20473/jn.v13i2.9986] [Citation(s) in RCA: 4] [Impact Index Per Article: 0.7] [Reference Citation Analysis] [Abstract] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 11/22/2022] Open
Abstract
Introduction: The increasing need for palliative care (PC) in the intensive care unit (ICU) is characterised by an increasing number of patients with critical and terminals conditions. It requires comprehensive treatment of nurses, through PC. Self-efficacy is a major predictor that affects the application of PC in ICU. Therefore, nurses need to have high self-efficacy to provide quality PC for patients and their families. This study aimed to analyse the factors that dominant relates to nurses' self-efficacy in implementing of providing PC in ICU.Methods: This research was correlational research with cross-sectional survey design. The sampling technique used was total sampling, which involved 127 critical nurses who were actively working at a general hospital in Bandung, Indonesia. Data were collected using questionnaires. Bivariate analysis using Pearson correlation and Rank-Spearman test and multivariate analysis using linear regression.Results: The results showed that the majority of respondents had high self-efficacy, working experience >15 years, enough interest to the nursing profession had less knowledge and negative perception related to the PC in ICU. There was a significant relationship between self-efficacy with work experience, nurses' interest in the nursing profession, knowledge and perception variables. The most dominant factors related to self-efficacy, namely knowledge and perceptions of nurses related to PC.Conclusion: This study indicates that majority of the respondents lacked knowledge and had negative perceptions related to PC in ICU, it is necessary to socialise and training related to it by focusing on self-belief or self-efficacy of nurses on their ability.
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Doherty DT, Shapey IM, Moinuddin Z, Birtles L, Summers A, Ahamed A, van Dellen D, Augustine T. Should End-of-Life Preferences Be Discussed Routinely before High-Risk Surgery? J Palliat Med 2018; 21:1818-1821. [PMID: 30285534 DOI: 10.1089/jpm.2018.0048] [Citation(s) in RCA: 3] [Impact Index Per Article: 0.4] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 11/12/2022] Open
Abstract
Encapsulating peritoneal sclerosis (EPS) is a rare but devastating complication of peritoneal dialysis. It is characterized by peritoneal neovascularization, fibrosis, and calcification ultimately leading to intestinal obstruction and eventual failure. Surgery for EPS has a mortality approaching 50% and most patients require some form of postoperative life-sustaining therapy (LST) during their admission. A 43-year-old gentleman with progressive EPS and significant comorbidities was assessed for enterolysis after a failed first attempt at another center. Because of his comorbidities, postoperative mortality was quoted above 50%. The patient favored surgery to improve his survival and quality of life, but was reluctant to receive prolonged LST in the event of failure of surgical therapy. The surgical team, in conjunction with a palliative care physician, therefore held extensive discussions with the patient and his partner regarding LST and its limitations. Clinical parameters to trigger a transition to palliative care were identified and agreed. Limitations on LST that are directly expressed by patients can represent a contraindication to surgery for many surgeons. Surgical Buy-In is a concept described as a perceived contract, or covenant, between the patient and clinician regarding implied consent for postoperative LST. Currently, preoperative discussions regarding limitations of LST are infrequent, and there can be reticence among patients and surgeons to have these conversations, leading to dissatisfaction on behalf of the patient and their family. After the Montgomery legal ruling, the provision and perception of informed consent are particularly pertinent. The palliative care physician is uniquely placed to contribute to such discussions as part of the surgical multidisciplinary team.
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Affiliation(s)
- Daniel T Doherty
- Department of Renal and Pancreas Transplantation, NHS England Funded UK referral center for Encapsulating Peritoneal Sclerosis Surgery, Manchester Royal Infirmary, Manchester, United Kingdom.,Faculty of Biology, Medicine, and Health, University of Manchester, Manchester, United Kingdom
| | - Iestyn M Shapey
- Department of Renal and Pancreas Transplantation, NHS England Funded UK referral center for Encapsulating Peritoneal Sclerosis Surgery, Manchester Royal Infirmary, Manchester, United Kingdom.,Faculty of Biology, Medicine, and Health, University of Manchester, Manchester, United Kingdom
| | - Zia Moinuddin
- Department of Renal and Pancreas Transplantation, NHS England Funded UK referral center for Encapsulating Peritoneal Sclerosis Surgery, Manchester Royal Infirmary, Manchester, United Kingdom.,Faculty of Biology, Medicine, and Health, University of Manchester, Manchester, United Kingdom
| | - Linda Birtles
- Department of Renal and Pancreas Transplantation, NHS England Funded UK referral center for Encapsulating Peritoneal Sclerosis Surgery, Manchester Royal Infirmary, Manchester, United Kingdom
| | - Angela Summers
- Department of Renal and Pancreas Transplantation, NHS England Funded UK referral center for Encapsulating Peritoneal Sclerosis Surgery, Manchester Royal Infirmary, Manchester, United Kingdom.,Faculty of Biology, Medicine, and Health, University of Manchester, Manchester, United Kingdom
| | - Ashique Ahamed
- Department of Palliative Medicine, Manchester Royal Infirmary, Manchester, United Kingdom
| | - David van Dellen
- Department of Renal and Pancreas Transplantation, NHS England Funded UK referral center for Encapsulating Peritoneal Sclerosis Surgery, Manchester Royal Infirmary, Manchester, United Kingdom.,Faculty of Biology, Medicine, and Health, University of Manchester, Manchester, United Kingdom
| | - Titus Augustine
- Department of Renal and Pancreas Transplantation, NHS England Funded UK referral center for Encapsulating Peritoneal Sclerosis Surgery, Manchester Royal Infirmary, Manchester, United Kingdom.,Faculty of Biology, Medicine, and Health, University of Manchester, Manchester, United Kingdom
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