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Braybrooke A, Burgess R, Brooks M, Banerjee A, Hill JC. Quality indicators for the community care of MSK conditions: An online modified-Delphi study. Musculoskelet Sci Pract 2025; 76:103283. [PMID: 39983525 DOI: 10.1016/j.msksp.2025.103283] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 10/21/2024] [Revised: 01/29/2025] [Accepted: 02/07/2025] [Indexed: 02/23/2025]
Abstract
BACKGROUND Quality indicators can be used within healthcare to measure and benchmark performance. Variations in the access and quality of healthcare for musculoskeletal conditions highlights the need for a nationally agreed set of indicators. OBJECTIVES The study's primary aim was to develop a set of care quality themes and indicators for musculoskeletal community care. METHODS An online Delphi process was used, that included clinicians, managers, researchers, and patients. In round one, participants rated 79 indicators, across six care quality themes, for their importance to quality community musculoskeletal care. Following this, participants discussed the results of the first round in an online panel and then re-rated indicators in a second-round survey. The panel discussion focused on a) the importance rating of indicators, and b) the wording of care quality themes. Consensus for high importance was set at ≥60% in both rounds of the study. RESULTS/FINDINGS Forty-six individuals participated in the first round of the study, with 21 participating in the second round. After the second round, six care quality themes emerged: 1) Optimising patient access and assessment, 2) Optimising patient education, self-management, and rehabilitation, 3) Optimising personalised care, 4) Optimising diagnosis, imaging, investigation, and referrals, 5) Optimising patient experience and outcomes, and 6) Population health relevant to musculoskeletal conditions. Within the six themes, 59 indicators were ranked as highly important. CONCLUSIONS This study has developed a set of care quality themes and indicators for community musculoskeletal care. In the next stage of indicator development, real-world data will be used to validate the indicators across several constructs.
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Affiliation(s)
- A Braybrooke
- Keele University, School of Allied Health Professions and Pharmacy, Keele, Newcastle-under-Lyme, Staffordshire, ST55BG, United Kingdom; Centre for Musculoskeletal Health Research, Faculty of Medicine and Health Science, Keele University, Keele, Newcastle-under-Lyme, Staffordshire, ST55BG, United Kingdom.
| | - R Burgess
- Keele University, School of Allied Health Professions and Pharmacy, Keele, Newcastle-under-Lyme, Staffordshire, ST55BG, United Kingdom; Sandwell and West Birmingham NHS Trust, Lyndon, West Bromwich, B71 4HJ, United Kingdom; Centre for Musculoskeletal Health Research, Faculty of Medicine and Health Science, Keele University, Keele, Newcastle-under-Lyme, Staffordshire, ST55BG, United Kingdom
| | - M Brooks
- Midlands Partnership NHS Foundation Trust, Staffordshire, ST163SR, United Kingdom
| | - A Banerjee
- Keele University, School of Allied Health Professions and Pharmacy, Keele, Newcastle-under-Lyme, Staffordshire, ST55BG, United Kingdom; Centre for Musculoskeletal Health Research, Faculty of Medicine and Health Science, Keele University, Keele, Newcastle-under-Lyme, Staffordshire, ST55BG, United Kingdom
| | - J C Hill
- Keele University, School of Allied Health Professions and Pharmacy, Keele, Newcastle-under-Lyme, Staffordshire, ST55BG, United Kingdom; Centre for Musculoskeletal Health Research, Faculty of Medicine and Health Science, Keele University, Keele, Newcastle-under-Lyme, Staffordshire, ST55BG, United Kingdom
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Hoggatt KJ, Harris AHS, Hayes CJ, Washington D, Williams EC. Improving diagnosis-based quality measures: an application of machine learning to the prediction of substance use disorder among outpatients. BMJ Open Qual 2025; 14:e003017. [PMID: 40121006 PMCID: PMC11931922 DOI: 10.1136/bmjoq-2024-003017] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Grants] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 07/28/2024] [Accepted: 02/25/2025] [Indexed: 03/25/2025] Open
Abstract
OBJECTIVE Substance use disorder (SUD) is clinically under-detected and under-documented. We built and validated machine learning (ML) models to estimate SUD prevalence from electronic health record (EHR) data and to assess variation in facility-level SUD identification using clinically documented diagnoses vs model-based estimated prevalence. METHODS Predictors included demographics, SUD-related diagnoses and healthcare utilisation. The criterion outcome for model development was prevalent SUD assessed via a patient survey across 30 geographically representative Veterans Health Administration (VA) sites (n=5989 patients). We split the data into training and testing datasets and built a series of ML models using cross-validation to minimise over-fitting. We selected the final model based on its performance in predicting SUD in the testing dataset. Using the final model, we estimated SUD prevalence at all 30 sites. We then compared facilities based on SUD identification using two alternative SUD identification measures: the facility-level SUD diagnosis rate and model-based estimated SUD prevalence. RESULTS The best-performing LASSO model with n=61 predictors doubled the sensitivity for classifying SUD relative to a model with only documented SUD diagnoses (0.682 vs 0.331). Across the 30 sites, SUD diagnosis rates ranged from 6.4%-13.9% and predicted SUD prevalence ranged from 9.7-16.0%. The difference in facility-level SUD identification (observed diagnosis rate minus predicted prevalence) ranged from -7.2 to +1.3 percentage points. Comparing facilities' rank ordering on documented SUD diagnosis rates vs estimated SUD prevalence, 16 out of 30 sites had a ranking that changed by at least a quintile (ie, 6 places or more). CONCLUSIONS This analysis shows that use of model-based performance measures may help address measurement blind spots that arise due to differences in diagnostic accuracy across sites. Although model-based estimates better estimate SUD prevalence relative to diagnoses alone for facility quality assessment, further improvements and individual SUD detection both require enhanced direct screening for non-alcohol drug use.
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Affiliation(s)
- Katherine J Hoggatt
- Center for Data to Discovery and Delivery Innovation (3DI), San Francisco VA Health Care System, San Francisco, California, USA
- Department of Medicine, University of California, San Francisco, California, USA
| | - Alex H S Harris
- Ci2i, VA Palo Alto Health Care System Menlo Park Division, Menlo Park, California, USA
- Department of Surgery, Stanford Medicine, Stanford, California, USA
| | - Corey J Hayes
- Department of Biomedical Informatics, College of Medicine, University of Arkansas for Medical Sciences, Little Rock, Arkansas, USA
- Center for Mental Healthcare and Outcomes Research, Eugene J. Towbin Healthcare Center, Central Arkansas Veterans Healthcare System, North Little Rock, Arkansas, USA
- Division of Pharmaceutical Evaluation & Policy, College of Pharmacy, University of Arkansas for Medical Sciences, Little Rock, Arkansas, USA
| | - Donna Washington
- VA Greater Los Angeles Healthcare System, Los Angeles, California, USA
- Department of Medicine, University of California, Los Angeles, California, USA
| | - Emily C Williams
- VA Puget Sound Health Care System Seattle Division, Seattle, Washington, USA
- Department of Health Systems and Population Health, University of Washington School of Public Health, Seattle, Washington, USA
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Gralton KS, Malin K, Sherburne E, Smith D, Wenner S, Averbeck J, Newman A, Norton A, Hornung G, Kavanaugh K. The impact of COVID-19 during the first two years: Giving voice to pediatric nurses. J Pediatr Nurs 2025; 82:151-159. [PMID: 40081097 DOI: 10.1016/j.pedn.2025.02.010] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 11/08/2024] [Revised: 02/12/2025] [Accepted: 02/16/2025] [Indexed: 03/15/2025]
Abstract
PURPOSE The purpose of this study was to describe the experiences of pediatric nurses providing direct care in a variety of settings during the first two years of the COVID-19 pandemic. DESIGN AND METHODS This was a qualitative descriptive study. Donabedian's Quality Framework for the Evaluation of Healthcare was used to guide the design. Purposive sampling was used to recruit 24 direct care nurses from inpatient and outpatient settings within one healthcare system. Semi-structured, audio-recorded interviews were conducted in-person or via a virtual platform from November 2021 through March 2022. RESULTS Four major themes were determined across all settings and included: 1) adapting to continuous change, 2) needing effective communication, 3) triggering moral distress, and 4) searching for relief. Fifteen subthemes emerged from the major themes. CONCLUSIONS The impact of the COVID-19 pandemic on pediatric nurses has been profound. Given the opportunity, pediatric nurses clearly articulated the personal and professional challenges they faced throughout the pandemic, how they navigated them, and how they hope healthcare systems will handle crises in the future. PRACTICE IMPLICATIONS The future of pediatric nursing depends on the engagement and support for direct care nurses to practice their profession and meet the needs of both patients and families. Leaders and nurses working together are integral to this future. Nurses want leaders to be present and listen, to value their opinions and to engage them in decision-making that impacts their practice. They need leaders at all levels to understand their work environment and to advocate and support their mental health through readily available resources.
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Affiliation(s)
- Karen S Gralton
- Children's Wisconsin Corporate Center, 999 N. 92nd St. C140, Wauwatosa, WI 53226, USA.
| | - Kathryn Malin
- Marquette University College of Nursing, Children's Wisconsin, 999 N. 92nd St. C140, Wauwatosa, WI 53226, USA
| | - Eileen Sherburne
- Children's Wisconsin Corporate Center, 999 N. 92nd St. C140, Wauwatosa, WI 53226, USA
| | - Danielle Smith
- Children's Wisconsin Corporate Center, 999 N. 92nd St. C140, Wauwatosa, WI 53226, USA
| | - Stacy Wenner
- Children's Wisconsin Corporate Center, 999 N. 92nd St. C140, Wauwatosa, WI 53226, USA
| | - Julie Averbeck
- Children's Wisconsin Corporate Center, 999 N. 92nd St. C140, Wauwatosa, WI 53226, USA
| | - Amy Newman
- Marquette University College of Nursing, Medical College of Wisconsin, Children's Wisconsin, 999 N. 92nd St. C140, Wauwatosa, WI 53226, USA
| | - Anita Norton
- Children's Wisconsin Corporate Center, 999 N. 92nd St. C140, Wauwatosa, WI 53226, USA
| | - Genesee Hornung
- Children's Wisconsin Corporate Center, 999 N. 92nd St. C140, Wauwatosa, WI 53226, USA
| | - Karen Kavanaugh
- Children's Wisconsin, University of Illinois at Chicago, 999 N. 92nd St. C140, Wauwatosa, WI 53226, USA
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Haak F, Müller PC, Kollmar O, Billeter AT, Lavanchy JL, Wiencierz A, Müller-Stich BP, von Strauss Und Torney M. Digital standardization in liver surgery through a surgical workflow management system: A pilot randomized controlled trial. Langenbecks Arch Surg 2025; 410:96. [PMID: 40069334 PMCID: PMC11897067 DOI: 10.1007/s00423-025-03634-7] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Grants] [Track Full Text] [Figures] [Journal Information] [Subscribe] [Scholar Register] [Received: 12/20/2024] [Accepted: 02/02/2025] [Indexed: 03/15/2025]
Abstract
INTRODUCTION Surgical process models (SPM) are simplified representations of operations and their visualization by surgical workflow management systems (SWMS), and offer a solution to enhance communication and workflow. METHODS A 1:1 randomized controlled trial was conducted. A SPM consisting of six surgical steps was defined to represent the surgical procedure. The primary outcome, termed "deviation" measured the difference between actual and planned surgery duration. Secondary outcomes included stress levels of the operating team and complications. Analyses employed Welch t-tests and linear regression models. RESULTS 18 procedures were performed with a SWMS and 18 without. The deviation showed no significant difference between the intervention and control group. Stress levels (TLX score) of the team remained largely unaffected. Duration of operation steps defined by SPM allows a classification of all liver procedures into three phases: The Start Phase (low IQR of operation time), the Main Phase (high IQR of operation time) and the End Phase (low IQR of operation time). CONCLUSION This study presents a novel SPM for open liver resections visualized by a SWMS. No significant reduction of deviations from planned operation time was observed with system use. Stress levels of the operation team were not influenced by the SWMS.
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Affiliation(s)
- Fabian Haak
- Clarunis, Department of Visceral Surgery, University Digestive Health Care Center, St. Clara Hospital and University Hospital Basel, Petersgraben 4, 4031, Basel, Switzerland.
- Department of Visceral, Transplant, Thoracic and Vascular Surgery, Division of Hepatobiliary Surgery and Visceral Transplant Surgery, University Hospital Leipzig, Leipzig , Germany.
| | - Philip C Müller
- Clarunis, Department of Visceral Surgery, University Digestive Health Care Center, St. Clara Hospital and University Hospital Basel, Petersgraben 4, 4031, Basel, Switzerland
| | - Otto Kollmar
- Department of General, Visceral, Vascular and Thoracic Surgery, Kantonsspital Baselland, Liestal, Switzerland
| | - Adrian T Billeter
- Clarunis, Department of Visceral Surgery, University Digestive Health Care Center, St. Clara Hospital and University Hospital Basel, Petersgraben 4, 4031, Basel, Switzerland
| | - Joël L Lavanchy
- Clarunis, Department of Visceral Surgery, University Digestive Health Care Center, St. Clara Hospital and University Hospital Basel, Petersgraben 4, 4031, Basel, Switzerland
- Department of Biomedical Engineering, University of Basel, Allschwil, Switzerland
| | - Andrea Wiencierz
- Department of Clinical Research, University of Basel, University Hospital, Basel, Switzerland
| | - Beat Peter Müller-Stich
- Clarunis, Department of Visceral Surgery, University Digestive Health Care Center, St. Clara Hospital and University Hospital Basel, Petersgraben 4, 4031, Basel, Switzerland
| | - Marco von Strauss Und Torney
- Clarunis, Department of Visceral Surgery, University Digestive Health Care Center, St. Clara Hospital and University Hospital Basel, Petersgraben 4, 4031, Basel, Switzerland
- Department of Clinical Research, University of Basel, University Hospital, Basel, Switzerland
- St. Clara Research Ltd, Basel, Switzerland
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Tancred T, Weeks AD, Mubangizi V, Nene Dei E, Natukunda S, Cobb C, Bates I, Asamoah‐Akuoko L, Natukunda B. Assessment of Structural and Process Readiness for Postpartum Haemorrhage Care in Uganda and Ghana: A Mixed Methods Study. BJOG 2025; 132:433-443. [PMID: 39300730 PMCID: PMC11794055 DOI: 10.1111/1471-0528.17953] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Grants] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 05/13/2024] [Revised: 08/14/2024] [Accepted: 08/27/2024] [Indexed: 09/22/2024]
Abstract
OBJECTIVE To determine structural and process readiness for postpartum haemorrhage (PPH) care at referral-level facilities in Ghana and Uganda to identify opportunities for strengthening. DESIGN Mixed-methods cross-sectional study. SETTING Three districts in Ghana and two in Uganda. POPULATION OR SAMPLE Nine hospitals in Ghana and seven in Uganda; all hospitals had theoretical capacity for caesarean section and blood transfusion. METHODS We deployed a modular quantitative health facility assessment to explore structural readiness (drugs, equipment, staff) complemented by in-depth interviews with maternity health service providers to understand process readiness (knowledge, attitudes, and practices as related to World Health Organization [WHO] guidance on PPH care). MAIN OUTCOME MEASURES Availability of essential structural components needed to support key PPH processes of care. RESULTS In both countries, there was generally good structural readiness for PPH care. However, key common gaps included inadequate staffing (especially specialist physicians), and unavailability of blood for transfusion. Interviews highlighted particularly good process readiness in the provision of uterotonics, recognising and responding to retained placenta, and repairing tears. However, there were clear gaps in the utilisation of tranexamic acid and uterine balloon tamponade. CONCLUSIONS We have identified good structural and process readiness across both Ghanaian and Ugandan health facilities to support PPH responses. However, some key missed opportunities-to align with current WHO guidance on providing bundles of interventions for PPH care-could be strengthened with minimal investment but promising impact.
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Affiliation(s)
- Tara Tancred
- Department of International Public HealthLiverpool School of Tropical MedicineLiverpoolUK
| | - Andrew D. Weeks
- Department of Women's and Children's HealthUniversity of LiverpoolLiverpoolUK
| | - Vincent Mubangizi
- Department of Family Medicine and Community PracticeMbarara University of Science and TechnologyMbararaUganda
| | - Emmanuel Nene Dei
- Research, Planning, Monitoring and Evaluation DepartmentNational Blood Service GhanaAccraGhana
| | - Sylvia Natukunda
- Community Health DepartmentMbarara University of Science and TechnologyMbararaUganda
| | - Chloe Cobb
- Department of International Public HealthLiverpool School of Tropical MedicineLiverpoolUK
| | - Imelda Bates
- Department of International Public HealthLiverpool School of Tropical MedicineLiverpoolUK
| | - Lucy Asamoah‐Akuoko
- Research, Planning, Monitoring and Evaluation DepartmentNational Blood Service GhanaAccraGhana
| | - Bernard Natukunda
- Department of Medical Laboratory ScienceMbarara University of Science and TechnologyMbararaUganda
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Bachiller-Barquín A, Martín-Martín J, Vázquez-Calatayud M. Implementing the Clinical Nurse Specialist Role in Hospital Settings: A Scoping Review. CLIN NURSE SPEC 2025; 39:65-81. [PMID: 39969808 DOI: 10.1097/nur.0000000000000884] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 02/20/2025]
Abstract
PURPOSE/AIMS To understand, based on the literature, how to implement the role of a clinical nurse specialist (CNS) in the hospital setting. DESIGN A scoping review was conducted following the methodological framework of Arksey and O'Malley and the Joanna Briggs Institute. METHOD The search was conducted during March and April 2023 and was updated in November 2023. Electronic searches were conducted in the following major databases: PubMed, CINAHL, Web of Science, Scopus, PsycINFO, and Cochrane Library. Additionally, a "snowballing" strategy was used. A critical reading was conducted using the Joanna Briggs Institute methodological quality criteria. The Preferred Reporting Items for Systematic reviews and Meta-Analyses extension for the Scoping Review guidelines were used. RESULTS Eleven relevant studies were included in this review. The primary results are presented in 4 sections related to the framework, process, components, and evaluation of the implementation of the CNS role. The findings of the reviewed studies suggest that the implementation process of the CNS is cyclical, variable, context-dependent, and multifactorial and can be assessed using the indicators of structure, process, and outcome. CONCLUSIONS This scoping review provides relevant information to support the design of implementation and evaluation strategies for the role of the CNS in the hospital context. Based on the findings of the reviewed studies, a comprehensive strategy is suggested for implementing the role of the CNS in a hospital setting.
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Affiliation(s)
- Alejandra Bachiller-Barquín
- Author Affiliations: Manager of the Gynecologic Cancer Area of the Cancer Center (Ms Bachiller-Barquín) and Corporate Director of Professional Development & Nursing Research (Dr Vázquez-Calatayud), Clínica Universidad de Navarra; Associate Professor Navarra (Dr Martín-Martín), Faculty of Nursing, University of Navarra; Researchers (Drs Martín-Martín and Vázquez-Calatayud), Innovation for a Person-Centred Care Research Group (ICCP-UNAV), Universidad de Navarra; and Researchers (Drs Martín-Martín and Vázquez-Calatayud), IdisNA, Navarra Institute for Health Research, Pamplona, Spain
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Braybrooke A, Baraks K, Burgess R, Banerjee A, Hill JC. Quality Indicators for the Primary and Community Care of Musculoskeletal Conditions: A Systematic Review. Arch Phys Med Rehabil 2025; 106:459-472. [PMID: 39369932 DOI: 10.1016/j.apmr.2024.08.022] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 02/16/2024] [Revised: 08/23/2024] [Accepted: 08/27/2024] [Indexed: 10/08/2024]
Abstract
OBJECTIVES To identify, appraise, and synthesize common themes from quality indicator (QI) sets designed for the assessment, management, and rehabilitation of musculoskeletal (MSK) conditions in primary and community care contexts. DATA SOURCES A systematic search was performed on six databases (MEDLINE, EMBASE, AMED, Web of Sciences Core Collection, The Cochrane Library, and The Health Management Information Consortium), public repositories, and the websites of organizations involved in the reporting of MSK QIs. STUDY SELECTION Potential QI sources were screened for relevance using an a priori criteria. After the screening of 1493 titles, abstracts, 71 articles were reviewed independently by two authors, of which 25 met our criteria and were therefore included within the review. DATA EXTRACTION The development of the QI sets was appraised using the AIRE instrument. Key characteristics of QI sets were extracted and tabulated. Nine out of 25 QI sets had "high" developmental methodology quality. A total of 410 QIs were identified from 25 QI sets. DATA SYNTHESIS A narrative synthesis was undertaken to identify common themes among QIs. Themes were mapped against improvement drivers mentioned in recent British primary/community MSK care policy directives. Finally, "Draft Indicators" were synthesized from common themes identified. Eleven overarching themes were synthesized: policy and governance; optimizing access and provision of care; staffing and spending; optimizing assessment and diagnosis; optimizing patient education and self-management; pharmacology and injection guideline adherence; optimizing personalized care; optimizing imaging, investigations, and referral; public health management relevant to MSK conditions; optimizing patient experience; and optimizing patient outcomes. CONCLUSIONS This review has identified common themes among QIs that focus on optimizing assessment, investigations, and treatment decisions for the primary/community care of MSK conditions. This work represents a valuable resource to commissioners, service managers, and clinicians internationally who resource, monitor, manage, assess, and rehabilitate individuals with MSK conditions.
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Affiliation(s)
- Alexander Braybrooke
- School of Allied Health Professionals and Pharmacy, Keele University, Keele, Newcastle Under Lyme, UK.
| | - Karl Baraks
- School of Allied Health Professionals and Pharmacy, Keele University, Keele, Newcastle Under Lyme, UK; Sandwell and West Birmingham NHS Trust, Lyndon, West Bromwich, UK
| | - Roanna Burgess
- School of Allied Health Professionals and Pharmacy, Keele University, Keele, Newcastle Under Lyme, UK; Sandwell and West Birmingham NHS Trust, Lyndon, West Bromwich, UK
| | - Anirban Banerjee
- School of Allied Health Professionals and Pharmacy, Keele University, Keele, Newcastle Under Lyme, UK
| | - Jonathan Charles Hill
- School of Allied Health Professionals and Pharmacy, Keele University, Keele, Newcastle Under Lyme, UK
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Howard-Ruben J, Hinch B, Livesay S. The value of comprehensive evaluation DNP projects. J Prof Nurs 2025; 57:133-138. [PMID: 40074376 DOI: 10.1016/j.profnurs.2025.01.007] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 05/29/2024] [Revised: 01/21/2025] [Accepted: 01/23/2025] [Indexed: 03/14/2025]
Abstract
Inconsistencies in DNP project identification and scope, and the demands of the DNP project on faculty remain a source of ongoing challenges and discussion in DNP education. Additionally, the demands on organizational resources generated by student DNP projects strain the already stressed post-pandemic healthcare system. At the same time, the need for more student project sites is growing along with the increasing number of DNP programs. Engaging students to conduct comprehensive evaluations as a DNP project option is a strategy to meet this demand for projects that also offers significant benefits for organizational partners. However, few articles highlight the role of a comprehensive evaluation as a DNP Project. This article discusses the value of comprehensive evaluation projects using an evaluation framework or model and appropriate methodologies to meet the criteria for DNP projects. We share outcome data and exemplars of successful evaluation projects in several settings.
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Affiliation(s)
- Josephine Howard-Ruben
- Rush University, College of Nursing, 600 South Paulina, Suite 1080 AAC, Chicago, IL 60612, United States of America
| | - Barbara Hinch
- Rush University, College of Nursing, 600 South Paulina, Suite 1080 AAC, Chicago, IL 60612, United States of America.
| | - Sarah Livesay
- Rush University, College of Nursing, 600 South Paulina, Suite 1080 AAC, Chicago, IL 60612, United States of America
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Bordvik DH, Prior Y, Bamford R, Berenbaum F, Björk M, Blanck T, Christensen BS, Dziedzic K, Edwards J, Gilanliogullari N, Graham C, Haugen IK, Kloppenburg M, Laheij H, Ritt MJ, Stamm T, Tveter AT, Østerås N, Kjeken I. Development of quality indicators for hand osteoarthritis care - Results from an European consensus study. OSTEOARTHRITIS AND CARTILAGE OPEN 2025; 7:100578. [PMID: 39995586 PMCID: PMC11849605 DOI: 10.1016/j.ocarto.2025.100578] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Figures] [Journal Information] [Subscribe] [Scholar Register] [Received: 01/28/2025] [Accepted: 01/31/2025] [Indexed: 02/26/2025] Open
Abstract
Background People with hand osteoarthritis (OA) often have poor access to recommended treatments. To enhance care quality, quality indicators (QIs) based on clinical recommendations are essential. Current QI sets, like the Osteoarthritis Quality Indicator Questionnaire (OA-QI v.2), primarily address hip- and knee OA, and not hand OA. Objectives To adapt the OA-QI v.2 for assessing patient-reported quality of hand OA care. Design We used the OA-QI v.2. set as a starting point and adapted it to reflect hand OA care. A literature search was performed to identify potential QIs for hand OA following the Rand/UCLA Appropriateness method. A European expert panel, comprising researchers, clinicians, and patient research partners, participated in online meetings to discuss adaptation and suggest new QIs based on treatment recommendations for hand OA, and anonymously rated each suggested QI regarding its importance, validity, usefulness, and feasibility. Consensus was defined by predefined rating cut-off scores. The adapted questionnaire was translated from English into Norwegian. Cognitive debriefing interviews with Norwegian and UK hand OA patients were conducted to ensure clarity. Results Our initial literature search provided 1670 articles, with none describing relevant QIs. After three voting rounds, sixteen QI items reached consensus, reflecting current hand OA care standards. Items were generally well understood, requiring only minor clarity amendments after patient interviews (N = 28). Conclusion The OA-QI v.2 was successfully adapted into a 16-item Hand OA-QI set ensuring alignment with international care standards for hand OA through literature review, international expert panels and patient feedback on language and layout.
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Affiliation(s)
- Daniel H. Bordvik
- Center for Treatment of Rheumatic and Musculoskeletal Diseases (REMEDY), Diakonhjemmet Hospital, Oslo, Norway
- Rehabilitation West A/S, Haugesund, Norway
| | - Yeliz Prior
- Centre for Human Movement and Rehabilitation, School of Health and Society, University of Salford, Salford, UK
| | | | - Francis Berenbaum
- Department of Rheumatology, Sorbonne University, INSERM, APHP Saint-Antoine Hospitalier, France
| | - Mathilda Björk
- Pain and Rehabilitation Centre, Department of Health, Medicine and Caring Sciences, Unit of Occupational Therapy, Linköping University, Linköping, Sweden
| | - Thalita Blanck
- Center for Treatment of Rheumatic and Musculoskeletal Diseases (REMEDY), Diakonhjemmet Hospital, Oslo, Norway
| | | | - Krysia Dziedzic
- Impact Accelerator Unit, School of Medicine, Keele University, UK
| | - John Edwards
- Impact Accelerator Unit, School of Medicine, Keele University, UK
| | - Nazemin Gilanliogullari
- Centre for Human Movement and Rehabilitation, School of Health and Society, University of Salford, Salford, UK
- European University of Lefke, Faculty of Health Sciences, Department of Physiotherapy and Rehabilitation, Lefke, Northern Cyprus, TR-10 Mersin, Turkey
| | - Carol Graham
- Rheumatology Occupational Therapy Service, Haywood Hospital, Midlands Partnership University NHS Foundation Trust, Stoke-on-Trent, Staffordshire, UK
| | - Ida K. Haugen
- Center for Treatment of Rheumatic and Musculoskeletal Diseases (REMEDY), Diakonhjemmet Hospital, Oslo, Norway
| | - Margreet Kloppenburg
- Department of Rheumatology and Clinical Epidemiology, Leiden University Medical Center, Leiden, the Netherlands
| | - Hellen Laheij
- Leiden University Medical Center, Leiden, the Netherlands
| | - Marco J.P.F. Ritt
- Department of Plastic, Reconstructive and Hand Surgery, Amsterdam UMC, the Netherlands
| | - Tanja Stamm
- Institute for Outcomes Research, Center for Medical Data Science, Medical University of Vienna, Ludwig Boltzmann Institute for Arthritis and Rehabilitation, Vienna, Austria
| | - Anne Therese Tveter
- Center for Treatment of Rheumatic and Musculoskeletal Diseases (REMEDY), Diakonhjemmet Hospital, Oslo, Norway
- Institute of Rehabilitation Science and Health Technology, Oslo Metropolitan University, Oslo, Norway
| | - Nina Østerås
- Center for Treatment of Rheumatic and Musculoskeletal Diseases (REMEDY), Diakonhjemmet Hospital, Oslo, Norway
| | - Ingvild Kjeken
- Center for Treatment of Rheumatic and Musculoskeletal Diseases (REMEDY), Diakonhjemmet Hospital, Oslo, Norway
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Torun Kılıç Ç, Özsaban A, Bayram A, Altuntaş E. Rationing of nursing care in a developing country: A cross-sectional study. Int Nurs Rev 2025; 72:e13088. [PMID: 39810325 PMCID: PMC11799710 DOI: 10.1111/inr.13088] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 05/14/2024] [Accepted: 11/28/2024] [Indexed: 01/16/2025]
Abstract
AIM This study aimed to determine the effect of nurses' work environment, individual and work schedule features on the rationing of nursing care. INTRODUCTION Rationing of nursing care is a concern in healthcare settings worldwide, as it is associated with negative outcomes for both patients and nursing staff. BACKGROUND Little is known about the precursors of rationing of nursing care in developing countries. METHODS This descriptive, correlational and cross-sectional study was conducted with 405 nurses in Türkiye. Data were collected Nurse Information Form, Basel Extent of Rationing of Nursing Care-R and Nursing Work Index-The Practice Work Environment Scale. The study was reported following the STROBE and RANCARE guideline. RESULTS Nurses' mean rationing of nursing care score was 1.58 ± 0.59, and the mean work environment perception score was 2.58 ± 0.47, with no statistically significant relationship between the scale scores. However, working ward, working hours and working schedule significantly affected the total rationing of nursing care scores. DISCUSSION In this study, contrary to the literature, no relationship was found between the rationing of nursing care and the perception of the work environment. Supporting the literature, nurses' individual/work schedule features affected the rationing of nursing care. CONCLUSION Improving nurses' work schedule features and nurse staffing may help reduce the rationing of nursing care. IMPLICATIONS FOR NURSING AND HEALTH POLICY This study emphasised the importance of nurses' work schedule features and nurse staffing in the rationing of nursing care. The data from this study can guide nurse managers in identifying factors related to work schedules that may affect the rationing of nursing care and strategies to follow to make the necessary improvements.
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Affiliation(s)
- Çiğdem Torun Kılıç
- Department of Nursing ManagementFaculty of Health SciencesKaradeniz Technical UniversityTrabzonTürkiye
| | - Aysel Özsaban
- Fundamentals of Nursing DepartmentFaculty of Health SciencesKaradeniz Technical UniversityTrabzonTürkiye
| | - Aysun Bayram
- Fundamentals of Nursing DepartmentFaculty of Health SciencesKaradeniz Technical UniversityTrabzonTürkiye
| | - Emel Altuntaş
- Emel ALTUNTAŞTrabzon Provincial Health DirectorateKanuni Education Research HospitalTrabzonTürkiye
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11
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Litwin P, Andrews J. Benchmarking in inflammatory bowel disease: lessons from Australia and New Zealand. J Can Assoc Gastroenterol 2025; 8:S21-S26. [PMID: 39990512 PMCID: PMC11842908 DOI: 10.1093/jcag/gwae046] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Download PDF] [Figures] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Indexed: 02/25/2025] Open
Abstract
Inflammatory bowel disease (IBD) is a complex chronic disease estimated to affect almost 1% of the Western population, where proactive care has largely replaced a reactive approach. Whilst there have also been great strides in new care models and therapies, care quality, and outcomes are poorly known, leaving us designing and delivering services without an effective feedback loop. Quality of care, guidelines, consensus statements, and standards will each be discussed, as a solid understanding of these concepts is essential. Assessing quality involves measuring the 3 core domains of structure, process, and outcomes. Benchmarking is an extension of quality assessment, which is recurrent or continuous and enables transparent, valid comparisons of quality between care sites. Assessment of QUALITY and BENCHMARKING are resource intensive unless processes are automated and use routinely collected data generated in the moments of care. Digital tools now provide realistic opportunities to make this affordable and sustainable, though concerns around privacy and security hamper solutions, whilst siloed data within institutions restrict comparative use. One novel solution to enable IBD benchmarking has been developed in Australia and New Zealand (ANZ). Crohn's Colitis Care (CCCare) is a cloud-based, IBD-specific EMR, now being used in routine care documentation at 22 sites across ANZ. De-identified data feed from CCCare's clinical module into a Clinical Quality Registry, in which audit, research, and benchmarking can be performed. The pathway from conception to implementation will be presented. Lessons learnt from the ANZ benchmarking journey will be discussed and suggestions for an effective global approach to IBD data will be proposed.
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Affiliation(s)
- Peter Litwin
- Department of Gastroenterology, Royal Adelaide Hospital, Adelaide, SA 5000, Australia
| | - Jane Andrews
- Department of Gastroenterology, Royal Adelaide Hospital, Adelaide, SA 5000, Australia
- School of Medicine, The University of Adelaide, Adelaide, SA 5000, Australia
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12
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Labrague LJ, Al Sabei S, AbuAlRub R, Burney I, Al Rawajfah O. The role of nurses' adherence to clinical safety guidelines in linking nurse practice environment to missed nursing care. J Nurs Scholarsh 2025; 57:354-362. [PMID: 39160684 DOI: 10.1111/jnu.13017] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Grants] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 06/23/2024] [Revised: 07/30/2024] [Accepted: 08/06/2024] [Indexed: 08/21/2024]
Abstract
INTRODUCTION While the nurse practice environment's vital role in shaping patient care outcomes is well established, the precise mechanisms through which it influences missed nursing care remain unexplored. Hence, this study examined the mediating role of adherence to clinical safety guidelines in the relationship between the nurse practice environment and missed nursing care. METHODS This descriptive, cross-sectional study involved 1237 nurses from 11 governorates in the Sultanate of Oman. Data were collected using three standardized scales: the Patient Safety Adherence Scale, the Practice Environment Scale of the Nursing Work Index, and the Missed Nursing Care Scale. RESULTS A favorable nurse practice environment was associated with higher adherence to clinical safety guidelines (β = 2.492, p < 0.001) and a lower frequency of missed nursing care (β = -0.2919, p = 0.015). Adherence to clinical safety guidelines partially mediated the relationship between the nurse practice environment and missed nursing care (β = -0.055, p < 0.001). CONCLUSION Enhancing the nurse practice environment plays a crucial role in improving nurses' adherence to clinical safety guidelines, which in turn reduces compromised nursing care. CLINICAL RELEVANCE Healthcare administrators and policymakers should prioritize improving working conditions to enhance nurses' adherence to clinical safety guidelines, thereby minimizing the occurrence of missed care and improving overall patient outcomes.
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Affiliation(s)
- Leodoro J Labrague
- School of Nursing and Healthcare Leadership, University of Washington Tacoma, Tacoma, Washington, USA
| | - Sulaiman Al Sabei
- Fundamentals and Administration Department, College of Nursing, Sultan Qaboos University, Seeb, Oman
| | - Raeda AbuAlRub
- College of Nursing, Community and Mental Health Department, Jordan University of Science and Technology, Irbid, Jordan
| | - Ikram Burney
- Department of Medicine, Sultan Qaboos University Hospital, Sultan Qaboos University, Muscat, Oman
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13
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Schnoor M, Heidenreich A, Jürgensen M, Döhnert U, Hiort O, Katalinic A. Satisfaction with health care among people with differences of sex development (DSD) in Germany. Endocr Connect 2025; 14:e240647. [PMID: 39913256 PMCID: PMC11883859 DOI: 10.1530/ec-24-0647] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Grants] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 11/28/2024] [Revised: 01/17/2025] [Accepted: 02/06/2025] [Indexed: 02/22/2025]
Abstract
Objective Individuals with a difference of sex development (DSD) face complex medical and psychosocial challenges, which can make it difficult to provide care tailored to their needs and in line with guidelines. The DSDCare project in Germany regularly evaluates the quality of care for people with DSD, focusing on patient satisfaction as a key indicator of care quality. Design Nationwide, longitudinal, multicentre observational study in Germany, including people with DSD. Methods Since May 2021, ten specialised DSD centres have been recruiting individuals with DSD and collecting patient-related medical data in a registry. Participants and legal guardians, in the case of minors, complete a questionnaire about satisfaction with care using the Y/CHC-SUN questionnaire. Both medical and self-reported data were merged and analysed descriptively. Results Between May 2021 and December 2023, 141 adults and 232 parents completed the questionnaire. Of these, 81.9% of adults and 86.4% of parents reported being 'very' or 'extremely satisfied' with their healthcare. Satisfaction scores in the dimensions 'doctor's behaviour' and 'patient-centred care' were very high for both adults and parents, while the dimensions 'clinical environment', 'diagnosis/information' and 'coordination' were rated slightly lower. Some participants expressed unmet needs for DSD training, psychological counselling, contact with self-advocacy groups and, in the case of adults, nutritional counselling. Conclusion Individuals with DSD treated at specialised DSD centres in Germany report high satisfaction with their care. The next step is to ensure that all individuals with DSD have access to a specialised centre to where their care needs can be met. Significance statement Several international guidelines provide recommendations for the management of individuals with DSD. Previous studies examining the evolution of management practices in response to these guidelines have concluded that while some are being implemented, others are not, with notable regional variations. In addition, there is limited understanding of satisfaction with care from the perspective of adults and, in particular, from parents of children with DSD, which is a key indicator of quality of care. Consequently, our study focused on patient-related outcomes and experiences, as well as on identifying unmet needs to enhance the quality of care for individuals with DSD in Germany.
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Affiliation(s)
- Maike Schnoor
- Institute of Social Medicine and Epidemiology, University of Luebeck, Luebeck, Germany
| | - Andreas Heidenreich
- Institute of Social Medicine and Epidemiology, University of Luebeck, Luebeck, Germany
| | - Martina Jürgensen
- Division of Paediatric Endocrinology and Diabetes, Department of Paediatrics and Adolescent Medicine, University Hospital of Schleswig-Holstein and University of Luebeck, Luebeck, Germany
| | - Ulla Döhnert
- Division of Paediatric Endocrinology and Diabetes, Department of Paediatrics and Adolescent Medicine, University Hospital of Schleswig-Holstein and University of Luebeck, Luebeck, Germany
| | - Olaf Hiort
- Division of Paediatric Endocrinology and Diabetes, Department of Paediatrics and Adolescent Medicine, University Hospital of Schleswig-Holstein and University of Luebeck, Luebeck, Germany
| | - Alexander Katalinic
- Institute of Social Medicine and Epidemiology, University of Luebeck, Luebeck, Germany
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Hampton O, Xyrichis A. Love, Shout, Bribe: towards a theory of change for delivering interprofessional workforce transformation. J Interprof Care 2025; 39:141-145. [PMID: 40105373 DOI: 10.1080/13561820.2025.2476270] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 03/20/2025]
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15
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Dodkins J, Zachou G, Rashid A, van der Meulen J, Nossiter J, Tree A, Aggarwal A. Improving performance in radiation oncology: An international systematic review of quality improvement interventions. Radiother Oncol 2025; 206:110798. [PMID: 39986541 DOI: 10.1016/j.radonc.2025.110798] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 01/10/2025] [Revised: 02/06/2025] [Accepted: 02/07/2025] [Indexed: 02/24/2025]
Abstract
National cancer audits and registers have highlighted significant national and international variation in patient care and outcomes. Quality Improvement (QI) is mandated in radiation oncology but the interventions designed to support QI in this field remain poorly understood. This paper seeks to assess the types of QI interventions in radiation oncology, the QI evaluation design and their impact on process of care measures and patient-related outcomes. MEDLINE and EMBASE were searched systematically for studies of QI interventions in radiation oncology between 2000 and 2024. The studies needed to identify the quantitative or qualitative impact of the QI intervention on process of care measures or patient-related outcomes. Study results were summarised using narrative synthesis and appraised using the Quality Improvement Minimum Quality Criteria Set (QI-MQCS). 26 papers were included in the analysis. The majority of studies were conducted in the USA (n = 13) and in Europe (n = 7), with only two studies conducted at a national level. Ten studies covered all tumour types, with six specifically focusing on head and neck cancers, two each on prostate and nasopharyngeal cancers, and one study each examining lung, cervical, rectal, and breast cancers. The aspects of care evaluated most frequently were those relating to reducing waiting times or increasing utilisation of radiotherapy as per guidelines (n = 15), followed by those seeking to reduce radiotherapy contouring variability (n = 5) and those involving the management of symptoms during or after radiotherapy treatment (n = 6). Only 42 % of studies reported funding, with the most frequent funding source being national, government or federal (n = 6). All QI interventions across the 26 studies were successful as they resulted in an improvement in a process or patient-related outcome measure. The studies scored between 10 and 15 out of 16, according to the QI-MQCS criteria. Despite substantial investments in cancer research and development, there is a scarcity of information on how to enhance the quality of care in radiation oncology. While there are examples of national cancer audits and registers in a number of countries, much of the research in QI interventions is being conducted in the USA. This situation underscores the need for more comprehensive, well-funded studies and improved training for clinicians to conduct high-quality improvement activities and research. There should be a greater emphasis on the substantial gains that can be achieved by improving existing care in terms of access and outcomes, rather than solely focusing on innovation.
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Affiliation(s)
- Joanna Dodkins
- National Cancer Audit Collaborating Centre, Clinical Effectiveness Unit, Royal College of Surgeons of England, London, UK; Department of Health Services Research & Policy, London School of Hygiene & Tropical Medicine, London UK.
| | - Georgia Zachou
- National Cancer Audit Collaborating Centre, Clinical Effectiveness Unit, Royal College of Surgeons of England, London, UK; Department of Health Services Research & Policy, London School of Hygiene & Tropical Medicine, London UK
| | - Adil Rashid
- National Cancer Audit Collaborating Centre, Clinical Effectiveness Unit, Royal College of Surgeons of England, London, UK; Department of Health Services Research & Policy, London School of Hygiene & Tropical Medicine, London UK
| | - Jan van der Meulen
- National Cancer Audit Collaborating Centre, Clinical Effectiveness Unit, Royal College of Surgeons of England, London, UK; Department of Health Services Research & Policy, London School of Hygiene & Tropical Medicine, London UK
| | - Julie Nossiter
- National Cancer Audit Collaborating Centre, Clinical Effectiveness Unit, Royal College of Surgeons of England, London, UK; Department of Health Services Research & Policy, London School of Hygiene & Tropical Medicine, London UK
| | - Alison Tree
- The Royal Marsden NHS Foundation Trust and the Institute of Cancer Research, London, UK
| | - Ajay Aggarwal
- National Cancer Audit Collaborating Centre, Clinical Effectiveness Unit, Royal College of Surgeons of England, London, UK; Department of Health Services Research & Policy, London School of Hygiene & Tropical Medicine, London UK; Guy's Cancer Centre, Guy's and St Thomas' NHS Foundation Trust, London, UK
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Hesselink G, Verhage R, Westerhof B, Verweij E, Fuchs M, Janssen I, van der Meer C, van der Horst ICC, de Jong P, van der Hoeven JG, Zegers M. Reducing administrative burden by implementing a core set of quality indicators in the ICU: a multicentre longitudinal intervention study. BMJ Qual Saf 2025; 34:157-165. [PMID: 39214680 DOI: 10.1136/bmjqs-2024-017481] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 04/25/2024] [Accepted: 08/15/2024] [Indexed: 09/04/2024]
Abstract
BACKGROUND The number of quality indicators for which clinicians need to record data is increasing. For many indicators, there are concerns about their efficacy. This study aimed to determine whether working with only a consensus-based core set of quality indicators in the intensive care unit (ICU) reduces the time spent on documenting performance data and administrative burden of ICU professionals, and if this is associated with more joy in work without impacting the quality of ICU care. METHODS Between May 2021 and June 2023, ICU clinicians of seven hospitals in the Netherlands were instructed to only document data for a core set of quality indicators. Time spent on documentation, administrative burden and joy in work were collected at three time points with validated questionnaires. Longitudinal data on standardised mortality rates (SMR) and ICU readmission rates were gathered from the Dutch National Intensive Care registry. Longitudinal effects and differences in outcomes between ICUs and between nurses and physicians were statistically tested. RESULTS A total of 390 (60%), 291 (47%) and 236 (40%) questionnaires returned at T0, T1 and T2. At T2, the overall median time spent on documentation per day was halved by 30 min (p<0.01) and respondents reported fewer unnecessary and unreasonable administrative tasks (p<0.01). Almost one-third still experienced unnecessary administrative tasks. No significant changes over time were found in joy in work, SMR and ICU readmission. CONCLUSIONS Implementing a core set of quality indicators reduces the time ICU clinicians spend on documentation and administrative burden without negatively affecting SMR or ICU readmission rates. Time savings can be invested in patient care and improving joy in work in the ICU.
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Affiliation(s)
- Gijs Hesselink
- Intensive Care, Radboud University Medical Center, Nijmegen, The Netherlands
| | - Rutger Verhage
- Intensive Care, Radboud University Medical Center, Nijmegen, The Netherlands
| | | | - Eva Verweij
- Intensive Care, Bernhoven Hospital, Uden, The Netherlands
| | - Malaika Fuchs
- Intensive Care, Canisius Wilhelmina Hospital, Nijmegen, The Netherlands
| | - Inge Janssen
- Intensive Care, Maas Hospital Pantein, Boxmeer, The Netherlands
| | | | - Iwan C C van der Horst
- Intensive Care, Maastricht University Medical Center+, Maastricht, The Netherlands
- Cardiovascular Research Institute Maastricht (CARIM), Maastricht University, Maastricht, The Netherlands
| | - Paul de Jong
- Intensive Care, Slingeland Hospital, Doetinchem, The Netherlands
| | | | - Marieke Zegers
- Intensive Care, Radboud University Medical Center, Nijmegen, The Netherlands
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Casillas-Ávila MP, Chavez-Maisterra I, Gómez-Díaz B, Orellana Villazon VI, Escobar-Cedillo RE, Luna-Angulo AB, Zamora González EO, Vázquez-Cárdenas NA, Escotto-Ramírez M, Martínez-Gómez G, López-Hernández LB. Perceptions of Healthcare Quality in Duchenne Muscular Dystrophy: A Patient Experience Exploratory Study. Healthcare (Basel) 2025; 13:412. [PMID: 39997287 PMCID: PMC11855789 DOI: 10.3390/healthcare13040412] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 12/13/2024] [Revised: 02/07/2025] [Accepted: 02/08/2025] [Indexed: 02/26/2025] Open
Abstract
BACKGROUND Duchenne muscular dystrophy (DMD) is a genetic disorder characterized by progressive muscle weakness, a decline in quality of life, and premature mortality. This study aims to evaluate the perceived quality of healthcare and the experience of DMD patients and their caregivers in Mexico, comparing governmental and non-profit healthcare institutions using a newly designed assessment instrument. METHODS In a cross-sectional study, data were gathered from 91 participants through an online self-administered questionnaire informed by the Donabedian model and six dimensions of healthcare quality. RESULTS Analysis revealed two key mediating factors: perceived quality of healthcare and patient experience. The Mann-Whitney U test showed that non-profit organizations were perceived to provide superior quality care in both aspects (p < 0.05), notably regarding healthcare professionals' preparedness and other domains of quality. However, the patient-centered care domain indicated that the importance of quality domains may vary according to cultural and social contexts. In Mexico, the humanistic approach of healthcare professionals appeared to compensate for shortcomings in timely diagnosis and other quality domains. This emphasizes the necessity for enhanced patient education and healthcare evaluation, and it highlights that patient satisfaction does not always correlate with high-quality healthcare. The developed instrument can further aid in understanding the experiences of DMD patients across different countries and cultures.
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Affiliation(s)
| | - Ileana Chavez-Maisterra
- Departamento Académico de Ciclo de Vida, Universidad Autónoma de Guadalajara, Av Patria 1201, Zapopan 45129, Mexico; (I.C.-M.); (N.A.V.-C.); (M.E.-R.); (G.M.-G.)
| | - Benjamín Gómez-Díaz
- Instituto Nacional de Rehabilitación Luis Guillermo Ibarra Ibarra, México City 14389, Mexico; (B.G.-D.); (R.E.E.-C.); (A.B.L.-A.)
| | - Vanessa Ivonne Orellana Villazon
- James M. Anderson Center for Health Systems Excellence, Cincinnati Children’s Hospital Medical Center, Cincinnati, OH 45229, USA;
| | - Rosa Elena Escobar-Cedillo
- Instituto Nacional de Rehabilitación Luis Guillermo Ibarra Ibarra, México City 14389, Mexico; (B.G.-D.); (R.E.E.-C.); (A.B.L.-A.)
| | - Alexandra Berenice Luna-Angulo
- Instituto Nacional de Rehabilitación Luis Guillermo Ibarra Ibarra, México City 14389, Mexico; (B.G.-D.); (R.E.E.-C.); (A.B.L.-A.)
| | - Edgar Oswaldo Zamora González
- Hospital Civil “Dr. Antonio González Guevara”, Tepic 63169, Mexico (E.O.Z.G.)
- Departamento de Bienestar y Desarrollo Sustentable, Centro Universitario del Norte de la Universidad, Guadalajara 44214, Mexico
| | - Norma Alejandra Vázquez-Cárdenas
- Departamento Académico de Ciclo de Vida, Universidad Autónoma de Guadalajara, Av Patria 1201, Zapopan 45129, Mexico; (I.C.-M.); (N.A.V.-C.); (M.E.-R.); (G.M.-G.)
| | - Marlen Escotto-Ramírez
- Departamento Académico de Ciclo de Vida, Universidad Autónoma de Guadalajara, Av Patria 1201, Zapopan 45129, Mexico; (I.C.-M.); (N.A.V.-C.); (M.E.-R.); (G.M.-G.)
| | - Georgina Martínez-Gómez
- Departamento Académico de Ciclo de Vida, Universidad Autónoma de Guadalajara, Av Patria 1201, Zapopan 45129, Mexico; (I.C.-M.); (N.A.V.-C.); (M.E.-R.); (G.M.-G.)
| | - Luz Berenice López-Hernández
- Departamento Académico de Ciclo de Vida, Universidad Autónoma de Guadalajara, Av Patria 1201, Zapopan 45129, Mexico; (I.C.-M.); (N.A.V.-C.); (M.E.-R.); (G.M.-G.)
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Kakisingi CN, Mwelwa GC, Matanda SK, Manika MM, Kapya HK, Kabamba MN, Muyumba EK, Mwamba CM, Situakibanza HNT, Tanon A. Service availability and readiness of tuberculosis units' clinics to manage diabetes mellitus in Lubumbashi, Democratic Republic of the Congo. BMC Health Serv Res 2025; 25:233. [PMID: 39934811 DOI: 10.1186/s12913-025-12368-7] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 06/27/2024] [Accepted: 02/03/2025] [Indexed: 02/13/2025] Open
Abstract
INTRODUCTION In low-income countries such as the Democratic Republic of the Congo (DRC), the strategies implemented to combat tuberculosis (TB) are threatened by the emergence of non-communicable diseases (NCDs), such as diabetes mellitus (DM). Very little data on the implementation of services to manage TB-DM are generally available in these low-income countries. The aim of this study was therefore to assess the level of implementation of DM screening and treatment activities in TB unit clinics (TUCs) in Lubumbashi, DRC. METHODS A cross-sectional study was conducted using the Service Availability and Readiness Assessment (SARA) questionnaire from June to July 2023. Fourteen tracer items, divided into 4 domains-i) guidelines and staff, ii) basic equipment, iii) diagnostic capacity, and iv) drugs and products-were assessed. The readiness indices were compared according to the managerial instance and the activity package organized in each of the selected TUCs. A Chi2 test with a significance level set at p = 0.05 was used for this comparison, and Cronbach's α coefficient was calculated to estimate the reliability or consistency of the questionnaire. RESULTS Of the 35 TUCs visited, 19 (54.3%) were public health facilities, and 20 (57.1%) had a supplementary package of activities (SPA). The readiness of TUCs for providing DM diagnostic and treatment services was around 50%. A statistically significant difference was observed based on the managerial instance overseeing the TUC (p = 0.00) and the package of activities offered within these institutions (p = 0.00). CONCLUSION The current study has underscored the limited capability of TUCs in Lubumbashi to provide services for managing TB-DM comorbidity in DRC. It is imperative to implement strategies aimed at enhancing this capacity and taking into account the local context and influencing factors.
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Affiliation(s)
| | - Gift Cilubula Mwelwa
- National Tuberculosis Control Program, Lubumbashi, Democratic Republic of the Congo
| | | | | | | | | | | | | | | | - Aristophane Tanon
- University of Félix Houphouët-Boigny of Abidjan Cocody, Abidjan, Ivory Coast
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Zhang D, Tang KS, Lau P. Experiences and reflections of doctors on the operations of designated clinics during the COVID-19 pandemic in Hong Kong: a qualitative study. BMC Health Serv Res 2025; 25:229. [PMID: 39934825 DOI: 10.1186/s12913-025-12390-9] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 11/03/2024] [Accepted: 02/06/2025] [Indexed: 02/13/2025] Open
Abstract
BACKGROUND The conversion of General Out-patient Clinics (GOPC) into COVID-19 designated clinics played a crucial role in combating COVID-19 pandemic in Hong Kong in 2022. This qualitative research aimed to contribute valuable perspectives from doctors on the operations of designated clinics for the preparedness of future outbreaks and health emergencies. METHODS This research adopted an interpretive phenomenological approach. Participants were purposively recruited from the doctors who worked in designated clinics during the COVID-19 pandemic in the Cluster of New Territories West, Hong Kong. Individual semi-structured interviews were conducted using an interview guide informed by the researchers' past experiences and the Donabedian framework. The verbatim transcripts were imported into NVivo 12 for data organizing, coding and thematic analysis. RESULTS Sixteen participants were recruited and interviewed until data sufficiency. Eight themes were elicited and grouped under the three domains of the Donabedian framework: structure (availability of facilities, supportive training and education, and flexible manpower allocation), process (challenges in clinical practices, communication and collaboration, and effectiveness of operations), and outcome (patient outcomes and impact to healthcare workers). CONCLUSIONS Overall, participants thought that the operations in the designated clinics were smooth, efficient, and achieving satisfactory outcomes. However, improvements could be made in upgrading facilities to better manage more severe future outbreaks, enhancing government roles in information centralization and public communication and improving collaboration between designated clinics and ambulance services. This research provided valuable insights for the preparedness of future outbreaks and health emergencies.
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Affiliation(s)
- Dingzuan Zhang
- Department of Family Medicine & Primary Health Care, Tuen Mun Hospital, New Territory West Cluster, Hong Kong SAR, P.R. China.
| | - Kin Sze Tang
- Department of Family Medicine & Primary Health Care, Tuen Mun Hospital, New Territory West Cluster, Hong Kong SAR, P.R. China
| | - Phyllis Lau
- School of Medicine, Western Sydney University, Sydney, Australia
- Department of General Practice and Primary Care, The University of Melbourne, Melbourne, Australia
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Wang Z, Chang W, Luo A. A medical insurance fund operation performance evaluation system under the DRG payment mode reform. Front Public Health 2025; 13:1549575. [PMID: 39995626 PMCID: PMC11848853 DOI: 10.3389/fpubh.2025.1549575] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Figures] [Journal Information] [Subscribe] [Scholar Register] [Received: 12/21/2024] [Accepted: 01/24/2025] [Indexed: 02/26/2025] Open
Abstract
Background An evaluation system for comprehensively measuring medical insurance fund operational performance under China's Diagnosis Related Groups (DRG) payment reform holds critical theoretical and practical significance, especially for enhancing the efficiency of medical insurance fund utilization and the quality of healthcare services. However, few studies undertake performance evaluations of medical insurance funds under DRG payments, especially those incorporating the Analytic Hierarchy Process (AHP)-Entropy Weight Method (EWM)- Fuzzy Comprehensive Evaluation (FCE) method model. Methods This study utilizes operational data from medical insurance funds across eight cities in S Province, China, from 2020 to 2022. It develops an innovative performance evaluation system for medical insurance funds utilizing the AHP-EWM-FCE evaluation method. Finally, it explores the key influencing factors by applying the Tobit regression model. Results As the reform of DRG payment methods has advanced, the operational performance scores related to the management, fundraising, utilization, and satisfaction of DRG medical insurance funds have consistently improved. Notably, the comprehensive indexes of QD and JN cities exhibit significant comparative advantages, resulting in higher performance evaluation scores for their medical insurance funds. Additionally, the performance scores assessed by the proposed evaluation system align closely with actual operational outcomes. Regression analysis further indicates that medical service capability is the key determinant influencing the operational performance of medical insurance funds. Conclusion This study develops a novel evaluation system for measuring medical insurance funds' operational performance. The insights can help proactively foster the high-quality development of these funds, and modernization of the medical insurance governance system and governance capabilities; stimulate the fund's productivity; and enhance the health and wellbeing of people.
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Affiliation(s)
- Zijian Wang
- The Second Xiangya Hospital of Central South University, Changsha, China
- School of Public Administration, Central South University, Changsha, China
- Key Laboratory of Medical Information Research (Central South University), College of Hunan Province, Changsha, China
| | - Weifu Chang
- Key Laboratory of Medical Information Research (Central South University), College of Hunan Province, Changsha, China
- The Third Xiangya Hospital of Central South University, Changsha, China
| | - Aijing Luo
- The Second Xiangya Hospital of Central South University, Changsha, China
- Key Laboratory of Medical Information Research (Central South University), College of Hunan Province, Changsha, China
- Clinical Research Center For Cardiovascular Intelligent Healthcare in Hunan Province, Changsha, China
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21
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Van Poel E, Vanden Bussche P, Collins C, Lagaert S, Ares-Blanco S, Astier-Pena MP, Gabrani J, Gomez Bravo R, Hoffmann K, Klemenc-Ketis Z, Mallen C, Neves AL, Ožvačić Z, Tkachenko V, Zwart D, Willems S. Patient safety in general practice during COVID-19: a descriptive analysis in 38 countries (PRICOV-19). Fam Pract 2025; 42:cmae059. [PMID: 39475357 DOI: 10.1093/fampra/cmae059] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Grants] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Indexed: 02/11/2025] Open
Abstract
BACKGROUND This article aims to examine patient safety in general practice during COVID-19. METHODS In total, 5489 GP practices from 37 European countries and Israel filled in the online self-reported PRICOV-19 survey between November 2020 and December 2021. The outcome measures include 30 patient safety indicators on structure, process, and outcome. RESULTS The data showed that structural problems often impeded patient safety during COVID-19, as 58.6% of practices (3209/5479) reported limitations related to their building or infrastructure. Nevertheless, GP practices rapidly changed their processes, including the appointment systems. Implementation proved challenging as, although 76.1% of practices (3751/4932) developed a protocol to answer calls from potential COVID patients, only 34.4% (1252/3643) always used it. The proportion of practices reported having sufficient protected time in general practitioners' schedules to review guidelines remained consistent when comparing the pre-COVID (34.2%,1647/4813) with the COVID period (33.2%,1600/4813). Overall, 42.8% of practices (1966/4590) always informed home care services when patients were diagnosed with COVID-19, while this decreased to 30.1% for other major infectious diseases (1341/4458). Most practices reported at least one incident of delayed care in patients with an urgent condition, most often because the patient did not come to the practice sooner (60.4%, 2561/4237). Moreover, 31.1% of practices (1349/4199) always organized a team discussion when incidents happened. Overall, large variations were found across countries and patient safety indicators. CONCLUSIONS The results demonstrated that European GP practices adopted numerous measures to deliver safe care during COVID-19. However, multilayered interventions are needed to improve infection control and GP practice accessibility in future pandemics.
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Affiliation(s)
- Esther Van Poel
- Department of Public Health and Primary Care, Ghent University, Corneel Heymanslaan 10, 9000 Ghent, Belgium
| | - Pierre Vanden Bussche
- Department of Public Health and Primary Care, Ghent University, Corneel Heymanslaan 10, 9000 Ghent, Belgium
| | - Claire Collins
- Department of Public Health and Primary Care, Ghent University, Corneel Heymanslaan 10, 9000 Ghent, Belgium
- Irish College of General Practitioners, 4/5 Lincoln Place, Dublin 2 D02 XR68, Ireland
| | - Susan Lagaert
- Department of Social Work and Social Pedagogy, Ghent University, Henri Dunantlaan 2, 9000 Ghent, Belgium
| | - Sara Ares-Blanco
- Federica Montseny Health Centre, Gerencia Asistencial de Atención Primaria, Servicio Madrileño de Salud, Avenue de la Albufera, 285, Puente de Vallecas, 28038 Madrid, Spain
- Instituto de Investigación Sanitaria Gregorio Marañón, Retiro, 28009 Madrid, Spain
- SemFYC representative in the European General Practitioner Research Network, Paseo de las Delicias 30-2ª, 28045 Madrid, Spain
| | - Maria Pilar Astier-Pena
- Centro de Salud la Jota, Avenue de la Jota 42, 50015 Zaragoza, Spain
- Health Territorial Directorate of Camp de Tarragona, Catalan Institute of Health, Carrer de la Reina Maria Cristina 54, 43002 Tarragona, Spain
- Universitas Health Centre, Calle de Andrés Vicente 42, Delicias, 50017 Zaragoza, Spain
- Instituto de Investigacion Sanitaria de Aragón, Aragon Bioethics Research Group (CIBA), Calle de San Juan Bosco 13, 50009 Zaragoza, Spain
- Patient Safety Working Group of the Spanish Society for Family and Community Medicine, Calle de Fuencarral 18, 1°B, Centro, 28004 Madrid, Spain
- Spanish Society for Healthcare Quality (SECA), C/ Uría 76 - 1°, 33003 Oviedo, Spain
| | - Jonila Gabrani
- Faculty of Medicine, University of Medicine, Tirana, 8RRM+W7X, Rruga e Dibrës, Tirana, Albania
| | - Raquel Gomez Bravo
- Hospital Center Neuro-Psychiatrique, 17 Avenue des Alliés, 9012 Ettelbruck, Luxembourg
| | - Kathryn Hoffmann
- Department of Primary Care Medicine, Center for Public Health, Medical University of Vienna, Spitalgasse 23, 1090 Vienna, Austria
| | - Zalika Klemenc-Ketis
- Ljubljana Community Health Centre, Kotnikova ulica 36, 1000 Ljubljana, Slovenia
- Faculty of Medicine, University of Maribor, Taborska Ulica 8, 2000 Maribor, Slovenia
- Faculty of Medicine, University of Ljubljana, Vrazov trg 2, 1000 Ljubljana, Slovenia
| | - Christian Mallen
- Institute for Primary Care and Health Sciences, School of Medicine, Keele University, University Road, Staffordshire ST5 5BG, United Kingdom
| | - Ana Luisa Neves
- Global Digital Health Unit, School of Public Health, Imperial College London, South Kensington Campus, South Kensington, London SW7 2AZ, United Kingdom
- Center for Health Technologies and Services Research / Department of Community Medicine, Information and Decision in Health, Faculty of Medicine, University of Porto, R. Dr. António Bernardino de Almeida 400, 4200-072 Porto, Portugal
| | - Zlata Ožvačić
- School of Medicine, University of Zagreb, Šalata 2, 10000 Zagreb, Croatia
- Health Center Zagreb-Centar, Ulica Josipa Runjanina 4, 10000 Zagreb, Croatia
| | - Victoria Tkachenko
- Department of Family Medicine, Shupyk National Healthcare University of Ukraine, 9 Dorohozhytska Street, Kiev 04112, Ukraine
| | - Dorien Zwart
- Julius Center for Health Sciences and Primary Care, University Medical Center Utrecht, Universiteitsweg 100, 3584 CG Utrecht, The Netherlands
| | - Sara Willems
- Department of Public Health and Primary Care, Ghent University, Corneel Heymanslaan 10, 9000 Ghent, Belgium
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22
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Rampamba EM, Meyer JC, Godman B, Ndwamato NN, Campbell SM. Development of quality indicators for hypertension management at the primary health care level in South Africa. J Hum Hypertens 2025; 39:155-163. [PMID: 39402282 PMCID: PMC11867969 DOI: 10.1038/s41371-024-00966-7] [Citation(s) in RCA: 1] [Impact Index Per Article: 1.0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Grants] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 04/07/2024] [Revised: 09/16/2024] [Accepted: 10/02/2024] [Indexed: 03/01/2025]
Abstract
Despite many quality initiatives at the primary health care (PHC) level, little is known about the actual quality of care of patients diagnosed with hypertension in South Africa. This study aimed to develop quality indicators for hypertension management at the PHC level to improve the quality of care and patient outcomes. The RAND/UCLA Appropriateness Method, comprising two rounds, was used to develop clear, appropriate, and feasible evidence-based quality indicators for hypertension. In Round 1, a 9-point scale was used by a panel of 11 members to rate clarity and appropriateness of 102 hypertension quality indicator statements, grouped under 9 dimensions of quality hypertension management, using an online MS Excel® spreadsheet. In Round 2, 9 of the same panellists discussed all indicators and rated their appropriateness and feasibility during a remote online, interactive face-to-face MS Teams® meeting. Statements rated ≥7-9 with agreement were defined as either appropriate or feasible. The panel rated 46 hypertension quality indicator statements ≥7-9 with agreement for the appropriate and feasible measurement of the management of hypertension: monitoring (n = 16), review (n = 5), lifestyle advice (n = 9), tests (n = 7), intermediate outcomes (n = 6), referrals (n = 2) and practice/facility structures (n = 1). No indicator statements were rated both appropriate and feasible for measuring blood pressure levels and treatment. If applied, these indicators would improve monitoring and management of patients with hypertension, patient outcomes, and data quality in South Africa and result in more efficient use of scarce resources. This study can be replicable for improving care of other non-communicable diseases across Africa.
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Affiliation(s)
- Enos Muisaphanda Rampamba
- Department of Public Health Pharmacy and Management, School of Pharmacy, Sefako Makgatho Health Sciences University, Pretoria, South Africa.
- Division of Pharmacy Education, Professional Affairs, South African Pharmacy Council, Pretoria, 0001, South Africa.
| | - Johanna Catharina Meyer
- Department of Public Health Pharmacy and Management, School of Pharmacy, Sefako Makgatho Health Sciences University, Pretoria, South Africa
| | - Brian Godman
- Department of Public Health Pharmacy and Management, School of Pharmacy, Sefako Makgatho Health Sciences University, Pretoria, South Africa
- Department of Pharmacoepidemiology, Strathclyde Institute of Pharmacy and Biomedical Sciences, University of Strathclyde, Glasgow, United Kingdom
| | - Ntodeni Norah Ndwamato
- Department of Family Medicines, School of Medicine, University of Limpopo, Polokwane, South Africa
- Limpopo Department of Health, Limpopo, Polokwane, South Africa
| | - Stephen Mark Campbell
- Department of Public Health Pharmacy and Management, School of Pharmacy, Sefako Makgatho Health Sciences University, Pretoria, South Africa
- Centre for Epidemiology and Public Health, School of Health Sciences, University of Manchester, Manchester, United Kingdom
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23
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Ishak I, Cheng C, Greenland L, Bates I. Exploring the suitability of a ward-based clinical pharmacy activity collection tool for ambulatory care practice: a mixed-methods study. Int J Clin Pharm 2025; 47:166-177. [PMID: 39495445 DOI: 10.1007/s11096-024-01820-z] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 04/25/2024] [Accepted: 10/08/2024] [Indexed: 11/05/2024]
Abstract
BACKGROUND At a London-based hospital, a validated ward-based clinical pharmacy activity collection tool has been used to monitor activities of clinical pharmacy teams across all settings, including ambulatory care services. No data confirm its representativeness for the full range of ambulatory clinical pharmacy services, and pharmacists share this concern. AIM This study aimed to identify the range of clinical pharmacy activities in ambulatory care, assess the suitability of the existing ward-based tool for capturing these activities, and recommend modifications. METHOD Non-participant direct observations were conducted to record pharmacists' clinical activities in ambulatory clinics and multidisciplinary meetings. These observations were compared to the existing ward-based tool to identify discrepancies. Semi-structured interviews with eight ambulatory pharmacists were transcribed verbatim and thematically analysed inductively to explore the tool's representativeness of their routine clinical activities. RESULTS Twenty-nine clinical pharmacy activities were observed in ambulatory services. Only fifteen were captured by the existing tool, with therapy monitoring and recommending therapeutic changes not accurately captured. Pharmacists agreed that the tool was not fully representative and included irrelevant activities. Four common uncaptured activities were multidisciplinary meeting-specific activities, arranging laboratory tests, monitoring patient outcomes, and liaising with community healthcare professionals. This study identified 33 candidate ambulatory clinical pharmacy activities. CONCLUSION The existing ward-based tool does not fully capture the full range of ambulatory care clinical pharmacy activities, highlighting the need for an improved tool. Pharmacists recommended including the uncaptured activities. The candidate activities provide a foundation for standardised measurement of relevant ambulatory care activities to enable effective workforce deployment and improve patient outcomes.
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Affiliation(s)
- Izwan Ishak
- School of Pharmacy, University College London, London, UK.
- School of Pharmacy, KPJ Healthcare University, Nilai, Malaysia.
| | - Caroline Cheng
- Pharmacy Department, King's College Hospital NHS Foundation Trust, London, UK
- Institute of Pharmaceutical Sciences and Institute of Psychiatry, Psychology, Neurosciences, King's College London, London, UK
| | - Lindsay Greenland
- Pharmacy Department, King's College Hospital NHS Foundation Trust, London, UK
| | - Ian Bates
- School of Pharmacy, University College London, London, UK
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24
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Brown ML, Dorste A, Adams PS, Caplan LA, Gleich SJ, Hernandez JL, Riegger LQ. Proposed Quality Metrics for Congenital Cardiac Anesthesia: A Scoping Review. Anesth Analg 2025; 140:397-408. [PMID: 39405258 DOI: 10.1213/ane.0000000000007208] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 01/14/2025]
Abstract
Congenital cardiac anesthesiologists practice in a unique environment with high risk for morbidity and mortality. Quality metrics can be used to focus clinical initiatives on evidence-based care and provide a target for local quality improvement measures. However, there has been no comprehensive review on appropriate quality metrics for congenital cardiac anesthesia to date. Members of the Quality and Safety Committee for the Congenital Cardiac Anesthesia Society proposed 31 possible candidate topics for metrics. Using a scoping review strategy, 3649 abstracts were reviewed with 30 articles meeting final criteria. Of these, 5 candidate metrics were unanimously proposed for local collection and national benchmarking efforts: use of a structured handover in the intensive care unit, use of an infection prevention bundle, use of blood conservation strategies, early extubation of cardiopulmonary bypass cases, and cardiac arrest under the care of a cardiac anesthesiologist. Many metrics were excluded due to a lack of primary data and perceived complexity beyond the scope of cardiac anesthesia practice. There is a need to develop more primary data including linking process measures with outcomes, developing risk-stratification for our patients, and collecting national data for benchmarking purposes.
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Affiliation(s)
- Morgan L Brown
- From the Department of Anesthesiology, Critical Care and Pain Medicine, Boston Children's Hospital, Boston, Massachusetts
| | - Anna Dorste
- Medical Library, Boston Children's Hospital, Boston, Massachusetts
| | - Phillip S Adams
- Department of Anesthesiology and Perioperative Medicine, University of Pittsburgh School of Medicine, Pittsburgh, Pennsylvania
| | - Lisa A Caplan
- Department of Anesthesiology, Perioperative and Pain Medicine, Texas Children's Hospital, Houston, Texas
| | - Stephen J Gleich
- Department of Anesthesiology and Perioperative Medicine, Mayo Clinic, Rochester, Minnesota
| | - Jennifer L Hernandez
- Department of Anesthesiology and Pain Management, Children's Medical Center of Dallas, Dallas, Texas
| | - Lori Q Riegger
- Department of Anesthesiology, C.S. Mott Children's Hospital, Ann Arbor, Michigan
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25
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Alishahi Tabriz A, Turner K, Hemati H, Baugh C, Elston Lafata J. Assessing the Validity of the Centers for Medicare & Medicaid Services Measure in Identifying Potentially Preventable Emergency Department Visits by Patients With Cancer. JCO Oncol Pract 2025; 21:218-225. [PMID: 39038257 PMCID: PMC11834964 DOI: 10.1200/op.24.00160] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 02/28/2024] [Revised: 05/31/2024] [Accepted: 06/25/2024] [Indexed: 07/24/2024] Open
Abstract
PURPOSE The Centers for Medicare & Medicaid Services (CMS) implemented chemotherapy measures (OP-35) to reduce potentially preventable emergency department visits (PPEDVs) and hospitalizations. This study evaluated the validity of the OP-35 measure in identifying PPEDVs among patients with cancer. METHODS This is a cross-sectional study, which used data from the 2012-2022 National Hospital Ambulatory Medical Care Survey. ED visits are assessed and compared on the basis of three measures: immediacy using Emergency Severity Index (ESI), disposition (discharge v hospitalization), and OP-35 criteria. RESULTS Between 2012 and 2022, a weighted sample of 46,723,524 ED visits were made by patients with cancer. Among reported ESI cases, 25.2% (8,346,443) was high urgency. In addition, 30.3% (14,135,496) of ED visits among patients with cancer led to hospitalizations. Using the OP-35 measure, it was found that 20.85% (9,743,977) was PPEDVs. A 21.9% (10,232,102) discrepancy between discharge diagnosis (CMS billing codes) and chief complaints was identified. Further analysis showed that 19.2% (1,872,556) of potentially preventable ED visits (CMS OP-35) were high urgency and 32.6% (3,181,280) resulted in hospitalization. CONCLUSION The CMS approach to identifying PPEDVs has limitations. First, it may overcount preventable visits by including high-urgency or hospitalization-requiring cases. Second, relying on final diagnoses for retrospective preventability judgment can be misleading as they may not reflect the initial reason for the visit. In addition, differentiating causes for ED visits in patients with cancer undergoing various treatments is challenging as the approach does not distinguish between chemotherapy-related complications and others. Identification inconsistencies arise because of varying coding practices and chosen preventable conditions, lacking consensus and alignment with specific hospital or patient needs. Finally, the model fails to consider crucial nonclinical factors like social support, economic barriers, and alternative care access, potentially unfairly penalizing hospitals serving underserved populations.
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Affiliation(s)
- Amir Alishahi Tabriz
- Department of Health Outcomes and Behavior, Moffitt Cancer Center, Tampa, FL
- Department of Oncological Sciences, University of South Florida Morsani College of Medicine, Tampa, FL
| | - Kea Turner
- Department of Health Outcomes and Behavior, Moffitt Cancer Center, Tampa, FL
- Department of Oncological Sciences, University of South Florida Morsani College of Medicine, Tampa, FL
| | - Homa Hemati
- Division of Pharmaceutical Outcomes and Policy, UNC Eshelman School of Pharmacy, University of North Carolina at Chapel Hill, Chapel Hill, NC
| | - Christopher Baugh
- Department of Emergency Medicine, Brigham & Women's Hospital, Harvard Medical School, Boston, MA
| | - Jennifer Elston Lafata
- Division of Pharmaceutical Outcomes and Policy, UNC Eshelman School of Pharmacy, University of North Carolina at Chapel Hill, Chapel Hill, NC
- UNC Lineberger Comprehensive Cancer Center, University of North Carolina at Chapel Hill, Chapel Hill, NC
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26
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Gnass I, Berger S, Schürholz N, Kaiser U, Schäfer A, Schnabel A, Pogatzki-Zahn E, Nestler N. [Structure and process evaluation of complex interventions in pain therapy : Description of a methodological approach using the example of POET-Pain]. Schmerz 2025; 39:35-42. [PMID: 39656230 PMCID: PMC11785641 DOI: 10.1007/s00482-024-00850-w] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Grants] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Accepted: 10/25/2024] [Indexed: 02/01/2025]
Abstract
To evaluate the quality of care, particularly in the case of new forms of healthcare interventions, the healthcare services to be provided are defined and documented in advance. The presented explanatory sequential mixed methods design combines quantitative and qualitative data collection and the analysis enables a deeper understanding of a new healthcare intervention. Using the example of the POET-Pain project, which investigates the effect of a perioperative transitional pain service (TPS), the methodological application of the explanatory sequential mixed methods design is demonstrated in order to present the structural and process evaluation of the new healthcare intervention (in this case TPS) and to understand its influence on the quality of care. The mixed methods design presented enables the results of the quantitative phase to be interpreted and expanded in depth using qualitative data, which leads to a comprehensive understanding of the subject matter (second pillar of health services research).
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Affiliation(s)
- Irmela Gnass
- Institut für Pflegewissenschaft und -praxis, Paracelsus Medizinische Privatuniversität, Strubergasse 21, 5020, Salzburg, Österreich.
| | - Stefanie Berger
- Institut für Pflegewissenschaft und -praxis, Paracelsus Medizinische Privatuniversität, Strubergasse 21, 5020, Salzburg, Österreich
| | - Nina Schürholz
- Institut für Pflegewissenschaft und -praxis, Paracelsus Medizinische Privatuniversität, Strubergasse 21, 5020, Salzburg, Österreich
| | - Ulrike Kaiser
- Klinik für Anästhesiologie und Intensivmedizin, Universitätsklinikum Schleswig-Holstein, Campus Lübeck, Schleswig-Holstein, Deutschland
| | - Axel Schäfer
- Fakultät Soziale Arbeit und Gesundheit, Hochschule für angewandte Wissenschaft und Kunst Hildesheim/Holzminden/Göttingen, Hildesheim, Deutschland
| | - Alexander Schnabel
- Klinik für Anästhesiologie, operative Intensivmedizin und Schmerztherapie, Universitätsklinikum Münster, Münster, Deutschland
| | - Esther Pogatzki-Zahn
- Klinik für Anästhesiologie, operative Intensivmedizin und Schmerztherapie, Universitätsklinikum Münster, Münster, Deutschland
| | - Nadja Nestler
- Institut für Pflegewissenschaft und -praxis, Paracelsus Medizinische Privatuniversität, Strubergasse 21, 5020, Salzburg, Österreich
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27
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Hwang B, Trawin J, Dzelamunyuy S, Wiens MO, Tagoola A, Businge S, Jabornisky R, Nwankwor O, Karlovich G, Oguonu T, Talla E, Novakowski SK, Fung JST, West N, Ansermino JM, Kissoon N. Assessment of Facility Readiness for Pediatric Emergency and Critical Care Utilizing a 2-Phase Survey Conducted in Six Hospitals in Uganda and Cameroon: A Quality Improvement Study. Pediatr Emerg Care 2025; 41:94-103. [PMID: 39499115 DOI: 10.1097/pec.0000000000003276] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [MESH Headings] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Indexed: 11/07/2024]
Abstract
OBJECTIVES Each year, 5.3 million children under 5 years of age die in low-resource settings, often due to delayed recognition of disease severity, inadequate treatment, or a lack of supplies. We describe the use of a comprehensive digital facility-readiness survey tool, recently developed by the Pediatric Sepsis Data CoLaboratory, which aims to identify target areas for quality improvement related to pediatric emergency and critical care. METHODS Facility-readiness surveys were conducted at six sub-Saharan African hospitals providing pediatric emergency and critical care in Uganda (n = 4) and Cameroon (n = 2). The tool is a 2-phase survey to assess readiness to provide pediatric essential emergency and critical care: (1) an "environmental scan," focusing on infrastructure, availability, and functionality of resources, and (2) an "observational scan" assessing the quality and safety of care through direct observation of patients receiving treatment for common diseases. Data were captured in a mobile application and the findings analyzed descriptively. RESULTS Varying levels of facility readiness to provide pediatric emergency care were observed. Only 1 of 6 facilities had a qualified staff member to assess children for danger signs upon arrival, and only 2 of 6 had staff with skills to manage emergency conditions. Only 21% of essential medicines required for pediatric emergency and critical care were available at all six facilities. Most facilities had clean running water and soap or disinfectants, but most also experienced interruptions to their electricity supply. Less than half of patients received an appropriate discharge note and fewer received counseling on postdischarge care; follow-up was arranged in less than a quarter of cases. CONCLUSIONS These pilot findings indicate that facilities are partially equipped and ready to provide pediatric emergency and critical care. This facility-readiness tool can be utilized in low-resource settings to assist hospital administrators and policymakers to determine priority areas to improve quality of care for the critically ill child.
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Affiliation(s)
- Bella Hwang
- From the Institute for Global Health, BC Children's and Women's Hospital
| | | | | | | | | | | | | | | | - Gabrielle Karlovich
- Division of Critical Care Medicine, Department of Pediatrics, Cooper University Hospital, NJ
| | - Tagbo Oguonu
- Department of Pediatrics, University of Nigeria, Teaching Hospital, Ituku/Ozalla, Enugu, Nigeria
| | | | | | - Jollee S T Fung
- From the Institute for Global Health, BC Children's and Women's Hospital
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28
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Chang C, Cooley S, Iott B, Greene J, Muthukuda D, Tipirneni R. Continuous Quality Improvement in Social Needs Screening: Evaluation of an Intervention in Bariatric Specialty Care. J Healthc Qual 2025; 47:e0461. [PMID: 39918259 DOI: 10.1097/jhq.0000000000000461] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [MESH Headings] [Grants] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 02/20/2025]
Abstract
INTRODUCTION With growing recognition of the influence that social risks, such as food insecurity and housing instability, have on individual and population health, social risk screening and social care interventions have proliferated across the health system. Social needs intervention research on screening and referral in specialty care is limited, despite evidence that social needs influence access to and outcomes of surgical and specialty care. METHODS This study is a qualitative, formative evaluation of a quality improvement-oriented social needs screening and referral pilot program implemented in a bariatric surgery practice and aims to share lessons related to the structure and process components of a quality improvement (QI) framework. RESULTS Semistructured interviews revealed variation in patient eligibility for resources and highlighted the need for enhanced staff capacity and data system integration. In addition, process-related themes including patient hesitation toward referrals, variability in screening pathways, and uncertainty surrounding communication practices emerged in qualitative analyses. CONCLUSIONS Implementation of social needs screening and referral programs in specialty care setting is feasible but requires unique structure and process-related considerations. Incorporating QI infrastructure into these programs allows for continuous evaluation of program processes and can be used to evaluate the impact of these programs on health outcomes.
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Cai W, Yao Y, Lei W, Li H, Yan S, Wu Q, Wang J, Ge W, Zhang J. Construction on training course and training quality evaluation index system of chronic disease medication therapy management service (MTMs) in China: A Delphi study. PLoS One 2025; 20:e0318446. [PMID: 39883712 PMCID: PMC11781749 DOI: 10.1371/journal.pone.0318446] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [MESH Headings] [Grants] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 05/01/2024] [Accepted: 01/10/2025] [Indexed: 02/01/2025] Open
Abstract
OBJECTIVE This study aims to construct a training course and quality evaluation index system for chronic disease Medication Therapy Management service (MTMs) that is suitable for China's national conditions. It seeks to provide tools and a scientific foundation for assessing the quality of MTMs training. METHODS Drawing from domestic and international literature and combining with the practice of chronic disease medication management by Chinese pharmacists, a preliminary framework for the evaluation index system was established. The Delphi method was used to solicit expert opinions, evaluate and improve the evaluation index system. Indicator weights were determined by using the Analytic Hierarchy Process (AHP). RESULTS Both rounds of expert inquiry achieved a positive degree of 100% (18/18 experts). The authority coefficients (Cr) were 0.90 and 0.91 respectively. The Kendall coordination coefficients (Kendall's W) of the second and third-level indicators for the first round of inquiry were 0.230 and 0.189, while those for the second round were 0.326 and 0.213. Finally, an MTMs training course and training quality evaluation index system was structured, comprising 3 first-level indicators, 11 second-level indicators, and 39 third-level indicators. CONCLUSION The evaluation index system constructed in this study is scientifically robust and rational, offering a foundation to standardize MTMs training practices effectively.
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Affiliation(s)
- Wenting Cai
- Department of Pharmacy, Nanjing Drum Tower Hospital, School of Basic Medicine and Clinical Pharmacy, China Pharmaceutical University, Nanjing, Jiangsu, China
- Department of Pharmacy, Nanjing Drum Tower Hospital, Affiliated Hospital of Medical School, Nanjing University, Nanjing, Jiangsu, China
| | - Yao Yao
- Department of Pharmacy, Nanjing Drum Tower Hospital, Affiliated Hospital of Medical School, Nanjing University, Nanjing, Jiangsu, China
| | - Wenpu Lei
- Department of Pharmacy, Inner Mongolia People’s Hospital, Hohhot, Inner Mongolia, China
| | - Huixin Li
- Jiangsu Province Hospital of Chinese Medicine, Affiliated Hospital of Nanjing University of Chinese Medicine, Nanjing, Jiangsu, China
| | - Simin Yan
- Department of Pharmacy, Nanjing Drum Tower Hospital, Affiliated Hospital of Medical School, Nanjing University, Nanjing, Jiangsu, China
| | - Qiuhui Wu
- Department of Pharmacy, Nanjing Drum Tower Hospital, Affiliated Hospital of Medical School, Nanjing University, Nanjing, Jiangsu, China
| | - Jian Wang
- Department of Pharmacy, Nanjing Drum Tower Hospital, Affiliated Hospital of Medical School, Nanjing University, Nanjing, Jiangsu, China
| | - Weihong Ge
- Department of Pharmacy, Nanjing Drum Tower Hospital, Affiliated Hospital of Medical School, Nanjing University, Nanjing, Jiangsu, China
| | - Jinping Zhang
- Department of Pharmacy, Nanjing Drum Tower Hospital, Affiliated Hospital of Medical School, Nanjing University, Nanjing, Jiangsu, China
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Figueroa SPN, Martinez OFA, Morales PS. Honduran nurses' perceptions among the quality of care for stroke patients: a qualitative study. Rev Lat Am Enfermagem 2025; 33:e4419. [PMID: 39879480 PMCID: PMC11774144 DOI: 10.1590/1518-8345.7300.4419] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 01/26/2024] [Accepted: 07/27/2024] [Indexed: 01/31/2025] Open
Abstract
OBJECTIVE to explore the nurses' perceptions among the quality of care to stroke patients in a public hospital in Northern Honduras. METHOD a descriptive phenomenological study was carried out. The data collection was conducted by means of depth- interviews to 20 general nurses from the emergency and clinical medicine departments from the Atlántida General Hospital. Data analysis was by thematic technique. RESULTS the research found three key themes, and 10 subthemes, which illustrated the quality of stroke patients care in a general hospital from Honduras. The finding points up the theme "negative outcomes regarding the structure dimension of the patient care units", which means the failure to improve or maintain the quality of healthcare. Likewise, "positive outcomes regarding the nursing process", defined as pleasant and helpful among the care of stroke patients, such as ethical and humanized caring, and activities on promoting patient self-care with involvement of the relatives. CONCLUSION the results indicate that Honduran nurses do not have qualified graduate training in critical care, which is a limitation that compromises the quality of care. Therefore, it is recommended to have clear organization structures and better resources managing, consequently, it may increase user satisfaction, as well as reducing hospital stays.
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Affiliation(s)
| | | | - Perla Simons Morales
- National Autonomous University of Honduras, School of Nursing, Tegucigalpa, Francisco Morazán, Honduras
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Lukersmith S, Woods C, Sarma H, de Miquel C, Salvador-Carulla L. Determining the process components of impact assessment in health and social program implementation: A scoping review of theories, models and frameworks. Public Health 2025; 240:41-47. [PMID: 39862623 DOI: 10.1016/j.puhe.2024.12.056] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 08/24/2024] [Revised: 12/14/2024] [Accepted: 12/30/2024] [Indexed: 01/27/2025]
Abstract
OBJECTIVES Health and social service research impact analysis play a pivotal role in demonstrating research value. Impact analysis of programs, interventions, or policies in real-world settings is complex. There are many implementation evaluation theories, models, and frameworks (TMF) and researchers find choosing one challenging. Our objective was to systematically scope TMFs, review and chart key components of the process of implementation impact analysis to identify gaps. STUDY DESIGN A scoping review was undertaken and reported using PRISMA-ScR guidelines. METHODS Systematic literature searches were conducted for impact analysis and impact assessment TMFs in MEDLINE, SCOPUS databases, hand searches, and expert directed search (2010-2024). Peer-reviewed articles were eligible for inclusion if they described an implementation evaluation TMF in English and used in the real world. Data extracted by the study team was charted in an Excel spreadsheet. RESULTS The review identified 71 relevant papers which included a theory (n = 6), model (n = 14), or framework (n = 51). Most considered resources and/or results, whereas only 25 % considered implementation process components. Ten frameworks were deemed comprehensive and covered at least two phases of implementation and five components. Most frameworks had not developed or tested practical tools to facilitate use of the framework. CONCLUSIONS No frameworks were identified that incorporated all phases of implementation, nor key components of the process in each phase of implementation research. The findings highlight the need to identify key components and develop a taxonomy, glossary and tools to assess the process components of implementation in real world settings.
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Affiliation(s)
- S Lukersmith
- Health Research Institute, Faculty of Health, University of Canberra, ACT, Australia.
| | - C Woods
- Health Research Institute, Faculty of Health, University of Canberra, ACT, Australia
| | - H Sarma
- Department of Applied Epidemiology, National Center for Epidemiology and Population Health, Australian National University, ACT, Australia
| | - C de Miquel
- Research, Innovation and Teaching Unit, Parc Sanitari Sant Joan de Déu, Barcelona, Spain
| | - L Salvador-Carulla
- Health Research Institute, Faculty of Health, University of Canberra, ACT, Australia
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Soares M, Martins V, Tomás M, Sousa L, Nascimento T, Costa P, Quaresma G, Lucas P. Psychiatric Home Hospitalization: The Role of Mental Health Nurses-A Scoping Review. Healthcare (Basel) 2025; 13:231. [PMID: 39942420 PMCID: PMC11817483 DOI: 10.3390/healthcare13030231] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Grants] [Track Full Text] [Figures] [Journal Information] [Subscribe] [Scholar Register] [Received: 12/01/2024] [Revised: 01/16/2025] [Accepted: 01/22/2025] [Indexed: 02/16/2025] Open
Abstract
The lack of evidence synthesis studies on the role of psychiatric mental health nursing in the context of psychiatric home hospitalization underscores the limited research on nurses providing care in these teams, particularly concerning their experiences and responsibilities and the actual role of nurses in this context. This knowledge has the potential to improve the quality of mental healthcare by guiding nursing practices. Objective: To map the concepts related to the role of mental health nurses in psychiatric home hospitalization. Methods: A scoping review was conducted using the methodology proposed by the JBI, involving five methodological stages. No search limits were applied except for language. Results: The review identified five key dimensions of nursing in psychiatric home hospitalization: satisfaction; care models; the therapeutic relationship; the care environment; the organization of care. These interconnected dimensions influence quality care. Satisfaction among nurses, patients, and families is associated with improved outcomes and reduced stigma. The therapeutic relationship is characterized by a humanistic approach, emphasizing dialogue, empathy, and shared decision making. Additionally, the importance of care organization is highlighted, including individualized care plans, medication management, and intersectoral collaboration. Discussion: The five nursing dimensions align with the Quality Standards of the Portuguese Nursing Council and are consistent with the scientific literature. Conclusions: Although there is a shortage of studies on this topic, this review allows for the synthesis of nursing interventions and reflection on the paradigm shift in care within the scope of psychiatric mental health nursing interventions. Future studies highlighting the value of mental health nursing interventions, with a particular focus on nursing-sensitive indicators and employing quantitative or mixed methods, will be crucial to furthering the analysis conducted thus far.
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Affiliation(s)
- Marisa Soares
- Research and Innovation Knowledge Center (CCII), Local Health Unit Almada-Seixal, Psychiatry and Mental Health Service, 2805-267 Almada, Portugal; (M.S.); (V.M.)
- Nursing Research, Innovation and Development Centre of Lisbon (CIDNUR), Nursing School of Lisbon, 1600-190 Lisboa, Portugal; (M.T.); (L.S.); (T.N.); (P.C.); (G.Q.)
| | - Vânia Martins
- Research and Innovation Knowledge Center (CCII), Local Health Unit Almada-Seixal, Psychiatry and Mental Health Service, 2805-267 Almada, Portugal; (M.S.); (V.M.)
- Comprehensive Health Research Centre (CHRC), University of Évora, 7000-801 Évora, Portugal
| | - Margarida Tomás
- Nursing Research, Innovation and Development Centre of Lisbon (CIDNUR), Nursing School of Lisbon, 1600-190 Lisboa, Portugal; (M.T.); (L.S.); (T.N.); (P.C.); (G.Q.)
| | - Luís Sousa
- Nursing Research, Innovation and Development Centre of Lisbon (CIDNUR), Nursing School of Lisbon, 1600-190 Lisboa, Portugal; (M.T.); (L.S.); (T.N.); (P.C.); (G.Q.)
- Comprehensive Health Research Centre (CHRC), University of Évora, 7000-801 Évora, Portugal
- Atlântica Health School, 2730-036 Barcarena, Portugal
| | - Tiago Nascimento
- Nursing Research, Innovation and Development Centre of Lisbon (CIDNUR), Nursing School of Lisbon, 1600-190 Lisboa, Portugal; (M.T.); (L.S.); (T.N.); (P.C.); (G.Q.)
| | - Patrícia Costa
- Nursing Research, Innovation and Development Centre of Lisbon (CIDNUR), Nursing School of Lisbon, 1600-190 Lisboa, Portugal; (M.T.); (L.S.); (T.N.); (P.C.); (G.Q.)
| | - Graça Quaresma
- Nursing Research, Innovation and Development Centre of Lisbon (CIDNUR), Nursing School of Lisbon, 1600-190 Lisboa, Portugal; (M.T.); (L.S.); (T.N.); (P.C.); (G.Q.)
| | - Pedro Lucas
- Nursing Research, Innovation and Development Centre of Lisbon (CIDNUR), Nursing School of Lisbon, 1600-190 Lisboa, Portugal; (M.T.); (L.S.); (T.N.); (P.C.); (G.Q.)
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Peruzzo E, Seghieri C, Vainieri M, De Rosis S. Improving the healthcare user experience: an optimization model grounded in patient-centredness. BMC Health Serv Res 2025; 25:132. [PMID: 39849506 PMCID: PMC11761721 DOI: 10.1186/s12913-024-11960-7] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 01/29/2024] [Accepted: 11/18/2024] [Indexed: 01/25/2025] Open
Abstract
BACKGROUND Patient satisfaction and experience are key outcomes of healthcare and can be computed as powerful measures of service quality. Understand what affects them is essential for service quality improvement. Investigating whether the care setting (i.e., medical or surgical) can impact the patients' perception of the quality can be also important for the actionability of this data. The aim is to explore which experiential factors should be prioritized to improve patient satisfaction with hospitalization service, using experience items as intermediate results and considering different settings. METHODS Patient-reported experience measures are used in an Italian region. This study uses the optimization approach to identify factors of healthcare user experience affecting and enhancing satisfaction. RESULTS The results confirm that, among the significant determinants of satisfaction, some specific experiential aspects emerged as the potential primary focus to be prioritized in improvement actions. These aspects vary according to the specific departmental area. CONCLUSIONS The study presents an optimization model directly informed by healthcare service users, utilizing their insights to drive healthcare delivery improvements. It emphasizes the necessity of not only collect patient perspectives but also applying different methodologies to understand what matters to patients and what interventions could be prioritized, and to strategically use diverse insights to enhance the delivery of healthcare services and patient experience and satisfaction.
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Affiliation(s)
- Elisa Peruzzo
- Management and Healthcare Laboratory, Institute of Management, Sant'Anna School of Advanced Studies, Pisa, Italy.
| | - Chiara Seghieri
- Management and Healthcare Laboratory, Institute of Management, Sant'Anna School of Advanced Studies, Pisa, Italy
| | - Milena Vainieri
- Management and Healthcare Laboratory, Institute of Management, Sant'Anna School of Advanced Studies, Pisa, Italy
| | - Sabina De Rosis
- Management and Healthcare Laboratory, Institute of Management, Sant'Anna School of Advanced Studies, Pisa, Italy
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Okuyama A, Kuwabara M, Zenda S. Quality indicators of supportive care for patients with cancer undergoing treatment: a systematic review. BMC Cancer 2025; 25:103. [PMID: 39833732 PMCID: PMC11744883 DOI: 10.1186/s12885-025-13519-z] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Grants] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 11/26/2024] [Accepted: 01/14/2025] [Indexed: 01/22/2025] Open
Abstract
BACKGROUND Patients need to be supported in combining treatment with daily life. However, measurement of supportive care indicators related to treatment-related side effects is under-reported. This review aimed to identify a list of quality indicators for managing cancer treatment-induced toxicities for adult patients with cancer. METHODS A review was conducted on PubMed, the Cumulative Index to Nursing and Allied Health Literature, the Cochrane Database of Systematic Reviews, and Embase from September 26, 2013 to December 26, 2023. Published English articles that developed or analyzed quality indicators of managing cancer treatment-induced toxicities for adult patients with cancer were selected. The identified indicators were classified according to Donabedian's model for quality of care in healthcare. RESULTS Forty-two indicators (4 structural, 27 process, and 11 outcome indicators) in 18 articles were identified. Eight articles (44.4%) were from North America, four (22.2%) from Europe, two (11.1%) from Oceania, two (11.1%) from Asia, and one (5.6%) from Africa; 64.3% of the indicators were process indicators based on guidelines. The prevalence of patient symptoms determined using a patient-reported outcome measure was proposed as an outcome indicator. In seven studies (38.9%), these indicators were selected by multidisciplinary experts. None of the studies involved patients or family members in the indicator selection process. CONCLUSION The quality of supportive care should be improved by measuring these indicators, considering the patient's needs for supportive care at each hospital such that patients can continue their lives while undergoing treatment.
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Affiliation(s)
- Ayako Okuyama
- Graduate School of Nursing Science, St. Luke's International University, 10-1 Akashi-cho, Chuo-ku, 104-0044, Tokyo, Japan.
| | - Mai Kuwabara
- Graduate School of Nursing Science, St. Luke's International University, 10-1 Akashi-cho, Chuo-ku, 104-0044, Tokyo, Japan
| | - Sadamoto Zenda
- Department of Supportive and Palliative Care Research Support Office, National Cancer Center Hospital East, 6-5-1 Kashiwanoha, Kashiwa, Chiba, 277-8577, Japan
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Bucher B, Corbitt N. Invited Commentary on Moturu, et al.: Identifying Quality Improvement Targets After Pediatric Gastrostomy Tube Insertion: A NSQIP-Pediatric Pilot Study. J Pediatr Surg 2025:162181. [PMID: 39894746 DOI: 10.1016/j.jpedsurg.2025.162181] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Key Words] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 01/13/2025] [Accepted: 01/18/2025] [Indexed: 02/04/2025]
Affiliation(s)
- Brian Bucher
- Division of Pediatric Surgery, Department of Surgery, University of Utah, Salt Lake City, UT, USA.
| | - Natasha Corbitt
- Department of Surgery, Children's Medical Center Dallas and UT Southwestern Medical Center, Dallas, TX, USA
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Rai U, Patte KA, Smith BT, Senthilselvan A, Hyshka E, Leatherdale ST, Pabayo R. Examining the association between public health unit spending and adolescent substance use. Heliyon 2025; 11:e40884. [PMID: 39811368 PMCID: PMC11732573 DOI: 10.1016/j.heliyon.2024.e40884] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 02/05/2024] [Revised: 11/29/2024] [Accepted: 12/02/2024] [Indexed: 01/16/2025] Open
Abstract
Background Based on the socio-ecological model of health, socioeconomic policy is an important determinant of population health. Spending decisions by public health units (PHU) have been shown to be associated with population health outcomes. Some studies have found greater PHU spending to be associated with improved population health, while others report mixed findings, warranting further research. The objective of this study was to investigate the association between per capita PHU spending and self-reported substance use among Canadian adolescents. Methods Cross-sectional, multilevel modelling was conducted using student data from the 7th wave (2018/19) of the Cannabis use, Obesity, Mental health, Physical activity, Alcohol use, Smoking, and Sedentary behaviour (COMPASS) study, as well as spending data from the audited financial statements of Ontario's PHUs. The sample included 29,056 students in grades 9-12 attending 61 secondary schools in 15 PHUs across Ontario. Substance use was measured as the self-reported use of alcohol, cannabis, cigarettes and e-cigarettes, at least once per month on average. Results Approximately 50 % of the study sample was female and the majority identified as being White. Per capita spending ranged from $54.07 to $224.95, with a median spending amount of $89.62. The highest quartile of PHU spending was significantly associated with higher alcohol use (adjusted odds ratio (AOR): 1.41, 95 % CI: 1.04, 1.91), binge drinking (AOR: 1.71, 95 % CI: 1.18, 2.48), and cigarette use (AOR: 2.19, 95 % CI: 1.23, 3.91) in adolescents, while the second highest quartile was associated with lower e-cigarette use (AOR: 0.74, 95 % CI: 0.56, 0.98), relative to the lowest quartile. Conclusion Public health spending is associated with adolescent substance use. The present study reports mixed results, warranting further prospective research to explore the directions and mechanisms of the associations found.
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Affiliation(s)
- Urvi Rai
- School of Public Health, University of Alberta, 11405 87 Ave NW, Edmonton, Alberta, T6G 1C9, Canada
| | - Karen A. Patte
- Department of Health Sciences, Brock University, 1812 Sir Isaac Brock Way, L2S 3A1, St. Catharines, Ontario, Canada
| | - Brendan T. Smith
- Health Promotion, Chronic Disease and Injury Prevention, Public Health Ontario, 661 University Avenue, Suite 1701, M5G 1M1, Toronto, Ontario, Canada
- Dalla Lana School of Public Health, University of Toronto, 25 King's College Circle, M5S 1A1, Toronto, Ontario, Canada
| | | | - Elaine Hyshka
- School of Public Health, University of Alberta, 11405 87 Ave NW, Edmonton, Alberta, T6G 1C9, Canada
| | - Scott T. Leatherdale
- School of Public Health Sciences, University of Waterloo, 200 University Ave W, N2L 3G1, Waterloo, Ontario, Canada
| | - Roman Pabayo
- School of Public Health, University of Alberta, 11405 87 Ave NW, Edmonton, Alberta, T6G 1C9, Canada
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Ampomah IG, Devine S, Ampomah GA, Emeto TI. Exploring the contribution of integrated healthcare practices to malaria control in Ghana: perspectives of medical herbalists. BMC Complement Med Ther 2025; 25:11. [PMID: 39810192 PMCID: PMC11734445 DOI: 10.1186/s12906-025-04746-9] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 07/27/2024] [Accepted: 01/03/2025] [Indexed: 01/16/2025] Open
Abstract
BACKGROUND The integration of herbal and orthodox medicines has gained momentum in global health, ensuring improved management of infectious diseases like malaria. This study explored the experiences of medical herbalists working in Ghana's diverse ecological zones to understand the contributions of integrated healthcare to malaria control. METHODS A phenomenological design was employed to conduct in-depth interviews with 19 purposively sampled medical herbalists. Framework analytical approach and Donabedian's conceptual framework for quality of care were utilised in analysing the data. RESULTS Findings revealed high awareness of integrated healthcare practices among participants. Medical herbalists perceived integrated care as instrumental in enhancing malaria management through factors such as improved quality assurance, increased accessibility to integrated health facilities, patient-centred care, follow-up practices, and opportunities for continuous professional development. However, structural and process-related challenges were identified, including inadequate healthcare personnel, medicines, and equipment. Additionally, limited promotional activities, non-comprehensive National Health Insurance Scheme (NHIS), and ineffective referral systems were recognised as barriers hindering the effectiveness of the integrated system and its potential contribution to malaria control. CONCLUSION Although national and health system-based challenges have thwarted the importance of integration on malaria control, medical herbalists feel optimistic about the intervention. To optimise the effectiveness of integrated healthcare in controlling malaria in Ghana would require policy modification and implementation. Future research could focus on developing healthcare frameworks, particularly for malaria, that prioritise quality service delivery within an integrated system.
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Affiliation(s)
- Irene G Ampomah
- Department of Population and Health, University of Cape Coast, UC 182, Cape Coast, Ghana.
- Public Health and Tropical Medicine, James Cook University, Townsville, QLD, 4811, Australia.
| | - Susan Devine
- Public Health and Tropical Medicine, James Cook University, Townsville, QLD, 4811, Australia
| | - Genevieve A Ampomah
- Department of Sociology, Kwame Nkrumah University of Science and Technology, Kumasi, Ghana
| | - Theophilus I Emeto
- Public Health and Tropical Medicine, James Cook University, Townsville, QLD, 4811, Australia
- World Health Organization Collaborating Centre for Vector-Borne and Neglected Tropical Diseases, James Cook University, Townsville, QLD, 4811, Australia
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Millar RJ, Diehl C, Kusmaul N, Stockwell I. Nursing Facility Characteristics Are Differentially Associated With Family Satisfaction and Regulatory Star Ratings. J Appl Gerontol 2025:7334648241311380. [PMID: 39780582 DOI: 10.1177/07334648241311380] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 01/11/2025] Open
Abstract
Research suggests that nursing facility structural characteristics are important contributors toward residents' quality of care. We use 2021 data from 220 Maryland nursing facilities to examine associations between two different quality-of-care metrics: family satisfaction and Care Compare five-star quality ratings. We used descriptive statistics to explore differences in quality metrics across facility ownership (for-profit vs. non-profit), geographic location (urban vs. rural), and resident census (1-60, 61-120, and 121+). Relationships were examined across overall ratings, as well as across subdomains of the two frameworks (e.g., staffing). Family members of residents in non-profit, rural, and low-census facilities rated facilities higher. Non-profit and low-resident census facilities were more likely to be rated four or five stars, while no significant association was observed across geographic location, or interactions across structural factors. Findings emphasize the need for comprehensive quality-of-care frameworks that explore quality care across stakeholders and types of facilities.
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Affiliation(s)
- Roberto J Millar
- The Hilltop Institute, University of Maryland Baltimore County, Baltimore, MD, USA
| | - Christin Diehl
- The Hilltop Institute, University of Maryland Baltimore County, Baltimore, MD, USA
| | - Nancy Kusmaul
- School of Social Work, University of Maryland Baltimore County, Baltimore, MD, USA
| | - Ian Stockwell
- Department of Information Systems, University of Maryland Baltimore County, Baltimore, MD, USA
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Werner A, Steckelberg A, Strobel A, Wienke A, Schmidt H, Vordermark D, Michl P, Westphalen CB, Lühnen J. Translation, adaptation, and validation of the Care Coordination Instrument for cancer patients. BMC Health Serv Res 2025; 25:13. [PMID: 39754236 PMCID: PMC11697633 DOI: 10.1186/s12913-024-12123-4] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Grants] [Track Full Text] [Figures] [Journal Information] [Subscribe] [Scholar Register] [Received: 02/26/2024] [Accepted: 12/16/2024] [Indexed: 01/07/2025] Open
Abstract
BACKGROUND Cancer requires interdisciplinary intersectoral care. The Care Coordination Instrument (CCI) captures patients' perspectives on cancer care coordination. We aimed to translate, adapt, and validate the CCI for Germany (CCI German version). METHODS The original English version contains 29 items in three domains, measured on a 4-point Likert scale (strongly disagree to strongly agree). Validation was conducted in three phases (mixed methods): (I) translation; (II) adaptation: pilot testing and revision in an iterative process using semi-structured, cognitive interviews with patients and professionals (physicians specializing in cancer), with interviews transcribed and qualitatively analyzed by inductive coding; and (III) validation: quantitative validation performed online (LimeSurvey), of at least 80 German patients, each with common cancer (breast, prostate) and rare cancer (different entities), with examination of factor structure (factor analysis) and determination of internal consistency (Cronbach's α) as well as potential influencing factors such as gender, education, or migration background (multivariable regression). RESULTS Six patients and six professionals tested the translated instrument for comprehensibility, readability, and acceptability. Two items were consistently problematic for interviewees. A 31-item version (29 items + 2 alternative items) was validated in 192 patients. The alternative items had a higher variance in response behavior and were better understood; therefore, they replaced the two problematic items. However, the three original domains could not be confirmed statistically. Exploratively, a two-factorial structure (with cross-loadings) emerged, which can be interpreted as "communication/information" (16 items) and "need-based navigation" (17 items). Overall, the instrument had a high internal consistency (total score α = 0.931, M = 47.16, SD = 14.25; communication/information α = 0.924, M = 30.14, SD = 8.93; need-based navigation α = 0.868, M = 23.99, SD = 8.37). Significant factors on the care coordination score are treatment location (hospital vs. private practice oncologist M = -9.83 score points, p = 0.011) and gender (women vs. men M = 8.92 score points, p = 0.002). CONCLUSION The CCI German version is a valid instrument for measuring patients' perceptions of cancer care coordination. Both domains reflect important aspects of care. The sensitivity of the CCI should be examined in future studies involving different cancer entities.
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Affiliation(s)
- Anne Werner
- Institute for Health and Nursing Science, Faculty of Medicine, Martin Luther University Halle-Wittenberg, Halle (Saale), Germany.
| | - Anke Steckelberg
- Institute for Health and Nursing Science, Faculty of Medicine, Martin Luther University Halle-Wittenberg, Halle (Saale), Germany
| | - Alexandra Strobel
- Institute of Medical Epidemiology, Martin Luther University Halle Wittenberg, Biostatistics, and Informatics, Halle (Saale), Germany
| | - Andreas Wienke
- Institute of Medical Epidemiology, Martin Luther University Halle Wittenberg, Biostatistics, and Informatics, Halle (Saale), Germany
| | - Heike Schmidt
- Institute for Health and Nursing Science, Faculty of Medicine, Martin Luther University Halle-Wittenberg, Halle (Saale), Germany
- Department of Radiation Oncology, University Hospital of the Martin Luther University Halle-Wittenberg, Halle (Saale), Germany
| | - Dirk Vordermark
- Department of Radiation Oncology, University Hospital of the Martin Luther University Halle-Wittenberg, Halle (Saale), Germany
| | - Patrick Michl
- Department of Internal Medicine IV, Heidelberg University Hospital, Heidelberg, Germany
| | - C Benedikt Westphalen
- Department of Medicine III and Comprehensive Cancer Center Munich, University Hospital, Ludwig-Maximilians University Munich, Munich, Germany
| | - Julia Lühnen
- Institute for Health and Nursing Science, Faculty of Medicine, Martin Luther University Halle-Wittenberg, Halle (Saale), Germany
- Charité - Universitätsmedizin Berlin, corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Institute of Clinical Nursing Science, Berlin, Germany
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Mahungururo MJ, Horiuchi S, Shishido E. Observational study of the third delay in emergency obstetric triage at the referral national hospital in Tanzania: Baseline survey. Jpn J Nurs Sci 2025; 22:e12639. [PMID: 39734265 DOI: 10.1111/jjns.12639] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Grants] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 05/27/2024] [Revised: 11/11/2024] [Accepted: 11/17/2024] [Indexed: 12/31/2024]
Abstract
AIM This study aimed to grasp the third delay using an observational method of actual nurses/midwives' practice overtime during care provision to emergency obstetric patients in a tertiary referral national hospital. METHODS A prospective quantitative design was employed to observe the 24-h obstetric triage process from February 4 to March 7, 2023. RESULTS This study involved observations of 120 obstetric patients with mean maternal age of 29.1 years (SD = 5.5); 81.6% were between 20 and 35 years, 14.2% were over 35 years, and 4.2% were under 20 years. There were 99 (82.5%) pregnant women: 67.7% were preterm, 29.3% term, and 3% postdate, and there were 21 (17.5%) postpartum women. Initial diagnoses were postpartum hemorrhage, 9 (7.5%), antepartum hemorrhage, 15 (12.5%), eclampsia, 13 (10.8), severe preeclampsia, 19 (15.9), preeclampsia, 12 (10%), obstructed labor, 3 (2.5%), previous scar, 13 (10.8%), and others, 36 (30%). Waiting time was within 15 minutes for 30.8% of the observations. Median waiting time from registration to consultation was 9 min. Interquartile range (IQR) for postpartum hemorrhage was 3.5-23.5 min, and IQR for eclampsia was 11.5-117.5. There were no maternal deaths during the 24-h observation of each obstetric patient. CONCLUSION The obstetric triage process requires additional training for triaging time-sensitive obstetric complications; the wide IQR of waiting time indicated management misalignments thus causing the third delay. The clinical priority of obstetric patients with leading risk factors for morbidity and mortality, such as hypertensive disorders of pregnancy and hemorrhage, needs to be approached within a continuum of care.
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Affiliation(s)
- Mugara Joseph Mahungururo
- Department of Maternal and Reproductive Health, Muhimbili National Hospital, Dar es Salaam, Tanzania
- St. Luke's International University, Tokyo, Japan
| | | | - Eri Shishido
- St. Luke's International University, Tokyo, Japan
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Klein B, Perfetto EM, Oehrlein EM, Weston F, Lobban TCA, Boutin M. Measuring and Demonstrating the Value of Patient Engagement Across the Medicines Lifecycle: A Patient Engagement Impact Measurement Framework. THE PATIENT 2025; 18:3-18. [PMID: 39285138 PMCID: PMC11717831 DOI: 10.1007/s40271-024-00713-7] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [MESH Headings] [Grants] [Track Full Text] [Subscribe] [Scholar Register] [Accepted: 08/13/2024] [Indexed: 01/11/2025]
Abstract
As the pharmaceutical industry advances towards more patient-focused product development, it is well recognized that meaningful patient engagement is required for the authentic patient voice to inform research and regulatory decisions. However, for this to happen systematically and consistently across the industry, there is still a need to evaluate and communicate the value of patient engagement to all stakeholders. Evaluating engagement also informs process improvement, elevating the value further. We describe the development of a conceptual, yet practical, framework for measuring the impact of engagement to achieve this. The framework depicts how metrics can be used to capture and assess the inputs, outputs, and value of patient engagement across the medicines lifecycle. Although conceived in the context of systems and processes within one company, Novartis, the framework was co-created with patient advisors and designed to be both patient-relevant and adaptable for any pharmaceutical organization. The adoption and evolution of the framework will help to demonstrate the value-to patients, healthcare systems, and businesses-of integrating patient engagement into core activities across the medicines lifecycle. We encourage the pharmaceutical industry to apply impact measurement to build a robust evidence base, through measuring, publishing, and communicating the value of patient engagement.
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Affiliation(s)
| | - Eleanor M Perfetto
- Department of Pharmaceutical Health Services Research, University of Maryland, Baltimore, MD, USA
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Dickerson PS. Linking Gaps and Outcomes: Why It Matters. J Nurses Prof Dev 2025; 41:3-7. [PMID: 39641502 DOI: 10.1097/nnd.0000000000001082] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Indexed: 12/07/2024]
Abstract
This article explores the importance of connecting gaps and outcomes to ensure delivery of quality professional development activities. Designing and implementing activities to close or narrow gaps and produce measurable outcomes supports the value of nursing professional development in advancing goals of departments, organizations, and consumer health. Implications for professional development associates as well as novice, competent, and advanced nursing professional development practitioners are addressed.
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Affiliation(s)
- Pamela S Dickerson
- Pamela Dickerson, PhD, RN, NPDA-BC, FAAN, is Nursing Professional Development Specialist and Consultant, Westerville, Ohio
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Ope BW, Wasan T, Hirst JE, Mullins E, Norton R, Peden M. Measurement, determinants and outcomes of maternal care satisfaction in Nigeria: a systematic review. BMJ PUBLIC HEALTH 2025; 3:e001278. [PMID: 40017937 PMCID: PMC11843491 DOI: 10.1136/bmjph-2024-001278] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Grants] [Track Full Text] [Figures] [Subscribe] [Scholar Register] [Received: 04/05/2024] [Accepted: 01/16/2025] [Indexed: 03/01/2025]
Abstract
Introduction Maternal mortality rates are unacceptably high in Nigeria. Understanding women's satisfaction with the maternity health system is fundamental, as perceived quality of care is a determinant of service utilisation and improved birth outcomes. Objectives This systematic review aims to explore patients' satisfaction with maternal healthcare in Nigeria, examining the measurement, determinants, and outcomes of satisfaction. Design A systematic review following the Preferred Reporting Items for Systematic Reviews and Meta-Analyses 2020 guidelines. Data sources Searches were conducted in Embase, Maternity and Infant Care, Global Health, Ovid, Africa Journals Online, Cochrane Central Register of Controlled Trials, MEDLINE, Web of Science, Cumulative Index to Nursing and Allied Health Literature (CINAHL), Scopus and Google Scholar, alongside citation searches of relevant studies. Eligibility criteria Original studies assessing patient satisfaction with maternal health services in Nigeria were included. There were no restrictions on study design types. Studies were excluded if they did not clearly define how satisfaction was measured or did not focus on the maternal health service domains under review (ie, antenatal, delivery, and/or postnatal care). Data extraction and synthesis Key information relevant to this study was extracted into an Excel spreadsheet and narratively synthesised. The Quality Assessment for Diverse Studies tool was used to appraise the quality of the selected literature. Results Maternal care satisfaction (MCS) ratings are high in Nigeria, but this may either indicate genuine positive experiences or be influenced by measurement-related biases. Several factors determine women's satisfaction with maternity services. Key factors influencing MCS in Nigeria are positive client-provider relationships, a favourable hospital environment with easy accessibility and affordable care costs. While our study demonstrated a correlation between MCS and socioeconomic and demographic factors, there is no complete consensus within the literature about this correlation. Furthermore, patient satisfaction was associated with women's future health-seeking behaviour and willingness to recommend care to others. Conclusion Understanding the multifaceted nature of MCS determinants and outcomes can better equip us to provide the support and care that mothers need to thrive. The findings from this study can inform policy, improve health responsiveness and ensure that women are provided with satisfactory and patient-centred maternity care, hence leading to a decline in poor pregnancy outcomes in Nigeria. It also highlights the need for robust methodologies that accurately measure women's experiences, which is essential for enhancing the quality of maternal health services. PROSPERO registration number A protocol was developed for this study and published on PROSPERO, the International Prospective Register of Systematic Reviews (CRD42023414771).
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Affiliation(s)
- Beatrice Wuraola Ope
- Imperial College London Faculty of Medicine, London, UK
- Imperial College London, The George Institute for Global Health UK, London, UK
| | - Tavleen Wasan
- Imperial College London Faculty of Medicine, London, UK
| | - Jane E Hirst
- Imperial College London, The George Institute for Global Health UK, London, UK
- University of Oxford Nuffield Department of Women's & Reproductive Health, Oxford, Oxfordshire, UK
| | - Edward Mullins
- Imperial College London, The George Institute for Global Health UK, London, UK
- Imperial College London Department of Metabolism Digestion and Reproduction, London, UK
| | - Robyn Norton
- Imperial College London, The George Institute for Global Health UK, London, UK
- The George Institute for Global Health, Sydney, New South Wales, Australia
| | - Margaret Peden
- Imperial College London Faculty of Medicine, London, UK
- Imperial College London, The George Institute for Global Health UK, London, UK
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Alizadeh T, Noveiry MJS, Karkhah S, Leyli EK, Kohan KS, Vajargah PG. Service Quality in Iranian Hospitals From Patients' Perspectives Based on the SERVQUAL Model: A Systematic Review and Meta-Analysis. Health Sci Rep 2025; 8:e70362. [PMID: 39846046 PMCID: PMC11752147 DOI: 10.1002/hsr2.70362] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Download PDF] [Figures] [Journal Information] [Subscribe] [Scholar Register] [Received: 08/22/2024] [Revised: 12/15/2024] [Accepted: 01/03/2025] [Indexed: 01/24/2025] Open
Abstract
Background This study aimed to evaluate the service quality in Iranian hospitals from patients' perspectives based on the SERVQUAL model. Materials and Methods A thorough exploration of online electronic databases, including Scopus, PubMed, Web of Science, IranMedex, and the Scientific Information Database (SID), was undertaken using keywords extracted from Medical Subject Headings such as "Quality of Health Care," "Hospital," and "Patients" spanning from the earliest available records up to August 11, 2023. Results In the context of 25 cross-sectional studies encompassing a collective participant pool of 8021 hospitalized patients in Iranian medical facilities, an assessment of patients' perspectives on the quality of hospital services revealed a mean perception score of 3.54 (SE = 0.08). Concurrently, the mean expectation score for the quality of services was determined to be 4.43 (SE = 0.06). Using the SERVQUAL model, the overall disparity between patients' perceptions and expectations was calculated as -0.89. Subsequent examination of specific dimensions within the SERVQUAL framework revealed gaps between patients' perceptions and expectations in the tangibility dimension (-0.84), reliability dimension (-0.94), responsiveness dimension (-0.91), assurance dimension (-0.89), and empathy dimension (-0.82). Conclusion Therefore, healthcare administrators consider the study's findings as a motivating force to initiate measures aimed at improving service quality in Iranian hospitals. Tackling the recognized shortcomings and areas requiring enhancement holds the promise of raising patient satisfaction levels and, consequently, improving overall healthcare outcomes.
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Affiliation(s)
- Tara Alizadeh
- Department of Medical‐Surgical Nursing, School of Nursing and MidwiferyGuilan University of Medical SciencesRashtIran
| | - Marzieh Jahani Sayad Noveiry
- Department of Medical‐Surgical Nursing, School of Nursing and MidwiferyGuilan University of Medical SciencesRashtIran
| | - Samad Karkhah
- Department of Medical‐Surgical Nursing, School of Nursing and MidwiferyGuilan University of Medical SciencesRashtIran
| | - Ehsan Kazemnezhad Leyli
- Department of Biostatistics, School of Health, Road Trauma Research CenterGuilan University of Medical SciencesRashtIran
| | - Kobra Salami Kohan
- Department of Nursing, School of Nursing and MidwiferyIran University of Medical SciencesTehranIran
- Department of Critical Care Nursing, Shahid Beheshti School of Nursing and MidwiferyGuilan University of Medical SciencesRashtIran
| | - Pooyan Ghorbani Vajargah
- Department of Medical‐Surgical Nursing, School of Nursing and MidwiferyGuilan University of Medical SciencesRashtIran
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Malhotra C. The Ideal vs Reality: Is the Pursuit of a "Good Death" Hindering End-of-Life Care? J Am Med Dir Assoc 2025; 26:105349. [PMID: 39542037 DOI: 10.1016/j.jamda.2024.105349] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 09/30/2024] [Revised: 10/02/2024] [Accepted: 10/06/2024] [Indexed: 11/17/2024]
Affiliation(s)
- Chetna Malhotra
- Lien Centre for Palliative Care, Program in Health Services and Systems Research, Duke-NUS Medical School, Singapore
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Anikwe CC, Umeononihu OS, Anikwe IH, Ikeotuonye AC, Ikeoha CC, Asiegbu OG, Eze JN, Nnadozie UU, Maduba CC, Okeke MP, Eleje GU. The birth satisfaction scale: Igbo adaptation, validation, and reliability study. BMC Pregnancy Childbirth 2024; 24:876. [PMID: 39732627 DOI: 10.1186/s12884-024-07104-8] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 06/24/2024] [Accepted: 12/23/2024] [Indexed: 12/30/2024] Open
Abstract
BACKGROUND An important indicator of mothers' satisfaction with their care is birth satisfaction. Maternal health care can only be deemed to be of good quality if mothers are satisfied with the care they received. This increases maternal joy. A vital tool for understanding the delivery process from the mother's point of view is the Birth Satisfaction Scale - Revised (BSS-R). Nigeria stands to gain from the modification and implementation of BSS-R in terms of improving care, measuring maternal health, and reducing the high prevalence of adverse obstetric outcomes. OBJECTIVE The purpose of this study is to convert the Birth Satisfaction Scale - Revised (BSS-R) into the Igbo language and examine its validity and reliability. MATERIALS AND METHODS A study with a cross-sectional design was conducted on 500 women who gave birth at the Alex Ekwueme Federal University Teaching hospital in Abakaliki between March 1 and August 31, 2019. In the postnatal ward, data were gathered using the BSS-R questionnaire. SPSS version 20 was used to analyze the collected data. Through validation and reliability analyses, the scale's characteristics were examined. P-values less than 0.05 indicate a significant level. RESULTS The mean age of the women was 28.8 ± 4.7 years; the majority (230, 46.0%) were between the age group of 30-40 years. Three-fifth of the study participants had formal education. The majority (460, 92.0%) were multipara and had delivered mostly (326, 65.2%) at Full Term. Three Component loading were identified in the Scale. Examination of the pattern matrix showed three components/themes: support by staff during labour (I felt well supported by staff during my labour and birth (r = 0.875); parturient confidence during labour (I felt out of control during my birth experience (r = 0.714) and distraught during labour (I was not distressed at all during labour (r = 0.821). Communality value (r2) mostly ranged between 0.507 and 0.801. The scale had a Cronbach's alpha coefficient of 0.62. This increased to 0.70 following removal of "I was not distressed at all during labour" responses from the analysis. CONCLUSION The Igbo version of BSS-R has good internal consistency. It is a valid and a reliable scale to be employed in assessing maternal satisfaction among Igbo speaking women in the study area and Nigeria in general.
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Affiliation(s)
- Chidebe Christian Anikwe
- Department of Obstetrics & Gynaecology, Nnamdi Azikiwe University Teaching Hospital, Nnewi, Anambra State, Nigeria.
- Department of Obstetrics & Gynaecology, Alex Ekwueme Federal University Teaching Hospital, Abakaliki, Ebonyi State, Nigeria.
- Department of Obstetrics and Gynaecology, Nnamdi Azikiwe University Teaching Hospital Nnewi, Anambra State., Anambra State, P.M.B 5025, Nnewi, Nigeria.
| | - Osita Samuel Umeononihu
- Department of Obstetrics & Gynaecology, Nnamdi Azikiwe University Teaching Hospital, Nnewi, Anambra State, Nigeria
| | - Ifeyinwa Helen Anikwe
- Department of HIV Care, Nnamdi Azikiwe University Teaching Hospital, Nnewi, Anambra State, Nigeria
| | - Arinze Chidiebele Ikeotuonye
- Department of Obstetrics & Gynaecology, Nnamdi Azikiwe University Teaching Hospital, Nnewi, Anambra State, Nigeria
| | - Cyril Chijioke Ikeoha
- Department of Obstetrics & Gynaecology, Alex Ekwueme Federal University Teaching Hospital, Abakaliki, Ebonyi State, Nigeria
| | - Obiora Gk Asiegbu
- Department of Obstetrics & Gynaecology, Alex Ekwueme Federal University Teaching Hospital, Abakaliki, Ebonyi State, Nigeria
| | - Justus Ndulue Eze
- Department of Obstetrics & Gynaecology, Alex Ekwueme Federal University Teaching Hospital, Abakaliki, Ebonyi State, Nigeria
| | | | - Charles Chidiebele Maduba
- Department of Surgery, Alex Ekwueme Federal University Teaching Hospital, Abakaliki, Ebonyi State, Nigeria
| | - Mbanefo Paul Okeke
- Department of Obstetrics & Gynaecology, Nnamdi Azikiwe University Teaching Hospital, Nnewi, Anambra State, Nigeria
| | - George Uchenna Eleje
- Department of Obstetrics & Gynaecology, Nnamdi Azikiwe University Teaching Hospital, Nnewi, Anambra State, Nigeria
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Ampomah IG, Ampomah GA, Emeto TI. Integrating modern and herbal medicines in controlling malaria: experiences of orthodox healthcare providers in Ghana. Arch Public Health 2024; 82:240. [PMID: 39710695 DOI: 10.1186/s13690-024-01472-5] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 10/19/2024] [Accepted: 12/06/2024] [Indexed: 12/24/2024] Open
Abstract
BACKGROUND In Ghana, the government has integrated herbal medicine into the formal healthcare system in response to widespread use of traditional remedies. However, empirical evidence supporting the contribution of integrated healthcare to malaria control remains limited. This study employed a phenomenological qualitative research design to explore the experiences of medical doctors and pharmacists from the coastal, forest and savannah regions of Ghana regarding the integration of modern and herbal medicine in the treatment and control of malaria. Donabedian's framework for evaluating the quality of healthcare served as the foundational theoretical framework for this research. METHODS Data were collected through individual in-depth interviews involving 26 participants and analysed using a framework analytical approach. RESULTS The findings revealed that inadequate political commitment to the practice of integration has led to several challenges, including the high cost of herbal anti-malaria medications, limited promotional activities surrounding integration, a shortage of qualified medical herbalists, inconsistent supply chains for herbal anti-malaria treatments, and a lack of standardisation in herbal medicine practices. Participants had divergent views regarding the impact of integration on malaria control; while medical doctors believed that the intervention has not significantly contributed to reducing malaria prevalence in Ghana, pharmacists viewed the presence of herbal clinics within government hospitals as an effective and sustainable alternative for treating malaria. CONCLUSION Reflecting on these results, it is imperative for policymakers to explore strategies that could enhance the effectiveness of an integrated health system, thereby increasing the contribution of herbal medicine towards achieving a malaria free nation. Future research could benefit from including policymakers, heads of health directorates, and community members, regarding the role of public health interventions in addressing health inequities in Ghana.
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Affiliation(s)
- Irene G Ampomah
- Department of Population and Health, University of Cape Coast, Cape Coast, UC 182, Ghana.
- Public Health and Tropical Medicine, James Cook University, Townsville, Queensland , 4811, Australia.
| | - Genevieve A Ampomah
- Department of Sociology, Kwame Nkrumah University of Science and Technology, Kumasi, Ghana
| | - Theophilus I Emeto
- Public Health and Tropical Medicine, James Cook University, Townsville, Queensland , 4811, Australia
- World Health Organization Collaborating Centre for Vector-Borne and Neglected Tropical Diseases, James Cook University, Townsville, Queensland, 4811, Australia
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Denkel LA, Arnaud I, Brekelmans M, Puig-Asensio M, Amin H, Gubbels S, Iversen P, Abbas M, Presterl E, Astagneau P, van Rooden S. Automated surveillance for surgical site infections (SSI) in hospitals and surveillance networks-expert perspectives for implementation. Antimicrob Resist Infect Control 2024; 13:155. [PMID: 39716285 DOI: 10.1186/s13756-024-01505-2] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 05/31/2024] [Accepted: 12/12/2024] [Indexed: 12/25/2024] Open
Abstract
BACKGROUND This work aims at providing practical recommendations for implementing automated surveillance (AS) of surgical site infections (SSI) in hospitals and surveillance networks. It also provides an overview of the steps, choices, and obstacles that need to be taken into consideration when implementing such surveillance. Hands-on experience with existing automated surveillance systems of SSI (AS SSI systems) in Denmark, France, the Netherlands and Spain is described regarding trend monitoring, benchmarking, quality control, and research for surveillance purposes. METHODS Between April and October 2023, specific aspects/options of various surveillance purposes for AS SSI were identified during regular meetings of the SSI working group in the PRAISE (Providing a Roadmap for Automated Infection Surveillance in Europe) network. Expert discussions provided the basis for this perspective article. RESULTS Decisions for implementation of AS SSI systems highly depend on the purpose of the surveillance. AS SSI systems presented here differ according to study population, setting, central or local implementation; the level of automation, design, and the data sources used. However, similarities were found for the rationales of automation, design principles and obstacles that were identified. There was consensus among all the experts that shortcomings in interoperability of databases, limited time, a want of commitment on the part of stakeholders, and a shortage of resources for information technology (IT) specialists represent the main obstacles for implementing AS SSI. To overcome obstacles, various solutions were reported, including training in the development of AS systems and the interpretation of AS SSI results, early consultation of end-users, and regular exchanges between management levels, IT departments, infection prevention and control (IPC) teams, and clinicians. CONCLUSION Clarity on the intended application (e.g. purpose of surveillance) and information on the availability of electronic and structured data are crucial first steps necessary for guiding decisions on the design of AS systems. Adequate resources for IT specialists and regular communication between management, IT departments, IPC teams, and clinicians were identified as essential for successful implementation. This perspective article may be helpful for a wider implementation of more homogeneous AS SSI systems in Europe.
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Affiliation(s)
- Luisa A Denkel
- Institute of Hygiene and Environmental Medicine, Charité Universitätsmedizin Berlin, Humboldt-Universität Zu Berlin and Berlin Institute of Health, Hindenburgdamm 27, 12203, Berlin, Germany.
- National Reference Center for the Surveillance of Nosocomial Infections, Charité Universitätsmedizin Berlin, Humboldt-Universität Zu Berlin and Berlin Institute of Health, Berlin, Germany.
| | - Isabelle Arnaud
- Centre for Prevention of Healthcare-Associated Infections, Assistance Publique-Hôpitaux de Paris, Paris, France
| | - Manon Brekelmans
- Centre for Infectious Diseases Control, National Institute for Public Health and the Environment, Bilthoven, The Netherlands
- Department of Medical Microbiology and Infection Control, University Medical Centre Utrecht, Utrecht, The Netherlands
| | - Mireia Puig-Asensio
- Department of Infectious Diseases, Bellvitge University Hospital, L'Hospitalet de Llobregat, Barcelona, Spain
- Centro de Investigación Biomédica en Red de Enfermedades Infecciosas (CIBERINFEC¸ CB21/13/00009), Instituto de Salud Carlos III, Madrid, Spain
- Institut d'Investigació Biomèdica de Bellvitge (IDIBELL), L'Hospitalet de Llobregat, Spain
| | - Hoger Amin
- Department of Data Integration and Analysis, Staten Serum Institut, Copenhagen, Denmark
| | - Sophie Gubbels
- Department of Data Integration and Analysis, Staten Serum Institut, Copenhagen, Denmark
| | - Pernille Iversen
- Regionernes Kliniske Kvalitetsudviklingsprogram, Aarhus, Denmark
| | - Mohamed Abbas
- Infection Control Programme and WHO Collaborating Centre on Infection Prevention and Control and Antimicrobial Resistance, Geneva University Hospitals, Geneva, Switzerland
- MRC Centre for Global Infectious Disease Analysis, Jameel Institute, School of Public Health, Imperial College London, London, UK
| | - Elisabeth Presterl
- Department of Hospital Epidemiology and Infection Control, Medical University of Vienna, Vienna, Austria
| | - Pascal Astagneau
- Centre for Prevention of Healthcare-Associated Infections, Assistance Publique-Hôpitaux de Paris, Paris, France
- Institute of Epidemiology and Public Health, INSERM, Sorbonne University, Paris, France
| | - Stephanie van Rooden
- Centre for Infectious Diseases Control, National Institute for Public Health and the Environment, Bilthoven, The Netherlands
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Muzumbukilwa TW, Manimani RG, Vagiri RV, Nlooto MZ, Bihehe MD, Mushebenge AGA. Developing HIV indicators for clinical care quality assessment: relevance and practicality evaluated by healthcare practitioners in South Africa and Democratic Republic of Congo. BMJ Open Qual 2024; 13:e002857. [PMID: 39719273 PMCID: PMC11667354 DOI: 10.1136/bmjoq-2024-002857] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Track Full Text] [Journal Information] [Subscribe] [Scholar Register] [Received: 04/06/2024] [Accepted: 12/03/2024] [Indexed: 12/26/2024] Open
Abstract
BACKGROUND The use of quality indicators in healthcare systems is one of the factors that improve the quality of health services. However, indicators for assessing HIV clinical care in the context of low- and middle-income countries are not fully explored. Some existing indicators were established within the context of developed countries and are primarily defined for community care, with limited emphasis on the hospital setting. Additionally, these indicators often do not account for the local practicality and relevance of quality measures in the context of low- and middle-income countries. AIM To assess the clinical significance and practical applicability of these indicators from the perspective of healthcare professionals specialising in HIV care in South Africa and Democratic Republic of Congo. METHODS After performing a systematic review of quality indicators employed in the evaluation of clinical care for individuals with HIV, we conducted an observational, cross-sectional study. In this research, 30 physicians filled out two questionnaires with a core set of indicators, to establish the most pertinent and practically indicators for evaluation of the HIV clinical care. A Likert scale was used to rank the indicators. Kendall's tau-B rank correlation analysis was also performed. RESULTS From the initial list of 88 quality indicators, 43 were identified as the most relevant and practical in HIV clinical care. Healthcare professionals deemed the monitoring and therapy domain to be the most pertinent and useful indicators out of the seven different clinical domains, followed by the functional organisational structure domain. CONCLUSION This instrument may be a tool for healthcare professionals and hospital administrators to improve the quality of HIV clinical care.
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Affiliation(s)
- Tambwe Willy Muzumbukilwa
- Pharmaceutical Sciences, University of KwaZulu-Natal, Durban, South Africa
- University of KwaZulu-Natal, Durban, South Africa
| | | | | | | | - Masemo Dieudonne Bihehe
- Health Sciences, Universite Evangelique en Afrique Faculte de Medecine et Sante Communautaire, Bukavu, Congo (the Democratic Republic of the)
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Perez Jolles M, Willging C, Tufte J, Ostendorf D, Kwan BM, Sevick C, Dorsey Holliman B, Weiner BJ. Development and validation of a pragmatic measure of cocreation in research engagement: a study protocol. BMJ Open 2024; 14:e091966. [PMID: 39806684 PMCID: PMC11667353 DOI: 10.1136/bmjopen-2024-091966] [Citation(s) in RCA: 0] [Impact Index Per Article: 0] [Reference Citation Analysis] [Abstract] [Key Words] [MESH Headings] [Grants] [Track Full Text] [Journal Information] [Submit a Manuscript] [Subscribe] [Scholar Register] [Received: 08/02/2024] [Accepted: 11/29/2024] [Indexed: 01/16/2025] Open
Abstract
INTRODUCTION Cocreation, a collaborative process of key interested partners working alongside researchers, is fundamental to community-engaged research. However, the field of community-engaged research is currently grappling with a significant gap: the lack of a pragmatic and validated measure to assess the quality of this process. This protocol addresses this significant gap by developing and testing a pragmatic cocreation measure with diverse community and research partners involved in participatory health-related research. A valid measure for evaluating the quality of the cocreation process can significantly promote inclusive research practices and outcomes. METHODS AND ANALYSIS The measure consists of two components: (1) an iterative group assessment to prioritise cocreation principles and identify specific activities for achieving those principles and (2) a survey assessing individual partner experience. An expert panel of 16-20 patients, community, healthcare providers and research partners, will participate in a modified Delphi process to assist in construct delineation and assess content validity using group discussions and rating exercises. We will compute survey items using an Item-Level Content Validity Index and a modified kappa statistic to adjust for chance agreement with panel members' ratings. We will then conduct cognitive interviews with a new group of 40 participants to assess survey item comprehension and interpretation, applying an iterative coding process to analyse the data. Finally, we will assess the measure's psychometric and pragmatic characteristics with a convenience sample of 300 participants and use the Psychometric and Pragmatic Evidence Rating Scale. Construct validity will be assessed by examining survey data using confirmatory and exploratory factor analysis. ETHICS AND DISSEMINATION This funded study (years 2024-2025) has been approved by the Institutional Review Board at the University of Colorado, Denver. The team will share the study findings online, with key partners, and by publishing results in a peer-reviewed journal.
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Affiliation(s)
- Monica Perez Jolles
- Adult and Child Center for Health Outcomes Research and Delivery Science (ACCORDS), University of Colorado Anschutz Medical Campus, School of Medicine, Aurora, Colorado, USA
- Department of General Pediatrics, University of Colorado Anschutz Medical Campus, School of Medicine, Aurora, Colorado, USA
| | - Cathleen Willging
- Pacific Institute for Research and Evaluation, Albuquerque, New Mexico, USA
| | | | - Danielle Ostendorf
- Department of Kinesiology, Recreation, and Sport Studies, University of Tennessee, Knoxville, Tennessee, USA
| | - Bethany M Kwan
- Adult and Child Center for Health Outcomes Research and Delivery Science, Department of Emergency Medicine, University of Colorado, School of Medicine, Aurora, Colorado, USA
| | - Carter Sevick
- Adult and Child Center for Health Outcomes Research and Delivery Science (ACCORDS), University of Colorado Anschutz Medical Campus, School of Medicine, Aurora, Colorado, USA
| | - Brooke Dorsey Holliman
- Department of Family Medicine, University of Colorado, School of Medicine, Aurora, Colorado, USA
- Adult and Child Center for Health Outcomes Research and Delivery Science (ACCORDS), University of Colorado Anschutz Medical Campus, Aurora, Colorado, USA
| | - Bryan J Weiner
- Department of Global Health, University of Washington, Seattle, Washington, USA
- Department of Health Systems and Population Health, University of Washington, Seattle, Washington, USA
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