Phenomenology in pediatric nursing: Lessons from studies of mothers caring for children with chronic illnesses

Abstract

Phenomenology offers a powerful methodological lens through which pediatric nursing researchers can explore the emotional, cultural, and relational dimensions of caring for children with chronic illnesses. Drawing on a series of qualitative studies conducted with Jordanian mothers of children living with conditions such as type 1 diabetes mellitus, cerebral palsy, autism spectrum disorder, end-stage renal failure, and glycogen storage disease, this article reflects on the practical and philosophical applications of phenomenological inquiry in pediatric contexts. The insights presented highlight how lived experiences reveal layers of meaning often overlooked within biomedical models of care, including spiritual interpretation, cultural expectations, stigma, maternal resilience, and the evolving identity of caregiving mothers. Ultimately, the article illustrates how phenomenological principles, particularly bracketing, reflexivity, and sustained engagement during interviews, support the development of nuanced, context-sensitive understandings that can inform pediatric nursing practice. By integrating lessons across multiple studies, this Field of Vision article demonstrates how phenomenology enriches pediatric nursing research and contributes to more holistic, empathetic, and culturally grounded approaches to clinical care.

Keywords: Phenomenology; Pediatric nursing; Chronic illness; Maternal caregiving; Lived experience; Qualitative research

Core Tip: This article highlights phenomenology as a powerful methodological approach for pediatric nursing research by reflecting on a body of studies involving mothers caring for children with chronic illnesses. Drawing on cross-study insights, the article illustrates how phenomenological practices such as bracketing, reflexivity, and relational interviewing enable a deeper understanding of caregiving, meaning-making, and maternal identity beyond biomedical perspectives. By foregrounding lived experience, the article demonstrates how phenomenology can strengthen family-centered pediatric care and inform more humane, culturally responsive nursing research and practice.