How reliable is online diffusion of medical information targeting patients and families?

Table 1 Identification of the sites with complete preservation of contents relative to the Jeffrey Modell Foundation list among the top 100 accessed by Google

http://www.jmfworld.com/

http://www.info4pi.org

http://www.pia.org.uk/publications/10_signs_of_pia

http://www.nichd.nih.gov/health/topics/primary_immunodeficiency.cfm

http://www.cisociety.com/files/what-is-pid.html

http://www.hizentra.com/docs/hizentra_10_warning_signs_pidd.pdf

http://www.justmommies.com/forums/f325-choosing-not-to-vaccinate/2004706-10-warning-signs-primary-immunodeficiency-psa-conjunction-cdc.html

http://pediatrics.about.com/od/primaryimmunodeficiency/Primary_Immunodeficiency.htm

https://http://www.mygardian.com/gardian/.../resources.html;.

http://www.allergyclinic.co.nz/guides/74.html

http://smr.newswire.ca/en/canadian-immunodeficiency-society/april-29-world-primary-immunodeficiency-day

http://www.gammagardliquid.com/professional-resources/order-tools-and-resources.html

http://www.treatingpi.com/primary-immunodeficiency-faq.aspx

http://www.uhhospitals.org/rainbowchildren/ourservices/allergyimmunology/tabid/3016/patientresources.aspx

http://smr.newswire.ca/en/canadian-immunodeficiency-society/april-29-world-primary-immunodeficiency-day

http://www.justmommies.com/forums/f325-choosing-not-to-vaccinate/2004706-10-warning-signs-primary-immunodeficiency-psa-conjunction-cdc.html

http://www.baxterbiotherapeutics.com/us/us_t_immunoglobulin.html

https://webforms.baxterbioscience.com/immune/order.jspa

http://allergistmommy.blogspot.com/2011/07/always-sick-could-it-be-immune.html

http://journals.lww.com/pidj/Citation/2011/10000/Clinical_Features_That_Identify_Children_With.6.aspx

https://http://www.wellpartner.com/specialtyrxfaqs.aspx

http://www.uhhospitals.org/.../immunodeficiency.pdf -

http://www.chw.org/display/PPF/DocID/36622/router.asp

http://www.biorx.net/brochures/10-Warning-Signs-of-PI.pdf

http://healthlibrary.stanford.edu/resources/bodysystems/immune_pid.html

http://www.pia.org.uk/gp_info.html

http://allergycases.org/2009/08/primary-immunodeficiency-disorders-pidd.html

http://www.savanna.k12.ok.us/Nurse/illustrated_poster_eng%20illustrated.pdf

http://www.isitpid.com/news_detail.cfm?e=7

http://ainotes.wikispaces.com/Immunodeficiency+Warning+Signs

http://nihrecord.od.nih.gov/newsletters/10_31_2000/story02.htm

http://www.allergyclinic.co.nz/whatsnew.html

http://www.babycenter.com/204_most-warning-signs-for-kids-8217-immune-disorders-are-off-ba_10349792.bc

http://www.gammaked.com/media/10_Warning_Signs_of_PI.pdf

http://www.disabled-world.com/disability/awareness/primary-immunodeficiency.php

https://plus.google.com/110859855629071891085/posts/5ijJ3nVYayp

http://www.ipopi.org/uploads/JMF%20Advocacy%20Toolkit_2011.pdf

http://books.google.com.br/books?id=H7GVhb27mo4C&pg=PA42&lpg=PA42&dq=10+Warning+Signs+of+Primary+Immunodeficiency&source=bl&o ts=pz0rX9QK2E&sig=wKp2GGabmE0g7q_GRYB-vpwTt3g&hl=pt-BR&ei=iqOLTqCCBuXm0QGUrvX6BA&sa=X&oi=book_result&ct=result&resnum=5 &ved=0CDgQ6AEwBDhQ#v=onepage&q=10%20Warning%20Signs%20of%20Primary%20Immunodeficiency&f=false

http://ezinearticles.com/comment.php?10-Warning-Signs-of-Primary-Immunodeficiency&id=1297957

http://dallasallergy.net/services/immunodeficiency

https://webforms.baxterbioscience.com/ggliquid/orderNew.jspa

http://www.doaj.org/doaj?func=abstract&id=467945

http://www.rare-diseases.eu/2010/IMG/Media/Czerniawska-PID%20Poster_Jeffrey%20Modell%20Foundation.pdf

Table 2 Variant versions of the Jeffrey Modell Foundation list in the first 100 pages retrieved by Google

Site consulted	10 warning signs of primary immunodeficiency of the Jeffrey Modell Foundation										I		JMF
	1	#2	#3	#4	#5	#6	#7	#8	#9	#10	Y/N	n	Direct link1	Indirect link
a	C	P	P	P	P	P	C	P	C	P	N	0	N	N
b	C	P	P	R	P	P	C	P	C	P	N	0	Y	N
c	C	C	C	R	P	C	R	R	R	C	Y	4	N	Y
d	C	P	P	P	P	P	C	P	C	P	N	0	Y	N
e	C	P	P	P	P	P	C	P	C	P	N	0	Y	N
f	C	P	P	P	P	P	C	P	C	P	N	0	Y	N
g	C	C	P	P	P	P	C	R	C	P	Y	1	N	Y
h	C	P	R	P	P	P	C	P	C	P	Y	4	Y	N
i	C	P	P	P	P	P	C	P	C	P	N	0	N	Y
j	C	P	R	P	P	P	C	P	R	P	Y	4	Y	N
k	C	P	P	P	P	P	C	P	C	P	N	0	Y	N
l	C	P	P	P	P	P	C	P	C	P	N	0	N	Y
m	C	P	P	P	P	P	C	P	C	P	N	0	Y	N
n	C	P	P	P	P	P	C	P	C	P	N	0	N	Y
o	C	P	P	P	P	P	C	P	C	P	N	0	Y	N

¹http://www.info4pi.org/aboutPI/index.cfm?section=aboutPI&content=warningsigns; ^ahttp://www.stopgettingsick.com/template.cfm-1685; ^bhttp://www.aafp.org/afp/2003/1115/p2011.html; ^chttp://www.livestrong.com/article/71656-top-ten-warning-signs-primary/; ^dhttp://docphyl.com/index.php?x=pages/pimmunodeficiency; ^ehttp://ezinearticles.com/?10-Warning-Signs-of-Primary-Immunodeficiency&id=1297957; ^fhttp://www.momlogic.com/resources/primary_immunodeficiency_diseases.php; ^ghttp://www.irishhealth.com/article.html?id=3927; ^hhttp://www.aefat.es/docs/inmunodefprim_aafp.pdf; ⁱhttp://www.bpl.co.uk/...primary-immunodeficiency/39; ^jhttp://www.aafp.org/afp/2003/1115/p2001.html; ^khttp://www.insidetoronto.com/insidetoronto/article/57439; ^lhttp://www.allergyconsumerreview.com/sinus-infection.html; ^mhttp://www.aacijournal.com/content/7/S1/S11; ⁿthegunnybag.files.wordpress.com/.../primary-im; ^ohttp://www.nichd.nih.gov/health/topics/primary_immunodeficiency.cfm. P: Preserved; R: Removed; I: Introduced; C: Changed content; n: Number of novel signs introduced. Search verified 04/23/2012.